Search results for #NEISvoid
I've spent all of today feeling dysregulated and dealing with various disability issues. I feel like I haven't accomplished anything, just wasted a day. #NEISvoid
Well, I HAD it set up on my phone that 1st resp could just swipe up, tap emergency & all my medical info wud pop on screen. System app seems to have changed & I'm afraid messing w/it will accidentally call. Wut do I do? #spoonie #neisvoid #MedTwitter
Why is character assassination a part of chronic pain? It feels like there are “good patients” & “bad patients” & it’s a whole task having to be a “good patient” while also attempting to get my needs met (getting the clinician to trial new strategies to decrease pain). #NEISVoid
Top this off with being Black, Muslim, and Trans. In the American Midwest. I try not to complain too hard. But, could yall help me? Lighten the load? No one should have to carry so much #neisvoid
@PennMedicine @TJUHospital @TempleHealth @mainlinehealth @IBX @NETWORKLobby @TheCHAUSA please take note and share with your staff! #TreatLongCovid #TreatMECFS #NEISVoid
@PennMedicine @TJUHospital @TempleHealth @mainlinehealth @IBX @NETWORKLobby @TheCHAUSA please take note and share with your staff! #TreatLongCovid #TreatMECFS #NEISVoid
PLEASE don’t ignore this! I’ve raised 1/10th of my goal, and I’m tired. I’m moving in 2 months, and I’m raising funds to cover the fees. My current apartment has mold, and I have bad asthma. I’m always getting sick, and my immune system is compromised! #neisvoid #crowdfund
PLEASE don’t ignore this! I’ve raised 1/10th of my goal, and I’m tired. I’m moving in 2 months, and I’m raising funds to cover the fees. My current apartment has mold, and I have bad asthma. I’m always getting sick, and my immune system is compromised! #neisvoid #crowdfund
Disabled people: when you tell someone you can't do something because of your disability and the response is 'sorry to hear that' do you find it patronising #NEISVoid #Disabled #Spoonie (Cc @DisabledStem can you be your fab selves and RT)
See our new Patient Guide: Tethered Cord in EDS: A Patient Guide to Symptoms, Diagnostics, Treatments, and Risks buff.ly/3OApSSg #EhlersDanlosSyndrome #EDS #Hypermobility #HSD #hEDS #CCI #AAI #TetheredCord #TC #CPP #NEISvoid #Spine #medicine #MedEd #MedTwitter
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I've had that conversation so many times. It's always the same. Either your labs are fine or if something is different, then it's not relevant & we can ignore that 🤦♀️ #ChronicIllness #MECFS #Hashimoto #SFN #ChronicPain #NEISvoid #spoonie
I've had that conversation so many times. It's always the same. Either your labs are fine or if something is different, then it's not relevant & we can ignore that 🤦♀️ #ChronicIllness #MECFS #Hashimoto #SFN #ChronicPain #NEISvoid #spoonie
"No end in sight" - #NEISvoid hashtag posts at symplur.com/healthcare-has… #ME #PEM #chronic #fatigue #immune #dysfunction #neurological #cognitive #muscle #healthcare #illness #pain #sleepless #insomnia #immunity #orthostatic #intolerance #brainfog #disability #postexertional…
I’m amazed at the things I find sexy now (insurance injection approval letters) #ChronicPain #NEISvoid