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Kags ❇ 😷 #LongVZV #pwME 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @Klang764

a minute

It's been labelled as a neurological condition by WHO since 1969 but yeah,in 2024, "a good start" 🤷‍♀️😡 #pwME

S Blitshteyn MD, FAAN, Dysautonomia Clinic @dysclinic

7 hours ago

It's been labelled as a neurological condition by WHO since 1969 but yeah,in 2024, "a good start" 🤷‍♀️😡 #pwME

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Kags ❇ 😷 #LongVZV #pwME 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @Klang764

5 minutes ago

#pwME

Kags ❇ 😷 #LongVZV #pwME 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @Klang764

7 minutes ago

#pwME

Kristina Osobka @ChronicallyTina

55 minutes ago

May no #MyalgicEncephalomyelitis victim ever have to be subjected to this ever again. Enough is enough!!! #MECFS #pwME #MEAwarenessHour #MillionsMissing #Neisvoid #neuroimmune #sciencenotstigma @AnnCurry @terrence_mccoy @wendellpotter @NYTHealth @SkyNewsBreak @BBCBreaking

Kristina Osobka @ChronicallyTina

a hour ago

This. From an OP ED piece in the NY Times 2015 by @julierehmeyer nytimes.com/2015/02/25/opi… #MyalgicEncephalomyelitis #pwME #MECFS #MedTwitter #neisvoid #teachmetreatme #sciencenotstigma #ChronicallyIll

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Alice Lewis @AliceOutThere

3 hours ago

2. This 👇👇 “… the best characterization of PEM isn’t even called PEM.” It’s called 👇👇 ‘Post-Exertional Neoroimmune Exhaustion’ P.E.N.E. #MyalgicEncephalomyelitis #MyalgicE #pwME

Todd Davenport @sunsopeningband

a day ago

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Alice Lewis @AliceOutThere

3 hours ago

1. This 👇 “PEM itself is not a symptom …” #MyalgicEncephalomyelitis #MyalgicE #pwME

Todd Davenport @sunsopeningband

a day ago

1. This 👇 “PEM itself is not a symptom …” #MyalgicEncephalomyelitis #MyalgicE #pwME

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Sten Helmfrid 🇺🇦 @StenHelmfrid

3 hours ago

@katimcf If people with #MECFS carry out a CPET on day 1 and repeat the test on day 2, they will have deteriorated on day 2. That means that the #pwME will have test results on day 2 that correspond to lower cardiopulmonary capacity than on day 1.

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Cath Jackson @cath_nz

3 hours ago

@ErinSandersNP The mecfs and long covid communities have been stepping up for decades despite the impact this has on their health. Healthy allies need to take some responsibility for the situation #pwME and #pwLC are in.