Search results for #millionsmissing
4) een excuses voor het aangedane leed nodig. Vooral dat laatste kan vandaag al! Ik wens de nabestaanden heel veel sterkte en hopen dat Loes de rust heeft gevonden waar ze zo naar snakte. May she rest in peace! Dag lieve Loes! ❤️ #pwme #myalgicE #millionsmissing #severeME
grote schande en een welgemeend excuses aan de gehele post-acute infectieuze ziekten gemeenschap lijkt me dan ook meer dan op z'n plaats!!! Komt u maar!!! zoek.officielebekendmakingen.nl/dossier/kst-34… #longCOVID #pwme #chroniclyme #QVS #postsepsis #PEM #millionsmissing
CW: sterfte / euthanasie #MillionsMissing #MECVS #MyalgicEncephalomyelitis
CW: sterfte / euthanasie #MillionsMissing #MECVS #MyalgicEncephalomyelitis
So pleased to see some representation from Australia @U2Fight_World @SenatorJordon is a fantastic ally. He's the only one speaking up for #pwME in govt (and on many other serious matters of human rights). #MEcfs #MyalgicEncephalomyelitis #MillionsMissing #UniteToFight2024
So pleased to see some representation from Australia @U2Fight_World @SenatorJordon is a fantastic ally. He's the only one speaking up for #pwME in govt (and on many other serious matters of human rights). #MEcfs #MyalgicEncephalomyelitis #MillionsMissing #UniteToFight2024
Meine kognitiven Probleme inkl. Brainfog werden immer schlimmer. Kann immer seltener klar denken, geht immer langsamer u es tut meist richtig weh zu versuchen mit aller Macht durch den Nebel im Kopf Gedanken zusammen zu kratzen. ¹ #MECFS #millionsmissing
Jeden Tag daran erinnern, dass #MECFS #PostCovid & das #Postvac Syndrom somatische Erkrankungen sind und, unabhängig der Ursache (!), alle Betroffenen Versorgung brauchen! #millionsmissing Noch 19 Tage bis zur #LightUpTheNight4ME 2024 💙
This jack ass wins my pick for Asshole of the week and its only Monday. This has to be one of the CRUELEST/Ableist comment I have seen probably... EVER. Ganging up on the sick and suffering. #MyalgicEncephalomyelitis #MECFS #pwME #LongCovid #ableist #MedTwitter #MillionsMissing
This jack ass wins my pick for Asshole of the week and its only Monday. This has to be one of the CRUELEST/Ableist comment I have seen probably... EVER. Ganging up on the sick and suffering. #MyalgicEncephalomyelitis #MECFS #pwME #LongCovid #ableist #MedTwitter #MillionsMissing
@pennysfromWales @KatyBruce108 @thetimes @BinitaKane Attitude never changes, only the language. 1983, I had a bad flu, became #SevereME Bedbound ever since. Parents accused of being 'overprotective'. 2nd opinion was a shrink who said nothing wrong mentally, had to be physical. GP nearly lost her mind at that. #millionsmissing
c’est une pensée à laquelle on s’attendrait au XIXe siècle et ces préjugés survivent encore au XXIe siècle ! 3/7 #SyndromesPostInfectieux #MillionsMissing #MECFS #pwME #COVID #COVID19 #longcovid
The week of #MillionsMissing and #TeachMETreatME is coming soon - May 3- 12th. We have a Show Up From Home Toolkit with actions you can take based on energy levels. Thank you to Beth for sending us this photo we can share for an example of ask number 3! bit.ly/HomeMM2024
Daniela's story highlights the power of community for those with #MyalgicE. As a #GlobalVoiceForME from Mexico, Daniela calls on health authorities to change the narrative and support patients. #EMSFC #MECFS #WorldMEDay #MillionsMissing #Mexico. buff.ly/3U7pRHy
Die Feldbetten stehen symbolisch für die zehntausenden #MECFS-Betroffenen ohne Versorgung in 🇦🇹. Wir sammeln Botschaften für all jene, die nicht vor Ort dabei sein können. Infos und Unterstützungsmöglichkeiten 👉 mecfs.at/unversorgtseit… #MillionsMissing #unversorgtseit1969 4/4
@U2Fight_World @SenatorJordon This is great news. @SenatorJordon has done a lot for #PwME #MECFS in Australia. He came to the #MillionsMissing protest we had in Fremantle.
Millions Missing.. @MillionsMissing
84 Followers 0 Following Millions Missing... Why Are You Still Here? is a powerful musical stageplay, the plight of 6 people search for answers why their loved ones are missing.
#MillionsMissing Aus .. @MMissingAus
2K Followers 432 Following There are #MillionsMissing from their lives due to ME (Myalgic Encephalomyelitis or #MECFS). We're fighting for health equality and to make their voices heard.
Beth #MillionsMissing @rndNumGen
2K Followers 714 Following #pwME and science/data nerd. co-founder @meactnet. Mostly post about #millionsmissing, #ME, #LongCovid, #microbiome, #MCAS, #POTS, and #healthequality. CS @MIT
#MillionsMissing Deut.. @MMissingGermany
2K Followers 784 Following #MillionsMissing – Eine politische Initiative | Myalgische Enzephalomyelitis (ME)/Chronisches Fatigue-Syndrom (CFS) oder #MECFS
#MillionsMissing Swed.. @MMissingSweden
802 Followers 906 Following #MillionsMissing is a global campaign for ME health equality! #MECFS #pwME https://t.co/BPrULX2K3x #MillionsMissingSweden
Kira Stoops // The Ar.. @TheArghonaut
457 Followers 473 Following Sicker than your average. Stoked anyway. #mecfs | #chronicpain | #heds | #mcas #disabled by #chronicillness #MillionsMissing | Ally to #longcovid
OpusAnneglicanum 🖤.. @SteelGoldfish
461 Followers 1K Following Disabled; European; Embroiderer. 'I do not care what comes after; I have seen the dragons on the wind of morning'. ~ The Farthest Shore - Ursula Le Guin
#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
#MillionsMissing Newq.. @MMNewquay
73 Followers 135 Following #MillionsMissing goes to the beach. Fistral Beach May 12 2019 visibility event for #MEAction #MEAwarenessDay. Tweets by @Primate_Girl
Shelley #MillionsMiss.. @seashel
58 Followers 194 Following Decades long M.E. Patient - Wish I woulda been wrong about Long Covid happening. Fauci coulda done much more yrs ago that would help now.
#MEAction Network UK @MEActNetUK
7K Followers 610 Following UK branch of global grassroots movement @MEActNet. Empowering patients to fight for the #MillionsMissing with ME. Health equality & biomedical research now!
Lisa #millionsmissing @lisa_mecfs
91 Followers 140 Following
#stopGET Campaign @stopGETteam
1K Followers 585 Following After graded exercise therapy for ME some of the #MillionsMissing are missing more. Many patients report deterioration. #stopGET is an @MEActNet assoc campaign.
DecodeME the ME/CFS S.. @DecodeMEstudy
7K Followers 748 Following The world's largest study ever into #MEcfs. #pwME [email protected] - 0800 196 8664 #DecodeMEStudy #pwME #MillionsMissing
vunnen 🍉 @vunnen
1K Followers 212 Following asoiaf/hotd fanart | reposts only with credit! | #millionsmissing
Pam Laird @Pam
1K Followers 397 Following Fighting for women's health equity, #MEAction board, #MillionsMissing, #pwme
Long Covid News #pwLC.. @LongCovidNews
3K Followers 834 Following Here for working treatments & cures. #MillionsMissing #POTS #MECFS #LongCovid - Cov Jan 21, LC since March 21. I am unvaccinated. Business owner. Barely coping.
Anil van der Zee © @AnilvanderZee
9K Followers 820 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
MillionsMissingNL @MMissingHolland
2K Followers 1K Following #Actiegroep #MillionsMissing Holland wil betere #zorg & sociale #gelijkheid voor #ME-#patienten.
Dr. Daniel Loy @loy_daniel_de
6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
Håpefull #millionsmi.. @sommerfugl15
11 Followers 36 Following Tidligere sprudlende og livsglad jente med alvorlig ME som ikke har energi til å være sprudlende lenger. Bedbound by severe ME and trying to stay hopefull❤️
Char | ChronicallyHop.. @chronic_hopeful
2K Followers 851 Following M.E. Advocate, Blogger, Artist & Gamer Housebound with #MyalgicE since 2015 #MillionsMissing #pwME #MEcfs #MEawareness Also at @MEawarePics
Natasha 🐱🦠 @doyouseem_e_now
2K Followers 665 Following 29 & sick with Severe #LongCovid for 13 months 🛌 Part of the biggest mass disabling event in modern world history. #Millionsmissing
Ang Crowley #FBLC #mi.. @angie79crowley
229 Followers 2K Following Life as I knew it temporarily on pause due to Long Covid. Trying (and sometimes succeeding!) to find joy and gratitude in this new life.
Millions Missing Podc.. @millionspod
1K Followers 416 Following Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis / #LongCovid et al / #MillionsMissing / Contact: [email protected]
Lu @LuPwME
2K Followers 2K Following Moderate ME/CFS patient. One of the #MillionsMissing since 2016. Animal/nature/wildflower lover. Miss walking, writing and cooking (lost to this illness).
#MEAction Scotland @meactionscot
2K Followers 713 Following MEAction Scotland is an affiliate of #MEAction, an international network of people working towards health equality for #MillionsMissing with ME.
Juli Maëlle @julimaelle
7K Followers 3K Following Ex-Fotografin 📸 & Musikerin 🎶, jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie. Leidenschaft still on. #noAfD #wirsindmehr
suffering in silence .. @ManonRaven
4 Followers 84 Following #IatrogenicInjury #PharmaInjury #PTSD #CRPS #CVD+ #SVD+ #HSD #AITD+ #Neuropathy #EBV #Lyme #LongCovid #LongVax #MEcfs #Fibro #NEISVOID Chromasome 6+ warrior
Shehla Ali @ali_shehla
2K Followers 437 Following Founder of About M.E. on a good day I fly my drone.➡️🧠 FND. Using Tech/Digital to help make invisible illnesses visible. Views my own. #MillionsMissing
Nic @Nic_p5t
1K Followers 898 Following one of #MillionsMissing | #MECFS - a virus destroyed my life in 2016
Elizabeth Manzano @KissedSunBerry
1K Followers 2K Following M.E & Fibromyalgia fighter #MillionsMissing TWD addict 💫#TWDFamily. The power of positive thinking is mind blowing❣️Nutritionist at Project Sass.
Bettina Hahn @BettinaHahn5
2K Followers 901 Following One of #millionsmissing ME/CFS (deutsch/english) (she/her) 💥🐰
Nat Price 🏳️�.. @NatPrice29
2K Followers 2K Following Severe M.E stopped me from becoming a Dietitian. I am one of the #MillionsMissing, hidden away in a dark room. My brain is on fire. Pharmacology grad. They/them
Daniel Freeman (on hi.. @LongCovidKiwi
2K Followers 1K Following Used to be @GayKiwiDan. 44 y/o battling #LongCovid since 01 June 2022. Here to correspond with fellow sufferers. #MECFS #FBLC #MillionsMissing 🤒 😷
Sonja Kohl @eskabadu
2K Followers 1K Following 🇩🇪 One of #millionsmissing | Team #GOfundMECFS & #SIGNforMECFS | Suffering from #MECFS after a viral infection in 2012 | https://t.co/FSdIVPb7iI
Amy DeBellis @lapis_lazuli11
2K Followers 655 Following ALL OUR TOMORROWS @CLASHBooks 2025 🖤 Words in @fracturedlit @ghostparachute @flashfroglitmag @monkeybicycle @pinchjournal One of #millionsmissing ♿️
Andrea @andrea__sweden
972 Followers 852 Following Raising awareness of ME -myalgic encephalomyelitis | urgent need of more biomedical research | mainly RT due 2 very severe ME | One of the #millionsmissing 🇸🇪
thank you Amy 🤍 @Bellepetitemoi
2K Followers 2K Following step into the daylight and let it go // safe and sound stan • Rep room 09.11.18 Auckland ♡ #millionsmissing
PZ @pzneedsrest
990 Followers 813 Following Music🎶 Film🎞️ Investigative Journalism🧐 and Hot Chips🍟 Happiest by the sea 🌊 Living small as a #pwME #MillionsMissing 👻
Tweets @ChronicMyalgicE
1K Followers 813 Following Dutch | life derailed due to #IBD & #MECFS | sofa bound | on Twitter to raise awareness for post infectious diseases | one of the #MillionsMissing
Jere @integraljere
1K Followers 1K Following #Artist @IntegralArtist2 and one of the #MillionsMissing since 1984. #MyalgicEncephalomyelitis #Type1Diabetes #Addisons #Hashimoto
SarahFelis 🌱🔞�.. @sarahfelis_
3K Followers 2K Following 🔞 She/Her. UK. Bi. NSFW. Anarchist. Photographer. Chronically Exhausted.🔞 Probably somewhere between boom and bust. #millionsmissing
Dave T #MECFS #freepa.. @davro_t
1K Followers 1K Following #pwme since 2018 #Autistic adult, socialist, nerd, gamer, love horror/sci-fi/fantasy - used to be an avid reader & runner #ME #MECFS #AuDHD #millionsmissing
Sophie @slpglondon
1K Followers 1K Following One of #MillionsMissing - #LongCovid since September 2020 - Health is Wealth - 🕊️🍉
probablyautist 🪐 @probablyautist
1K Followers 2K Following Neurodivergent human meat sack | covid #vaccinedamaged (thanks @AstraZeneca & @NHS) | #POTS #mecfs #millionsmissing #neisvoid
Millionsmissing Göte.. @Millionsmissin3
2 Followers 0 Following
Donia 🖖🇵🇷 �.. @DoniaLilly
2K Followers 2K Following 💙💜💖 Disabled ethyrical artist. #MyalgicE. #MillionsMissing. Civilian PTSD Awareness. #DisabilityRights #ActuallyAutistic. Paypal https://t.co/zWONuqF0Lq
Mrs E Cansdale 🎲�.. @cansdale_e
1K Followers 2K Following UK DM & player DND 5e. Creator of dice at Oakenheel Mystcrafts Not in the the crowd #millionsmissing. https://t.co/4VJj3Pcmg6
Sissel Sunde 🇳🇴 @Sissel777
1K Followers 626 Following I got a virus and never recovered (2015). ME/CFS Advocate, Leader of MillionsMissing Stavanger. Former PA/Sr. Business Administrator.
clar @kibisumi
1K Followers 712 Following multi / #MillionsMissing watching: playing: spiritfarer reading:
Long Covid Sufferer M.. @LCsuffererMECFS
2K Followers 2K Following Diagnosed with #MECFS and #POTS. Looking for a treatment. #Dysautonomia #Millionsmissing #LongHauler #LongCovid #Apheresis #SteroidPulse #IVIG #BC007 #Rituximab
Dorothea @fiatluxV
1K Followers 1K Following M.E. (ME/CFS) for 34 years, severe/housebound for 13 years #millionsmissing #MEAwarenesshour #MyalgicEncephalomyelitis #SevereME ✝️
NSU ME/CFS @NsuMecfs
893 Followers 1K Following We're the Institute for Neuro-Immune Medicine investigating ME/CFS. Support our research and join our study or spread the word! #MECFS #MillionsMissing #CFS
Jan Bradbury @Exogenesis_1
1K Followers 2K Following mσthєr σf twíns, lσvєr σf @musє @ctwσlstєnhσlm є@FleetwoodMac @Prince TheEagles @GαmєOftTrσnєs @suíts_usα #shєrlσck ,M.E Warrior #MillionsMissing
Simone @phoenixme.bsk.. @PhoenixMe_
2K Followers 2K Following Bed-bound activist with severe ME/CFS. One of the #MillionsMissing. If I had any spoons, I'd be dangerous. Views expressed are my own. [email protected]
Liz Burlingame @LizMEActGA
817 Followers 985 Following Striving to live deliberately from my bed @MEActionGA #MillionsMissing #pwME #CFS
ᗰᔕ ᑕᗩT @oshunsprite
926 Followers 1K Following Negotiating life with chronic illness: 21 years ♿ #pwME, one of the #MillionsMissing, Expressive & Healing Arts, Poetry, 🌿🌸 #ShinrinYoku #MEAWARENESSHOUR 💙
M @PlanetLoBattery
1K Followers 1K Following Gamer, artist, writer, ADHD, disabled, #MillionsMissing, #pwME, ME/CFS, hEDS, POTS, etc, 🏳️🌈 (💗💜💙), she/they. No unsolicited advice please.
Isabella Ophelia Jone.. @BellaOJones
647 Followers 2K Following Blogger #book & #glutenfree reviews & #chronicillness former scientist #millionsmissing #PwME #asthma #serratedpolyposis #coeliac #disabled ♿ Insta @bellaojones
xxx ROSE xxx @TanteRos
2K Followers 2K Following Not much energy/too many migraines. Nature keeps me going #Photography on https://t.co/yKh1ibi9aD… #MillionsMissing
Crystal @theMediaChick
592 Followers 543 Following 🎞️Former Radio, TV, Concert, Film/Music Fest Production Nomad 🛠️ Lifelong DIY Gal 🤘Rocker Chick ♿Myalgic Encephalomyelitis since 2008 #MillionsMissing
Sian Murray Huynh �.. @SianAEMurray
818 Followers 2K Following Freelance Digital/ Product/ Strategy/ Design type person. Star Trek nerd. Mama. Francophile. One of the #MillionsMissing #AuDHD #ActuallyAutistic she/her
melinda_is_complex (s.. @melinda0219
912 Followers 2K Following She/her. Was a Connoisseur of food, wine, spirits, sports & info. Now bed-tethered by #ME+. I am one of the #MillionsMissing. Co-founder @MEActMaryland
smashman42 @smashman42
785 Followers 2K Following #PwME passing time on teh interwebs cause I'm usually too sick to leave the house. "Sickiversary" Feb 2004 #MillionsMissing #MECFS
Millions Missing Mexi.. @sfcem_mexico
694 Followers 1K Following #MillionsMissing #MillonesAusentes es un movimiento internacional que visibiliza y aboga por pacientes con Síndrome de Fatiga Crónica/Encefalomielitis Miálgica.
Clay Crosby ☮️ @ClayCrosbyLMFT
374 Followers 1K Following expat psychotherapist, dad, erstwhile crooner #MECFS #MillionsMissing https://t.co/ZLXPUmtf2Z , https://t.co/nAWsDENYlm , https://t.co/1dvy8GBV5j
It's ME Rieke @itsMErieke
1K Followers 2K Following moeder•vrouw•vrolijk•doorbijter•hoopvol•sarcastisch•eigenwijs•ik❤️gifjes•typgriep•huis/bedgebonden:MEcvs• I AM ONE OF THE #MillionsMissing•Ik ben #NietHersteld