Moonbeam Ninja @NinjaMoonbeam
I'm am an advocate for all ALS warriors Atlanta, GA Joined December 2020-
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Army veteran & Michigan resident dies of 100% fatal #ALS at 47 denied safe/effective treatment. #NurownWorks #DiedWaiting @SenStabenow @SenGaryPeters, join the 315 bipartisan House #ACTforALS cosponsors. Cosponsor Senate companion bill, S.1813. #EndALS obits.mlive.com/us/obituaries/…
Ethan deserved a chance to live @US_FDA @FDACBER. #NurownWorks #FDAfailedALS @SenatorBurr @SenBillCassidy @SenatorBraun @RandPaul @SenatorCollins @SenatorTimScott @MittRomney @SenTuberville @SenatorHick @RepAnnaEshoo @RepJohnCurtis @brettguthrie @SenJohnBarrasso @SenatorBraun
Thank you @RepMikeQuigley Thank you for standing up for us, standing with us. We are so grateful for your leadership. #ACT4ALS
Thank you @RepMikeQuigley Thank you for standing up for us, standing with us. We are so grateful for your leadership. #ACT4ALS
Thank you @SenJackyRosen for joining us in the fight of our lives. We are so grateful for Senators who can hear our stories & take action so that we can change our story's endings. #ACT4ALS
Thank you @SenatorWicker’s office for meeting w/members from the ALS community today & leaning in to better understand how ALS plagues Veterans at a higher rate.You can help those battling ALS, a service related disease, by sponsoring #S1813 #ACT4ALS. Are you in?
Washington has 11 ALS Clinic(s), 19 DoD sites, and 510,709 Veterans. There are 47,521 post-Gulf War Veterans, which are at 4x to 10x risk of ALS. Will you support #S1813 #Act4ALS? @PattyMurray ? @SenatorCantwell ? I'm available to discuss.
Washington has 11 ALS Clinic(s), 19 DoD sites, and 510,709 Veterans. There are 47,521 post-Gulf War Veterans, which are at 4x to 10x risk of ALS. Will you support #S1813 #Act4ALS? @PattyMurray ? @SenatorCantwell ? I'm available to discuss.
Oklahomans are grateful to Senator @JimInhofe for sponsoring #S1813 the #ACTforALS. As the Ranking Member of Senate Armed Services Committee, his support also helps #Veterans w #ALS who have up to 10x risk of ALS, including the pilots at #AltusAFB @MilitaryTimes @AirForceTimes
Met w Tom Pfeiffer of @SenToomey's office today re #S1813 & #NurOwn. As Ranking Member of Senate ALZ Caucus, his staff understood neurodegenerative diseases & had some of most relevant questions we've had in 100s of meetings re #ALS We need @PatToomey's leadership! #ActforALS
My heart breaks for Lori. She lost both her twin girls to #ALS. Their memory inspires the community, but the FDA can help keep their legacy alive. @RepAnnaEshoo @rosadelauro @janschakowsky @RepKimSchrier @RepLoriTrahan @RepFletcher @PeterWelch @RepKathleenRice @RepAnnieKuster
My heart breaks for Lori. She lost both her twin girls to #ALS. Their memory inspires the community, but the FDA can help keep their legacy alive. @RepAnnaEshoo @rosadelauro @janschakowsky @RepKimSchrier @RepLoriTrahan @RepFletcher @PeterWelch @RepKathleenRice @RepAnnieKuster
Drop foot in left worse than rt.Legs wasted.Can’t walk w/o help.Left hand like skeleton.Rt hand & left forearm wasting.Weak core.W/o your help @senrobportman @SenSherrodBrown I will have to stop working & go on social security. Medicare or Medicaid. Day 20 begging for our lives.
WOW. Zoom calls w 32 yo Josh & his mom @Smithstrongmom1 since last summer. Zoomed this morning & his voice is sooooo much improved! What's changed? Josh just got his 3rd & last dose of #NurOwn #EAP FDA must approve NurOwn NOW! #LivingProof #NurOwnWorks @SenToomey @PatToomey
Thank you @SenBlumenthal for sponsoring #S1813 to give Alex & 30k Americans the same access to drugs in clinical trials that cancer patients get via FDA's #ExpandedAccess program Your support gives them a chance to have more years of their one of a kind love! #DrugsinBodies
Thank you @SenBlumenthal for sponsoring #S1813 to give Alex & 30k Americans the same access to drugs in clinical trials that cancer patients get via FDA's #ExpandedAccess program Your support gives them a chance to have more years of their one of a kind love! #DrugsinBodies https://t.co/cuEjyUv8Du
Please join the 315 bipartisan House #ACTforALS cosponsors. Cosponsor Senate companion bill, S.1813. @GOPHELP @HELPCmteDems @PattyMurray @SenatorBurr @SenBobCasey @SenatorTimScott @MittRomney @SenatorLujan @SenTinaSmith @SenatorHassan @timkaine @ChrisMurphyCT @SenatorBaldwin
Please join the 315 bipartisan House #ACTforALS cosponsors. Cosponsor Senate companion bill, S.1813. @GOPHELP @HELPCmteDems @PattyMurray @SenatorBurr @SenBobCasey @SenatorTimScott @MittRomney @SenatorLujan @SenTinaSmith @SenatorHassan @timkaine @ChrisMurphyCT @SenatorBaldwin
ALS IS NOT RARE! The lifetime risk of horrific & 100% fatal #ALS is ONLY 1 in 300 & INCREASING. @PattyMurray @SenatorCantwell, Kristen & her loved ones are constituents & are asking for your support. Cosponsor lifesaving bipartisan #ACTforALS, S.1813. @SteveGleason
ALS IS NOT RARE! The lifetime risk of horrific & 100% fatal #ALS is ONLY 1 in 300 & INCREASING. @PattyMurray @SenatorCantwell, Kristen & her loved ones are constituents & are asking for your support. Cosponsor lifesaving bipartisan #ACTforALS, S.1813. @SteveGleason
If you're wondering where the @alsassociation leadership is while we're fighting for our lives every second of every day, the answer is the same as it has been for years... Nowhere to be found. #AbandonedByALSA #AllTalkNoACTION #NurownWorks #ACTforALS #PromisingPathwayAct
"YOU HAVE POWER! Your power is your voice! Your voice is writing a letter, making a phone call,..." "This president and this congress have got to know that this is a priority." #EndALS I hope legendary AIDS activist Larry Kramer inspires you too. youtu.be/vIQDlW7UtzI
Roberto with #ALS moving hand for 1st time in 18 mos after ONLY 3 doses of #NurOwn in #ExpandedAccess. Finger function would allow me mouse clicking on computer & control of wheelchair. What would more treatment do? @SenBillCassidy @SenJohnKennedy, tell @FDACBER #ApproveNurown
Thank you @RepMikeQuigley @JeffFortenberry @ChrisCoons @lisamurkowski. 🙏♥️ You've brought hope and are driving change with the needed urgency that will save countess families the extreme suffering and devastation of #ALS. #ALSchampions
Thank you @RepMikeQuigley @JeffFortenberry @ChrisCoons @lisamurkowski. 🙏♥️ You've brought hope and are driving change with the needed urgency that will save countess families the extreme suffering and devastation of #ALS. #ALSchampions
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Shah Minokadeh, M.D. @MinoShah
4K Followers 730 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Grant W Smith @GWSmith14
1K Followers 1K Following MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
alsHATER @HaterAls
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No More Excuses ALS W.. @als_now
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Nicole Cimbura @nicolecimbura
1K Followers 2K Following
Christine Gilmore RN @KickenALSAss
2K Followers 2K Following ALS Bad-Ass. Registered Nurse. MHA . Married. ♿️. DM Scammers will be reported.
Jan Mattingly @mattwoman
434 Followers 490 Following ✡️ Canadian, ALS hater, will like or RT any authentic ALS tweet. I know great loss: My loving son passed from ALS June 2022.
Mandi @RunningMama0522
2K Followers 1K Following
Sherry Quisenberry @sherryquis
2K Followers 1K Following A Kentuckian living in GA. Living with PLS/ALS and pissed that no access to real treatment exists. Love books, good jokes, my family and the changing seasons.
Nicola Waters @AberdareNic
1K Followers 2K Following Valleys girl living in North Essex. Mother of two boys, age 12 and 9. Fighting MND one day at a time... #MND #ALS
Teese @Teese561006
0 Followers 124 Following
Winter @Winter825672698
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Bella @Bella1212545
1 Followers 275 Following
Theau @Theau9945413232
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Harper13 @Harper131156631
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Daphne_BC @DaphneB26565
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Teteasheigh @teteasheig59593
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Kylo @Kylo791693
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Samantha Rouse @RouseSaman58247
141 Followers 3K Following
Warren Schiffer @Wingsoverwallst
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Theteset @Theteset197746
11 Followers 2K Following
All is Well: Lessons @AllsWell333
617 Followers 4K Following “All is Well: Life Lessons from a Preacher’s Father” by Kevin Martin Jr, a story of love and lessons from his dad. All profits to #ALS. #Deacon #CPA
melissa maria @melissamaria510
433 Followers 523 Following Born in NJ, stuck in NY, heart is in CT. Mind Over Matter. Caroline Ducharme/KK Arnold Fan. Cat mom to Chip. Brooke Mackenzie Ellison 1978-2024
Kiingslothh @kiingslothh
0 Followers 427 Following
azzzz @DewafTek
180 Followers 303 Following
Cecilia Aguirre-Crow @Ceecicrow
35 Followers 96 Following ALS Warrior,fighting for expedited treatment
BridgetRebecca @BridgetRebecca4
842 Followers 663 Following Momma bear 🐻 fighting for ALS treatments and a cure #Andrewsstrong
Hadiimailhh @hadiimailhh
188 Followers 242 Following
Johannes @Yuehan218
185 Followers 671 Following
Derek Swinnard @DSwinnard
131 Followers 200 Following
Sam Spears @SpearsSam
196 Followers 693 Following PhD Student at UCL & @NikSharmaLab researching bespoke neck collars for people living with MND/ALS | MSc, BSc | he/him
D'Andrea Jones @wahhooscwgrl
614 Followers 5K Following I lost an Amazing Husband to the horrific disease ALS! Raise awareness to Lou Gehrig’s disease! #ALSSucks #SoulMates #ALSFindACure
Sonja RILEY Wadley @Sonjasparkles
440 Followers 755 Following
Lisa Martinez @LisaMar17763916
462 Followers 685 Following supporting @jamieroseberryy 💙ALS community 🐺🌹#ENDALS a wise woman once said “ you can’t scare me I have ALS “@sandymorris333
@domingoatlarge @domingoatlarge
760 Followers 5K Following A family man running for State Representative for MA. Follow for updates and more information. Tweet me your ideas, questions and concerns!
Alon Ben-Noon @NoonAlon
1K Followers 3K Following Leading NeuroSense Therapeutics (Nasdaq: $NRSN), a Clinical stage Biotech company, accelerating therapies for ALS and Neurodegenerative diseases.
عسكر @wdSeaidDSgniCwN
239 Followers 526 Following I've been a side ALS patient for 11 years, and I'm still fighting to stay strong, thanks to God. Please find a cure for the disease.
Peggy Jennerman @PJennerman
81 Followers 618 Following Wife , mother and grandparents of 14 grandchildren and love to ride my Harley Davidson ♥
Fran gelo @Frangelo1812
73 Followers 1K Following
Jorge C. Abdalla Jr. @JorgeAbdallaJr
85 Followers 1K Following Fundador e Presidente do Conselho de Administração da Associação Pró-Cura da ELA e Presidente da UNELA “Founder and Chairman of ALS Pro-Cure Association” Brasil
wayne thomas @nwaynet
571 Followers 1K Following ALS Warrior! World Trvlr - 38 countries, Joanna.Foodie.Xmas.Fur kids:Callie & Skye. FCPHR, CMC, MBA, Sr. Leader. LIVING LIFE NOT WAITING TO DIE.🇨🇦🇺🇸🥂🍽
JulieDoyleCullen @JulieDoyleCull
555 Followers 821 Following Business woman and caregiver turned #author. Doing what I can to fight #ALS
Fight with Juan @fightwithjuan
900 Followers 368 Following Husband. Dad. Former Jai-Alai Player, Software Developer, Entrepreneur and IT Manager. Living with and Fighting ALS
Terri-Lynn @TerriAL1180
44 Followers 132 Following Love God, Family, and country. Proud grandmother and Trump supporter
Tony Goodger ✝️�.. @Carer26
346 Followers 1K Following Former food industry professional 5+ Years as #UnpaidCarer to terminally ill wife who has #MND Social Care is broken. The politicians don't seem able to fix it
Mike Fleming @mfleming143
620 Followers 5K Following 19 years of buy side experience. Now investing for my own account. CFA charter holder. Goldbug. Hobby = AvGeek. ALS advocate.
StampOutMND @StampOutMnd
319 Followers 1K Following Charity Fundraiser For The Motor Neurone Disease Association since 2015
Jill 💞 @jills222
282 Followers 958 Following ❤️⚽️💜 I’m Grateful to ALL who’ve truly inspired me!Fighting ALS❤️⚽️ @USWNT @NWSL @ALS #BLM #Resistance @IamALS @SpiritSquadron #LoveconqersHate
wendykyle @WendyKyle14
39 Followers 252 Following Engineering Sourcer, Cybersecurity. AZ dem. Also: FUCK ALS. #DyingWaiting (He died waiting - 3/3/22).
Davina Rivers @DavinaRivers
3K Followers 5K Following My beloved Eric lived, loved,inspired, died from #MND 07/11/2015 aged 49. Widow navigating all things grief, solo parenting with 3 remarkable young daughters.
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Shah Minokadeh, M.D. @MinoShah
4K Followers 730 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Grant W Smith @GWSmith14
1K Followers 1K Following MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 907 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Stew @jonstew1982
2K Followers 193 Following Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!
Chris Snow @ChrisSnowCGY
26K Followers 194 Following Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary Flames
Senator Jacky Rosen @SenJackyRosen
53K Followers 816 Following Working across the aisle to deliver for hardworking Nevada families in the U.S. Senate. Proud mom and wife. Former computer programmer and synagogue president.
Senator Roger Wicker @SenatorWicker
115K Followers 713 Following Senior U.S. Senator for Mississippi. Ranking Member @SASCGOP. Please visit my website for updates.
Sen. Jim Inhofe @JimInhofe
95K Followers 339 Following Former United States Senator from the great state of Oklahoma.
Glennon Doyle @GlennonDoyle
316K Followers 2K Following ▫️Author of UNTAMED and LOVE WARRIOR ▫️Host of WE CAN DO HARD THINGS Podcast ▫️Founder of @togetherrising ▫️She/Her.
Senator Angus King @SenAngusKing
242K Followers 564 Following News from the office of Independent U.S. Senator Angus King of Maine. Following/retweeting does not equal an endorsement.
Governor Tim Walz @GovTimWalz
231K Followers 977 Following Dad, husband, teacher, coach, veteran. Governor of Minnesota. Working to move our state forward as #OneMinnesota.
Star Tribune @StarTribune
420K Followers 768 Following Minnesota's top choice for news. https://t.co/1lOWKpK3lo | https://t.co/tqIT8KzYzL. Behind the scenes: @btstartribune 👉 https://t.co/3PwVWJmvfC
janashortal @janashortal
60K Followers 2K Following Journalist. Reporting for and hosting Breaking The News on KARE11, 6:30 pm weeknights. My tweets are my own. (they/them)
MPR News @MPRnews
278K Followers 814 Following Telling stories of Minnesotans and keeping you informed. This account is currently inactive. For the latest news, head to https://t.co/LbhZTwcfvo.
Indignant Minnesotan @IndignantMN
15K Followers 53 Following Either at the cabin or wishing we were. Keep a watch out for any ranking where we're not #1 - because we will come for you. Funded by Dewey Dayton.
Erin Maye Quade @ErinMayeQuade
24K Followers 4K Following Minnesota State Senator (SD56), Special Projects Advisor @GenderJustice, wife of @alysemayequade, mom of Hattie
Melvin Carter @melvincarter3
30K Followers 3K Following Proud dad & husband; runner of sidewalks; weekend woodworker; Mayor of Saint Paul, Minnesota.
Lt. Governor Peggy Fl.. @LtGovFlanagan
50K Followers 743 Following Mom, wife, organizer, former State Rep, Anishinaabekwe. Lt. Governor of Minnesota. Working together across lines of difference to get things done. #OneMinnesota
Senator Amy Klobuchar @SenAmyKlobuchar
95K Followers 5K Following Senior U.S. Senator from MN | Chair of the Senate Rules Committee & Judiciary Antitrust Subcommittee | Snow enthusiast ❄️
Sven Sundgaard @svensundgaard
57K Followers 3K Following Minnesota Meteorologist, Climate, Explorer, Licensed Realtor. Views here reflect my own & not any employer/organization. RTs are NOT an endorsement.
Senator Tina Smith @SenTinaSmith
99K Followers 3K Following Mom, wife, daughter, and loving but distracted friend. U.S. Senator for Minnesota. Prefers window seats, donuts and MN beer (all together when possible)
Pat Toomey @PatToomey
13K Followers 4K Following Official Campaign Account of Republican U.S. Senator Pat Toomey
Ali Schoos, PT @PTAli1
1K Followers 1K Following Primary Care PT 4 Health&Fitness/Outdoor Lover/ Biz owner/ Alzheimer's advocate-1 red wine-a-day/ALS Mama Bear advocate (dammit) #ChoosePT
Richard Carlson @RikWCrlsn
172 Followers 278 Following Diagnosed with #ALS / Lou Gehrigs Dis.. We need to do more than the Ice bucket challenge to educate people about this God awful disease which there is #NOCURE .
U.S. Senator Bill Cas.. @SenBillCassidy
61K Followers 2K Following Treated uninsured patients as a doctor in Louisiana’s charity hospital system, now serving the people of my state in the US Senate. Proud LSU grad! #GeauxTigers
Elizabeth Warren @ewarren
5.8M Followers 560 Following U.S. Senator, former teacher. Wife, mom (Amelia, Alex, Bailey, @CFPB), grandmother, and Okie. She/her. Official campaign account.
Cheryl Peters @CherylPSchmidt
28 Followers 35 Following Planning a wedding. Preparing for a puppy. Working to cure ALS.
Sonja RILEY Wadley @Sonjasparkles
440 Followers 755 Following
J. Mark Wallach @AssocITMan
711 Followers 471 Following Empowering Associations with Engagement Apps. Husband & Father of Strong Women & ALS Warrior. Tweets are my own. My job is your success. #MJIYS
Tammy Duckworth @SenDuckworth
722K Followers 7K Following Official Twitter account for U.S. Senator Tammy Duckworth. For more information, visit
Sen. Debbie Stabenow @SenStabenow
155K Followers 2K Following Mom, Grandma, musician and honored to represent the people of Michigan in the U. S. Senate, she/her
Sen. Susan Collins @SenatorCollins
545K Followers 928 Following United States Senator from Maine. All tweets originate from the Press Office of Senator Susan Collins.
Senator Joe Manchin @Sen_JoeManchin
355K Followers 943 Following U.S. Senator for #WV. Chairman of @EnergyDems. Please do not hesitate to contact me to share your commonsense ideas, concerns or if you need assistance.
Sherrod Brown @SenSherrodBrown
490K Followers 366 Following Chairman of @SenateBanking. Proud to serve Ohio.
Senator Dianne Feinst.. @SenFeinstein
1.4M Followers 260 Following United States Senator from California. On Facebook at: https://t.co/RVLkJPLS9Y
Yamiche Alcindor @Yamiche
1.2M Followers 8K Following Washington Correspondent for @NBCNews. Email: [email protected].
Senator Cortez Masto @SenCortezMasto
76K Followers 942 Following U.S. Senator from the great state of Nevada.
Richard Blumenthal @SenBlumenthal
699K Followers 975 Following Official Twitter account of U.S. Senator Richard Blumenthal, proudly working for the people of Connecticut.
Senator Mazie Hirono @maziehirono
490K Followers 2K Following U.S. Senator Mazie K. Hirono - Proudly Serving the People of Hawaii
Sen. Tammy Baldwin @SenatorBaldwin
151K Followers 3K Following Official Twitter account of United States Senator Tammy Baldwin's office, proudly working for the State of Wisconsin.
Martin Heinrich @SenatorHeinrich
204K Followers 751 Following U.S. Senator for NM | Husband, dad, recovering engineer. Constantly seeking climate action, a fair shot for all New Mexicans, and the best elk adovada recipes.
Sen. Maria Cantwell @SenatorCantwell
250K Followers 2K Following U.S. Senator from Washington State | Chair @commercedems | https://t.co/hxwJAXpyg7… | https://t.co/TZiAX2cens | RT≠endorsement
Craig "I Stand with U.. @CraigRoth
719 Followers 621 Following Founder/CEO: Rothenberg Strategic Communications, Inc. Helping cos. tell better stories, organize for success, problem solve & develop leaders. Adjunct Prof/NYU
Waldy Nunez @nunez_waldy
41 Followers 359 Following
LRS @LRS5252
321 Followers 325 Following Obsessed with animals. TOTAL PACKER FAN!!!!! Love the bad boys on any series!! Packers owner !!kicked cancers ass! Married and lots of animals
Team Hilliard Foundat.. @TeamHilliardALS
2K Followers 1K Following Team Hilliard Foundation, a 501C-3 Charity to fund research for a cure for ALS and support families facing ALS. Phil 4:6 https://t.co/WIWLmaHAPv
Emily Mayberry (she/h.. @ejmayberry
339 Followers 516 Following Clinical Psychologist & Researcher | PhD, DClinPsy | 🇺🇸🇬🇧🌏 | focus: MND/ALS; improving psychological care and quality of life for all affected | views mine
Cytokinetics @Cytokinetics
2K Followers 766 Following We are developing potential medicines to improve the healthspan of people with diseases of impaired muscle function. 2023 Great Place to Work-Certified🏅
Amber Salsberry @amber_salsberry
211 Followers 236 Following #hairstylist #salonowner #wrestlingmom #alshater #inthisfamilynoonefightsalone
Pete Spencer @New_Spence
390 Followers 212 Following Retired educator. Current retailer at L.L.Bean and ALS advocate. Husband and dad who likes time on a trail, around a campfire and in a tent.Thank you @SenToomey.🙏 #ACTforALS #S1813
Thank you @SenToomey for having Tom Pfeiffer meet with @Michell62614519 @shellyhoover @Smithstrongmom1 and I today to discuss the #ACTforALS. Tom understood our struggle and I hope you do too. As your constituent, please support our fight for drugs in bodies and sign S1813.
Army veteran & Michigan resident dies of 100% fatal #ALS at 47 denied safe/effective treatment. #NurownWorks #DiedWaiting @SenStabenow @SenGaryPeters, join the 315 bipartisan House #ACTforALS cosponsors. Cosponsor Senate companion bill, S.1813. #EndALS obits.mlive.com/us/obituaries/…
Ethan deserved a chance to live @US_FDA @FDACBER. #NurownWorks #FDAfailedALS @SenatorBurr @SenBillCassidy @SenatorBraun @RandPaul @SenatorCollins @SenatorTimScott @MittRomney @SenTuberville @SenatorHick @RepAnnaEshoo @RepJohnCurtis @brettguthrie @SenJohnBarrasso @SenatorBraun
@shellymckenna Where are you @DrWoodcockFDA the ALS patients and families are SCREAMING DEMANDING ACTION #drugsinbodiesnow you know NurOwn has enough data of safety. My son #diedwaiting don’t you think he deserved a 30% chance to LIVE I WONT STOP 🛑 I promised my boy 💙🙏💙 FDA hearings
@New_Spence @sandymorris333 is the perfect resource. Definitely also follow @alsadvocacy .
@RyansMom2 @New_Spence @alsadvocacy thank you - it is absolutely going to take all of us
@kimbrolyclaire @New_Spence Pete I am here for you. I'm so delighted that you are willing to fight for us on your own time. Thank you for that❤️Please DM me your email & I will get you info we send to those who join the Clinical Trials team. This is the exact right time to fight as the tides are changing.
@New_Spence I can send you an email with resources I use after work. In the meantime, I strongly suggest looking through @sandymorris333 tweets for some guidance
What are some quality resources to get up to speed on understanding the clinical trials/access/placebo/FDA process/Pharma issues? Books;articles; videos? I want to advocate for ##ACT4ALS from strong knowledge base. Please retweet to help me get more info. Thx.
Thank you @RepMikeQuigley Thank you for standing up for us, standing with us. We are so grateful for your leadership. #ACT4ALS
I’m proud to announce that #ActforALS has over 300 bipartisan cosponsors, with that number growing day by day. This bill will finally give those suffering with the disease hope, and a chance at finding a cure. To learn more about the bill, visit: quigley.house.gov/media-center/p…
Thank you @SenJackyRosen for joining us in the fight of our lives. We are so grateful for Senators who can hear our stories & take action so that we can change our story's endings. #ACT4ALS
Your morning Senate cup of #ACT4ALS 3 of the 17 Senator #Veterans are YES on #S1813 We need the other 14 to support their post-Gulf War Veterans who have 4x-10x the risk of #ALS Find the 14 here arcg.is/08KbT8 @iamalsorg @sandymorris333 @shellyhoover @Michell62614519
Thank you @SenatorWicker’s office for meeting w/members from the ALS community today & leaning in to better understand how ALS plagues Veterans at a higher rate.You can help those battling ALS, a service related disease, by sponsoring #S1813 #ACT4ALS. Are you in?
Check here to see if your Senator is supporting #ACT4ALS, #S1813 … if not reach out and ask why?
Your Senate cup of #ACT4ALS 10 of the 22 #ALSCaucus members are YES on #S1813 Find the 12 we need to say YES here arcg.is/1uqqye0 Track Senate bit.ly/Act4ALSSenate @iamalsorg @sandymorris333 @nicolecimbura @Michell62614519 @als_now @PaustDeb
Washington has 11 ALS Clinic(s), 19 DoD sites, and 510,709 Veterans. There are 47,521 post-Gulf War Veterans, which are at 4x to 10x risk of ALS. Will you support #S1813 #Act4ALS? @PattyMurray ? @SenatorCantwell ? I'm available to discuss.
Oklahomans are grateful to Senator @JimInhofe for sponsoring #S1813 the #ACTforALS. As the Ranking Member of Senate Armed Services Committee, his support also helps #Veterans w #ALS who have up to 10x risk of ALS, including the pilots at #AltusAFB @MilitaryTimes @AirForceTimes
Thank you. #Veterans
Women in the fight against #ALS personify that #WeCanDoHardThings @GlennonDoyle @AbbyWambach pls tell their stories of strength, of tears & triumphs, of anger & advocacy! #HardThings #MamaBears #Cheetahs
“I believe that child care should be universally available just like 3rd grade is. The #BuildBackBetter budget will mean no family pays more than 7% on childcare.” Thank you @SenTinaSmith #CareCantWait
Met w Tom Pfeiffer of @SenToomey's office today re #S1813 & #NurOwn. As Ranking Member of Senate ALZ Caucus, his staff understood neurodegenerative diseases & had some of most relevant questions we've had in 100s of meetings re #ALS We need @PatToomey's leadership! #ActforALS
My heart breaks for Lori. She lost both her twin girls to #ALS. Their memory inspires the community, but the FDA can help keep their legacy alive. @RepAnnaEshoo @rosadelauro @janschakowsky @RepKimSchrier @RepLoriTrahan @RepFletcher @PeterWelch @RepKathleenRice @RepAnnieKuster
Happy 28th B-day in Heaven to my brave, Jaci and Alex! You changed the world how you faced your adversity everyday inspiring others to live life to the fullest! We remember you and thank you for sharing your spirit, love, hope and strength with us! #cowgirlupforjaci #jacifusen
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