@Mayuri_Saxena Wishing for words 🙁 what I can ‘Say’ IS your inspiration guides us and your such a blessing to the ALS community ❤️🙏💕
I managed not to cry during our testimony but I watched for the 1st time today and the tears flowed.
One thing not on camera is that @RepMikeQuigley was in the room to hear us even though he isn’t on the committee. THAT is how deeply he’s committed to this fight. He is amazing. twitter.com/repmikequigley…
Is going through
That you know
Thinking about @sabrevaya & @bsw5020 as they are still prob making their way back to their hotel. The ALS community is filled with pride, hope, love and gratitude. It’s a Good night moon like no other. Thank you
You don’t like masks and vaccine mandates? Well I don’t like Covid.
Steve Gleason - "Live Impossible"
4 days ago
People are wonderful!
Today's travel has been a bit chaotic, our United flight out of MSY was delayed to the point we'd be stuck in Denver. After some magic performed by the United team & Delta team, we're in SLC with Delta & headed for our destination late tonight.
Give me a break. The BASIS of science (I learned this in grade school) is that you make a hypothesis. You test it. You change your hypothesis based on new evidence. That’s why the science changes! WHAT’S SO HARD ABOUT THIS?
@TomCottonAR Perhaps Sir, you should cease with the inaccurate spreading of false information. SHAME ON YOU !!! People I loved died from Covid. You should hold no position in Government. At All !
21 months ago today my universe was turned upside down and inside out. Every 27th is a painful reminder that time did not stand still when Millie died.
Can you please share my #sweetMillieRose today? I like to know that she is being seen and thought of. Never forgotten. 💖
My aide asked don't I miss eating my food now that I only intake formula?
I told her I'd be lying if I said no, but the way I see it, I am grateful to receive a healthy formula that nourishes my body. There are those less fortunate that can eat but are starving in this world #ALS
Tomorrow I will roll my wheelchair to a plane and have 4 people load me into my seat. I’m flying to DC so @sabrevaya and I can testify in-person before Congress. Thank you Chairman, Chairwoman and Ranking Members for the chance to share the ALS community’s call for action.