Being Patient @Being_Patient_
Editorially independent source for news, science & human stories from #brainhealth experts, scientists, #caregivers & people living with #Alzheimers & #dementia beingpatient.com Joined May 2017-
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Clinicians have found that a rare, difficult to diagnose form of #dementia called #posteriorcorticalatrophy which can strike vision before affecting memory is usually a form of early-onset #Alzheimers #disease. Here's more: buff.ly/43vt8EG
Long-term care #insurance can feel out of reach for those already diagnosed with #Alzheimers or another #dementia. But you might be considering this insurance if you know such a #disease runs in your family. Here’s what you need to know: buff.ly/43CpIzV
⏰ Intermittent #fasting has become a popular dietary approach to help people lose or manage their weight. 🧠 So, what’s its relationship to #brainhealth? @BondUniversity #healthscience and medicine assistant professor Dr. Hayley O'Neill, PhD explains. beingpatient.com/fasting-brain-…
💊 @TauRx claims their #Alzheimers anti-tau #drug, HMTM, can slow #cognitivedecline and reduce #brain atrophy. 🤔 The catch: they aren’t using a placebo control in their Phase 3 study: buff.ly/4d9lpjU
Michele Castro's life changed after tests revealed the #PSEN1 gene. Since losing her mother and brother to #Alzheimers, she's an advocate for awareness in the Latino community. Her story is one of resilience and empowerment, fighting for the future. buff.ly/4aF00gq
🧠 Experts say that positive terminology can help reduce the stigma around #dementia — and make a #diagnosis not feel like a “death sentence.” In a recent panel on “Rethinking Concepts Like ‘Activities of Daily Living’ in Memory Care”, experts weigh in: buff.ly/4d7DHCf
🧑🔬 Scientists are turbocharging #brain scans with #AI to help diagnose — and understand — #Alzheimers and similar #neurodegenerativediseases. buff.ly/3xarADO
🧠 Scientists are seeking ways to stave off #neurodegenerative disorders like #Alzheimers. And in their search for clues, they’ve set their sights on a select cohort known as “superagers.” 🧓🏻 Here are 3 insights into Alzheimer’s resilience: buff.ly/3UlIPLB
💊 The @FDA pumps the breaks on the review process for drugmaker @EliLillyandCo candidate #Alzheimers #drug, #donanemab. buff.ly/49sKwft
🧠 @MadhavThambiset at the @NIHAging explains the latest key scientific breakthroughs in #Alzheimers #research including #lecanemab trials and beyond. 🔗 Here's more on #Alzheimers #drug breakthroughs: buff.ly/4aZDQGe
The Cognitive #Health Clues of #LongCOVID beingpatient.com/deborah-kan-lo… by @debkhk @Being_Patient_ #Alzheimers #dementia #coronavirus #SARSCoV2
Patient-founded nonprofit @VoicesofAlz created a bill of rights for people living with #Alzheimers. The authors hope it will change U.S. policymaking in a monumental way. Here's more: buff.ly/3U9ZIsR
👩 Women represent two-thirds of people living with #Alzheimer's. 🧠 @karolinskainst #neurobiologist Silvia Maioli explains a new #study which suggestions that the activation of a certain #brain enzyme could help protect women from developing disease. beingpatient.com/women-are-more…
🦠 Being Patient founder and EIC Deborah Kan discusses new and ongoing research into COVID-19 and #cognitivehealth, and talks about what it means for the #Alzheimers #research and #drug development fields. 🧠 More here: beingpatient.com/deborah-kan-lo…
Women make up 2/3rds of people w/ #Alzheimers & there seems to be a link w/ #Menopause. New research, discussed in @Being_Patient_ suggests activation of a brain protein could help protect #women from developing the disease. tinyurl.com/ytpwps6r
🎨 Creative outlets can benefit both individuals experiencing #cognitivedecline and their #caregivers. So, how can you incorporate them into your own life? Let's dive in: buff.ly/3vhRzZv
🍿 The food you choose to eat isn’t just linked to your physical and #mentalhealth, but also to your #cognitivefunction, #brain structure and #genetics, researchers at @Cambridge_Uni and @FudanUni discovered. buff.ly/3Uf0Z1L
The @EPA published a new fine particle air standard lowering the annual limit of PM2.5 particles permitted. @JenniferWeeks83, a senior editor at @ConversationUS, shares essential reads on the #health impacts of #airpollution — including on the #brain. beingpatient.com/epas-new-pollu…
🧠 Studies show that in some, the inherited genetic variant #ApoE4 could not only multiply your risk of developing #Alzheimers, but also your risk of experiencing brain bleeds from taking #monoclonalantibody treatments for Alzheimer's, like #Leqembi. buff.ly/3v0mB8e
💊 Scientists analyzed data from a #clinicaltrial of #multivitamins, suggesting it can drastically slow #cognitivedecline. 🤔 Experts say the #study is sound, but some of the conclusions drawn by the authors overstep the findings. Here's the low-down: buff.ly/49tO0xl
Ian Kremer @LEAD_Coalition
67K Followers 47K Following Working to end #Alzheimers/#dementia. @WUSTL @UMichLaw https://t.co/GJkJVm4vF2 https://t.co/dd0eOpRj6V https://t.co/1ARWoHKsQuAlzheimer's Associati.. @alzassociation
168K Followers 5K Following The Alzheimer’s Association is the leading voluntary health organization in Alzheimer's care, support and research. #ENDALZPatti LaFleur @carepatti
3K Followers 1K Following Millennial Daughter trying to navigate losing both of her parents from dementia. former teacher, current lover ❤️AlzAuthors @AlzAuthors
6K Followers 4K Following The global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others #AlzAuthors, Amazon AffiliateAD3 @AD3ENDALZ
1K Followers 500 Following I dream of the day ! That i will be able to remember that #Alzheimer once existed…..#ENDALZ 💜 #caregiving #father #hopeJean Lee @JeanLee18
5K Followers 4K Following Author of Alzheimer's Daughter, memoir, loss of both parents. Cofounder https://t.co/4uFsgjE1Yv, a 501(c)3 nonprofit https://t.co/3liKwNYe8P Amazon Associate.Dementia Friendly Ame.. @dfamerica_
3K Followers 1K Following DFA works with communities across the country to become more dementia friendly and runs Dementia Friends USA: https://t.co/F3gKtlBftu.UsAgainstAlzheimer's @UsAgainstAlz
16K Followers 2K Following We’re in a relentless pursuit to end #Alzheimers, America’s 6th leading killer, through prevention, early detection, and equal access to treatments. Join us!Alzheimer's Drug Disc.. @TheADDF
19K Followers 5K Following The Alzheimer's Drug Discovery Foundation's mission is to rapidly accelerate the discovery and development of drugs to prevent, treat, and cure #Alzheimers.Global Brain Health I.. @GBHI_Fellows
7K Followers 1K Following @AtlanticFellows for Equity in Brain Health program @UCSF @TCDDublin working to reduce the scale and impact of dementia. Learn more at https://t.co/vdq3M6QcZoDaniel C. Potts, MD, .. @DanielCPotts
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4K Followers 3K Following 🔸 Alzheimer's caregiver 🔸 Unpaidcarer 🔸 Blogger: https://t.co/o4rT6NSQNb 🔸 Caring for mum with Alzheimer's 10yrs 💜Jason Karlawish @jasonkarlawish
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747 Followers 69 Following 19 yr. search for an effective #Alzheimers drug. #Simufilam holds much promise for my family. Posts are my observations/opinions (not medical/investment advice)Fading Memories podca.. @Jennifer_Fink
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143 Followers 161 Following Senior Research Grants Officer @AlzSocResearch - Connect with me to hear all about our research programme! MSci in Neuroscience. All views my own.Lyndsay Bossie @BossieLynd
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63 Followers 3K FollowingAki Yosh. @aki_tokyo11
268 Followers 383 Following PhD candidate, Arch. design for Dementia |Master's alum 🇺🇸 @uchicago & UTokyo Grad School| 🌎2024-25 @alzassociation @ISTAART Ambassador🎖Follow for updates💗Sanda Mcdougall @McdougalSan
55 Followers 5K FollowingMilani Wesner @MilaniWesn54619
85 Followers 5K FollowingIan Kremer @LEAD_Coalition
67K Followers 47K Following Working to end #Alzheimers/#dementia. @WUSTL @UMichLaw https://t.co/GJkJVm4vF2 https://t.co/dd0eOpRj6V https://t.co/1ARWoHKsQuAlzheimer's Associati.. @alzassociation
168K Followers 5K Following The Alzheimer’s Association is the leading voluntary health organization in Alzheimer's care, support and research. #ENDALZPatti LaFleur @carepatti
3K Followers 1K Following Millennial Daughter trying to navigate losing both of her parents from dementia. former teacher, current lover ❤️Alzheimer's Research .. @AlzResearchUK
92K Followers 1K Following We are the UK's leading dementia research charity and we won’t stop until everyone is free from the heartbreak of dementia. We stand #ForACure. 🟧Alzheimer's Society @alzheimerssoc
203K Followers 1K Following We want a world where dementia no longer devastates lives. That’s why we give help to everyone living with dementia today, and hope for the future.The National Institut.. @NIHAging
25K Followers 670 Following Official X account of NIH's National Institute on Aging. Dedicated to improving the health of older adults through research. Privacy: https://t.co/6XA3jNUXwcALZ Impact Movement @ALZIMPACT
9K Followers 2K Following AIM advances and develops policies to overcome Alzheimer's and all other dementia through increased investment in research, enhanced care and improved support.DrDr (😊)Wendy Mitc.. @WendyPMitchell
21K Followers 895 Following Sharing my journey, if anyone chooses to read it, of living as well as I can with dementia near Beverley. Follow my blog - https://t.co/FprcPcpcqrUsAgainstAlzheimer's @UsAgainstAlz
16K Followers 2K Following We’re in a relentless pursuit to end #Alzheimers, America’s 6th leading killer, through prevention, early detection, and equal access to treatments. Join us!Alzheimer's Drug Disc.. @TheADDF
19K Followers 5K Following The Alzheimer's Drug Discovery Foundation's mission is to rapidly accelerate the discovery and development of drugs to prevent, treat, and cure #Alzheimers.Yakeel T. Quiroz, PhD.. @ytquiroz
9K Followers 2K Following Associate Prof @HarvardMed @MassGeneralNews MGH Research Scholar | Director, Familial Dementia Neuro Lab @MGHmapp @MGHmarc #COLBOS #BLASTbio Views=Own | Feb’18Global Brain Health I.. @GBHI_Fellows
7K Followers 1K Following @AtlanticFellows for Equity in Brain Health program @UCSF @TCDDublin working to reduce the scale and impact of dementia. Learn more at https://t.co/vdq3M6QcZoDaniel C. Potts, MD, .. @DanielCPotts
5K Followers 5K Following #AANFellow #Neurologist #ArchitectsofChange #AlzAuthors #Poet #Photographer #Speaker #Alzheimers #Dementia #Aging #Husband #Father #Founder @CogDynamicsDementia Who! @Dementiawho
4K Followers 3K Following 🔸 Alzheimer's caregiver 🔸 Unpaidcarer 🔸 Blogger: https://t.co/o4rT6NSQNb 🔸 Caring for mum with Alzheimer's 10yrs 💜Jason Karlawish @jasonkarlawish
4K Followers 579 Following Physician/writer @Penn, codirector @Penn_Memory Center. Beginning Feb 1, '24 I'm on a writing break and so quiet here. Please visit my website to message me.Adam Smith @BetterResearch
12K Followers 4K Following #Dementia Research at @UCL - creator of Dementia Researcher supporting ECR CareersAlzheimer's Foundatio.. @alzfdn
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1K Followers 342 Following Leader in Alzheimer’s research. Focus on drug discovery, development and diagnostics for neurodegenerative conditions. Targeting tau.Scottish Brain Scienc.. @Scot_Brain_Sci
1K Followers 2K Following We are a brain sciences research organisation striving to change how quickly and effectively we detect and treat Alzheimer's and other brain diseases.Erskine Veterans Char.. @ErskineCharity
5K Followers 981 Following Caring for Veterans of all ages since 1916. Scotland's largest Veterans charity. #FuturesForTheBraveiain welch @iaindwelch
38K Followers 20K Following Line and wash enthusiast, lover of cheese, dogs, biscuits, stationery, ink and watercolours. You can find out about my portrait commissions through my website.Young Dementia Networ.. @YoungDemNetwork
14K Followers 2K Following The Network is a community of people affected by young onset #dementia and professionals collaborating to improve support.James S Russell @james_s_russell
499 Followers 476 Following Writer and Blogger about caring for my daughter with Younger Onset Alzheimer's who is living in assisted living.The Dementia Podcast @memorymoves
166 Followers 386 Following In-depth coverage of dementia and its subtypes (Alzheimer's, Vascular dementia, FTD, etc). News/Research/Opinion/Guests every week on YouTube!Canadian Coalition fo.. @CCSMH
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384 Followers 703 Following Helping seniors remember their life journey thru the ARTS. “The Artful Senior”workbook, great for group homes and individuals. #seniors https://t.co/cUpJRVnRkXWokey McWokeFace @Brandenemiller
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404 Followers 423 Following Alzheimer’s Association Vice President of Advocacy and #ENDALZ advocate. Tweets my own, not Association. (Re)tweets not endorsements.Maria Dorfner, NewsMD @Maria_Dorfner
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1K Followers 1K Following “Evoking Memories” Relic hunting enthusiast with background in Occupational Therapy creates unique memory & reminiscence activity program for seniors.Jason Cohen @MemoryDoc
828 Followers 796 Following Neurologist, dementia specialist, New Yorker, dad. Puns welcome. @NeuroMonteEinst. @MontefioreNYC. All opinions my own and are not medical advice. He/him.Nicolas Villain @nvillain_alz
980 Followers 861 Following Neurologue Chercheur - Neurologist Researcher #Alzheimer #Dementia #Neurodegeneration @FaculteSanteSU @Sorbonne_Univ_ @HopPitieSalpe @APHP @InstitutCerveauYared Z. Zewde @dryaredzewde
276 Followers 275 Following Clinical Neurologist, researcher, brain health advocate & Global Brain Health Institute fellow.Buffer @buffer
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146K Followers 158K Following Mom, Wife, #ChronicIllness, #Steelers, Writer, Psychic Life Coach, #LongCovid, #Resist #autismmom #antibullying #daughterofvietnamvet 01/09/21😭via ModernaShannon B. Tanner @tannonbaum
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452 Followers 448 Following | DSW✌️| Former Fulbright-Nehru Scholar Kerala, India 🇮🇳 (2016-2017) | Dementia Care | Mostly Harmless |j @dreamvillien
86 Followers 795 FollowingDra. Verónica Morin @Vm0rin
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16 Followers 153 Following CEO, #ErdheimChesterDisease Global Alliance | #Caregiving Advocate | #Health Policy Nerd | Learning #RareDisease & #Histiocytosis | Resident Trekkie🖖🏳️🌈Phil Calzadilla @philcalz
3K Followers 3K Following Entrepreneurial Sales VP with track record of transforming sales strategies into substantial revenue growth, specializing in SLED & Verticals -tweets are my ownThe Trevor Project @TrevorProject
346K Followers 6K Following The leading suicide prevention organization for LGBTQ youth. Text START to 678678, call 1-866-488-7386, or visit https://t.co/ZANQNrK6gYChris @TheChrisWoodard
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90K Followers 77K Following Passionate about comms & networking, mentoring to captivate attention & showcase ideas, skills, & unique talents. Unleash potential with a winning attitude!Janice Gindel @jgindel
98K Followers 97K Following Diehard Dem,NY Jets, Giants, Yankees, Mahomes, Love all Sports #KindnessMatters #Resist #ProudJerseyGirl #BLM #StopAsianHate #Biden/Harris#BlueCrew#Flight CrewCoach K @KenJBarro
272 Followers 234 Following Pizza Guy! 6A Corona Del Sol Running backs and A backs Coach, 2021 CG 4A State Champ, Dad to J,K,D,J & J. Mr. @AmyBarro & Papi of 7!@Being_Patient_ @MadhavThambiset @NIHAging Found myself nodding in agreement with @MadhavThambiset What a great interview.
‘A Time of Hope’: Experts on Alzheimer’s Drug Breakthroughs “We are now at the point where we recognize that we might need multiple approaches to truly make an impact in altering the disease course.” beingpatient.com/a-time-of-hope… by @Being_Patient_ via @LEAD_Coalition #dementia
‘A Time of Hope’: Experts on #Alzheimers Drug Breakthroughs beingpatient.com/a-time-of-hope… by @Being_Patient_ #dementia #EndAlz #health
@LEAD_Coalition @debkhk @Being_Patient_ I had long covid for over a yr & 1/2. Covid Brain made me suicidal it was so bad. I couldn't carry on a 5 min conversation. I recalled researching Lion's Mane for my ex's dementia diagnosis. It got rid of it & Covid nerve pain. Double Wood brand from Amazon worked best for me
Peptides light up in the brain for early diagnosis of #Alzheimers advancedsciencenews.com/peptides-light… by @AdvSciNews #dementia #health #science
The Brain Enzyme That Could Lower Women’s #Alzheimers Risk beingpatient.com/women-are-more… by @silvia_maioli @karolinskainst via @Being_Patient_ #dementia #WomensHealth #health #science
The Cognitive #Health Clues of #LongCOVID beingpatient.com/deborah-kan-lo… by @debkhk @Being_Patient_ #Alzheimers #dementia #coronavirus #SARSCoV2
Women make up 2/3rds of people w/ #Alzheimers & there seems to be a link w/ #Menopause. New research, discussed in @Being_Patient_ suggests activation of a brain protein could help protect #women from developing the disease. tinyurl.com/ytpwps6r
Rooting for Brain Health: The Therapeutic Power of Horticultural Therapy for #Dementia beingpatient.com/horticultural-… by @Being_Patient_ #Alzheimers #gardening
What an uplifting video - so great that his family sees what Don can do and support him on what he struggles with. #LivingWithLewy #Lewybodydementia
At 71, Don Kent climbs #GuadalupePeak with #Parkinsons & #LewyBodyDementia. His 8.4-mile, 3,000-foot ascent proves "It's a new life sentence," showing that anyone can achieve the extraordinary if they put their mind to it. Witness his incredible journey: youtube.com/watch?v=AjhaCb…
@Being_Patient_ What an uplifting video - so great that his family sees what he can do and support him on what he struggles with. #LivingWithLewy #Lewybodydementia
When a Preschool Was Opened Inside a #Dementia Care Home, All Heaven Broke Loose goodnewsnetwork.org/when-a-prescho… by @goodnewsnetwork via @JudgeWren #Alzheimers #kindness #happiness
Do brain supplements work? Even though they’re sold in grocery stores and endorsed by celebrities, science does not support most claims made by nootropic brands. beingpatient.com/nootropics-do-… by @Being_Patient_ via @LEAD_Coalition #seniorcare #caregiving
The Truth Behind Brain Boosting Supplements beingpatient.com/nootropics-do-… by @Being_Patient_ #Alzheimers #dementia
In the UK, 940,000 are living with a #dementia diagnosis. However, the true number affected is probably higher because about a third of people with the condition never get a formal diagnosis. theguardian.com/society/2024/a… by @andrewgregory @guardian #Alzheimers #health #NHS
The Truth Behind Brain Boosting Supplements beingpatient.com/nootropics-do-… by @Being_Patient_ #Alzheimers #dementia
The symptoms that characterize #Alzheimers disease aren't just a normal part of aging. What exactly is Alzheimer's, and how do doctors diagnose it? beingpatient.com/definition-alz… by @SpichakSimon @alexmarvar @Being_Patient_ (image: @alzassociation) #dementia #health
Long-term care #insurance can feel out of reach for those diagnosed with #dementia. But you might be considering this insurance if you know such a disease runs in your family. Here’s what you need to know. beingpatient.com/should-i-buy-l… by @fangsonggongzhu @Being_Patient_ #Alzheimers
@Being_Patient_ Thank you for this, think I will join it 🙏
Good Friday lunch at Mum’s yesterday. We travelled 12 hours for this. She ate three Barra tacos and some seaweed salad. Winning with #Alzheimers