I AM ALS @iamalsorg
I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS. iamals.org Joined November 2018-
Tweets5K
-
Followers26K
-
Following797
-
Likes12K
Love this quote!!… and my conversation with Sara who was diagnosed with ALS at 36. She opens up about the tough stuff in this emotional chat. Listen in here: bit.ly/ListenOnAppleP… @HerALSStory @iamalsorg @HopeLovesCo #als
Our Online Resource Center compiles resources from all across the web into a searchable, categorized system, so you can find everything you need as soon as you need it. Check it out: iamals.org/get-help
The Veterans Team needs your help! They love giving well-deserved accolades to people and organizations who go above and beyond in their service of Veterans living with ALS and their loved ones. Nominate someone amazing using this form: iamals.org/action/als-vet…
The Lou Gehrig Day Team has been hard at work on their Library Awareness campaign, and they've partnered with @LiveLikeLou4 to bring an informative webinar to the Grayslake Library! Learn more & sign up: grayslake.librarycalendar.com/event/lunch-an…
The Veterans Team is recruiting for new members so they can make an even bigger splash in the ALS space. If you're interested in making a tangible difference in the lives of Veterans impacted by ALS and their loved ones, join the team: iamals.org/action/veteran…
As Lou Gehrig Day and Little League season both draw closer, check out the efforts of our amazing Youth Lou Gehrig Day team! They are working with youth leagues across the country to spread the word about Lou Gehrig's legacy. Learn more and sign up: iamals.org/action/youth-l…
Our 2023 Annual Report is here! None of what we accomplished this past year would be possible without YOU – your support, your advocacy, and your passion. Thank you! We hope you’ll read through the report and celebrate with us! iamals.org/updates/2023-a…
This is something that is needed for #ALS patients and caregivers too! @bsw5020 , @lisamurkowski , @iamalsorg , @ChrisCoons . This would help more than ALS Better Care Act by a mile. Please, let’s make it happen, I know you can.
This is something that is needed for #ALS patients and caregivers too! @bsw5020 , @lisamurkowski , @iamalsorg , @ChrisCoons . This would help more than ALS Better Care Act by a mile. Please, let’s make it happen, I know you can.
NEW EPISODE! I talk to 37 yr old, Sara Bennett who is facing a terminal illness & raising two young children. We chat about how she's approaching ALS with her 5 & 7 year olds & her work with an End of Life doula. Listen in here: bit.ly/ListenOnAppleP… @HerALSStory @iamalsorg
🌎❤️ ✅Check out the latest amazing work from the @ALSMNDAlliance community in the April 2024 newsletter, incl. news from #conSLAncio! 📰➡️tinyurl.com/ms5u59pp @silviapozzi81 @iamalsorg @MauroGSpatafora @MarinaBoido80 @MartinadeMajo @Silvia_Rota_ #ALSMNDWithoutBorders
What’s it like caregiving for someone with a rare disease like ALS? Next week, we’re hosting an important conversation on Instagram Live between @aijenpoo and @sabrevaya. You won’t want to miss this! instagram.com/caringacrossge…
Don't forget - we're starting out ALS Awareness Month on May 1st with a Lou Gehrig Book Talk! Join author Jonathan Eig for a discussion of his book "Luckiest Man: The Life and Death of Lou Gehrig." Sign up: iamals.org/action/the-luc…
The Write Stuff is hosting a two-part panel series about Eyegaze technology! The first panel (on April 29th at 6:30pm ET) will feature advocates who have done some incredible things with Eyegaze. We hope to see you there! iamals.org/action/eyegaze…
It's finally here -- trivia night is TONIGHT! It's not too late to sign up to join us at 4pm ET. Don't forget your thinking caps and random knowledge! iamals.org/action/trivia/
Coming back to Cincy-WITH Andrea!! May 2 at @MariemontThtr -the incredible story of Andrea Lytle Peet’s race against time as she becomes the first person with ALS to complete a marathon in all 50 states. A Q&A with Andrea included! Tix: bit.ly/brave-cincinna… @Iamals @ALSTDI
✅🇮🇹🇺🇸🤝🌎#conSLAncio is proud to support the 1st @iamalsorg #ALS #Community #Summit in Washington D.C. from May 29-June 1, 2024! ➡️Join us! tinyurl.com/sxamy3su We thank all participants, sponsors, & partners of these amazing events! Grazie! ❤️❤️ #ALSMNDWithoutBorders
Check out this film by the folks a I AM ALS. ALS Awareness month is coming up. Let's spread the word about Familial ALS/FTD! @End_The_Legacy @ALSTDI @iamalsorg
I AM ALS is hiring! We are looking for a Chief of Staff, aManager of Community Organizing, and a freelance Graphic Designer. Check out the listings for each position and learn how to apply: iamals.org/jobs
Tomorrow is the last day to apply for a scholarship to attend the ALS Community Summit at the end of May! If financial concerns are preventing you from attending the summit, please apply. iamals.org/action/als-sum…
Our team works hard to make each Peer Support Initiative mentor/mentee match a good fit for both parties, and we love hearing success stories like Monique's! Apply for a mentor of your own, or apply to become one, here: iamals.org/action/peer-su…
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Kaye @KayeSteinsapir
120K Followers 37K Following Proud mama of 3. Writer. Attorney. Cancer survivor. Bereaved parent. Founder of the Molly Steinsapir Foundation 🌈🦋✡️. #TEAMMOLLY
Chris Snow @ChrisSnowCGY
26K Followers 194 Following Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary Flames
Sarah Nauser @SarahNauser
12K Followers 514 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirl
Steve Gleason - "Live.. @SteveGleason
199K Followers 247 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Shah Minokadeh, M.D. @MinoShah
4K Followers 721 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
Hande Ozdinler @DrOzdinler
27K Followers 715 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
Stew @jonstew1982
2K Followers 193 Following Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Fight2EndALS @Fight2EndALS
1 Followers 13 Following
Clifford Nichols @clifford_nicho
2 Followers 400 Following
Rick Reyer @RickDReyer
892 Followers 2K Following Retired! Leadership, project management, comms, freelance drummer, fishes, hunts, cooks, reviews music, and reads the Bible.
Earth Crisis Areas #R.. @EarthCrisisArea
41 Followers 748 Following ``| We are all the waves of one sea | The time has come for all to live as one | We are all the waves of one sea | We are all the stars of one sky |`` MMaxW
JK Sayers @jk_sayers
18 Followers 119 Following just out here trying to make the world a better place
Violet_teloiv @unchi_violet
0 Followers 20 Following
jhenwork @jwork95471
3 Followers 76 Following
Lisa Zimmerman @LisaZimmer69346
0 Followers 6 Following
alsHATER @HaterAlss
38 Followers 202 Following
E Musk @BarristerS84208
170 Followers 3K Following Entrepreneur... ELON MUSK... Mars mission exploration... support the future of humanity and beyond... SpaceX mission... become part of this movement...
Dragonlady @Dragonlady457
272 Followers 1K Following
Karrar Saad كــر�.. @karrar_saad19
794 Followers 625 Following Baghdad club player ⚽️ ، كن كما تريد وليس كما يريدون ، 🖤
Omar Rodríguez Mendo.. @omarrmen
61 Followers 875 Following Medical Doctor. Master’s Student of Neurobiology. #UNAM. Mexican. Looking forward to study a phD in Biomedical Science.
Iveta Mareckova @Imar83505
0 Followers 19 Following
Brad Uptgraft @braduptgraft
168 Followers 48 Following
Pedro Assed @pedroassed
1K Followers 3K Following Magnus est qui se vincit. MD, MSc-Endocrinology-Federal Univ. Rio de Janeiro/UFRJ 🇧🇷Tweets are my own. RT is not endorsement #MedEd
Nick @NickMinocha
44 Followers 194 Following
Courtney Cameron @Courtne97992242
3 Followers 11 Following
Ronna Gross @heaton_ronna
2K Followers 680 Following Sunkist Kids @GodsWrestler133 😍 Lover of Jesus💗🙏🏼
ALS Northwest @ALSNorthwest
527 Followers 350 Following ALS Northwest provides support and resources for people living with ALS, their families, and caregivers.
Carol @playaisol
30 Followers 222 Following
MelanieDuran @MelanieDDuran
67 Followers 146 Following Aspiring Neurologist - Clinical Research @HarvardChanSPH - Research Coordinator - Medical Education Mentor -Neurology Nerd 🧠
falcon @bos46476740
4 Followers 337 Following
kristen heuberger @readingfun6
3 Followers 54 Following
All_deia @Allldeia
8 Followers 53 Following
CharityGPT @CharityGPT
15 Followers 423 Following ⚛️ Welcome to CharityGPT - the AI tool for Nonprofits to get the most out of ChatGPT! 📝 Prompt Templates 📋 Custom Instructions 🔌 Plugins, GPTs & More
Rob Etherington @RobEtherington7
7 Followers 44 Following
Giuseppe Biondi-Zocca.. @gbiondizoccai
10K Followers 3K Following Cardiologist, scientist & former airborne officer https://t.co/ZE49jsBLQJ
Mark Tracht @MarkTracht
83 Followers 578 Following
Torsten Weidauer @ich_tori2105
1 Followers 23 Following
Jan @Phil45814Janice
8 Followers 93 Following
Teri S @Monet4011
87 Followers 144 Following
Julie Suarez @epjjule
7 Followers 182 Following Wife,corgi mom,stepmother,aunt,baby sister,cousin and friend determined to help beat #ALS.Army brat! Texan (kinda).#ALSWarrior #EPSTRONG #GEAUXTIGERS
Kathy Savitt @ksavitt
9K Followers 626 Following Inventor, Founder, Board Director, mother, wife, sister, aspiring optimist. All opinions are my own.
Caring Across Generat.. @CaringAcrossGen
14K Followers 3K Following A movement of caregivers and care recipients working to better care systems so everyone can live, work, age, and parent with dignity. #CareCantWait
dnurse35yrs @dnurse35yrs
240 Followers 1K Following #NursesVote; Elections have consequences! #VotingRights War is not the answer. Who do we want to be? I will miss my Twitter feed.
#Churley 🌊🌊🌊 @churley7111
10K Followers 11K Following #WokeAsFuck #BeKind #RESIST #BLM #WomensRightsareHumanRights💙 #ClimateChangeisReal🦋#BidenHarris 🌊🌊
Wayne Mario @WayneMario49424
33 Followers 220 Following Half of shoe ( the heel, not the soul )luckiest husband Alives Nothing can dim the light that shines from within.
Stacey Kinsey @StaceyK1998
5 Followers 29 Following
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Kaye @KayeSteinsapir
120K Followers 37K Following Proud mama of 3. Writer. Attorney. Cancer survivor. Bereaved parent. Founder of the Molly Steinsapir Foundation 🌈🦋✡️. #TEAMMOLLY
Chris Snow @ChrisSnowCGY
26K Followers 194 Following Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary Flames
Steve Gleason - "Live.. @SteveGleason
199K Followers 247 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Hande Ozdinler @DrOzdinler
27K Followers 715 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
No More Excuses ALS W.. @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
Mandi @RunningMama0522
2K Followers 1K Following
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 906 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Andrea Koval @jaxmadmom84
2K Followers 406 Following dereks widow :( , momma to 2 babes 2 angels raising ALS awareness and Retinitis pigmentosa awareness….
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
Forbes Tate Partners @forbestate
2K Followers 812 Following Bipartisan public affairs firm driving outcomes for our partners that achieve their goals and build value in today’s policy and political landscape.
Katie Couric @katiecouric
1.7M Followers 5K Following Journalist, @SU2C founder, podcaster, and co-founder of the eponymous Katie Couric Media. #1 New York Times bestselling author (Couldn’t resist)
Team Drea Foundation @TeamDreaFdn
509 Followers 219 Following Nonprofit & team of 200 athletes who have raised $750k to defeat ALS. Andrea is aiming to be the 1st person w/ ALS to do a marathon in all 50 states on a trike.
Jill Brattain @MommaJillB
542 Followers 558 Following Love my family, love my life, but most of all, Love God. Victim of the ALS beast. Miss my best friend.
Sarah Parton (she/her.. @sarahkarpar
1K Followers 941 Following A very proud Mom and Gigi. Married to the love of my life. Living with #ALS C9orf72. GenX, liberal AF, rock and roll is boss. Football is my favorite season.
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
Jim Mourey @JimMourey
375 Followers 240 Following Husband of a strong amazing woman who fought ALS, father of 2 wonderful adult kids and advocate of ALS awareness
EndTheLegacy @End_The_Legacy
326 Followers 65 Following Patient led organization providing education and support , and advocating for, those impacted by Genetic ALS and FTD.
Behan Strong @BehanStrong
2K Followers 2K Following Join our movement to raise funds and awareness for Bucknell Alum and former SJC DC boys bball head coach Pat Behan (@CoachBehanSJC) in his fight against ALS
Elizabeth Dole Founda.. @DoleFoundation
33K Followers 24K Following Empowering, supporting, and honoring military and veteran caregivers, our nation’s #hiddenheroes.
Phil Rosenthal @PhilRosenthal
105K Followers 424 Following ‘Somebody Feed Phil’ Season 6 Now Streaming.... Creator: Somebody Feed Phil-Netflix, Everybody Loves Raymond, I'll Have What Phil's Having, Naked Lunch Podcast
Your ALS Guide @YourALSguide
386 Followers 64 Following A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more...
Ales for ALS @AlesforALS
713 Followers 2K Following Since 2013, the #AlesForALS program has raised over $6,000,000 for ALS research at @alstdi. Cheers to beer and to helping #EndALS!
Toronto Blue Jays @BlueJays
2.4M Followers 911 Following We are Blue Jays #TOTHECORE 🇨🇦 Follow us on Facebook, Instagram, YouTube, Threads, Snapchat and TikTok: @BlueJays
Chad Clardy @ChadClardy3
96 Followers 78 Following Family, sports, music, & love ~ Mental health advocate & professional. Son to ALS SURVIVOR! #EndALS
EveryLife Foundation @EveryLifeOrg
7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
nai @imonfiya7
406 Followers 41 Following A proud mom of 👭fighting ALS with my 28 year old daughter. #helpmybaby……I was able to lose 50 pounds and keep it off. I can help you too.💝
Punk Army @punkarmynet
246 Followers 178 Following helping you create websites, merchandise, social media more. owners: @rrlitster & @albertorodx
Mihir @terminal_coder
152 Followers 198 Following 36. Programmer, developer. Living with ALS (Amyotrophic Lateral Sclerosis). Grateful for each day.
Disability & Intersec.. @DISummit_org
3K Followers 295 Following Updates and information for the Disability & Intersectionality Summit 2021
Jean C9orf72 @Jeanc9orf72
1K Followers 857 Following C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy
Nathalie Jacoby @nathaliejacoby1
280K Followers 56K Following Democrat • Kindness matters most of all. #SpacesHost
Proud Retired Navy CA.. @KRob8753
2K Followers 2K Following ALS is my battle now. 1/6/21 was an attempted coup. Never Trump. “We convey by our presence, and our actions, that which is important.”
Becky Mourey @becky_mourey
635 Followers 318 Following Wife, mom, musician, lover of life, living with and fighting to end ALS.
Morris ALS Principles @ALSprinciples
326 Followers 19 Following
Her ALS Story @HerALSStory
2K Followers 164 Following We are a group of women diagnosed with ALS before our 35th birthday who are challenging the stereotype that this is an old white man's disease.
Tim Green @timgreenbooks
3K Followers 794 Following Tim Green: NFL player; @NYTimes bestselling author;TV host/commentator @FOX, @NFL, GMA, @CourtTV, @ABC, @NPR; lawyer/coach/father of 5; newest book Final Season
Walter Shelton @wcs929
110 Followers 198 Following
Circleboom @circleboom
114K Followers 5K Following Boom your Social Circle! We create intuitive and easy-to-use social media products for brands, SMBs and users to grow and strengthen their social network.
The American Brain Co.. @AmericanBrainCo
1K Followers 222 Following Nonprofit organization, seeks to advance the understanding of the functions of the brain, and to reduce the burden of brain disorders through public advocacy.
Luke Deal @lukedeal86
4K Followers 393 Following Embrace The Journey | @ontovictorynil Student-Athlete
beanish 🐝 @bean_ish
328 Followers 1K Following ALS traveler ... Wife mom sister aunt friend neighbor activist legumist deltiologist... Team Pete forever #ENDALS #ALSAwarenessMonth #iamals
ikanread @ikanread
424 Followers 2K Following ikontainmultitudes but mostly here for Bravo, law, and dog Twitter (she/her) - same handle on all the socials
bob verber @bobverber
558 Followers 3K Following Coffee fueled Europe based Californian. Steelers, Cal Bears, SF Giants. Languages -- lots. Hair -- almost none. Opinions and poor attempts at humor are my own.
Christina Warren @ChristinaHagi
341 Followers 612 Following Reader, writer, book whisperer, EFL teacher...
Paul Seay @PaulSeay2
179 Followers 1K Following
Carolyn MacDonald @Mommycita21
22 Followers 208 Following
DARK Malarkey PAB Rod.. @ingee
200 Followers 1K Following Specializing in spray tanning testicles. Part time River Boat security guard. Chinese balloon inflation technician. ❤️me some RICO.
anna hayward @reikilady22
244 Followers 820 Following therapist at Farleigh Hospice /Buddhist healer 🙏West Ham Fan @BraintreeReserves @WestHamFoundation @Barkingside @EnsignOfficial @mndassoc @claptonfootball
char barton @charb33
351 Followers 707 Following 988 National 3 digit suicide hotline # NEEDS TO BE FUNDED/ACTIVATED. Believer in democracy equal opportunity. Universal Health Care. UPDATE MEDICAL SYSTEMS
Erin Persaud @philanthro303
529 Followers 1K Following Mom demanding action. Period product purveyor. Believer in human rights, science, ❤️ is ❤️, dignity for all. Black lives matter. All views are mine. she/her
Whether you've been recently diagnosed with #ALS or have already started your journey, there are resources and support available to help you and your loved ones. #EndALS #Fight2EndALS
Our Online Resource Center compiles resources from all across the web into a searchable, categorized system, so you can find everything you need as soon as you need it. Check it out: iamals.org/get-help
Ayer la Fundación Novum trajo a la Argentina No Ordinary Campaign, un documental que muestra como @bsw5020 decidió ser protagonista luego de su diagnóstico de #ELA #ALS en 2017 y comenzó @iamalsorg, un movimiento que cambió la forma de hacer lobby y ver la enfermedad
Come join us! @LiveLikeLou4 @New_Spence @Shankapotomas @KickenALSAss @Bob @HopOnACure @tptobin @No_More_ALS @KylanMorris1 @JackSil24
The Lou Gehrig Day Team has been hard at work on their Library Awareness campaign, and they've partnered with @LiveLikeLou4 to bring an informative webinar to the Grayslake Library! Learn more & sign up: grayslake.librarycalendar.com/event/lunch-an…
Love this quote!!… and my conversation with Sara who was diagnosed with ALS at 36. She opens up about the tough stuff in this emotional chat. Listen in here: bit.ly/ListenOnAppleP… @HerALSStory @iamalsorg @HopeLovesCo #als
#WashingtonDC, save the date! May is #ALSAwarenessMonth, and Hop On A Cure is proud to partner with @iamalsorg to bring you an evening of music and conversation with @johndhopkins of @zacbrownband, and actor @AaronLazar. More details to come, we hope to see you May 28! #endALS
This is something that is needed for #ALS patients and caregivers too! @bsw5020 , @lisamurkowski , @iamalsorg , @ChrisCoons . This would help more than ALS Better Care Act by a mile. Please, let’s make it happen, I know you can.
ICYMI this is a really HUGE deal. Being able to bring cutting edge specialty care into the home for those living with Alzheimer's and their caregivers wherever you live in the country is what @synapticure was built for. Thank you @statnews for the amazing story below. Here's to…
NEW EPISODE! I talk to 37 yr old, Sara Bennett who is facing a terminal illness & raising two young children. We chat about how she's approaching ALS with her 5 & 7 year olds & her work with an End of Life doula. Listen in here: bit.ly/ListenOnAppleP… @HerALSStory @iamalsorg
🌎❤️ ✅Check out the latest amazing work from the @ALSMNDAlliance community in the April 2024 newsletter, incl. news from #conSLAncio! 📰➡️tinyurl.com/ms5u59pp @silviapozzi81 @iamalsorg @MauroGSpatafora @MarinaBoido80 @MartinadeMajo @Silvia_Rota_ #ALSMNDWithoutBorders
Coming back to Cincy-WITH Andrea!! May 2 at @MariemontThtr -the incredible story of Andrea Lytle Peet’s race against time as she becomes the first person with ALS to complete a marathon in all 50 states. A Q&A with Andrea included! Tix: bit.ly/brave-cincinna… @Iamals @ALSTDI
Check out this film by the folks a I AM ALS. ALS Awareness month is coming up. Let's spread the word about Familial ALS/FTD! @End_The_Legacy @ALSTDI @iamalsorg
@MindyUhrlaub @End_The_Legacy @ALSTDI @iamalsorg Mindy does not quit! 💪🏻
✅🇮🇹🇺🇸🤝🌎#conSLAncio is proud to support the 1st @iamalsorg #ALS #Community #Summit in Washington D.C. from May 29-June 1, 2024! ➡️Join us! tinyurl.com/sxamy3su We thank all participants, sponsors, & partners of these amazing events! Grazie! ❤️❤️ #ALSMNDWithoutBorders
As part of our weekly webinar series, we will dedicate one Thursday each month to a discussion about EAPs. Join us on 4/18 at 5pm for an overview of the new online resources to learn more about #ExpandedAccess Register:partners.zoom.us/webinar/regist…
Listen to Mindy’s #ALS story -and her family’s story - and help us #fight2EndALS @CongressmanRaja @SenatorDurbin @SenDuckworth
Understanding familial #ALS could bring us closer to a cure. Share Mindy's story of her #Fight2EndALS with your elected officials using this action: iamals.org/action/mindys-…
@iamalsorg I requested this & I love it! Thank you!
California elected officials: Mindy is from the Bay Area. Help her & her sons #EndALS #Fight2EndALS #WednesdayWisdom @CAgovernor @SenAlexPadilla @Senlaphonza @RepBarbaraLee @SpeakerPelosi @EleniForCA @ilike_mike @SenBrianJones @CASpeakerRivas @J_GallagherAD3
Understanding familial #ALS could bring us closer to a cure. Share Mindy's story of her #Fight2EndALS with your elected officials using this action: iamals.org/action/mindys-…
ALS is devastating. Add in the worry of your children getting it, is a whole new level. #endals #iamals iamals.org/action/mindys-…
Understanding familial #ALS could bring us closer to a cure. Share Mindy's story of her #Fight2EndALS with your elected officials using this action: iamals.org/action/mindys-…
Please join us on Thursday 4/11 for our #WeeklyWebinar series. This week, we will discuss the topline results from Regimen E. @ALSTDI @alsassociation @iamalsorg @LesTurnerALS @MDAorg @NEALSConsortium @everything_als @alsone_official bit.ly/3KKsme2
AFFECTED BY ALS?@iamalsorg will display 6,000 flags with the names of those with ALS, those we’ve lost to ALS, & ALS gene carriers on the National Mall in D.C. in May. Link to submit name for flag: iamals.org/action/2024fla… Names need submitted each year! @ALSTDI @HopOnACure #als
Trends for United States
You might like
