Scott Smith @ScottFightsALS
Father, husband, gym owner, ALS warrior and storyteller. Founder of BodySmith and Flex On ALS. 💪 flexonals.com/blog Kansas City, KS. Joined January 2013-
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Today was an up close reminder of how beautiful our hardwoods are. #FlexOnALS
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For some reason my last tweet didn’t reach many of you, but I’m happy to announce that my latest chapter "A Date with Redemption" is now available on the blog. I have a link on my profile page. #FlexOnALS
Tomorrow’s (Wednesday’s) chapter will be like nothing you’ve ever seen out of my writing. I’m really excited/anxious to hear your thoughts regarding the direction I’m taking for the end of the book. 📖 #FlexOnALS #blog
Wishing everyone had as fun filled of a Halloween as this Mer-family! #halloween #kingtriton #ariel #halloweencostume #flexonALS
Today would normally be a #blog post day but I’m punting it to later this week on behalf of #Halloween. I want to enjoy all the amazing costumes coming across my feed plus add a few of my own! 💀👻🎃
I’ve been so busy writing I forgot how beautiful Falls are in Kansas City! #FlexOnALS
#TBT to last Halloween where I was still cool cause I could talk and go really fast. Cut to last night and Iris matter ‘o factly told me I was only going to get sicker and then die. The therapy is working. 😭
Thank you @Mayuri_Saxena for your thoughtful gift! My #ALS warrior friend got me a kit to make molds of my hands or my and my girls’ hands holding. Which do you recommend?
Scott Smith retweeted
As a kid, I remember Pres Clinton saying bc of Pedro Zamora, we all knew someone who was living with AIDS.@ScottFightsALS @bsw5020 are that for me with ALS. Michael J does it with Parkinson’s. Showing one’s life makes us all better. It’s important work. Many thanks. @JuddWinick
In case you missed it… #FlexOnALS #blog flexonals.com/blog/8sng62ppo…
Thank you for your response to my Hope letter. I was blown away by the expressions of love and great ideas to use going forward. #FlexOnALS 💪
This is a very special #love letter to my youngest daughter and will be the prologue to the book! Up now on the #blog, link on my profile page. #FlexOnALS
This one took everything I had. New #blog chapter tomorrow!
1,227 comments and you better believe that through teary eyes I read EVERY. SINGLE. ONE. Wow. Just wow. #FlexOnALS
#AMX0035 becomes the the third @US_FDA approved drug for #ALS! This is a rare victory for this community and deserves celebration. #FlexOnALS 💪
FYI #ALS families, there’s a relatively new telehealth service for pALS that I really wish was around to help me when I was first diagnosed. It’s called @synapticure and I’m honored to be on their advisory board. I ADVISE you to check them out! #endALS #FlexOnALS
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@ScottFightsALS Telling it like it is (was) without holding back has to be gratifying for you...and inspiring for us, even if it makes us cry.
I love this young man. He has so much taken from him. He is a warrior, please read his blog. He allows you inside his mind and leaves you heartbroken and also joyous ALS is relentless. FlexOnALS. 💪💪💪
The next chapter, "A Date with Redemption," is up on my #blog! It’s definitely different. Link in bio. #FlexOnALS #endals #alswarrior #alsadvocacy #alsawareness #blogger
@ScottFightsALS I loved it. Breaks my heart though
@ScottFightsALS A bit of a rubbish photo, but my #alshero had his wheelchair turned into a cat by the youngest! It even had a tail... #thisishowweroll
This one is special. So great seeing @DRFrancois1 and her rockin shoe game @WomenLeadersCS @MizzouAthletics #WeAreWomenLeaders
It’s been a rough one over here, friends. Last night Chris went to ER for aspiration & asthma issues. His breathing took much longer to rebound than anyone would have liked. It was the most scared we’ve been since diagnosis. Slowly, but so thankfully surely, he’s doing better.
As a kid, I remember Pres Clinton saying bc of Pedro Zamora, we all knew someone who was living with AIDS.@ScottFightsALS @bsw5020 are that for me with ALS. Michael J does it with Parkinson’s. Showing one’s life makes us all better. It’s important work. Many thanks. @JuddWinick
@ScottFightsALS thank you, Scott! I will be reading and sharing. I don’t know you or @bsw5020 personally, but your stories have touched my ❤️#endals
@ScottFightsALS We say it when we marry. You and your beautiful wife live it every day.
@ScottFightsALS There is no force in the world that cannot be overcome by love.
@ScottFightsALS Good God in Heaven Scott….I’m struggling for words, this is one of the most raw, real, unconditional loving things I’ve ever read..Your spirit, your soul - may sound weird- I can feel the warmth, the beauty. Thank you and your beautiful Jamie for letting us in..💖☮️🙏🏼🙏🏼
@ScottFightsALS The love you two have for each other and your girls will get you through it!!!❤️❤️❤️🙏🏻🙏🏻🙏🏻
JV started off strong by splitting with BVNW in a 12 player duel. We had 7 players making their high school tennis debut. Today, 15 girls will get to play in a combined Varsity/JV quad. Varsity @ CBAC, JV @ ICRC, against 3 league opponents. BIG day for Raven Tennis! #skoRavens
@ScottFightsALS @sandymorris333 I got you in prayer..I cried. This community has captured my heart. You are the bravest people I know. And your families. I wish I could meet you all and tell you how much it means and that you matter and are loved. Be Strong friend.
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