MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.linktr.ee/MDAorg NationwideJoined June 2009
Diagnosed with #SMA at just one year old, #MDA National Ambassador Ira Walker’s journey showcases resilience and determination. With promising new treatments, he’s on a mission to unite the #neuromuscular community and inspire change. Read his story in @RareDisease_Adv.
Diagnosed with #SMA at just one year old, #MDA National Ambassador Ira Walker’s journey showcases resilience and determination. With promising new treatments, he’s on a mission to unite the #neuromuscular community and inspire change. Read his story in @RareDisease_Adv.
MDA and @CureFA_org are proud to announce a collaborative grant for $300,000 awarded to a team of investigators at @UMassChan. This funding will further research into using novel genetic technologies to treat #FriedreichsAtaxia (FA). Learn more: mda.org/press-releases…
This #MemberMonday, we're recognizing the members of Southeast Massachusetts Branch 18 and their efforts to #DeliverTheCure! The branch recently hosted its third annual cornhole tournament to benefit @MDAorg, raising more than $3700 in the process. Thanks to all who participated!
For over 70 years, fostering connections with individuals and families impacted by #neuromuscular disease has been central to MDA's mission. This #NationalVolunteerMonth, discover exciting ways to connect with MDA and be a part of our mission: mdaquest.org/how-mda-can-su…
#MDA’s new Next Steps Seminar will guide newly diagnosed adults 18+ and their #caregivers to identify next steps in their journey. We are here to support you.
Register for this free virtual event on April 23-24 from 5-8pm ET here: mda.org/care/community…
🗣️🎙️Join us for a new NeuroVoices! This week's initiation features Sharon Hesterlee, PhD, of @MDAorg, who discussed the significance of the @US_FDA approval of givinostat (Duvyzat; Italfarmaco) and how it changes the care for patients with #DMD.
👉 neurologylive.com/neuro-voices
The 30th Annual Ed Morse Golf Classic is fast approaching on May 3, raising millions over the decades to accelerate research. Learn more from @EdMorseAuto Chairman & CEO, Teddy Morse, and MDA National Ambassador, Ira Walker, on @WPBF25News. Register today: one.bidpal.net/morsemda/welco…
The 30th Annual Ed Morse Golf Classic is fast approaching on May 3, raising millions over the decades to accelerate research. Learn more from @EdMorseAuto Chairman & CEO, Teddy Morse, and MDA National Ambassador, Ira Walker, on @WPBF25News. Register today: one.bidpal.net/morsemda/welco…
The biggest adventure in life is to live your dreams, even if you have to ask for help. #MDA ambassador Travis, who lives with #SMA, shares his story! mdaquest.org/mda-ambassador…#QuestBlog
5K Followers 4K FollowingGeneticist, Skeletal Muscle, Drug development, Gene therapies. Non-coding RNA, and Zebrafish Aficionado. All tweets are my own. Instagram @thealexanderlab
12K Followers 2K FollowingALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
4K Followers 5K FollowingPolitical Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
9K Followers 607 Following39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
5K Followers 62 FollowingCommercial-stage biopharma company focused on the discovery & development of precision genetic medicine to treat rare neuromuscular diseases. https://t.co/HFP4txOCxe
18K Followers 3K FollowingWe connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter.
2K Followers 2K FollowingDirector, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
3K Followers 1K FollowingMarried to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
2K Followers 1K FollowingALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
2K Followers 663 FollowingWe invite you to the 28th International Annual Congress of the World Muscle Society in 2023. This is the premier annual Congress on #neuromuscular disorders.
922 Followers 28 FollowingWe exist to bring you science, research and clinical news about Muscular Dystrophy. We are a free digital publication dedicated to the patient community.
2K Followers 2K FollowingDuchenne Advocate/Rare Disease Activist Mom, Designing Mom-Creating awareness & advocating for approval of safe & effective drugs. Words are always my own.
0 Followers 20 FollowingThirty-something guy in England living with Congenital Muscular Dystrophy. Author of the website and blog https://t.co/be1ruDpUlW
83 Followers 122 FollowingJARDIN is created to improve the accessibility of the ERNs for people living with rare diseases or complex conditions in EU member states.
125 Followers 203 FollowingExploring cellular black holes. This account dedicates to our lab's scientific endeavors @ucdavishealth. PI's @DrContrexin account is now reserved for venting
141 Followers 1K FollowingAwareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #CureHD #CureJHD too.
20 Followers 28 FollowingFor it is through adversity that we discover our true potential, and it is through perseverance that we achieve greatness.
#BeckersMuscularDystrophy
80 Followers 495 Followingit’s your Life Do What you got to do it’s your dream and sometimes dreams come true so take it easy and don’t let the sound of your own wheels drive you crazy
3 Followers 9 FollowingLes centres « Un cors’sain » vous proposent des offres adaptées à vos besoins : du fitness, de la musculation, du cardio-training, des cours animés ou en vidéo
164 Followers 679 FollowingKIHTO Healthcare hire a range of specialist beds & cots manufactured by Centrobed. For short or long term hire, contact our team on 01233 635353/[email protected].
395 Followers 1K FollowingTrusts & Grants Manager/SEN parent/ FSH muscular dystrophy advocate/ Wants dog walks, great books & a brew. All views are my own
5K Followers 4K FollowingGeneticist, Skeletal Muscle, Drug development, Gene therapies. Non-coding RNA, and Zebrafish Aficionado. All tweets are my own. Instagram @thealexanderlab
12K Followers 2K FollowingALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
5K Followers 62 FollowingCommercial-stage biopharma company focused on the discovery & development of precision genetic medicine to treat rare neuromuscular diseases. https://t.co/HFP4txOCxe
18K Followers 3K FollowingWe connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter.
922 Followers 28 FollowingWe exist to bring you science, research and clinical news about Muscular Dystrophy. We are a free digital publication dedicated to the patient community.
3K Followers 1K FollowingGlobal organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
5K Followers 1K FollowingMDC's mission is to help people with neuromuscular disorders live life on their own terms.
#WalkRollMDC #MuscularDystrophy
FR: @Action_Musclee
6K Followers 509 FollowingWe are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.
41K Followers 3K FollowingNational Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
21K Followers 2K FollowingThe Professional Fire Fighters of MA represents over 12,000 Union Fire Fighters & EMT's throughout MA. *FOLLOW US FOR LIVE FIRE & EMERGENCY NEWS & INFO.*
10K Followers 6K FollowingThe most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS
44K Followers 3K Following29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
5K Followers 619 FollowingFunding groundbreaking research for SMA. Determined to find a cure & support our community as the future of SMA is ever-changing.
561 Followers 154 FollowingCGTLive delivers quality and relevant information to healthcare professionals on cell, gene, regenerative, and engineered medicines to ultimately improve care.
1K Followers 411 FollowingOveruser of the exclamation point and frequent opponent of inaccessible buildings. Student scholar @ColumbiaIGP, @ACESEditors + Roothbert Fellow 📚
171K Followers 1K FollowingFighting for social justice. Co-Executive Director, @BeAHero.
Husband to @rachael_scar, Abba to Carl & Willow.
Paralyzed by ALS. Author: Eyes to the Wind.
7K Followers 3K FollowingNonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
8K Followers 1K FollowingNemours cares for more than 400k children annually at more than 80 locations in Delaware, Florida, New Jersey, and Pennsylvania. #WellBeyondMedicine
1K Followers 1K FollowingSenior Producer at @KSDKnews. Emmy Award Winner. @RIASBerlin Fellow. Adore My Dog. Cardinals Fan. Bleed Blue. Go Knights Go. LU For Life. #VegasStrong
32K Followers 150 FollowingOn The Road with Steve Hartman | Fridays on the @CBSEveningNews | Sundays @CBSSunday | #Kindness101 l Email us: [email protected]
3K Followers 3K FollowingBBB WGA helps donors make informed giving decisions. We have over 10,000 reports on national and local charities making it easy for you to give wisely.
187 Followers 677 FollowingMother of boys and other animals. Writer. Ideas-seeker. Love books + real talk. Red Sox Nation lifer. Duchenne warrior: https://t.co/OOrB4PPSTL
267K Followers 4K FollowingOpen every day except December 25, from 10:00 a.m. to 5:30 p.m. Visit our site to learn more and explore: https://t.co/UzeJSDqYyQ
2K Followers 1K FollowingScott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
32K Followers 1K FollowingOfficial acct. for Columbia University Irving Medical Center in #NYC. Research, education, & patient care news. Find #ColumbiaMed on IG, TikTok & Facebook too!
4K Followers 1K FollowingReporter at Science magazine (but opinions my own.) Author of "The Vaccine Race: Science, Politics and the Human Costs of Defeating Disease."
35K Followers 2K FollowingMafia Babes is a community of female Bills fans and a 501c3, who thrive on changing lives by focusing on a different Buffalo Bills player’s charity each month.
9K Followers 1K FollowingMusician, Actor, Husband, Daddy, Biker, Georgian, Water Lover, Founding member - Zac Brown Band - NEW Christmas Album available on my site.
152K Followers 224 FollowingWe chase the miracles of science to improve people’s lives. Interactions with this account must comply with the Terms: https://t.co/mXmuqtkJaU
371 Followers 43 FollowingEdgewise Therapeutics is a leading muscle disease biopharmaceutical company developing novel therapeutics for muscular dystrophies & serious cardiac conditions
498 Followers 651 FollowingTripping Billy--Home Cook/Pizza Maker
Living with Muscular Dystrophy (LGMD2L)--
IL Ambassador for @mdaorg--
https://t.co/SXxkrQmFfB
229 Followers 0 FollowingPlease see Important Safety Info: https://t.co/bwBjXXuTqL & Full Prescribing Info: https://t.co/cUqi6D4hIc. This page is intended for US Audiences Only.
786 Followers 159 FollowingClinical-stage biopharma focused on improving the lives of patients with genetic diseases in areas of high unmet need. Guidelines: https://t.co/gPiypRVuKZ