Kim French @kimfrench0405
ALS Warrior...mom of 3. Illinois, USA Joined July 2019-
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Please consider joining whether you have ALS or not. We need to develop lasting relationships and friendships. Please repost facebook.com/groups/3997011…
Thinking about starting an ALS dating group on Facebook
Even though my brother and sister in law make sure there’s always someone here to take care of me, I’ve never felt more alone. I’ve cried so much I physically cannot cry anymore
Have we got you on the run, Bobby boy? Sept 27 is going to come back to haunt you no matter how much you flap your yap about reform. Fraud carries consequences; evidence is now in the hands of E&C commission and reporters. Y'see we got nothin' to lose. You already killed us. #als
Have we got you on the run, Bobby boy? Sept 27 is going to come back to haunt you no matter how much you flap your yap about reform. Fraud carries consequences; evidence is now in the hands of E&C commission and reporters. Y'see we got nothin' to lose. You already killed us. #als https://t.co/4Oq7OVzmpC
She was in her early 30s when she was diagnosed with ALS. Instead of letting it her get her down, she did this:
"You’re pushing for better access to care and more support for caregivers." - Dr. Jill Biden, @FLOTUS. Yesterday was a big day! Our co-founders, @bsw5020 and @sabrevaya, brought the fight for improved health care and caregiver support to the @WhiteHouse. synapticure.com/blog/continuin…
My ALS community and family , I need support and love right now. My husband of over 19 years has decided he wants a divorce. I am still in shock. ALS tore through and ripped our marriage apart. #fuckALS
Omg! A Christmas miracle! @nuro_corp did a training session w Kristin & NUOS WORKS!!!! Locked in w #ALS, our daughter was able to say "yes" to several questions! 1st connection w the world in 6 months! @alsassociation @iamalsorg @SteveGleason ,pls get the word & $ help out there!
The #PromisingPathwayAct is proudly bipartisan, and gaining steam every day. This week we're proud to add @SenatorRicketts, @SenLummis, @SteveDaines, and @SenCapito to our bill to help Americans struggling with life-threatening diseases get access to promising treatments.
Everyone stop what your doing. This is Charlotte Sena she has been abducted from a campground in NY while riding her bike today. Amber alert issued. She is in immediate danger. Bike was found. Please retweet. flip.it/Eo8MHk
FYI: Here's a great example of how an unbiased #ALS organization fights for current pALS (aka donors) urgent needs and hope! Donate now to @iamalsorg. @FDACBER @biospace @statnews @CNNHeroes #mnd @alsassociation @ALSMNDAlliance @mndassoc @MNDPatients @mndaustralia @MNDScotland
Dear @DrCaliff_FDA I have a fly in my house. Why should you care? Well, I can’t shoo it away because I have #ALS. It’s absolutely torture. I’m thinking if I’d been able to decide whether or not to try #NurOwn when I was diagnosed I could do more than shoo a fly. #NurOwnWorks
Thank you Brooke
Legit shot in the dark at bossman @elonmusk w @pjgreen Phil and I will be in SF this week. Wed like to discuss how @X might partner with Phil to help ALS families leverage the platform to help fund, in home care. Help us lead the way #als @augiesquest @BarryKatz
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Shah Minokadeh, M.D. @MinoShah
4K Followers 720 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
Jamie Smith @JamieLW8
4K Followers 566 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 905 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
Nate Methot @a_life_derailed
2K Followers 777 Following Author of "A Life Derailed: My Journey with ALS", a memoir 39 y/o living with #ALS since 2011. #EndALS #empathy #awareness Memoir and blog at https://t.co/lSqWxLqUXm
Mandi @RunningMama0522
2K Followers 1K Following
Grant W Smith @GWSmith14
1K Followers 1K Following MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
End ALS Now @EndALSNow
953 Followers 928 Following ▪Bri ▪I mainly amplify #ALS tweets ▪ALS=wretched, cruel, 100% fatal ▪RT=awareness, not agreement ▪🚫DMs🚫 ▪#EndALS ▪#SunflowerForSandy 🌻 ▪#RoseForJamie 🌹
alsHATER @HaterAls
1K Followers 965 Following als hater MM lover Impossible is an option One woman army
Christine Gilmore RN @KickenALSAss
2K Followers 2K Following ALS Bad-Ass. Registered Nurse. MHA . Married. ♿️. DM Scammers will be reported.
Sarah Parton (she/her.. @sarahkarpar
1K Followers 941 Following A very proud Mom and Gigi. Married to the love of my life. Living with #ALS C9orf72. GenX, liberal AF, rock and roll is boss. Football is my favorite season.
Iceq @Iceq925800
15 Followers 486 Following
Kerr @Kerr087
32 Followers 54 Following
FortunaC @FortunaC
21 Followers 279 Following
Gertie 🍌 @GertieTyler6959
4 Followers 210 Following Sеeking likе-minded individuаls for stеаmу enсounters
Alex O’Loughlin @alex_oloughlin4
92 Followers 190 Following
Scarlett_Thom @ScarlettTh28868
8 Followers 674 Following
Terry Hunt @TerryHu21714102
167 Followers 915 Following
Verity @Verity898090
5 Followers 766 Following
Alice Alexander @Ameliaalexe
474 Followers 765 Following Life has no limitations, except the ones you make. 🇺🇸🇺🇸💐
Stop ALS Now @StopAlsNow
5 Followers 18 Following
Julie Suarez @epjjule
6 Followers 144 Following Wife,corgi mom,stepmother,aunt,baby sister,cousin and friend determined to help beat #ALS.Army brat! Texan (kinda).#ALSWarrior #EPSTRONG #GEAUXTIGERS
razadu @razadu_
133 Followers 297 Following Experiencing ALS symptoms for several months now and anxiously awaiting a diagnosis; several other medical conditions have been ruled out
Tokyo_Tengu @Tokyo_Tengu
4K Followers 5K Following Happily married patriot grandpa, USN vet, and VFW Life Member. I'm on a life journey with ALS and learning to deal with it. Idiots are blocked without warning.
Maryanne Watson, Ph.D.. @MaryannefromPla
88 Followers 632 Following Board Certified Couple and Family Psychologist. Works at Maryanne Watson, Ph.D., PC
alsHATER @HaterAlss
37 Followers 152 Following
Seythoez @seythoez50725
120 Followers 2K Following
_Graceful @Graceful632580
21 Followers 792 Following
Tee to Green @BlueFairways7
848 Followers 3K Following Golfer-Cannabis-MJ/MMJ advocate. Making better medicine.
Minstants @MIGUEL_D_CH
36 Followers 475 Following
Fernanda Cardoso @DrFeCardoso
436 Followers 520 Following Senior Research Fellow @IMBatUQ PI @Cardosolab | Neuropharmacology | Pain | Neurodegeneration | Ion Channels | Venom research | Mentor | Mother and Wife
Houlyles @houlyles20348
47 Followers 2K Following
Mary Lott @MaryLot44071913
2 Followers 241 Following
Beth Gabel @beth_gabel_27
76 Followers 53 Following #ALS warrior. Mom of 2 teenage boys. Diagnosed April 2023. ALS advocate and mentor. Love heavy metal music, painting and nature
martinez alberto @martine61286710
38 Followers 1K Following
James @jlwj18_james
141 Followers 754 Following Marketing professional who enjoys travel and family time
SKYROS MALDIVES @SKYROSMALDIVES
26 Followers 400 Following Maldives Island Tour Operator Specialized in TRAVEL & TOURISM Leading International Tour Operator and Travel agent in the Maldives.
ParkergirlUSA @ParkergirlUSA
12K Followers 13K Following FREEDOM of Speech 1791. Retired Administrator Med/Surg PrivatePractice. DEI WEF WILL DESTROY WORLD. Let’s work together to SAVE AMERICA! 🇺🇸 ❤️🐶
Jenna Bragg @jenna_l_bragg
26 Followers 532 Following Christian. Wife. Mother. Teacher. Friend. Sarcasm enthusiast.
Reen 🇲🇫🇳🇱.. @ReenFR
47 Followers 303 Following A Dutchy living in the South of France - author/writer - love life, good food and a wee dram 😁 - #peaker
Belindarph @Belindarph
240 Followers 1K Following Proud mom of twins! Samford alum! Auburn University Pharmacist at Pill Box Pharmacy Alpha Omicron Pi
Rugby League J-Man: t.. @SavileThe
152 Followers 544 Following Searching for the truth… and finding it, hourly. We are Leeds. Get the Tories out!!! ❌❌
Karen Abbate @karenabbate
16K Followers 16K Following Creative Director, Wunderman Thompson, NYC. Belief: Animals make us human.
Bob Roth @BobRoth56025884
75 Followers 302 Following
Marie Evans @MarieEv21784237
341 Followers 629 Following Retired nurse, live in small town, liberal, grandma, dog lover
Christine Curtiss @clc420clc
27 Followers 169 Following
Maureen Gunton @MaureenGunton
200 Followers 750 Following I’m not much of a poster but I appreciate all of you resisters and fur friends foster moms and dads. Love to see what an all blue congress could do.
Kim Maratto @MrsMaratto
74 Followers 221 Following Lover of learning. Teacher of wonderful students. Innovator. Fun maker, Stroke Survivor
Carole Koz @Carole_koz
31 Followers 289 Following
Michelle Thompson @MeeshThompson
112 Followers 826 Following
Thomas Donovan @gwtomdon
83 Followers 443 Following
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Sarah Nauser @SarahNauser
12K Followers 514 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirl
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
I AM ALS @iamalsorg
26K Followers 798 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Shah Minokadeh, M.D. @MinoShah
4K Followers 720 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Jamie Smith @JamieLW8
4K Followers 566 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Stew @jonstew1982
2K Followers 193 Following Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 905 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
Alice Alexander @Ameliaalexe
474 Followers 765 Following Life has no limitations, except the ones you make. 🇺🇸🇺🇸💐
Zhi Yao @zyao2010
654 Followers 654 Following Neuroscientist, drug discovery scientist 🔬🧫👩💻💊. Volunteer emergency ambulance crew @stjohnambulance 🚑 All views are my own 🙂
Michelle Thompson @MeeshThompson
112 Followers 826 Following
Carole Koz @Carole_koz
31 Followers 289 Following
Kim Maratto @MrsMaratto
74 Followers 221 Following Lover of learning. Teacher of wonderful students. Innovator. Fun maker, Stroke Survivor
Thomas Donovan @gwtomdon
83 Followers 443 Following
Tom Lisi @Tom_Lisi
2K Followers 5K Following Husband, father and friend living life to the fullest. Adventurer, photographer, hiking & life long learner. https://t.co/VfewrlIox1
TSDubU 🇺🇦 @dub_ts
184 Followers 1K Following She/Her/Hers. Aries & optimist. ❤️ my Little Man (Lotto), pink, reality tv, wine, dessert, zombies. Please fund ALS research in memory my dad (1937-1987).
Kelly Strayer @KellyStrayer1
3K Followers 3K Following 🇺🇦 Love God, love people. Yeah, I'm a loser/at the top of my game. Mom & Lupie survivor 🇺🇦 🌻 💙 Proud Democrat, #BLM I don't look at DM's.
Deb Bellina @BellinaDeb
97 Followers 153 Following Lean Six Sigma Black Belt. Matt’s mom, advocating for people living with ALS today and people who will be diagnosed tomorrow, and the next day, and the next
Bevin @topplingstatues
37 Followers 183 Following
Ted McDaniel @TedMcDaniel1
68 Followers 346 Following Coach and Co-founder of the Shenandoah Valley Mavericks Fastpitch Travel Softball Team. Retired from the day job! Widower because of ALS.
ckb407 @moonshadow407
495 Followers 493 Following PA resident again after 6 years in New Orleans, the city that still has a large part of my heart.
Newby @BNSFNewby
189 Followers 728 Following “Of course it's possible to love a human being if you don't know them too well.” #CharlesBukowski
Maria Sanchez @MariaSa49317354
47 Followers 149 Following
Elisabeth_3 🌻🍂 @Eli_on_3
2K Followers 2K Following Counseling Advisor for Student Doctors, love my 🐕🌊 #🟦 #BlueRibbonsforIsrael. ALS SUCKS! #IAmALS #Nurown #IStandWithIsrael #4MoreYears
Gina Atchison @GinaAtch
824 Followers 2K Following Wife,Mom of 2(empty nester now) & 2 dog daughters.Bookworm.Movie lover.OUfan.Love to laugh & have http://t.co/lum9405xaH junkie, love to learn and discover
Blayton23 @Blayton1970
2K Followers 3K Following Auburn Alum living in Texas. America First!!! ALS Advocate. Lover of bourbon
Caroline Rose @RoseSeptoson
174 Followers 718 Following Mom of seven sons and many grands! American living in Canada🇺🇸🇨🇦Thankful for my husband and huge family - love politics, science and our world!
Dan Marlow @mung_nation
102 Followers 157 Following Trying to be the person I know I can be. ALS changed my life. Surrounded by girls.
Michael Wilson @MichaelWheelson
117 Followers 248 Following Husband and Dad. Mechanical Engineer. Jedi in Training, but still can't master art of itching my own face. ALS'ing since Feb. 2017.
Dr. K.G.M. Biyabani @KGMSCIENTIST
813 Followers 3K Following MBBS, MD (USA), MS (Biol Sci), PharmD, FACP, FRCP; I'm a Bench-to-Bedside clinician with art and science of medicine Inc.; my tweets are not medical advice.
Peter Whitehead @peter_whit18612
106 Followers 183 Following Recently Diagnosed with MND/ALS, Father of 3, Estate Agent of 40 Years, love being on the sea power boating & huge Leicester City fan.
Kpeterson @kpDodgers
8K Followers 8K Following Living With ALS, #ALS Advocate, Love the Dodgers & beach life,#Resistance #nostraws, #FBR,#BlueWave2024 #Vaccinated, #bluecrew
quackers @fanlightfranny
536 Followers 1K Following It's the climate. Living alone with Motor Neurone Disease is making life interesting
Brian Heaney @BrianH991
139 Followers 247 Following Husband, father, sports fan, ALS, wheelchair, go habs!
Tommy Maestas @tommym8
358 Followers 1K Following Obsessed with teaching others how the Central Nervous System controls movement.
Wanda Lee @mindswithmotion
172 Followers 492 Following Socially Engaged Artist. using music, art, drums, movement as our tools, mental health, community, connection join me!
Elin Adcock @elin_adcock
86 Followers 263 Following An ALS/FTD advocate and a vintage VW enthusiast, I am here to amplify voices, support caregivers, change healthcare policies and hoping to #endALS #fight2endALS
Michelle McKenzie @Dr_McKenzie
141 Followers 155 Following Loving my job as an Optometrist for over 25 years in Caledon. Living life to the fullest with ALS.
My MND Mates @MyMNDMates
43 Followers 105 Following An online community for those living with MND/ALS. We’re passionate in raising vital awareness of those diagnosed in the younger generations.
Duncan @dunk22
341 Followers 1K Following
Jan Cale @nyman12
550 Followers 4K Following Yooper living in Charlotte. Lake Superior and Corgi lover. #fuckals
Judy Dudley @JudyDudley
564 Followers 2K Following Mother, Grandmother, Outdoors Enthusiast. President of Britannia Winter Trail and volunteer groomer!
Bhuvaneish T.Selvaraj @bhuvaneish
466 Followers 711 Following Neurobiologist, ALS/MND researcher @EuansCentre @AnneRowlClinic, Chancellor's fellow @EdinburghUni, Emerging leader @UKDRI, an avid sports enthusiast.
Hatice Kurucu King @HaticeKurucu
362 Followers 734 Following Honorary Clinical Fellow in Neurodegeneration, Anne Rowling Clinic, University of Edinburgh
Wendi 🇨🇦💪�.. @wendiwarrior
496 Followers 3K Following MS warrior 💪🏻, Mind over Matter 🧠, neuro-fu**in'-plasticity! I love my Schnauzer, Flames 🔥 Bolts ⚡️music, books and cooking🙏🏻🐾🍸🛼🛴🎹🇨🇦📚🧘🏻♀️
Bert @TheBertOfficial
599 Followers 1K Following Living with ALS. Donations are greatly appreciated https://t.co/vVwfBNAIWj
Medic1st_RN2nd 🇺�.. @Medic1st_RN2nd
1K Followers 2K Following EMTP & ED RN emerita. Interests:Emergency med, aviation, severe weather, Fragile X, autism, ALS. [email protected] & [email protected]
GayValimont #GetGaetz.. @GValimont
10K Followers 4K Following Widow to Brian, who had #ALS, mom to 9yo son Eli who died of #DIPG brain cancer, six months apart. Now, I am running for Congress. @gayforcongress
Karen Gamble @grammie_gamble
8 Followers 54 Following
𝐀𝐫𝐩𝐚𝐧 .. @DrArpan100
2K Followers 2K Following Neurologist with an interest in studying the role of kinases in ALS/MND @mrcppu. SAP member @MNDScotland. Trustee @PhysicsPartners.
craig eskrett @eskcraig14
537 Followers 928 Following ALS MND Battler - Raise Awareness 🧡 #attackmnd Associate practitioner NHS Hull KR🔴⚪ Liverpool FC🔴
Dear @sandymorris333 I was with your daughter this morning. You were here with us! I miss you, I love you.. let’s cure ALS!!
Today, we want to shine a spotlight on our incredible care navigators! 🥰 At Synapticure, our care navigators are compassionate allies dedicated to supporting you every step of the way. From coordinating your care plan to offering emotional support, they are here to help.
I am almost afraid to say that I am starting to feel better. It seems like every time I do I get sick again lol. I really appreciate all of the messages. I just have not been feeling well and worst of all my eyes have been so sore and watery that I have had a hard time typing.
My baby is turning 21 at midnight. I'm dusting off my party girl attitude of my 20's and leaving #ALS at home to toast my lovechunk as he enters the best years of his life. He has made my life so full of love and I love him with my whole heart. Throwback to our first day together
@kimfrench0405 That’s a horrible thing to do to someone. It’s important that you know you’re the better, stronger and far superior person. Things will get better, I promise. You’re more resilient than you think and it’s vital people look after each other.
@kimfrench0405 Oh sweetheart, wish I could reach out to you. I understand, being lonely is a tough one… you are loved 💖🙏🏼
@kimfrench0405 Are you ok?
@kimfrench0405 I’m sorry you’ve been visited by this ‘monster’ Kim.My sister also walked in your shoes, believe me,many a tear was shed.Please know your mighty strength and that whilst you may have to live with this,live it like the mighty strong warrior you are 💕
@kimfrench0405 I am so sorry. Living with an illness that not many understand has to feel lonely. Sending lots of hugs your way.
👇is true #ALS
Even though my brother and sister in law make sure there’s always someone here to take care of me, I’ve never felt more alone. I’ve cried so much I physically cannot cry anymore
@kimfrench0405 I'm so sorry Kim. There are no words, except to say your feelings are so valid, and your husband is an a$#.
I'm continually baffled that for a disease that has eluded so many for so long, the Forced Death Authority insists any potential therapy fit in such a tightly defined box. @FDACBER @DrCaliff_FDA #NurOwnworks
#ALS is an extremely heterogeneous disease, yet studies often lump us together using “mean” & “median” values for analysis. This is like saying all Toyotas get the same MPG regardless of model & year. We need more precision in ALS so a Prius doesn’t get compared to a 4Runner.
Right here sending love.💙🌻 I flounce my boa at you.💙🌻💕🌸💕🌻💙
Even though my brother and sister in law make sure there’s always someone here to take care of me, I’ve never felt more alone. I’ve cried so much I physically cannot cry anymore
@kimfrench0405 #ALSWarriorQueen God bless you and you family. ❤️ Big hugs for you all.
1/ #ALS NEWS: @alsassociation posts a shocking $28M loss for CY2021 (TY ending 1-31-23), as net assets drop by 30% to $64.2M. In a letter to staff, CEO Balas warns of "reductions" despite receiving $497,000 in total compensation. The full 53 page IRS 990 is on NME's FB page....👇
@kimfrench0405 Hang in tight. All the ALS families are Praying..
@kimfrench0405 I am so sorry. Sending you a hug, and prayers for softer days. 💐💛💫
@kimfrench0405 ALS is brutal. I hope you can find peace ❤️
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