TranspariMED @TranspariMED
Working to end evidence distortion in medicine #clinicaltrials #transparency #openscience Tweets by @Marguerite_OR TranspariMED.org London, England Joined March 2017-
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And... we have a breakdown of the compromise amendments here: including orphan drugs, launch mechanism, transferable exclusivity voucher and HERA in the ECDC (!?) pro.politico.eu/news/177100
And... we have a breakdown of the compromise amendments here: including orphan drugs, launch mechanism, transferable exclusivity voucher and HERA in the ECDC (!?) pro.politico.eu/news/177100
Prescribing and deprescribing guidance for benzodiazepine and benzodiazepine receptor agonist use in adults with depression, anxiety, and insomnia: an international scoping review thelancet.com/action/showPdf…
SURVEY: Sharing and accessing individual patient data from clinical trials -> awareness -> real-world impact transparimed.org/single-post/su… #clinicaltrials #opendata
Poor use of AI application in health systems youtube.com/watch?v=40EfNb… @HAImedicines
How we used to give lectures. Slides in a filing cabinet holder. I have 100s of them, soon to be binned. These are about nonlinear curve fitting.
Protocol paper for INSPECT-SR now published. Developing a tool to detect problematic RCTs: bmjopen.bmj.com/content/14/3/e…
No position on this but it is definitely worth a read @senseaboutsci @hildabast @onthinktanks
No position on this but it is definitely worth a read @senseaboutsci @hildabast @onthinktanks
Exciting News! The iRISE Consortium is launching a pioneering intervention study to enhance research reproducibility through computational methods, led by Gustav Nilsonne. Stay tuned for updates as we team up with top academic journals to execute our protocol.
Nominations are open for the 2024 #MaddoxPrize for standing up for science. Nominate someone who has who spoken out for sound science and evidence, and made change happen in public discourse, opinion or policy: nature.com/immersive/madd… @SpringerNature
“Essentially, the FDA said, ‘You can’t trust any of this.’ But the company used the results” -> Footnote: far too few academics file #FOIA requests science.org/content/articl… @cpiller @Strech_Da
And here it is, the $SAVA mess @CassavaSciences science.org/content/articl…
Today, the UKRN’s OR4 project releases a new report that describes the UK landscape of responsible researcher assessment, with a particular focus on open research. Led by Robert Darby from the University of Reading. osf.io/preprints/osf/…
Is extending life by weeks worth the toll some cancer drugs take? Doctors push for 'common-sense oncology' @VPrasadMDMPH flip.it/-jXHPq
Nice simple blog on basic #Statistics sensible-med.com/p/doing-statis… @Students4BE
If you missed an excellent talk by Adriane Fugh-Berman @Pharmed_Out on how Industry invents diseases, watch here youtu.be/hRNK-BMX7s8?si… @woodymatters @susan_bewley @drkevinknopf @PatientStormDoc @KFFHealthNews @HealthSenseUK @mgtmccartney @riotscienceclub
In case you didn't see it yet: I'm hiring a postdoc to work on improving reproducibility in research. Application deadline March 20: ki.varbi.com/en/what:job/jo…
"Who fakes cancer research? Apparently, lots of people," writes Kelsey Piper at Vox. vox.com/future-perfect…
Came and do your doctorate with us at @BennettOxford working with @OpenSAFELY @FDAAAtracker @openprescribing on epidemiology, data science, privacy engineering, research software engineering, data for quality improvement, data management, and the rest! bennett.ox.ac.uk/blog/2024/02/c…
Academia is: 5% research 5% teaching 20% meetings 20% EMAILS! 5% Reformatting manuscripts 5% Requesting password reminders 10% filling in forms 5% looking for forms/guidance 'on sharepoint' 5% using Google to find forms/guidance on your uni website 20% moaning about academia
Academia is: 5% research 5% teaching 20% meetings 20% EMAILS! 5% Reformatting manuscripts 5% Requesting password reminders 10% filling in forms 5% looking for forms/guidance 'on sharepoint' 5% using Google to find forms/guidance on your uni website 20% moaning about academia
Florian Naudet @NaudetFlorian
3K Followers 955 Following Meta-researcher, Clinician, Professor @RennesUniv, Senior member @InstUnivFr, affiliate @METRICStanford / Tweets are my own.The BMJ @bmj_latest
505K Followers 7K Following The BMJ is patient centred, evidence based, and independent. Help us improve the health of our world with the best science, journalism, education, and commentJohn Mandrola, MD @drjohnm
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1K Followers 303 Following Evidence Based Health Care // Pragmatic Evidence || Senior Scientist @RC2NB @Unibasel || RT/like no endorsementErick Turner @eturner.. @eturnermd1
4K Followers 760 Following Former reviewer of psych drugs for FDA, back when they had backbone vs Pharma. User of FDA reviews to sort out truth vs lies in publ'd articles on clin trials.Ash Paul @pash22
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36K Followers 2K Following Associate Prof @UniLeiden. Mental health & data science. Building early warning system for depression (https://t.co/rw3oC2Kol0).Margaret McCartney @mgtmccartney
33K Followers 2K Following evidence https://t.co/pg9KPl5Lyq https://t.co/P4TX6wBDK1… Director, @beirasplaceTherapeutics Initiati.. @Drug_Evidence
7K Followers 4K Following UBC-based, independent, evidence-informed, practical #BetterPrescribing information for #Physicians, #NursePractitioners, #Pharmacists #MedEd #CME RT≠endorseJuan Gérvas @JuanGrvas
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3 Followers 110 Followingameer h @ameer_Hohlfeld
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89 Followers 421 Following Berliner Mischung. Benutze Twitter nur als news aggregator. Twees und retweets nur wenn ich über was lachen muß.João L. Carapinha, P.. @joaocarapinha
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545 Followers 4K Following MS3 @ttuhscmed | MS @tamu, MPH @uthealthsph | (he/him) #medtwitterBrigid M Flanagan @BrigidMFlanaga1
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316 Followers 1K Following PhD student & psychiatrist trainee (He/him)Xwtrm @PieterXwtrm_12
348 Followers 544 FollowingTalbert Muhwezi @T_Muhwezi
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2K Followers 3K FollowingReproducibiliTea @ReproducibiliT
4K Followers 127 Following Serving Reproducibili☕️ at 100+ locations: Blends include transparency, openess and robustness + spoonfuls of science. Find out more: https://t.co/KfKeDv9F9wAbhitesh Tripathi @AbhiteshTripat3
84 Followers 267 Following MBBS, DNB, rural health physician, Health for All, health equitySarah Melville @sarahkmels
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7K Followers 2K Following We are here to strengthen the UK's startup ecosystem. Sign up to our newsletter to hear about the latest accelerators we're launching and other opportunities 👇EndAlzFraud @EndAlzFraud
178 Followers 30 Following Made up science and bogus clinical trials won't get us any closer to a cure. #ENDALZ #ENDALZFRAUDChi-Yeung Chu @ChiYeungChu
1 Followers 3K FollowingDrew B. Allen @DrewAllenBooks
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42 Followers 48 Following Access to essential medicines and Clinical Trial Transparency @UAEMAppliedClinicalServic.. @AnnetMuetstege
71 Followers 106 Following AppliedClinicalServices supports HealthCareIndustry in key aspects of the product clinical evidence collection processHicksy @hicksyalex
22K Followers 19K Following The government is failing to keep the public safe from harmful medicines, medical devices & blood products, will you sign my petition calling for change? ✍️👇Dewan Md. Sumsuzzman @DewanPharm
82 Followers 309 Following Evidence synthesis enthusiast | Post doctoral Researcher @ York University | Epidemiology | Infectious diseases | Meta-analysisLogarithmicDis @LogarithmicDis
426 Followers 981 Following That’s a cryoEM map of GABA ⬆️ Where biotech and medicine collide Scientific integrity matters Opinions onlyalicebmes @alicebmes
1 Followers 21 FollowingIsabela Martin @isabelalomartin
1 Followers 27 FollowingPostGrad Modern Slave.. @PostgradSlave
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42K Followers 836 Following Statistician • associate prof • statistics/epidemiology/AI methodology, Julius Center @umcutrecht • own viewsRetraction Watch @RetractionWatch
92K Followers 20 Following Daily newsletter https://t.co/T4dNEAd2zy Database https://t.co/Wx3LmYCtGk Tips [email protected] (better than @ replies) Donate https://t.co/qh4sIBw1uUFlorian Naudet @NaudetFlorian
3K Followers 955 Following Meta-researcher, Clinician, Professor @RennesUniv, Senior member @InstUnivFr, affiliate @METRICStanford / Tweets are my own.The BMJ @bmj_latest
505K Followers 7K Following The BMJ is patient centred, evidence based, and independent. Help us improve the health of our world with the best science, journalism, education, and commentProf. Peter C Gøtzsc.. @PGtzsche1
32K Followers 25 Following https://t.co/J7UH7ObFhA: my evidence-based podcast series. No ads, no censorship. @brokenmedics. Don't believe in anything for which there is no evidence (Dawkins).Elisabeth Bik @MicrobiomDigest
149K Followers 49K Following Science integrity consultant, PhD. #ImageForensics Previously @ Stanford and (gasp!) uBiome. She/her. elisabethbik.bsky https://t.co/V4MR7WVHiT 🇳🇱🇺🇸Gordon H. Guyatt @GuyattGH
14K Followers 565 Following Promoting use of the best evidence and patient values and preferences to inform optimal clinical and health policy decisions. https://t.co/JxbX7cZMgyJohn Mandrola, MD @drjohnm
66K Followers 2K Following Heart rhythm doc, writer for @Medscape, host of This Week in Cardiology podcast, cyclist, #MedicalConservative. The more you see, the harder medicine getsJack Wilkinson @jd_wilko
8K Followers 6K Following Stats and methodology. #IVF & #infertility research. Detecting fabricated data. Tweets do not reflect employer opinion. Centre for Biostats, @UoMLars G. Hemkens @LGHemkens
1K Followers 303 Following Evidence Based Health Care // Pragmatic Evidence || Senior Scientist @RC2NB @Unibasel || RT/like no endorsementErick Turner @eturner.. @eturnermd1
4K Followers 760 Following Former reviewer of psych drugs for FDA, back when they had backbone vs Pharma. User of FDA reviews to sort out truth vs lies in publ'd articles on clin trials.Ash Paul @pash22
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36K Followers 2K Following Associate Prof @UniLeiden. Mental health & data science. Building early warning system for depression (https://t.co/rw3oC2Kol0).Paul D. Thacker @thackerpd
44K Followers 1K Following Journalist; Former Investigator U.S. Senate; Former Safra Ethics Center, Harvard. https://t.co/aD6NkYzjqMMargaret McCartney @mgtmccartney
33K Followers 2K Following evidence https://t.co/pg9KPl5Lyq https://t.co/P4TX6wBDK1… Director, @beirasplaceRichard Riley (R²) @Richard_D_Riley
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7K Followers 4K Following UBC-based, independent, evidence-informed, practical #BetterPrescribing information for #Physicians, #NursePractitioners, #Pharmacists #MedEd #CME RT≠endorseJuan Gérvas @JuanGrvas
22K Followers 354 Following Médico general retirado, ex-profesor salud pública. Retired general practitioner, ex-professor public health. Equipo CESCAAmy Joint @AmyJointSci
292 Followers 660 Following Programme Manager for the @ISRCTN trial registry. Tiramisu obsessive & reluctant runner. Big on diversity in publishing. @DataEthicsClub enthusiast. (she/her)Etienne K. Duranté @etienne_durante
316 Followers 1K Following PhD student & psychiatrist trainee (He/him)Tony Ross-Hellauer @tonyR_H
2K Followers 179 Following Also https://t.co/Ypw4F0Op27 and https://t.co/vZlGavwpzM Leader - Open and Reproducible Research Group @tugraz https://t.co/nyF0mXH6Mi ⁞ Senior Researcher @Know_CenterOSIRIS @OSIRIS4r
277 Followers 555 Following OSIRIS: Creating trust in Open Science & Reproducibility through Accessibility and Transparency! #HorizonEurope funded project (GA No. 10109472)TIER2 @TIER2Project
279 Followers 161 Following TIER2: enhancing Trust, Integrity and Efficiency in Research through next-level Reproducibility, #HorizonEurope (GA 101094817)Rachel Heyard @rachelheyR
390 Followers 368 Following Postdoc @crsuzh - PhD in Biostatistics - open & reproducible science - #researchonresearch - @ZurichRUsers co-organizeriRISE @iRISE_EU
73 Followers 15 FollowingScience Media Centre .. @SMC_London
23K Followers 8 Following An independent press office helping to ensure that the public have access to the best scientific evidence and expertise through the news mediaThe Good Clinical Tri.. @goodtrials
306 Followers 387 Following A global community initiative that has produced new guidance to promote and enable good RCTs worldwide #goodtrialsEike Mark Rinke @emrinke
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201 Followers 307 Following PostDoc at ULaval Microbial ecologist studying #microbes physiological processes and adaptation in #Arctic #Ocean #Omics #Bioinformatic #Fieldwork 🍋 & ⛵Amanda Burleigh @optimalclampin1
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5K Followers 419 Following #ICU Rigshospitalet UCPH Collaboration for Research in Intensive Care Vicechair Danish Medical Societies #6S #TRISS #CLASSIC #COVID_STEROID trials #sepsis #RCTM Dolgopoloff @md_ekg
205 Followers 124 Following (#R)stats, epidemio & recherche {Département de Kinésitherapie - UGA}Capital Enterprise @capenterprise
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10K Followers 1K Following Res publica, public governance, policy and management / Government, social security and health / @RIZIV_INAMI / Views = my ownFrederik Feys @FFeys
2K Followers 640 Following Data Analist / Scientist - PhD Medical Sciences - open science enthusiast - evidence driven policyMegan Curtin @MegECurtin
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826 Followers 359 Following research integrity, epidemiology, public health policy, mixed methods research, guideline development, Maastricht UniversityMedscape UK @MedscapeUK
4K Followers 4K Following Providing UK-specific Guidelines summaries and the latest news and resources to support your UK-based daily practiceDewan Md. Sumsuzzman @DewanPharm
82 Followers 309 Following Evidence synthesis enthusiast | Post doctoral Researcher @ York University | Epidemiology | Infectious diseases | Meta-analysisLogarithmicDis @LogarithmicDis
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7K Followers 2K Following Physio, researcher, BBQer. Editor @cochrane. Views here are my own and don’t necessarily reflect those of Brunel University/ CochraneDee @Deedoherty2
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135 Followers 156 Following Médico | Economía de la Salud | Seguridad del Paciente | Ciclismo - Me encanta el gluten y tolero la lactosa Todas las opiniones realizada nombre propioFor #MakeitPublic week, we're focusing on how we can ensure all clinical trials are registered. Frances, a Public Research Champion at @MTWnhs, shares why registering research is important for people who want to take part in future studies. Read more⬇️ hra.nhs.uk/about-us/news-…
Registration of clinical trials is the first, crucial step in research transparency. Our Chief Executive @matt_westmore shares his views on why it's important. Find out how we're addressing the barriers to registering research this #MakeitPublic week: hra.nhs.uk/planning-and-i…
📣Today is our #MakeitPublic workshop! We’ll be hearing from: 👉research integrity expert @NDevito1 👉panellists from @AMRC @NIHRresearch @dundeeuni about best practice in registering research 👉people across the industry about their experiences of research transparency
@TranspariMED I would very much like to say yes, but am also not sure how I am going to complete all the writing I have committed myself to over the next two weeks… so, maybe?
@GustavNilsonne @JOHesselberg @stiftelsendam @helse_og_omsorg @Kunnskapsdep 1/ A 🧵on the data and the problems with including terminated trials for patients safety and research ethics.
@TranspariMED Thanks for the invite, but 10:00 CET is 2:00 AM Pacific time. Plus, have to work that day.
Came and do your doctorate with us at @BennettOxford working with @OpenSAFELY @FDAAAtracker @openprescribing on epidemiology, data science, privacy engineering, research software engineering, data for quality improvement, data management, and the rest! bennett.ox.ac.uk/blog/2024/02/c…
@TranspariMED Probably for the best. I bet T-Rex had some problematic views, even in the context of his time.
@SimonChapman6 @TranspariMED @pash22 @susan_bewley @HealthSenseUK @senseaboutsci @rcpsychAddFac @RCollEM @DrLadeSmith @David_Goodhart @MagnusMeek @ImperialBiz @LSingleton77 i suppose you can make fines a sliding scale thing according to income even if you can't do that for points on the licence
@TranspariMED @SimonChapman6 @pash22 @susan_bewley @HealthSenseUK @senseaboutsci @rcpsychAddFac @RCollEM @DrLadeSmith @David_Goodhart @MagnusMeek @ImperialBiz @LSingleton77 with regard to the drink though some of this depends on what the goal is Is it to stop people drinking at hazardous or dependent levels with serious risks and consequences? Or to reduce consumption in people one tier down from that ?
@TranspariMED @SimonChapman6 @susan_bewley @HealthSenseUK @mancunianmedic @senseaboutsci @rcpsychAddFac @RCollEM @DrLadeSmith @David_Goodhart @MagnusMeek @ImperialBiz @LSingleton77 Who pays the tab? The distributional effects of UK alcohol taxes acrobat.adobe.com/id/urn:aaid:sc… via @InstAlcStud & @aveek18 et al
@TranspariMED @SimonChapman6 @pash22 @susan_bewley @HealthSenseUK @senseaboutsci @rcpsychAddFac @RCollEM @DrLadeSmith @David_Goodhart @MagnusMeek @ImperialBiz @LSingleton77 when it comes to hazardous/dependent drinkers there is no question that price point changes are far more likely to reduce consumption for people without much spare income. The better off (or the seriously dependent) will just keep hammering it anyway
Research integrity and academic medicine: the pressure to publish and research misconduct - Read on degruyter.com/document/doi/1… @degruyter_pub @WCRIFoundation @NRIN_Integrity @EmbassySci
@TranspariMED @susan_bewley @HealthSenseUK @mancunianmedic @senseaboutsci @rcpsychAddFac @RCollEM @DrLadeSmith @David_Goodhart 2017 Norwegian study by @MagnusMeek et al showed rich drink more, but poor are likelier to die from alcohol inverse.com/article/39827-… via @eileenguo
Statistics, data science and machine learning walk into a bar. Bartender: table for one, I assume?
Medical Research Waste: bit.ly/49WvGhh A total of 475 clinical trials (83,903 participants) completed in Denmark, Iceland, Finland, Norway & Sweden have never made their results public in any form. Via @TranspariMED By Dr. Till Bruckner et. al. #ClinicalTrials
Added benefit and revenues of oncology drugs approved by the European Medicines Agency between 1995 and 2020: retrospective cohort study bmj.com/content/384/bm…
@TranspariMED @CochraneDK @Maligntmelanom @cochranecollab @NaudetFlorian @MacRoboTweet @stiftelsendam @JOHesselberg @MBruschettini @Sarai_Keestra @meerpohl As you know, we at Rigshospitalet are going through our trials on the list Until now we have found that 15 of the 38 listed as unpublished have in fact been published and we're still counting I'd recommend that you look more careful before making firm claims @CochraneDK
Their results have not been published in the peer-reviewed literature, nor are they posted on clinicaltrials.gov. We urge the private sponsors to communicate the results regarding their primary outcomes.
@senseaboutsci @cochranecollab @CochraneDK @CochranePH @JOHesselberg @stiftelsendam @TranspariMED @Maligntmelanom @GustavNilsonne @MBruschettini I am sure @TranspariMED are also on the case !