European Patients' Forum @eupatientsforum
We are the leading voice of patient organisations in Europe. #EuropeForPatients eu-patient.eu Brussels, Belgium Joined April 2012-
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📅 From 22 to 23 April, EPF attended the @WHO Novel Medicines Platform, in Stockholm. EPF stressed that incentives should take into account the need for better antimicrobial stewardship by supporting patient access to both old and new antibiotics! #WHONMP #access2meds
Step into the conversation with MEP @TomislavSokol Sokol as he joins our #Vote4Patients Campaign, highlighting the role patient organisations play in shaping healthcare policy decisions. Full episode: bit.ly/3UdKRfM
EPF at the launch of the Critical Medicines Alliance. Nikos Dedes, EPF Board member: “#Shortages are not an industrial issue; they are a #PublicHealth issue with an industrial and manufacturing component”. #Vote4Patients
We @eupatientsforum couldn't wait to attend the @EDiHTA_EU kick off meeting and build opportunities for collaboration with partners. EDiHTA aims at building an #HTA framework for #digitalhealth technologies and the #patientperspective could not be missed! @EU_HaDEA @EU_Health
We @eupatientsforum couldn't wait to attend the @EDiHTA_EU kick off meeting and build opportunities for collaboration with partners. EDiHTA aims at building an #HTA framework for #digitalhealth technologies and the #patientperspective could not be missed! @EU_HaDEA @EU_Health
#EHDS Adopted by @Europarl_EN✅ The new rules will: ➡️grant patients full control over their data ➡️provide easier access to healthcare across 🇪🇺 ➡️allow for reuse of health data for research & innovation & help develop life-saving treatments. europa.eu/!MVmRPt #HealthUnion
We welcome the provisional agreement on the European Health Data Space (#EHDS) with 445 votes in favor at the @Europarl_EN today! This framework will empower patients to access their health data easily, manage care, and ensure data privacy.🏥💻
⏳Don’t miss out! There is only one week until we close applications for this year’s #STYPA 🔗 Apply now to avoid missing out: bit.ly/49d0KZf Deadline for applications: 1st of May, 2024
Ahead of the plenary vote on 24.04.24, @eupatients calls on the @Europarl_EN to adopt the provisional agreement on the #EHDS agreed with the @EUCouncil. The agreement strengthens individual rights and enables secure data re-use for research. #vote4patients
Today is the day!🎉 Excited to start the First #EDiHTA General Assembly today hosted at the Italian Minister of Health in Rome!!🇮🇹 Stay tuned! Live from 2:30 pm! 🔜🔜 #HTA #DHTs #HealthcareInnovation
We received an operating grant under the European Commission’s EU4Health Programme! With the support of this operating grant, EPF will execute a forward-looking work plan to shape and reinforce the European Health Union. Read our statement here: bit.ly/3JqDlcg
🌞 Have you made any plans for the summer yet? How about EPF’s Skills Training for Young Patient Advocates? #STYPA2024 is back, focusing on Antimicrobial Resistance (AMR). Join us for a transformative journey and apply now bit.ly/49d0KZf 📅 Deadline: May 1st, 2024
Empowering patients is essential for a fair and resilient healthcare framework. Join our effort to amplify the #patientperspective and #Vote4Patients for the next EU elections! ✍️ Sign the petition: bit.ly/3uyqDo4 📖 Read our Manifesto: bit.ly/3HHUm0U
🗓️From 15 to 17 April, IDERHA held the Annual Consortium Meeting, in Berlin! What was discussed? 📌 The use of AI in healthcare 📌The technical challenges when integrating healthcare data to drive innovation 📌New policies for the future 👉 Learn more: bit.ly/3Um0DX2
Together with our partners from the EU Healthy Air Coalition, EFA is calling on the EU Parliament to tackle #AirPollution We urge policymakers to support a strong revision of the EU #AAQD to ensure that all people in Europe can #KeepBreathing! #CleanAir4Health Read the letter⤵️
Together with our partners from the EU Healthy Air Coalition, EFA is calling on the EU Parliament to tackle #AirPollution We urge policymakers to support a strong revision of the EU #AAQD to ensure that all people in Europe can #KeepBreathing! #CleanAir4Health Read the letter⤵️
Health is one of most important topics for citizens when it comes to #EUElections2024, according to the 🇪🇺citizens. Be part of your future and #UseYourVote. For more information about public opinion➡️europa.eu/!74rMhC #HealthUnion
🟢📷 Elena moya Pendería @elenix63 , Vocal y coordinadora de relaciones internacionale de FEP, reelegida vocal de la European patients forum @eupatientsforum . Fue el pasado 14 de abril en Bruselas, en al Asamblea General de la EPF. ¡Enhorabuena!
🗣️MEP @MetzTilly: ‘’Patient organisations complement the role of healthcare providers, policymakers and researchers.’’ For these EU elections, #Vote4Patients! 🖊️Sign the petition: bit.ly/3uyqDo4 📹Watch the full interview: bit.ly/3xDG6V2
🗓️Today, our board member Elena Moya delivered a presentation on why health systems must deliver with patients at Pharma 2024, organised by Reuters Events. To fully engage patients in the design of healthcare solutions, a cultural shift is needed! #PatientPerspective
We have closed our AGM with a presentation on our #Vote4Patients campaign! In our Patient Organisations’ Manifesto, we defined 10 principles for better healthcare. ✍️ Sign the petition: bit.ly/3uyqDo4 📖 Read our Manifesto: bit.ly/3HHUm0U
Hoy estamos en la Asamblea General del Foro Europeo de Pacientes @eupatientsforum que se celebra en Bruselas. Más de 43 organizaciones de pacientes de Europa unidos para afrontar los distintos retos de 2024.
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Marie K-H @marie_klhi
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National Screening Se.. @NSShse
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Rachel Giles @RachelGiles6
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Amy Holtby @amy_r_h
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stefan swartling pete.. @stefanswartpet
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Vanessa Bennett (she/.. @bennett_ness
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LifeSaver @LifeSaver_H2020
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World Liver Day @WorldLiverDay
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Catherine Feore - Eur.. @HealthHubEditor
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angus @AngusEMWallace
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شغفي تعزيز �.. @drbassambalsam1
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TeleRehaB DSS Project @TeleRehaBEU
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Rural Health Compass @ruralcompass
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Patient Voices throug.. @PVoicesTS
2 Followers 10 Following A group of people together sharing our voices and stories around living with illness
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IAEA PACT @iaeapact
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Meliora EU Horizon Pr.. @MELIORA_EU
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Dimitris Genethli @DGenethli
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EU One Health @EU_Health
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62K Followers 3K Following European Commissioner for Health and Food Safety. Human rights advocate. Focus on the positive.
WHO/Europe @WHO_Europe
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EURORDIS-Rare Disease.. @eurordis
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EU Medicines Agency @EMA_News
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EUPATI @eupatients
8K Followers 2K Following The European Patients' Academy on Therapeutic Innovation is an independent, non-profit organisation committed to patient engagement through patient education.
EUREGHA - Regional an.. @EUREGHA
4K Followers 2K Following European Regional and Local Health Authorities – bringing regions and municipalities together to exchange, and join forces to achieve #HealthinAllRegions
HaDEA @EU_HaDEA
9K Followers 2K Following @EU_Commission's Executive Agency implementing the EU funding programmes for health, food safety, digital, industry and space. RT ≠ endorsement.
Innovative Health Ini.. @IHIEurope
14K Followers 3K Following We're an EU PPP funding health research & innovation under #HorizonEU. We also manage IMI projects. Find us @[email protected]
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
European Health Manag.. @EHMAinfo
5K Followers 2K Following EHMA is a membership organisation committed to excellence in #HealthManagement across Europe
Paul Belcher FRCP MFP.. @PaulJBelcher
6K Followers 2K Following 🇪🇺 Public Health Advocate▪️Fellow @RCPhysicians▪️ Hon Member @FPH-@EUPHActs▪️Advisory Committee @GasteinForum▪️Member @CMTunitedkdom▪️Ex @EHMAinfo @epha_eu
Mental Health Europe @MentalHealthEur
21K Followers 3K Following Largest independent #mentalhealth NGO in Europe 🚀🇪🇺 | We stand up for #humanrights of people with mental ill-health, fight #stigma & advocate for better care
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5K Followers 1K Following The Standing Committee of European Doctors (CPME) represents national medical associations across Europe, covering more than 1.7 million doctors in 37 countries
EU HERA @EC_HERA
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Bernard Jomier @BernardJomier
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Belgian Presidency of.. @EU2024BE
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EDiHTA EU Horizon Eur.. @EDiHTA_EU
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Global AMR Research &.. @GlobalAMRHub
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EUCAPA @eucapa4health
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Sjögren Europe @SjogrenEurope
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PubAffairs EU News & .. @PubAffairsEU
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Contexte @Contexte
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Michael George @MichaelGeorgePR
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David Novillo Ortiz @davidnovillo
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Regions for Health @WHO_Europe_RHN
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Isabel Proaño Gómez @IsaProano
334 Followers 603 Following Director of Policy & Communications @EFA_Patients | Board @eupatientsforum | Consejera @CREBelgica | De Santander ❤
Pavi Brar @_pavbrar
244 Followers 343 Following she/her | own views | Senior Policy Advisor @NVTweeting | Always looking to learn and get involved in new projects!
Viktoria Prantauer @ViktoriaMecha
263 Followers 1K Following My work focuses on shaping a sustainable & inclusive AI-powered world by building the companies of the future. #datacollaboration #dataethics #patientadvocate
Arthur Dauphin @Art_Dauphin
979 Followers 1K Following Chargé de mission numérique en santé à France Assos Santé. Passé par l'officine et l'EHESP, au service des patients toujours. 🏳️🌈 Compte personnel. He/His.
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Hidradenitis Suppurat.. @hsireland1
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TB Alliance @TBAlliance
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Financial Times Live @ftlive
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Národní asociace pa.. @NAPO_CZ
367 Followers 272 Following Zastřešujeme pacientské organizace v ČR a prosazujeme kolektivní zájmy pacientů. Máme 47 členských organizací. Podpořeno fondy EHP 2014-2021 v programu Zdraví.
WAPO @WAPO_org
449 Followers 413 Following WAPʘ is a non-profit organization created in order to unite the international pituitary patient community
SOSTE Suomen sosiaali.. @SOSTE10
17K Followers 2K Following Yli 200 sosiaali- ja terveysalan toimijan valtakunnallinen kattojärjestö. Tehdään hyvä elämä kaikille – yhdessä #sote #hyte #järjestöt #hyvinvointitalous
Paula Garcia Lobato @PaulaGarLobato
110 Followers 261 Following MPH/Pharma. Interests: health promotion & education; global health; HIV; access to medicines; clinical research; personalized medicine. Views are personal.
HealthTech For Patien.. @HealthTechFP
144 Followers 175 Following HealthTech For Patients is an event created by HealthTech For Care🚀🏥 Inizia il Progetto di ricerca europeo #EDiHTA sulle tecnologie digitali sanitarie, coordinato dall'Università Cattolica del Sacro Cuore. #HorizonEurope #TecnologieSanitarieDigitali #DigitalHealthTech #HealthTechnologyAssessment #Ricerca #Innovazione #SaluteDigitale
#EHDS Adopted by @Europarl_EN✅ The new rules will: ➡️grant patients full control over their data ➡️provide easier access to healthcare across 🇪🇺 ➡️allow for reuse of health data for research & innovation & help develop life-saving treatments. europa.eu/!MVmRPt #HealthUnion
We @eupatientsforum couldn't wait to attend the @EDiHTA_EU kick off meeting and build opportunities for collaboration with partners. EDiHTA aims at building an #HTA framework for #digitalhealth technologies and the #patientperspective could not be missed! @EU_HaDEA @EU_Health
Today is the day!🎉 Excited to start the First #EDiHTA General Assembly today hosted at the Italian Minister of Health in Rome!!🇮🇹 Stay tuned! Live from 2:30 pm! 🔜🔜 #HTA #DHTs #HealthcareInnovation
Urgent Reminder: The #NotJustMySkin campaign wraps up on April 19th. Join us in advocating for the prioritization of skin health by signing the open letter at notjustmyskin.org. Show your support & help spread the word by sharing this post. #ActNow #SkinHealthAwareness
Mediante una encuesta de +11.000 #pacientes de encefalomielitis miálgica y síndrome de fatiga crónica, la Alianza Europea para la Encefalomielitis Miálgica y @CONFESQ1 denuncian su "dura realidad". "Ya es hora de que se tome en serio esta enfermedad". ➡️consalud.es/pacientes/real…
Together with our partners from the EU Healthy Air Coalition, EFA is calling on the EU Parliament to tackle #AirPollution We urge policymakers to support a strong revision of the EU #AAQD to ensure that all people in Europe can #KeepBreathing! #CleanAir4Health Read the letter⤵️
🫁 We're calling on all members of the EU Parliament to commit to tackling harmful #AirPollution. 🚨 Dear MEP: adopt the #AirQuality directive revision (#AAQD) deal to protect health! Our letter: ow.ly/qOJH50Rh9eB #CleanAir4Health
Neil Johnson, GHH Executive Director, is delighted to be at the PRovoke EMEA Summit joining the panel on 'Women's Health - Turbo Charging Change'. The disparity in healthcare and historical gender bias has led to a global crisis for women’s health.💔 #WomenandCVD @Provoke_News
💚🙌🏻 Isabel, presidenta de @larasturias os invita al 8º #ENPacientes24. 📅 Jueves, 18 de abril #DíaEuropeodelosDerechosdelosPacientes ⌚ 9:30h - 17:30h 📌H. Gregorio Marañón, Madrid 👤💻Formato híbrido 🖐 Intérpretes de lengua de signos 🎟️ Gratuito 📄 encuentro.forodepacientes.org
Un placer participar en la Jornada de @LLYC_Global sobre salud personalizada, descentralizada y verde en nombre de @pacientesPOP para tratar la interacción con la #cronicidad. Gracias @carlosparry @GeorginaRosell por la invitación @Yolandadevega y Marisa Garcia-vaquero 👏🏻
📢 Let your #voice be heard in the upcoming EU elections on June 6-9, 2024! As President of ELPA, I urge you to prioritize healthcare by casting your vote. Health policies shape our well-being and access to #treatment.#LiverHealth Your vote symbolizes a commitment to democracy…
#CORE Knowledge Hub Meeting #1: The HIV, Viral Hepatitis and STIs Testing and Diagnostics Landscape: An Update 2 May 2024 | 12:30 CET 🔻Tap/Click below info and to register for free eatg.org/events/core-kn… #COmmunityREsponse #COREActionEU #EU4Health #HealthUnion
Chronic diseases have a massive impact in patient's mental health, and this needs to be duly addressed in order to secure an acceptable quality of life. Hope you enjoy this talk by Dr Linda Kwakkenbos: youtu.be/7atxlnfsDfE?si… #SjögrensAwarenessMonth #Sjögren #SjögrenDisease
Health is one of most important topics for citizens when it comes to #EUElections2024, according to the 🇪🇺citizens. Be part of your future and #UseYourVote. For more information about public opinion➡️europa.eu/!74rMhC #HealthUnion
🟢📷 Elena moya Pendería @elenix63 , Vocal y coordinadora de relaciones internacionale de FEP, reelegida vocal de la European patients forum @eupatientsforum . Fue el pasado 14 de abril en Bruselas, en al Asamblea General de la EPF. ¡Enhorabuena!
We are nearing the end of today's workshop. -@Anca4health is moderating the policy panel "Towards Responsible AI In Healthcare" with @MarinettiC from @MentalHealthEur, Peter Arlett, @EMA_News, Eric Sutherland, @OECD, and @antonioagrasso , @EUdigitalsme #Vote4Patients
Thank you for providing a platform for such interesting exchange! 👉🏻 AI should always be a means to an end 👉🏻 AI should respond to people's real needs 👉🏻 AI should be co-created 👉🏻 ROI should be calculated through the lenses of an #economyofwellbeing
We are nearing the end of today's workshop. -@Anca4health is moderating the policy panel "Towards Responsible AI In Healthcare" with @MarinettiC from @MentalHealthEur, Peter Arlett, @EMA_News, Eric Sutherland, @OECD, and @antonioagrasso , @EUdigitalsme #Vote4Patients
Hoy, nuestra directora, @monicadeelio está asistiendo y participando en el taller AI Litera y for Patient Advocacy: Capacity Building Workshop junto con más de 70 representantes de pacientes de Europa.
For the second session of the day, Claudia Louati, @eupatientsforum Head of Policy interviews Antonio Andreu, @EatrisEric Scientific Director on the potential and limitations of #AI in #healthcare!
Hoy estamos en la Asamblea General del Foro Europeo de Pacientes @eupatientsforum que se celebra en Bruselas. Más de 43 organizaciones de pacientes de Europa unidos para afrontar los distintos retos de 2024.
📢 @pacientesPOP se suma a la campaña #Vote4Patients del @eupatientsforum. La iniciativa tiene como objetivo elevar las voces de los #pacientes en el panorama de la atención médica de la #UniónEuropea. Accede al manifiesto➡️plataformadepacientes.org/actualidad/la-…
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