World Dementia Council @WorldDementia
International council stimulating innovation and pursuing opportunities for global collaboration against dementia. worlddementiacouncil.org London, UK Joined April 2014-
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“We believe in a world of compassion, of solidarity, of love, where everyone helps each other...We believe in the importance of human memory which allows us to remember, learn, and pass on our knowledge to a broader group & a younger generation.” — @PaolaBarbarino opens #ADI2024
The #ADI2024 conference is underway. The first session sponsored by @alzassociation included representatives from the Philippines, Norway and Scotland as they discuss how governments around the world are currently promoting brain health.
WDC Trustees and Members will be participating in this week’s #ADI2024 conference. Follow along on social as we highlight some of the keynotes and sessions from this year's programme focused on the seven areas of the WHO’s Global Action Plan on dementia.
Today @WorldDementia met to plan for the next 10 years of dementia care, treatment, and support. Recent advances present opportunities and challenges. Together, we'll do what it takes to build a better future for people and families across the globe.
That’s a wrap on the 2024 WDC Summit. Thank you to all of our panellists and attendees for contributing to a lively, important discussion about what bold actions we can take to transform the dementia research, treatment and care landscape over the next decade.
“We need to invest but it is an investment rather than a spend…it’s a distinction.” — Siddhartan Chandran on the importance of a sustained investment in Alzheimer’s and dementia research.
“It’s really important in public health to have the dual message that these [behaviour changes] are good for you but also because if you do get the disease it will help.” @SarahLenzLock
“We need to find the tipping point for dementia. In smoking they reached it. What is the tipping point to motivate a sustained lifestyle change for brain health?” — Franca Gatto during today’s session on maintaining brain health.
“We need to change the narrative around what brain health is. How young people view brain health, how employers and employees talk about or think about brain health.” — @heymelchan
Thank you to our panellists for this afternoon’s discussion on clinical meaningfulness. A strong discussion about weighing benefits and risks of treatment and ensuring we don’t lose the patient or caregiver perspective in bringing safe, effective treatments to market.
Ryoji Noritake discusses access challenges to approved Alzheimer’s treatment in Japan. “It’s not health care solely…it’s transportation, telemedicine all combined.” And notes government, medical and private institutions must provide lay friendly information.
Thank you @JeanGeorgesAE, @ProfLawlor, @KSeeher & @KateLeeCEO for a wonderful talk about the barriers to timely diagnosis, focusing on the issue of equity and challenges in the workforce.
“Art can help tell a story about living with dementia,” @ProfLawlor on the power and impact of art and communication to contribute to reduce stigma and drive towards diagnosis.
Great discussion by this afternoon’s panellists on the role of health systems in diagnosis and the challenges ahead including a lack of infrastructural preparedness.
.@MinistervVws shares with @PhilipAlz that the focus for the Netherlands is three-fold: to eradicate dementia, to ensure everyone receives good, tailored care, and to undertake more research.
Dementia “isn't just a health issue. It’s an economic issue, and it’s a societal issue.” — @MinistervVws on how she succeeds in getting others in government and policy development to understand and focus on solutions to the growing global dementia crisis.
During the panel on the post-diagnostic experience & the challenges in policy development to address quality, affordable care, @KSeeher raises an important issue for consideration: “Just because there isn’t a diagnosis, doesn’t mean there isn’t a cost to the health care system.”
Strong discussion about the challenges of the dementia workforce in our second panel. From not enough geriatricians to a migration of care workers from some countries to others plus the role of unpaid caregivers.
“Primary care is the first port of call for so many. We must make sure there’s interdisciplinary and multidisciplinary resource sharing,” @IshtarGovia on the impact a siloed system can have on health outcomes.
“We have a challenge in front of us — how does care change? How do we influence care delivery in multiple forms from medical to end of life? We also have to think of the policy implications, because all too often policy dictates how care is delivered.” — @joannepikedrph
Ian Kremer @LEAD_Coalition
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194 Followers 106 FollowingLuis Martinez Roman @drluismartinezr
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977 Followers 260 Following MD Neurologist, Scientist @UofT, Editor @WorldStrokeEd, Section Editor @StrokeAHA_ASA PhD @econ_uzh, CEO @NeuroEconSol Passionate about #decisionmakingDay 2 #ADI2024 Starts off with another high turn out to our morning session. Over 100 delegates arrive to take part in the morning Symposium 'Longitude Prize on Dementia Technology Showcase: How can new co-created technologies support people living with dementia?' sponsored by…
This year’s Part the Cloud Gala raised more than $17 million to fund cutting-edge Alzheimer’s and dementia research. The #PartTheCloud movement, started in 2012 by Michaela "Mikey" Hoag with the Alzheimer's Association, has invested more than $82 million in 68 groundbreaking and…
#ADI2024 is open! Over 130 attendees have arrived at 8am for our opening symposium: Advancing brain health: What comes after the multi-variate trials. Sponsored by @alzassociation.
To all our @alzassociation volunteers, thank you. We’re inspired by your passion, your dedication, and your relentlessness in working toward our shared vision of a world without Alzheimer’s and all other dementia.
We are grateful for volunteers like Louis who provide education and support opportunities for families navigating Alzheimer’s and other dementia. Volunteers like Louis are a beacon for those facing Alzheimer’s and other dementia. #NationalVolunteerWeek #ENDALZ
Today @WorldDementia met to plan for the next 10 years of dementia care, treatment, and support. Recent advances present opportunities and challenges. Together, we'll do what it takes to build a better future for people and families across the globe.
Great to be at the @WorldDementia today having important collaborative discussions on changing the future for patients with dementia.
I’m at the @WorldDementia today. Great opening panel with @niranjanbose @AlzResearchUK Scientist @FionaDucotterd & @ProfJTOBrien about how we deliver treatments over the next 10 years.
Great panel @WorldDementia summit talking about the future of diagnosis. @HilaryAlzUK passionately speaks about the need to change how we approach diagnosis and the opportunities research and science offer for enabling early and accurate diagnosis.
It is fantastic to be @WorldDementia 2024 summit talking about the future of dementia research. A quote I liked "we over estimate what we can achieve in 12 months but underestimate what we can achieve in 10 years". There is no doubt this is an exciting time in dementia research.
At the @WorldDementia summit 24 @joannepikedrph @future_chris Dame Louise Robinson @IshtarGovia and Laurence Geller debate about the state of post diagnostic support @AlzDisInt @alzheimerassociation
Fab to hear @FionaDucotterd at @WorldDementia summit this morning. Fiona shared her hopes for a range of new therapies to be developed for dementia over the next decade. Take away from me- we need to collect data on how new drugs perform in real world& feed back into research.
I’m at the @WorldDementia today. Great opening panel with @niranjanbose @AlzResearchUK Scientist @FionaDucotterd & @ProfJTOBrien about how we deliver treatments over the next 10 years.
This is what years of collaboration, trust, and friendship looks like… #Alzheimers @markroithmayr @TheADDF #JPM2024
Very honored and pleased to participate in this special event and to contribute with the discussion of this important topic.
Great discussion at #DefeatingDementia exploring the challenges of an aging society. Policy solutions that enable people living with dementia to be active participants in society longer are needed to improve quality of life for individuals & caregivers and has societal benefits.
Collecting, analyzing & sharing real-world data is essential in this new era of treatment. The @alzassociation has launched the Global Real-World Data Platforms Program to support the development, expansion & alignment of real-world data globally. @DrMariaALZ #defeatingdementia
Mensen met dementie zijn ‘partner in design’ bij het toepasbaar maken van technologie. Aldus prof. Wijnand IJsselstein van de @TUeindhoven op de bijeenkomst #DefeatingDementia. Warme technologie. Dat ondersteunt @alzheimernl graag! @Psych_Tech #ECD
Members of the Global Council on Brain Health (Governance, issue experts and liaisons) @WorldDementia Council and Ministerial meeting hosted by the @MinVWS at The Kuntsmuseum at the Hague #DefeatingDementia conference
Heel bijzonder: ik mocht tijdens het congres #DefeatingDementia meezingen met het @parti_koor! Dit koor bestaat uit mensen met dementie en "mantelzangers". De leden ervaren dat het samen zingen een positieve invloed heeft op hun brein en zelfvertrouwen.