Search results for #NEISVoid
Bend, But Don’t Break the Bank: Financial Resources for EDS Patients buff.ly/3HvpuB8 #EDS #hEDS #HSD #Hypermobility #NEISvoid #Finances #Poverty #MedicalDebt #MedTWitter #Zebras
I really, really do not know how my body is going to react to the prep for ultra sound of my kidneys and bladder. My right kidney is already not happy and in pain! Will i be able to keep bladder full or empty it afterwards by any means #neisvoid
My son's friends are off to vacation during the school spring break & he is accompanying me to the hospital as we couldn't find a sitter for the whole day. Instead of complaining, he is excited to see how good the cafe in the new hospital will be. #parenting in #NEISVoid
#pots #dysautonomia Chelsea is seeking recommendations for compression socks that are lightweight, petite & soft #neisvoid #disabilitytwitter
#pots #dysautonomia Chelsea is seeking recommendations for compression socks that are lightweight, petite & soft #neisvoid #disabilitytwitter
Do you feel as good as you wish you did? Have you tried #Lock'dIn? Save 10% 💦 Enter code TOPAZ-LC2024 at lockdin.com/?rfsn=7859203.… #energy #PEM #LongCovid #IgG #MECFS #Dysautonomia #POTS #kidney #MCAS #mitochondria #chronicillness #millionsmissing #NEISvoid #autoimmune $ltnc
Crap fell asleep after my 4 p.m meds didn't wake up till 1 a.m late for meds I woke up in esophageal and anal sphincter spasms and "asthma". Was able to successfully take Baclofen and meds. How much did I aspirated before I woke up? Good 2 a.m wake up NO such thing! #neisvoid
#DisabilityTwitter #showupforwishes #MutualAidRequest #NEISvoid Everything is now late!
#DisabilityTwitter #showupforwishes #MutualAidRequest #NEISvoid Everything is now late!
Trust what #ChronicallyIll & #Disabled people say about their bodies and experiences—there are so many things science and research do not know yet, and just because it's not something you're familiar with doesn't mean it isn't real and valid. #NEISVoid
When you make a drink and spill it everywhere or just drop the cup. Fun times. #Fibromyalgia #spoonie #neisvoid
A small part of the process of trying to get essential medication in the U.S #NEISvoid
There aren't enough people talking about mold when it comes to #MyalgicEncephalomyelitis or #CFS. #MECFS #NEIS #NEISvoid #ChronicIllness #ChronicPain
Unraveling Tethered Cord for EDS Patients (simplified version) buff.ly/3wsVaUR #EhlersDanlos #EDS #hEDS #Hypermobility #HSD #TetheredCord #TC #CPP #MedEd #MedTwitter #Doctors #Neurosurgeons #NEISvoid #Medicine #FOAMed
When Else to Suspect Ehlers-Danlos Syndrome or #HSD buff.ly/2JLs8D8 #EDS #HMS #Fibromyalgia #MedEd #Doctors #Spoonies #Hypermobility #Zebras #MedTwitter #NEISvoid #Autistic #Autism #ADHD #AuDHD
Please, anyone with a chronic condition, especially those in the hashtags of this tweet, please check this out and consider signing up! The more data they have access to, the better, faster, and more accurate their analysis and research into these conditions can be! #NEISvoid
Please, anyone with a chronic condition, especially those in the hashtags of this tweet, please check this out and consider signing up! The more data they have access to, the better, faster, and more accurate their analysis and research into these conditions can be! #NEISvoid
anons shouting into t.. @AnonsInTheVoid
803 Followers 4 Following place to ask anonymous questions or tell stories for the #NEISVoid - DM and I'll post it | run by @undercafeinated
stable finally, getti.. @bennessb
27K Followers 693 Following currently: haunted / unwell & host of No End In Sight, creator of #NEISVoid, a keeper of @RTsFromTheVoid. find me on 🦣: @[email protected] she/her.
(expect RT delays) th.. @RTsFromTheVoid
4K Followers 3 Following delayed daily retweets from #NEISVoid | kept up by @bennessb & @fibrofuckboy | illness / neurodivergence / disability / no dx required / all dx welcome
BendyHEDS&Co 🐴🦓.. @luvenice_h
4K Followers 5K Following Helping awareness of #EDS & Hypermobility Spectrum #HSD = #POTS #MCAS #MECFS #CSFleak #SIH/IIH #Stenosis #CCI #TMJ #ON/TN #GP #CRPS #SFN & more ⬇GPtoolkit⬇
Who's that girl? 💛.. @theonlyJLD
280 Followers 1K Following 🦓 •🥄• 🎶 • 📚 • 🎬 • 📺 • 🥱 😴 • 🇪🇺 • ♀️ she/her
Spoon Central 🦓�.. @spoon_central
2K Followers 2K Following I re/post tweets related to #chronicillnesses to spread info, offer support, & build our #neisvoid community. #CRPS #disability #dysautonomia #chronicpain 🦓🥄
Sage @sagetoko
842 Followers 558 Following Applied Physics PhD working in industry. Views my own. Fiber arts, cooking, baking. #NEISVoid #LongCovid she/her 🐘❤️ @[email protected]
Dr Anna Briochette @AZebress
1K Followers 1K Following Retired specialist physician. #MedEd. Too many illnesses incl #EDS #Sjögren #CVID #HKPP. Apparently I’m a "Walking medical textbook". Isn't that fun. #NEISVoid
angela mv/p 💁🏻�.. @ItsAngInLA
4K Followers 3K Following 🦠 personal #LongCOVID clinical research social acct | she.he.ella.èl| Los Angeles 🐦🙋🏻♀️ #NEISvoid #MCAS #hEDS #HyperPots #MECFS #UCTD #MigraineChat
Kelly Mack @A11yKelly
446 Followers 226 Following PhD student at @UW in @uwcse | researching #accessibility | forever a student | Spoonie #NEISVoid, she/her
probablyautist 🪐 @probablyautist
1K Followers 2K Following Neurodivergent human meat sack | covid #vaccinedamaged (thanks @AstraZeneca & @NHS) | #POTS #mecfs #millionsmissing #neisvoid
POTS Rage @RagePOTS
2K Followers 1K Following Here for the #NEISvoid. POTS, MCAS, ADHD, Autoimmune, etc. etc.
September Dresan @SeptemberDresan
2K Followers 2K Following #FMS #ME #CFS warrior 33 yrs. Now Long Covid #NEISvoid #CPP Support ALL FORMS of pain mgmt. #PainPatientsVote. 🇺🇸 libertarian-leaning independent
levi @levi_levitated
1K Followers 1K Following Est. ‘87 | Queer & Trans | -he/him- | PROUD ex-evangelical Dynamically Disabled #NEISvoid #ActuallyAutistic #ADHD ↯↯↯
lau(Ren) @inkandpaintdept
1K Followers 998 Following queer / auDHD + cPTSD / #NEISvoid / opinionated / annoying / perpetually tired. cat parent, sentient possum meme & disney fan. no time for gender. they/them 🌈
Jomei | they⚔️the.. @redeadmojoh
414 Followers 336 Following 🎙|🎌🇺🇸| Your favorite, disabled poet. My name is Jomei. I snap, crackle, pop. | #NEISvoid | #BLM | #hEDS | 18+ | #Zelda | Angelina 🕊️🤍
mask up and reject CB.. @invalid__art
714 Followers 1K Following Disabled/sick/mad, writer and advocate. Radical abolition. Community care. H8r of DWP, charities and psychiatry. 🌈 #NEISVoid #BenefitScum
Monika Dryburgh (she/.. @monika_dryburgh
931 Followers 2K Following #NEISVoid-dweller; recovering ex-PhD student. I ❤️ (teaching abt) words #ActuallyAutistic #EDS #hypermobility #POTS #autoimmune #IBD #arthritis #endo ?#MCAS
Rue 🦩 @pseudelight
563 Followers 718 Following she/they || queer Jewish health equity girl || PhD in progress || #ActuallyAutistic & #UglyDogs #BuddyBrigade #neisvoid
David Ager 🗺😷�.. @TheAgermeister
954 Followers 2K Following Spatial Analyst from #Swindon, now in 🇺🇸. #GIS #Maps #DataViz #Data #Python #Geography #Cricket #STFC #happilymarried #disability #NEISvoid
Julia @juliagertrud
854 Followers 2K Following Children's librarian who also loves rare books & special collections Bells | Neurodivergent DREADpirate adhd #neurodiversesquad | #hEDS chronic pain #NEISvoid
Anastasia Schaadhardt @seeress_stasia
368 Followers 925 Following phd student @uw_ischool. mental illness + TikTok. queer quaker. she/her. #NEISVoid. header alt: 'use alt text' over a glitchy edit of Ophelia by Waterhouse
K @kammiri
424 Followers 2K Following UXR | Social R | #NEISvoid ~ I have a thing for animals with opposable thumbs.
mizzy @mizmowz
1K Followers 2K Following Less honkin' more tonkin' disabled*chronic pain gang*class war vet 🌈y’all means all🌈 #NEISvoid #Solidarity #NoMoreWars
forced retirement era @tvobsessedslut
347 Followers 611 Following ♑ • 30 • 🏳️🌈 • they/them • fssw since 2016 • autistic w CPTSD #neisvoid
ellie bean (add alt t.. @sn_elle
324 Followers 2K Following 🌈ellie (they/she) | trans, non-binary | wifeguy of @yogapantslez | hrt 1.17.23 | 🐔@WetChickenArt🐓 | #ActuallyAutistic #ADHD #NEISVoid |
Todd Kelman @tjkelman
256 Followers 915 Following Emergency veterinarian, in a constant state of existential crisis. Stats/epi, engineering. #NEISvoid #migraine @[email protected]
Aurora @spacehurricanes
1K Followers 2K Following Swirling through space-time. she/her #neisvoid same @ on the other blue app.
Anne Romatowski @anneromatowski
476 Followers 2K Following https://t.co/RksrGRXZHL Day jobs: FinTech, Racial Wealth Equity, Cities. Other stuff: #MECFS caregiving, #NEISvoid, #hEDS, #POTS