Candace D. @DiaryofaSickGrl
Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc. Arizona, USA Joined February 2021-
Tweets21K
-
Followers12K
-
Following1K
-
Likes90K
I cannot stress enough how important it is to avoid getting COVID, a virus that causes Long Covid, autoimmune conditions, mental health conditions, heart attacks, strokes, diabetes etc etc etc when there is less and less support for those who are ill. Don't think it won't be you.
Why has the public accepted that people will die and become disabled by Covid? They know it’s happening, they know it could happen to them, but they go along with it. Why?
Some people will never like you, but that is not a challenge. Just let them not like you.
😐😐
Please don’t assume that EDS / HSD patients aren’t trying hard enough with their exercises. You won’t see the same pace of change as a non EDS patient. There are many reasons people may struggle with exercise. Listen to their whole story before making assumptions.
Unmasked people in a cancer hospital are a certain kind of selfish.
It has taught me to enjoy the little things and cherish memories. But it has also taught me how terrible people can be.
It has taught me to enjoy the little things and cherish memories. But it has also taught me how terrible people can be.
Is it ever possible to get the perfect temperature in the shower or do I just have to play HOT COLD HOT COLD HOT COLD for eternity?
Hello, I unfortunately can’t “positive thinking” my way out of faulty collagen. Sincerely, I have ehlers-danlos syndrome
Just a reminder that while you can be checked for elevated tryptase when suspecting MCAS it doesn’t completely rule it out if you don’t have it. I very much have MCAS and do not have elevated tryptase. Most of us don’t.
Just a reminder that while you can be checked for elevated tryptase when suspecting MCAS it doesn’t completely rule it out if you don’t have it. I very much have MCAS and do not have elevated tryptase. Most of us don’t.
It’s ok if you are open & honest about the reality of your chronic illness/disability. And it’s ok if you don’t feel like talking about it too. It’s difficult to navigate & we have to do what works best for us individually. What we can’t do is decide what works for someone else
😢😢
👇👇👇
@DiaryofaSickGrl According to my Oura ring: (And it 100% matches my experience)
collagen machine brok.. @chronicallybeee
15K Followers 4K Following enbrel slut | she/they | #FreePalestine | https://t.co/hFC0B2O8QQ
Joanna No Banana @JoannaNoBanana
31K Followers 21K Following Joanna (she/her) 28 Queen of Allergies 👑 MCAS, POTS, EDS & CCI💛 Autistic, ADHD, OCD. PMDD. Check out @allergybeauty for allergy friendly products!
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Natalia @NataliaHodgins
7K Followers 1K Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
Nicole Lee Schroeder,.. @Nicole_Lee_Sch
18K Followers 5K Following #Disabled and #FirstGen historian. Research on #DisHist, #HistMed, and #VastEarlyAmerica. Assistant Prof at Kean University. Tweets = my views alone
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Zahra Khan (she/her) .. @hellozeik
5K Followers 2K Following Aerospace Engr. Alum: @NASAPersevere @NASA_TESS 🤖 🚗 Interests: patient-centric healthcare, antiwar in STEM. Cofounder @feministfitna blog @SmacksForehead
Heather ヘザー MSW.. @philaheather
6K Followers 2K Following Philly sports, disability justice, grant writing & nonprofit funding. Temple U alum. she/they #BlackLivesMatter //views my own 🍉
Angie B @quinky_dink
5K Followers 4K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
GeoCK @GeoEduOne
6K Followers 955 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Emily Johnson (is on .. @emily_rj
8K Followers 6K Following Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news consults. @the_dailydis. #CripTheVote
Billy Hanlon @bhanlon15
11K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Nele @NeleHelena
3K Followers 974 Following I tweet about the things I don't like: severe chronic illness / ableism / toxic positivity / medical gaslighting / dysautonomia / MEcfs / autoimmunity
Jeannie Di Bon @jdibon
10K Followers 1K Following Internationally recognised EDS/HSD Movement Therapist. 15 yrs EDS experience. Author, Speaker, Educator. IMM, The Zebra Club & Moovlite. MSc Pain Mgt
a prednisone hate acc.. @vvictorman_uel
10K Followers 5K Following that (formerly) homeless trans kid. 25. queer. aspec. german. latino. charrúa. jewish. disabled. EDS & co. ADHD & autism. he/him. 💉 7.11.17 | 🔪 1.3.19
hunter @beeefkitten
2 Followers 27 Following lesbian | cats | ask me about kidneys | 25 | migraine headache | chronically ill
Zoe @ZoeCa78
0 Followers 30 Following
Kate McG @katepeters225
175 Followers 2K Following
Xeljanz Tofacitinib @xeljanz5mg
273 Followers 1K Following we export medicine from Bangladesh. #Semaglutide #Generic_medicine #Antiviral, #Anti_cancer, #Paxlovid #Medicine_exporter #Xeljanz5mg WhatsApp :+8801929123476
Lauren Harris Hall @MushyMoMFriend
373 Followers 1K Following https://t.co/r6uiix7aNJ Please support my loved ones
Debi Platt @debi_platt9132
248 Followers 2K Following driving instructor. specialist in disability issues. Lives in ireland, but from Manchester.
AllenNZ @JAllennz
118 Followers 137 Following Wife, Granny, wire sculpture, animal lover, & secretly obsessed with reality tv #EDS #hEDS
Denver Plaatjies @DenverDavid1985
423 Followers 5K Following
Hassan Mujtaba @hmujtaba97
94 Followers 1K Following Veterinarian, Agrarian+UVASian Parachinar|Lahore
The neurodivergent en.. @nd_environment
23 Followers 180 Following Researching the intersection between climate change adaptation and disability rights. Hoping for the best, preparing for the worst. New account. Autistic.
alouette @alloalouette
1K Followers 634 Following I don’t follow back. very good at typos. exvangelical, nontheist. still curious. probably. just burned out.
Pet lover @MbabaziJoy5433
1 Followers 113 Following
Roxy06 @Roxy_sads
11 Followers 92 Following
Minner Elon musk @Miner_musk00
859 Followers 6K Following CEO AND CHIEF ENGINEER OF SPACE X 🚀CEO OF TWITTER FOUNDER AND CEO OF X CORP AND X. Al CEO AND PRODUCT ARCHITECT OF TESLA 💥🌍 INC
Peter Hall (Non-PC-Pe.. @PeterHa71149541
2K Followers 5K Following I'm just a normal guy trying to make it in an increasingly ridiculous and insane world
Meep @ohineverknow
134 Followers 2K Following
E @toyphotography1
37 Followers 61 Following
Elliot Warby @ElliotWarby1
143 Followers 937 Following
Chantal Monique @ChantalMoniqueC
426 Followers 593 Following Esthetician. Full time cat lady. Queer and angry. Chronically ill and surviving out of spite. she/they.
Suzanne Clifton 🟨�.. @_SuzanneClifton
508 Followers 814 Following National Chair of Northern Independence Party. Retweets/Follows =/= endorsement
UhhhhHolland 🇵🇸 @average_vibe
1K Followers 3K Following FREE PALESTINE. unclench your jaw, fuckers. |they/them | mediocre takes about stuff and things | 💉hrt is pretty neato |
Evan Bedser @rubot42
138 Followers 2K Following
STG #FBSI @stevietgrant
3K Followers 5K Following MALitandMEdLondonUni ex sec HT/senior leader in social care. Interests include: Lit, the Arts, Music, Politics. Pro Indy Scotland/Irish unity. DMs welcome.
Tatiana Filušová @TFilusova
6 Followers 90 Following
Gigs for Writers @gigsforwriters
2K Followers 5K Following Finding the best writing jobs so you don’t have to. Founded by @itsmelissatripp. Subscribe: https://t.co/ZfqaeMbze2
IlanADHD Guide @ilanasf
397 Followers 675 Following Adult ADHD advocate & life coach with chutzpah, Zen and joy! Ganja Yogi, folkie, EcoJew, San Francisco native. I help ADHDers navigate their life paths.
‽ @HowNotToADHD
177 Followers 1K Following 28F / #ankylosing spondylitis warrior Spacex fangirl also #chronicpain #switchfoot #NF
JARRED FOUNDATION HOM.. @HomeJarred
105 Followers 136 Following we are enriching live of young orphans in our community and society by giving them food and water
Tori Saylor @tori_saylor
8K Followers 4K Following digital @precisionstrat • alum: @P4AD_ @GovWhitmer @amprog @SwingLeft @GiffordsCourage • MS patient advocate • cat lady • opinions + sass are mine
Stu @stumcguire692
15 Followers 36 Following
Dahlia Maxime 🌸 @DahliaMaxime
409 Followers 186 Following 🔞🇦🇺🐨🏳️🌈 see all of me on the spicy site 🌶️ 🗝 Beemit @DahliaMaxime 💸
Gen Writes/Small Warr.. @Writer_Gen
1K Followers 2K Following Canadian military wife|Writer|Imposter|Volunteers at Cold Open Stories|Editing| hEDS|IBD https://t.co/PHoE9RZhU1 https://t.co/2Cb3BWE0Pa
SiennaCeeCee @SiennaCeeCee
19K Followers 107 Following ➡️ Japan 04/04-04/21 | Content Creator | Cosplayer | Level 25 | She/Her | pSVT 💜 | ♉️ |
Leela Daou @leeladaou
39K Followers 2K Following Independent Political Consultant | Photo enthusiast | Bookworm | Acts 17:24 | Married to @peterdaou
CindyInBlue @CindyRenderman
2K Followers 3K Following Liberal, Cat Mom, Photographer, Rabid Consumer of Information, Internet Sleuth, History Buff #Resist #VoteBlue
Laura Haggarty @KentuckyEntwife
4K Followers 4K Following #she/her #Liberal #photog #farmer #EhlersDanlosSyndrome #EDS #MCAS #POTS #ND
Sweetwitch2697 @SweetWitch2697
3K Followers 5K Following Widow, mother & grandmother, Disabled,#ChronicPain🧡,TRUE BLUE💙,Cat lover😸,White Witch🔮🙏🏼,NO MAGA🚫,NO DM'S🚫,NO PORN🚫,#StrongerTogether🌊🌊🌊 💙🇺🇸
Mike andrade @KLytle30541
103 Followers 1K Following Safety professional in construction / Armed with top strategies to optimize your risk management / 20+ years of real-world experience / Fuelled by curiosity.
Kenny Wilson @kenny_quest_
145 Followers 143 Following FF XIV (Goblin) & Warcraft (Area 52 & Stormrage) & Overwatch & Pit bulls & Cats & Star Wars & things & stuff. Mental Health Worker and advocate. AS/MECFS
Linzi McIntosh @linzi_mcintosh
293 Followers 4K Following Mother of multiple disabilities including Hypermobility, fibromyalgia, to mention a few. All daughter health struggles. EDS. Autism. Gillian Barre' syndrome
Patrick mahana @PatrickMah18796
68 Followers 366 Following Gods plan #Godinterest #technician #coffee
Sarah @SerraJo44
86 Followers 655 Following She/They 🐾 Autistic 🐾 PanAce🐾ADHD 🐾 EDS 🐾 Artist 🐾 Cat Parent of 5 🐈⬛🐈⬛🐈⬛🐈⬛🐈
مراد الهاشم @AlhashmMrad
456 Followers 3K Following هل تريد رؤية الملائكة إفعل خطأ واحد أمام الناس وستراهم جميعاً يتحولون إلى ملائكة
Fenx @SeasideThrone
1 Followers 98 Following Infamous Web Lurker,Curious Amateur Explorer.Diver Of Inner Worlds.Micro Blogger/Diary.My MIND is my Throne. Fibro Warrior.~Beast/Princess~
collagen machine brok.. @chronicallybeee
15K Followers 4K Following enbrel slut | she/they | #FreePalestine | https://t.co/hFC0B2O8QQ
Charis Hill | they/th.. @BeingCharisBlog
39K Followers 3K Following Disabled. Queer. Living in forced poverty. Writer, speaker, cat theydy, gardener. Punny.
Joanna No Banana @JoannaNoBanana
31K Followers 21K Following Joanna (she/her) 28 Queen of Allergies 👑 MCAS, POTS, EDS & CCI💛 Autistic, ADHD, OCD. PMDD. Check out @allergybeauty for allergy friendly products!
stable finally, getti.. @bennessb
27K Followers 693 Following currently: haunted / unwell & host of No End In Sight, creator of #NEISVoid, a keeper of @RTsFromTheVoid. find me on 🦣: @[email protected] she/her.
Gregory Mansfield @GHMansfield
42K Followers 3K Following Disabled Lawyer. Disability Rights and Disability Justice. Gregoryhmansfield at gmail.
Ru 🌸♿️ (she/th.. @RollWithRu
29K Followers 656 Following queer disabled activist who is a lover of all thinks pink 🩷🌸🧚♀️🎀 ♡ cosplayer | streamer | activist ♡ 🌸for collabs/enquiries: [email protected]
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Natalia @NataliaHodgins
7K Followers 1K Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
Dysautonomia Intl. @Dysautonomia
26K Followers 342 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Renuka Dhinakaran @renudhinakaran
6K Followers 600 Following International Labour Lawyer Patient Advocate for #hEDS #POTS #LongCovid #rheumatoidarthritis #Dysautonomia Focusing on marriage, parenting & chronic illness
Thane Black @thane_black
7K Followers 188 Following 'Kindly let me help you or you will drown said the monkey putting the fish safely up a tree' #SevereME
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Zahra Khan (she/her) .. @hellozeik
5K Followers 2K Following Aerospace Engr. Alum: @NASAPersevere @NASA_TESS 🤖 🚗 Interests: patient-centric healthcare, antiwar in STEM. Cofounder @feministfitna blog @SmacksForehead
Heather ヘザー MSW.. @philaheather
6K Followers 2K Following Philly sports, disability justice, grant writing & nonprofit funding. Temple U alum. she/they #BlackLivesMatter //views my own 🍉
Angie B @quinky_dink
5K Followers 4K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.
#Hello my name is Rac.. @Rachel_Luby
6K Followers 6K Following Writes about living experience of BPAD & 'PD' whilst practising as a #mentalhealth #Nurse #RMN; there is no 'them and us'. My own words... 💜💚;
white cat prophecy @whitecatprophcy
7K Followers 2K Following processing it all. here to commiserate and vent, not argue with Mormons.
Danielle @as_per_danielle
6K Followers 4K Following chaotic good. clever. colourful. corgis. @burnout_candles. Gastronaut. Naps, sloths. HBO. US politics. opinions my own.
ADHD Memes @ADHDForReal
24K Followers 87 Following Sharing our neurodivergent experiences helps us realize that we are not alone.
Pardon My Pain 𓅻 @PardonMyPain
2K Followers 2K Following I could do a better bio ... But not right now. She/her, science, critters, MacGyver extraordinaire, also very tired. Now at: https://t.co/aJmLB5WPkX
I appreciate you. @DeeLaSheeArt
41K Followers 3K Following Visual Artist | Children’s book Illustrator-Author| Black AF | Queer | She | represented by @jmcgowanbks
Jess @MeetJess
46K Followers 5K Following Lover of all animals. Nature admirer. Elderly advocate. Bookworm. Sarcastic & compassionate. Music lover. Fierce Mama bear. #WeNotMe #COVIDISAIRBORNE
Jacy, LPC @ATMwithJacy
21K Followers 3K Following diary of a therapist| 🚫DMS.| I make threads to destigmatize mental illness sometimes| worksheet curating queen| spiritualist| womanist| views are my own.
bonky • exmo musing.. @KirtonMcBonky
2K Followers 265 Following 🧟♂️Beware; for I am fearless, and therefore powerful. — Mary Shelley 🚯 Blocking Mediocre Mormon Men is my passion.
𝙷𝚊𝚗𝚗𝚊�.. @HannahCrazyhawk
1K Followers 748 Following Neuroscientist: Spatial Navigation, Artist, Writer, Autistic, Basque, Falconer, Chronically ill, HS - #pwHS Trigeminal Neuralgia 🧠🖖🏼♿🌻🏳️🌈🦅☸️⚛❄🦻
LisaB F.A.B.🦚♿�.. @LisaBFAB
2K Followers 2K Following freelance writer, tea drinker, spoonie, lover of fashion, art and glittery things. Daily battle with my wonky body (Fibro, OA, CFS)
I’mKindaOkay @KGIRLTRIS
2K Followers 1K Following Sporadically inquisitive. Mom to 2 girls with Mito ~ dystonia. Adults w/ disabilities advocate.
Critical Cupcake 🌈.. @CriticalCupcake
108K Followers 113K Following Science, Comedy, Left, LGBTQ+, Atheist, #Resistance ChronicPain, PolyBiPan, Queer, Anti-Religious-Harm + Bigotry, Everyone is an idiot sometimes, esp. me ;)
☭ Danni 🍉 END TH.. @DanniGSD
18K Followers 252 Following // Disabled neurodivergent stoner dog girl she/her, 21, pan //
Lisa @rainbowjanelane
229 Followers 46 Following mostly just my rants about my illness. i'm 30, living with #LongCovid since February 2021
Wose @Woseisme
291 Followers 649 Following Check out these sick moves *faints* Break it down? More like breaking down. Disabled and cool 🦓 hEds 🦓
The Bipolar Battle, I.. @BipolarBattle
19K Followers 15K Following Founder of The Bipolar Battle, Inc. | Award-winning Blogger & Mental Health Advocate | Author https://t.co/IDDpS5qdpL Founder of https://t.co/5ewa8Vkyw2
Lisa Rae/Raevyn76 @LisaRae76
134 Followers 280 Following 47-INFJ-Cancer -Taken -Disabled-Bi-Gamer-Pagan #420friendly #blacklivesmatter #Fibrofighter #lgbtqia Raevyn76 on YouTube, Twitch, Kick, and Sims4 Gallery
donna helene moeller @ababyartist
437 Followers 2K Following love god. earth🌎 art. social justice🏳️🌈BLM. music maker. liberal. democratic socialist. attorney. disabled/chronic illness. sagittarius/libra 🌌 catholic.
Samya 🏳️🌈 @TatMasSlave
877 Followers 309 Following 🌈Orphan Black🌈She-Hulk🌈Tatiana Maslany🌈she/her🌈24🌈 As a lesbian....uh supporter...
Becca Williams @MyIllnessesSuck
106 Followers 439 Following Welsh,EX RAF living in Lincs, ♿ user,spinal cord injury,MCAS,MPS,MH problems too, Mam to 2 daughters. Raw and honest about my conditions on here
Dara Does Deep State @daralynn13
28K Followers 25K Following That's what I do. I have great hair and I know things.
⏳🐈SandStone Dete.. @SandStoneArtis1
30K Followers 3K Following Chaotic detective shitposter, Artist, https://t.co/3IAzmlgj44 🚫MINORS DNI🚫 memes I post aren’t mine💜 Chronically ill (POTS) Alt @sandstoneartz
Dr Emma Katz @DrEmmaKatz
37K Followers 3K Following A world-leading coercive control expert. Academic 🎓 https://t.co/NkeltTjD3f In-demand speaker. Author. Find me on Substack. https://t.co/qzUeJixawA
Evelyn Scott @evelyn_scott_
5K Followers 5K Following Author Rep’d by Orli Vogt-Vincent at @DHAbooks📚 #Endometriosis, #disability & #WomensHealth Advocate as seen on @5_news, @MailOnline, @thetimes, etc 🌻
GC @ThePOTSPostman
5K Followers 1K Following Just a mailman with #POTS. Here to spread awareness and advocate for those with #dysautonomia #chronicillness
Ori @TheOriYouKnow
985 Followers 1K Following Former acct was deleted at 7.8k Gaming nerd w/ other hobbies⚡️Age 37 ✡️ 🇮🇱 Taken
FibroFairy @fibro_fairy
491 Followers 178 Following I'm the FibroFairy🧚♀️. I broke free from the chains of Fibromyalgia, and now seeking to help others with chronic pain.💜 https://t.co/Gpf5D4tmuD
╭༺♡༻─ Isa �.. @Isa_11_AC
6K Followers 4K Following I’m disabled and a mom. Emotional. Dramatic, sometimes funny. Follow me for sh!tposts and to learn about EDS, ADHD, MCI, PBA and more! 🐱
Celine @healingfromlc
9K Followers 3K Following COVID in December 12022 HE | Bedridden with severe #LongCovid | Data scientist | Dutch
Vanessa Smith @normal_ness
2K Followers 2K Following We’re all normal to ourselves. I write. Hates hustle,loves shiny objects. Can’t even influence an ant. Anthropology & sociology graduate Author of books.Spoonie
Sprouts @sproutsfm
31K Followers 1K Following Delight in the goodness of fresh, healthy foods and good-for-you supplements.
Briana Mills, LMFT �.. @theBrianaMills
8K Followers 744 Following Licensed Marriage and Family Therapist #134337. Not your therapist. Physically disabled. Bi. Specializing in disability, medical trauma, EMDR, and LGBT. She/Her
Allergy & Asthma Netw.. @AllergyAsthmaHQ
10K Followers 4K Following 🌟 Allergy & Asthma Network unites and advocates on behalf of 60 million Americans with #asthma 😷, #allergies 🤧 and related conditions. Learn more ⬇️
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
InboxDollars @InboxDollars
71K Followers 198 Following InboxDollars® rewards members with cash for engaging in a variety of everyday activities to add value to their lives!
Vitassium @vitassium
141 Followers 112 Following 🧂 An easy boost of sodium + potassium to help manage your chronic illness symptoms 🥄 Created for POTS, EDS + more 📷 Use #Vitassium to be featured!
Neha Sampat @NehaMSampat
643 Followers 567 Following Found my voice & using it. #Belonging builder. Do-Betterer. Mama, Speaker, Writer, Chronic Migraineur, Box-Breaker, @BelongLab CEO
colleen muchka @colleenmuchka
23 Followers 42 Following
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
z & co @coffeespoonie
47K Followers 855 Following 20-something, almost 30-something. queer disabled jewish writer/traveler with a good dog.
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
𝙽𝚊𝚝 @autisticdreamer
3K Followers 914 Following
Debbie ACSW @debbieACSW
1K Followers 3K Following 💙 Share Truth and Kindness. LMFT, Private Practioner and Mentor. UIC/Northwestern💜 🌊 Fight for Democracy cause your life depends on it. LC March 2020
Narcissist Facts 101 @narcissistfacts
29K Followers 343 Following Red flags of narcissism🚫Tips for healing🗒Support and validation for victims of narcissistic abuse💛All information from personal experience and the DSM-5📚
C𝑟𝑖𝑠𝑡𝑖.. @Owl_ofthewoods
2K Followers 3K Following I love photography bc it allows me to show people how beautiful they truly are. EDS, autoimmune, poet, birder & bookworm. ❤️ Loved by DW. Bi 👑🌈 She/Her BLM
hally @birdbrainmd3
3K Followers 2K Following 24 ✡︎ absolutely hate chiropractors. she/her Chicago«-»Memphis
@DiaryofaSickGrl Yes, very much so. It’s epigenetics, the things that switch the genes on and off, culmanitive damage, and the effects of stress on the body. ‘The body keeps score’ is meant to be a really good book.
I cannot stress enough how important it is to avoid getting COVID, a virus that causes Long Covid, autoimmune conditions, mental health conditions, heart attacks, strokes, diabetes etc etc etc when there is less and less support for those who are ill. Don't think it won't be you.
“It’s too easy to get disability benefits”… said by people who have never had to apply, appeal, go to tribunal, and have lost loved ones due to the inhumane process.
Do you think the more times a virus is reactivated in our body, like EBV, the more susceptible we become to autoimmunity illness?
@DiaryofaSickGrl ‘What other people think of you is none of your concern’ is the best life advice. You can’t live for other people, and you can’t please everyone- so please yourself. If they aren’t paying your bills or giving you orgasms…no thanks!
@DiaryofaSickGrl I was just thinking about this and then I see it, so true girl. 🩵
“You should care about disabled people because you might become disabled” “You should care about women because they might be your mum/wife/daughter” No, you should care about these people because they are people, they deserve to be cared about and their rights to be protected.
Why has the public accepted that people will die and become disabled by Covid? They know it’s happening, they know it could happen to them, but they go along with it. Why?
@DiaryofaSickGrl Just read a great book by Polly Atkin - 'Some of us fall' which describes the awfulness of EDS
It's frightfully common how ignorant people can be, and yet we were *completely* in the dark about our own daughter having migraines for far too freaking long. And I am totally leaving aside the dismissal of long covid. Ignorance is bliss 😭😤😡🤯 Thx @DiaryofaSickGrl
My coworker dead ass looked at me in the face today and said, "You know, even outside of your *dismissive hand wave* covid stuff, it's been a bizarre sick season. Last week 2 kids were out of my son's class for migraines, MIGRAINES! Since when do kids get migraines?" 🫠
It is supremely inappropriate that medical professionals are not masking in clinic. It makes me unbelievably angry.
How many people did you kill or disable today? Me: zero.
My coworker dead ass looked at me in the face today and said, "You know, even outside of your *dismissive hand wave* covid stuff, it's been a bizarre sick season. Last week 2 kids were out of my son's class for migraines, MIGRAINES! Since when do kids get migraines?" 🫠
I've met my goal! So these hoodies will be made for sure! The guaranteed pre-order period ends April 30th. So get yours soon!
🌸 IV Hoodies Pre-order 🌸 They have forearm zippers for IVs, etc. Chest zippers for Ports, etc. They can be worn by anyone! 100% cotton. Oversized fit. Thick. Puff printed details (strawberries, flowers and stars). What do you think of them? Please share!! Details below!
Please don’t assume that EDS / HSD patients aren’t trying hard enough with their exercises. You won’t see the same pace of change as a non EDS patient. There are many reasons people may struggle with exercise. Listen to their whole story before making assumptions.
@FrostingSloth @DiaryofaSickGrl And how does it affect it? In my case I have a prolapsed uterus and bladder, all that because of low quality collagen. 😶
@DiaryofaSickGrl Man, I wish I could positive think my way into getting my brain to produce the feel good chemical - or my heart into pumping right - or my veins into working. Source: Panic Disorder, POTS, Venous Insufficiency
Same but only that last part
It has taught me to enjoy the little things and cherish memories. But it has also taught me how terrible people can be.
Trends for United States
You might like
