Raising awareness of Sarcoidosis @BevgornallBev
Raising awareness of Sarcoidosis Chester, England Joined January 2017-
Tweets15K
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Followers760
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Following4K
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Likes12K
The richest Prime Minister in history – worth an estimated £529,000,000 – is demonising sick and disabled people. He wants us to blame our problems on anyone but the real culprits: The Tory government, their super-rich donors, and a system that puts greed before human need.
Our inability as a country to protect the sick, vulnerable & elderly and hold a helping hand to those fleeing war and poverty will be our undoing. We have gone a little further down this dark path.
#LongCovidPrevalence data. Where is it @UKHSA @ONS? Can we see it please? We would all like to know how many more ppl's lives have been ruined since March 2023 which is the last time you published ANY DATA AT ALL about it. Silence is NOT ACCEPTABLE #LongCovid #LongCovidKids
#MEAssociation #ME #MECFS #CFS #ChronicFatigueSyndrome #MissingMillions @U2Fight_World
#MEAssociation #MEAwareness #ME #MECFS #CFS #ChronicFatigueSyndrome #MissingMillions @U2Fight_World
#MEAssociation #MEAwareness #ME #MECFS #CFS #ChronicFatigueSyndrome #MissingMillions @U2Fight_World
Waiting times for hospital treatments reduced to less than 3 months for the majority of treatments Minimal waits for GP appointments as GP numbers rising & new practices opening in new areas Life expectancy rising This is not ancient history it was 2010
#LongCovid #LongCovidAwareness #MECFS #ME #CFS #ChronicFatigueSyndrome #MEAction #MEAwareness #MissingMillions @U2Fight_World
#LongCovid #LongCovidAwareness #MECFS #ME #CFS #ChronicFatigueSyndrome #MEAction #MEAwareness #MissingMillions @U2Fight_World
#MECFS #ME #CFS #ChronicFatigueSyndrome #LongCovid #LongCovidAwareness #MEAction #MEAwareness #MissingMillions @U2Fight_World
#MECFS #ME #CFS #ChronicFatigueSyndrome #LongCovid #LongCovidAwareness #MEAction #MEAwareness #MissingMillions @U2Fight_World
Esther @ELHopkins
12K Followers 11K Following Composer. Interested in #CleanAir #Wildlife #ClimateChange
Clinically Vulnerable.. @cv_cev
14K Followers 12K Following 𝗖𝗼𝗿𝗲 𝗣𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁 in the 𝗨𝗞 𝗖𝗼𝘃𝗶𝗱-𝟭𝟵 𝗜𝗻𝗾𝘂𝗶𝗿𝘆 JOIN us on FB 📸cv_cev 🟦☁️@cvcev.bsky.social
Mark Oakley @MarkOak04974342
3K Followers 3K Following fighting to protect 1.2 mill immunocompromised people stuck in the nightmare of shielding for over 3 yrs abandoned by this Government @4gottenlivesuk
Stephen Griffin @SGriffin_Lab
28K Followers 10K Following Professor of Cancer Virology | Viroporins, Antivirals, Viral Oncology, Immunotherapy | Own views | @IndependentSAGE @LongCovidKids @projecthalo #VaccinesPlus
Amanda Tomlins💜�.. @tomlins_amanda
3K Followers 5K Following Lifelong #Autoimmunity #Kidney #Transplant CNS SLE Sjogrens Evans Asplenia Graves #TransverseMyelitis AFib MECFS+ #MasksInHealthcare EVERY STORY IS US - Rumi
ProtectPatients @ProtectPatient5
1K Followers 1K Following Tweet anything that raises awareness of #immunosuppressed abandonment by the U.K. GOV. RT not an endorsement just interesting. @protectpatient5.bsky.social
Dr Julia Grace Patter.. @JujuliaGrace
275K Followers 62K Following Founder+Chief Exec @EveryDoctorUK. Campaigner, author, doctor (but not working clinically). All views my own. My newsletter:https://t.co/yE1tw35Up4
Shannon Peters Banks @ShannonB
1K Followers 2K Following Female entrepreneur, mother, lupus warrior passionate about social leadership, action learning and purpose #lupus #stillshielding #cev #immunocompromised
Dr Ali G #StandWithUk.. @AlisonGeorge10
13K Followers 8K Following NHS Dr #CovidisAirborne #SOSNHS #EuropeanAlways🇪🇺 #RefugeesWelcome #CharacterMatters #FBPE #GTTO #Humanity
Forgotten Lives Uk @4gottenlivesuk
5K Followers 5K Following People are coming together to get Evusheld funded in the uk. Please join our group https://t.co/pkgwbGvSpn
Jane Webster @JaneWeb81865788
617 Followers 578 Following Retired maths teacher, ex-Bridge player, learning Italian in hope to visit Italy again but meds for Rheumatoid Arthritis make me #CEV #immunesuppressed
Pete 😷 #COVIDisAir.. @PeteUK7
24K Followers 9K Following Chemistry. ChemEng. UK DIY filter team. Use shared air mitigations. High quality FFP2/3/N95 masks, ventilation, effective air filtration. #Spaceshost
brevitybelle1 @brevitybelle11
2K Followers 5K Following fascinated by life, #EGPA #vasculitis awareness, ToryInducedTourettes’
liz brown 💛💙�.. @lizbrown003
899 Followers 1K Following Ex NHS Nurse. Longdog owner, wine drinking , woke. Never voted Tory never will. Feels European. No DMs. Mastodon @[email protected]. [email protected]
Gina 😷 SARS2 is Ai.. @Saffiya_Khan1
18K Followers 11K Following Against the repeated mass infection of the population with SARS2. Wear a respirator. Campaign for clean air. #GreensAgainstCovid @GrnsAgnstCvd
sq @sw57901
1K Followers 4K Following
Dame Sa 🐝 3.5% @LongCovidHell
8K Followers 7K Following Anti Covid and anti Tory. Raising awareness for #LongCovid. I suffered heart, lung & eye damage from a 2020 Covid infection. #FBLC #CleanAir #CovidisAirborne
Nikola Brigden @NikolaBrigden
1K Followers 3K Following Straight talking Yorkshire Lass, Wife of a Stem Cell Transplant Warrior, Mother and Campaigner for the roll out of protection for https://t.co/4t8tGMQFvh
Sherry @sherry44dembitz
866 Followers 3K Following
Ivy-rose Flanner @FlannIvy
77 Followers 5K Following
K @LongCovid_Me
1K Followers 1K Following Healthcare worker. Formerly healthy, now struggling with #LongCovid since March 2020. #FBLC
Judy @judyjac25639937
747 Followers 3K Following
Carrie Shaw @ShawCarrie11796
89 Followers 3K Following
Essie @valentin100essi
184 Followers 3K Following
Dr. Jennifer Curtin @jencurtinmd
3K Followers 2K Following Physician. Entrepreneur. Nerd. 🍊YCW22. RTHM co-founder. Recovered ME/CFS. Treated infection assoc illness b4 Covid. Tweets/DMs are my own & not medical advice.
Jennifer Wengel @jennif_weng
50 Followers 5K Following
Ruth Lampard @ruth_lampard
3K Followers 3K Following Looking out for blessings & wrestling them. Chaplain with AfME Healthcare: views my own. Living w ME & LongCovid. Virtual Pilgrim. @ruthlampard.bsky.social
Dorethea Compean @comp_doreth
49 Followers 5K Following
Mady Hornig, MA, MD @mhornig
3K Followers 3K Following Translational MD-scientist, mom, 🎶 | microbes + the 🧠 | gut-immune-brain axis | #autism #ADHD #PANS #TRD #LongCOVID #MECFS | views mine
Jenae Needy @JenaeNeedy23967
23 Followers 2K Following 🍓Jenae , 21 , Biggest crypto casino presale👇💎
Dr Gita Ramdharry (Ph.. @gitaramdharry
6K Followers 5K Following Consultant Allied Health Professional; Physiotherapist; Hon. Assoc. Professor; Research @cnmdrehab; Diversity & belonging ✊🏿✊🏽✊🏼🏳️🌈♿🏳️⚧️(she/her)
Tracy @butler_tracy25
326 Followers 3K Following
Frida Medious @medi_fri
57 Followers 5K Following
Margeret Craigwell @MargerCraigw
22 Followers 2K Following 🐋Margeret . 24 . Biggest crypto casino presale👇🌐
Hanna Simon @hanna70277
110 Followers 3K Following
Stefanie @stefanie_trilli
147 Followers 3K Following
ConsumedByCovid @ConsumedCovid
937 Followers 1K Following COVID long hauler struggling for past 42 months. Previously fit, healthy, active healthcare professional and mum.
Jolene Peddicord @JolenePedd92555
24 Followers 2K Following 📈Jolene - 21 - Earn now with crypto presale👇🐋
Suzanne @thompson99suzan
203 Followers 3K Following
Aairah Franklin @FrankliAair
30 Followers 5K Following
John Clutter @TheClutterer
2K Followers 5K Following Economist. Theologian. ME-patient. SCDS-patient. Introverted Idealist. @theclutterer.bsky.social
Lisa Lewis @LisaLewis424001
124 Followers 3K Following
Peggy @peggy_alberts55
221 Followers 3K Following
Tamala Barlow @tama_barl
46 Followers 5K Following
𝐂𝐚𝐫𝐦𝐞�.. @ctcantwell
1K Followers 2K Following My brother died unnecessarily in the care of a mother & baby institution in Cork, Ireland... seeking truth and accountability. #MotherAndBabyHomes #Bessborough.
Annie Harris @AnnieHarri21552
108 Followers 3K Following
Bella-grace Bochenski @BellaBoche6353
104 Followers 5K Following
Sophie still fighting.. @mariusknulst
19K Followers 19K Following Soldier of God ✝️🙏😇😎♥️💞im back🥳🤓🙏🙏❤️
Bok Lemler @BokLemler27392
68 Followers 5K Following
Eloise Fykes @EloiseFyke39487
96 Followers 5K Following
Seb Maley @sebmaley
7K Followers 2K Following Chief Executive of Qdos, providing expert compliance and insurance services for freelancers & businesses. Passionate about a flexible economy. #IR35 #insurance
Miguel Boyd @miguel_boy52356
6 Followers 565 Following
Critical Cupcake 🌈.. @CriticalCupcake
109K Followers 114K Following Science, Comedy, Left, LGBTQ+, Atheist, #Resistance ChronicPain, PolyBiPan, Queer, Anti-Religious-Harm + Bigotry, Everyone is an idiot sometimes, esp. me ;)
Katie Turner @Turner12341
137 Followers 415 Following
Lacresha Paige @lacres_pai
47 Followers 5K Following
Heidi @heidi_whetstone
236 Followers 3K Following
Demba Ndure @DembaNdure58884
95 Followers 267 Following Turning dreams into plans. 🚀 | Adventure seeker | Coffee enthusiast ☕ Chasing sunsets and dreams💜 Making memories around the world 🌎
NickyProctor @NickyProctor
1K Followers 4K Following Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Natalie @Natsc2012
3K Followers 5K Following Proud Survivor Ambassador with Women’s Aid, EIDA & SEA encouraging others to put an end to Domestic Abuse. Published author & Amazon No 1 Best Seller
Louise - LouLou @LouiseLewandow2
5K Followers 5K Following Born in France, live in Ohio. As left as Bernie. Burn down fascism NO DMs!
Antonio Caramia @Antonio_Caramia
11K Followers 2K Following Ingegnere gestionale, Consulente di direzione, ICT Manager, Responsabile Organizzazione e Sistemi Informativi https://t.co/VQUfiKFqcv
Heather Paterson @heatherpaterson
124K Followers 119K Following CEO @SAYiTSheffield | LGBTQ+ Columnist @ExposedMagSheff | Co-chair @sheflgbtnetwork 🏳️🌈 #LWithTheT Proud Queer She/Her
Marion @kingsley_marion
206 Followers 3K Following
Dr. Deepti Gurdasani @dgurdasani1
143K Followers 6K Following Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
Trisha Greenhalgh @trishgreenhalgh
181K Followers 5K Following Professor of Primary Health Care, Oxford. Independent SAGE. Views my own. Gravitating to BlueSky - find me https://t.co/kLX18DAWAa
Esther @ELHopkins
12K Followers 11K Following Composer. Interested in #CleanAir #Wildlife #ClimateChange
Clinically Vulnerable.. @cv_cev
14K Followers 12K Following 𝗖𝗼𝗿𝗲 𝗣𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁 in the 𝗨𝗞 𝗖𝗼𝘃𝗶𝗱-𝟭𝟵 𝗜𝗻𝗾𝘂𝗶𝗿𝘆 JOIN us on FB 📸cv_cev 🟦☁️@cvcev.bsky.social
Mark Oakley @MarkOak04974342
3K Followers 3K Following fighting to protect 1.2 mill immunocompromised people stuck in the nightmare of shielding for over 3 yrs abandoned by this Government @4gottenlivesuk
Stephen Griffin @SGriffin_Lab
28K Followers 10K Following Professor of Cancer Virology | Viroporins, Antivirals, Viral Oncology, Immunotherapy | Own views | @IndependentSAGE @LongCovidKids @projecthalo #VaccinesPlus
Amanda Tomlins💜�.. @tomlins_amanda
3K Followers 5K Following Lifelong #Autoimmunity #Kidney #Transplant CNS SLE Sjogrens Evans Asplenia Graves #TransverseMyelitis AFib MECFS+ #MasksInHealthcare EVERY STORY IS US - Rumi
ProtectPatients @ProtectPatient5
1K Followers 1K Following Tweet anything that raises awareness of #immunosuppressed abandonment by the U.K. GOV. RT not an endorsement just interesting. @protectpatient5.bsky.social
Martin Paul Eve @martin_eve
13K Followers 4K Following Principal R&D Developer @CrossrefOrg | Lit Prof @birkbeck_etc | Music on tici taci records | My books: https://t.co/OsmxBx7Bux | Personal account.
Dr Rachel Clarke @doctor_oxford
284K Followers 4K Following Palliative care doctor 👩🏻⚕️ Writer DEAR LIFE, BREATHTAKING 📚 Rep: @AitkenAlexander 📝 Founder: @hospiceukraine 🇺🇦 THE STORY OF A HEART out 5.9.24 🫀
Dr Dan Goyal @danielgoyal
94K Followers 5K Following NHS Medical Consultant. Health Policy Editor @BylineScotland. Everyone deserves access to decent healthcare.
Prof. Christina Pagel @chrischirp
204K Followers 950 Following Prof Operational Research @UCL_CORU, health care, women in STEM. Member of @independentsage. Tweets personal. chrischirp at bluesky. https://t.co/nNW5zMenx2
Dr Julia Grace Patter.. @JujuliaGrace
275K Followers 62K Following Founder+Chief Exec @EveryDoctorUK. Campaigner, author, doctor (but not working clinically). All views my own. My newsletter:https://t.co/yE1tw35Up4
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
Shannon Peters Banks @ShannonB
1K Followers 2K Following Female entrepreneur, mother, lupus warrior passionate about social leadership, action learning and purpose #lupus #stillshielding #cev #immunocompromised
Dr Ali G #StandWithUk.. @AlisonGeorge10
13K Followers 8K Following NHS Dr #CovidisAirborne #SOSNHS #EuropeanAlways🇪🇺 #RefugeesWelcome #CharacterMatters #FBPE #GTTO #Humanity
Stormzy💙 @Nurseborisbash
85K Followers 6K Following A&E nurse💙 cheese lover🧀 currently hoping to recover from long covid. Here to hold Victoria Atkins to account. I will never stop fighting. #CoryTuntsOut
Forgotten Lives Uk @4gottenlivesuk
5K Followers 5K Following People are coming together to get Evusheld funded in the uk. Please join our group https://t.co/pkgwbGvSpn
Dr Lennard Lee (Oxfor.. @drlennardlee
2K Followers 850 Following Associate Prof Oxford (NDM) & Birmingham University | NHS Oncologist | HMG advisor | @independentsage | #cancervaccines #personalviews
Ror Preston @RorPreston
2K Followers 554 Following Lead Data Scientist @visible_health 💙 | Organiser @wecrunchme 🗺️ | #MECFS since 2018 | Own Opinions
CrunchME @wecrunchme
752 Followers 34 Following Mapping the scientific, tech & advocacy ecosystem around #MECFS, #LongCovid, and other infection-associated chronic illnesses 🗺️ | Organised by @rorpreston
Ellie Reeves @elliereeves
30K Followers 2K Following Labour MP for Lewisham West & Penge. Deputy National Campaign Coordinator. For casework please contact me at [email protected] or 020 7219 2668.
Hounslow Council @LBofHounslow
19K Followers 2K Following Official Twitter feed for Hounslow Council. Follow us for tweets on news and updates in the borough. We monitor this account 9am – 5pm Mon-Fri
Jonathan Reynolds @jreynoldsMP
60K Followers 11K Following Shadow Secretary of State for @biztradegovuk. Lab/Co-Op MP for Stalybridge, Hyde, Mossley, Longdendale & Dukinfield. Chair @ChrLeft.
lee harpin @lmharpin
15K Followers 4K Following Journalist, crisis management, publicity and campaigns. views my own
Andrew Western MP @AndrewHWestern
11K Followers 1K Following Labour MP Stretford & Urmston. Infrastructure nerd. Can’t offer support over social media. Constituent? Email [email protected] for queries/help.
Lucy Powell MP @LucyMPowell
68K Followers 2K Following Labour & Co-op MP for Manchester Central | Shadow Leader of the House of Commons | [email protected] https://t.co/awtsw7n6vH
Jim McMahon MP @JimfromOldham
33K Followers 3K Following Labour & Co-operative Member of @UKParliament for Oldham West & Royton | Chair of the @CoopParty | Shadow Minister for English Devolution & Local Government🌹🐝
Sarah Owen MP @SarahOwen_
27K Followers 8K Following Labour MP for Luton North |🇬🇧🇲🇾| Promoted by and on behalf of Sarah Owen at 3 Union St, LU1 3AN
Heidi Alexander @Heidi_Labour
44K Followers 3K Following Swindon Girl | Labour’s Parliamentary Candidate in Swindon South | Former MP and Deputy Mayor of London | @TfL Board Member | Fair weather cyclist
Preet Kaur Gill MP @PreetKGillMP
50K Followers 6K Following Labour & Co-op MP for Birmingham Edgbaston. Shadow Minister Primary Care and Public Health. [email protected] 0121-392-8426
Seema Malhotra MP💙 @SeemaMalhotra1
28K Followers 4K Following Labour & Co-op MP for Feltham & Heston. Shadow Minister for Skills. Co-Founder & President of the Fabian Women’s Network.
Grieving ME Caregiver.. @mecaregiver
1K Followers 1K Following Caregiver of patient with severe Myalgic Encephalomyelitis & one son died of very severe ME. Hope for BC007 IMPORTANT INFO: ME IC PRIMER: https://t.co/tnfTPKyIGj
Omid Djalili @omid9
360K Followers 4K Following Pinned tweet stays up until June 18th. NEW TOUR CANADA, AUSTRALIA, USA and UK details on website ⬇️
Ruth Lampard @ruth_lampard
3K Followers 3K Following Looking out for blessings & wrestling them. Chaplain with AfME Healthcare: views my own. Living w ME & LongCovid. Virtual Pilgrim. @ruthlampard.bsky.social
sarah swastrosarah.bs.. @swastrosarah
2K Followers 876 Following speaking up for everyone affected by severe/very severe #ME. My daughter, my only child, died from ME Oct 2021. Inquest opened. Full hearings expected July 2024
Anna Wood @Annakwood
3K Followers 2K Following STEM Ed researcher @UniEdinburgh (part-time). Physicist, digital education, bird photographer, #mecfs Author of 25 Birds: https://t.co/DcN0WiZVAy
UK/European Centre of.. @CofEforME
674 Followers 206 Following Establishing and developing the foundations of the UK/European Centre of Excellence for ME which would bring discovery, knowledge, & effective treatments for ME
John Hyde @JohnHyde1982
25K Followers 676 Following Deputy news editor for Law Society Gazette. Try to be nice if at all possible. All views my own.
The Secret Prisoner @SecretPrisoner
10K Followers 4K Following Whats Prison like? Tales from Prison UK. Including Wandsworth Prison & Ford. Ex-Prisoner that wont be gagged! Prison Consultation? Email [email protected]
HMI Prisons @HMIPrisonsnews
20K Followers 649 Following Independent inspectorate reporting on conditions for and treatment of those in prisons, young offender institutions and immigration detention facilities.
HMPPS @hmpps
26K Followers 462 Following HM Prison & Probation Service. An extraordinary job. Done by someone like you.
Prison Reform Trust @PRTuk
38K Followers 2K Following The Prison Reform Trust is an independent UK charity working to create a just, humane and effective penal system. Links and retweets are not endorsements.
TheTartanCon @TheTartanCon
7K Followers 2K Following Partial to a rant. I talk about prisons, a lot about animals & a bit about O. Wilde. https://t.co/nasShmBTof https://t.co/XaEin4XV6M
Shirley De Bono @LloydSewing
4K Followers 4K Following THE IPP SCANDAL. Campaigning for the resentencing of all IPP prisoners. It is barbaric what is happening to these prisoners. They deserve fair justice.
Danny Shaw @DannyShawNews
50K Followers 610 Following Senior Political Adviser to Yvette Cooper, Labour’s Shadow Home Secretary. All my own views.
Justice Committee @CommonsJustice
22K Followers 741 Following We are a cross-party group of MPs appointed by @HouseofCommons to scrutinise @MoJGovUK and associated bodies. RT≠ endorsements.
Noreen Murphy @Noirin08
550 Followers 398 Following Plz sign petition fordrug: https://t.co/ecmSZNrkxO ME since 1986. MEAI member. Love family, maths
Katie @KatieAc23
748 Followers 2K Following #MECFS 💔 Rights for women & girls 💫 Safeguard our children ❤️ Stop illegal immigration! Look after own citizens first 🇬🇧 Views are my own
Corey Byrd (Severe M... @Th3birdman333
784 Followers 781 Following V severe #MECFS; 99% bedbound. All #pwME are warriors. Warriors need sword/shield/armor. Let me be your armor with advice. Let me be sword/shield by advocacy.
Orla PWME @PwmeOrla
315 Followers 179 Following ME patient since 1998. Interested in scientific progress in the area, and in countering quackery and over-inflated claims for treatments.
Matthew Kirby @aintnometaphor
568 Followers 1K Following ME/CFS, long-covid, generally finding it impossible to live life on life's terms, #FBLC
Andrea Fighting for #.. @MECFSNanoneedle
919 Followers 3K Following Severe #MECFS Patient Bedridden. No energy to speak. #MECFSBiomarkers #FckTheNIH she/her I am #MECFS Diagnostic Biomarkers biggest fan!
MEmilitant @MEMilitant1
867 Followers 672 Following Saddened by former #PACEtrial defenders evading debate. Apologies are owed. PS: My handle shouldn't validate the prejudices it was poking fun at.
Sophie @slpglondon
1K Followers 1K Following One of #MillionsMissing - #LongCovid since September 2020 - Health is Wealth - 🕊️🍉 #StopArmingIsrael
Terry Field @AlongsideME
286 Followers 212 Following Interested in evidence-based science, ME/CFS awareness & research. One of #MillionsMissing, 33 yrs, #pwME bed/housebound. Love of nature & wildlife.
RTHM @RTHM_Health
4K Followers 3K Following RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to a range of therapies based on the latest research.
ICanCME Research Netw.. @ICanCMEResearch
626 Followers 378 Following The primary resource to initiate, support and sustain innovative and collaborative #MyalgicEncephalomyelitis (ME) research in Canada. #ICanCME #PwME
Leonard Jason @CenterRes
2K Followers 33 Following Leonard Jason is a Professor of Clinical and Community Psychology at DePaul University. He is also Director of the Center for Community Research
Dr. Jennifer Curtin @jencurtinmd
3K Followers 2K Following Physician. Entrepreneur. Nerd. 🍊YCW22. RTHM co-founder. Recovered ME/CFS. Treated infection assoc illness b4 Covid. Tweets/DMs are my own & not medical advice.
Alison Sbrana @AlisonSbrana
2K Followers 861 Following she/hers. ♿️Disabled by viral-triggered #MECFS & #Dysautonomia and related 9+years
Mady Hornig, MA, MD @mhornig
3K Followers 3K Following Translational MD-scientist, mom, 🎶 | microbes + the 🧠 | gut-immune-brain axis | #autism #ADHD #PANS #TRD #LongCOVID #MECFS | views mine
Globe Eye News @GlobeEyeNews
123K Followers 298 Following International Affairs, Politics, Sports, Trends, and Global Happenings from South Asia to the Middle East and Beyond.
Etta Loveday @EttaLovedayME
344 Followers 157 Following She/Her, Rising awareness for people living with severe/very severe ME! #ME #SevereME
Jenny Jones @GreenJennyJones
90K Followers 457 Following House of Lords. Working on Climate Crisis and civil liberties. Met Police called me a 'domestic extremist'. President: Road Danger Reduction Forum. Fully woke.
MimiJ @MimiJ9
23K Followers 8K Following Social Democrat, European, woke, #ToriesOut , Labour #SaveOurNHS, Derby County fan 🐏 No DM’s. Also on threads @mimij989 @[email protected] blue sky
Always thought the rough look Was a sexy Look lol - not with a fucking sickness and stomach bug on top of being a parent carer it’s not - just a t shirt painkillers and a hot water bottle for me .. the joys 🥴😷🤢
so my mum, dad, + sister have covid and both nephews, said they thought it was a bad cold until I asked them to buy tests which they suprisingly did. also my mil has same symptoms so prob also has it, it never goes away does it ppl don't even test now sadly 😔 #Covid #LongCovid
The richest Prime Minister in history – worth an estimated £529,000,000 – is demonising sick and disabled people. He wants us to blame our problems on anyone but the real culprits: The Tory government, their super-rich donors, and a system that puts greed before human need.
Our inability as a country to protect the sick, vulnerable & elderly and hold a helping hand to those fleeing war and poverty will be our undoing. We have gone a little further down this dark path.
#LongCovidPrevalence data. Where is it @UKHSA @ONS? Can we see it please? We would all like to know how many more ppl's lives have been ruined since March 2023 which is the last time you published ANY DATA AT ALL about it. Silence is NOT ACCEPTABLE #LongCovid #LongCovidKids
Just spotted that my pinned Tweet about my Virtual Pilgrimage has disappeared. If you are interested in my days and ks, please read👇🏼 Routes walked: Santiago de Compostella 🇪🇸 Te Araroa Trail 🇳🇿 Walk of Peace Slovenia 🇸🇮 🇮🇹 now on North Downs Way 🇬🇧 churchtimes.co.uk/articles/2019/…
PETITION: ME/CFS: Changing the Definition - Please consider signing and sharing this petition "Elsevier (publisher) - Petition to request updating of the description of ME/CFS in Kumar and Clark’s Clinical Medicine textbook." Read the details in full and sign here:…
#MEAssociation Statement and Parliamentary Question: People with #MCFS at risk of starvation Recent cases of women with very severe ME/CFS being admitted to hospital have served to highlight just how badly they are treated when hospitals fail to adopt the very clear…
this hospital… THIS HOSPITAL HAS GIVEN ME A ELDERLY, BEDBOUND ROOMMATE WHEN IM COVID POSITIVE. WHAT. THE. FUCK.
Sad, sad times indeed 😢 💔 BBC News - Rwanda bill latest: MPs and Lords in showdown as Sunak promises flights by July - BBC News bbc.co.uk/news/live/uk-p…
Our government does not care about #HumanRights Bullying sick people back to work Telling GPs not to write sicknotes Placing illegal DNRs on disabled children & adults Mocking people with Autism & ADHD Taking benefits away from disabled people Ending COVID testing in carehomes
Are you taking the piss??? We're still in a pandemic???? 10-20% of COVID infections lead to long term disability and y'all told everyone to catch it multiple times a year. You can't now act surprised
Why are we so ill? The working-age health crisis bbc.in/4d0kvXf
Waiting times for hospital treatments reduced to less than 3 months for the majority of treatments Minimal waits for GP appointments as GP numbers rising & new practices opening in new areas Life expectancy rising This is not ancient history it was 2010
A very useful list of UK mps for #pwME and #LongCovid by @wecrunchme...👇✊️
@TheChronicColab @SeemaMalhotra1 @MEActNet @MEAssociation @actionforme @long_covid @InclusionLondon @LongCovidKids @LC_UK_Action @StripyLightCIC @MEActNetUK Fyi have added Seema to the @wecrunchme list of politicians expressing an interest in IACCs crunchme.notion.site/Politicians-In…
No words...
NEW: Rwanda Bill passes as House of Lords decides not to table further amendments — as it happened 🚨 politics.co.uk/news/politics-…
Thanks everyone replying and sending love and yes I know JK has screengrabbed me posted it and her fans are coming at me, but if I can survive cancer I can survive this too - solidarity my friends
scan is clear but my CA125 number is rising -means cancer is in there doing something but hasn’t revealed itself, but it will. I’ll never be cured I have terminal cancer, but so far I’m coping on three weekly infusions - thanks Scottish NHS still on tour janeygodley.com
A lot has happened since we kicked off #UniteToFight2024 at the end of January. We're immensely grateful to all the speakers who have joined us so far. Here's a sneak preview featuring some of them. Enjoy watching it! We are already looking forward to the 15th and 16th of…
The £100 million Work and Health Programme, to help Disabled people get into work, will be scrapped Meanwhile the PM orders Disabled and vulnerable people into work by cutting benefits This Government has failed Disabled people theguardian.com/society/2024/a…
Update on #BringMillieHome #DontLetMEDie - we wish we could split ourselves in two sometimes #SaveCarlasLife #ExposeMENow
A thread for thirteen #MECFS, #LongCovid and related research papers from w/c 15th April 2024. Links are to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion does not equal recommendation. 1/14
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