Kat Kochakji @kochakji
Mom, Proud Wife, Teacher, ALS ADVOCATE Wilmington Joined April 2019-
Tweets92
-
Followers154
-
Following95
-
Likes248
We join the entire #ALS community in celebrating yesterday’s passage of #ACTforALS. This is a monumental victory for patients living with ALS by creating new pathways to deliver treatments that could help them. #NeverGiveUp
Join us on May 5th for part 3 of the #ALS Drug Development Webinar Series featuring Dr. Zachary Simmons from Penn State Health M.S. Hershey Medical Center and Dr. Richard Bedlack from @dukealsclinic conta.cc/3v3iouR
Everyone should feel comfortable and empowered in their own home. Check out the resources below covering all things related to home care for those living with #ALS or providing care to a loved one. We're here for you! bit.ly/2Q23W71
Fun Fact: There will be a 69% increase in ALS by 2040. Maybe then those in power will feel compelled to act. Let the records show that we tried to build pathways. From one ALS family to a future one - You. Do. Not. Want. This. Disease. 💔ncbi.nlm.nih.gov/pmc/articles/P…
I’m often asked, “what does it feel like to have ALS day to day?” So I’ve decided to use my Instagram account (@alsyougone) to post a few videos each day showing the struggle and the laughter. I’m scared sh*tless but I hope you’ll join me in the journey. Good night moon.
Want to help ALS patients? 👇...#EndALS
Happy 46th to my ALS warrior! @gregkochak
Rest In Peace my furry friend....
As you shop your heart out today for #PrimeDay2020 show us a little love by shopping on @amazonsmile and clicking to support I AM ALS. smile.amazon.com/ch/83-2016277 Thank you for helping to put an end to ALS and being a part of this movement for cures.
“We used Parkinson’s as a model, but the principle is the same for many different neurological disorders,” says Zhang. #EndALS Stem cells can repair Parkinson's-damaged circuits in mouse brains | Scienmag: Latest Science and Health News scienmag.com/stem-cells-can…
My wife looked at me today, paused, and said, “This life with ALS is hard.” She’s right. There is no way to sugarcoat it, this disease is a motherf*cker. Every day you have to retrench, reassess what you can do—stairs, showering, eating, breathing. /1
Today @alsassociation and @iamalsorg announced that they have awarded $500,000 to @BrainstormCell to support ALS biomarker research and to study how NurOwn works in the body. prnewswire.com/news-releases/… #ALS #ALSResearch
Happiest of birthdays to Daddo! @gregkochak #birthdayinquarantine
Not the list we want to be top of. @BrunswickGovt is #1. @NewHanoverCo is #5. So 2 of the top 5 in the nation? What does it take to trigger a water advisory around here? newsobserver.com/news/state/nor…
My husband along with others fighting for their right....their right to a cure! #EndALS #iamals @dukealsclinic @gregkochak @bsw5020 Oh how I love him so! 💕
I wish my Senators from the great State of North Carolina would join the Senate ALS Caucus! @SenatorBurr @ThomTillis #EndALS
I wish my Senators from the great State of North Carolina would join the Senate ALS Caucus! @SenatorBurr @ThomTillis #EndALS
I am constantly humbled that anyone follows me as the ALS journey is not easy to watch. Given that I make this ask with humility and hope: (i) forgo 2 coffees this week to donate $10 before midnight; (ii) call out 2 friends to do the same; (iii) do your hair toss #ALSYouGone
I am constantly humbled that anyone follows me as the ALS journey is not easy to watch. Given that I make this ask with humility and hope: (i) forgo 2 coffees this week to donate $10 before midnight; (ii) call out 2 friends to do the same; (iii) do your hair toss #ALSYouGone
VelvetFlick @FlickVelve1411
44 Followers 1K Following
Quoathet @quoathet87957
125 Followers 3K Following
Sysle @Sysle232496
60 Followers 2K Following
Dr. Stacy Lewin @FarberStacy
469 Followers 438 Following Wife to a loving husband, Mom to 2 awesome young men, Mom to one adorable doodle fur baby, Anesthesiologist and a lucky daughter, sister, & friend #ALS Warrior
cynthia holt @cynthia00702666
2 Followers 9 Following
TIM @ASHBYHOOKER
889 Followers 3K Following Social enterprise design consultant ethical property foundation associate wheelchair user MND sufferer XRugby playing bullying hater left-wing leanings
D'Andrea Jones @wahhooscwgrl
614 Followers 5K Following I lost an Amazing Husband to the horrific disease ALS! Raise awareness to Lou Gehrig’s disease! #ALSSucks #SoulMates #ALSFindACure
Dave Hagen @DaveHagen19
575 Followers 1K Following
Mitze Klingenberg BSN.. @klink52
508 Followers 605 Following Advocate for people with ALS. BSN, RN. Spent career in psychiatric nursing.
Unite Genomics @UniteGenomics
293 Followers 933 Following Unite is developing an all-in-one platform to bridge the gap between the rare disease community and researchers to accelerate the development of treatments and
Christine Gilmore RN @KickenALSAss
2K Followers 2K Following ALS Bad-Ass. Registered Nurse. MHA . Married. ♿️. DM Scammers will be reported.
Farmstrong @farmstronginfo
1K Followers 4K Following Foodie, #wine-y, fan of good UX & #techcomm. Together we can save my husband & hundreds of thousands w/ #ALS. #EsriMaps #DyingWaiting #BLM #LGBTQIA #mirfanda
Minstants @MIGUEL_D_CH
36 Followers 477 Following
Proud Retired Navy CA.. @KRob8753
2K Followers 2K Following ALS is my battle now. 1/6/21 was an attempted coup. Never Trump. “We convey by our presence, and our actions, that which is important.”
wayne thomas @nwaynet
571 Followers 1K Following ALS Warrior! World Trvlr - 38 countries, Joanna.Foodie.Xmas.Fur kids:Callie & Skye. FCPHR, CMC, MBA, Sr. Leader. LIVING LIFE NOT WAITING TO DIE.🇨🇦🇺🇸🥂🍽
Fight with Juan @fightwithjuan
901 Followers 368 Following Husband. Dad. Former Jai-Alai Player, Software Developer, Entrepreneur and IT Manager. Living with and Fighting ALS
Jaana Gilbert @JaanaGilbert
454 Followers 783 Following ColdFusion Developer, Mother of twins, ALS Widow of @got2bquick #EndALS #FuckALS
StampOutMND @StampOutMnd
319 Followers 1K Following Charity Fundraiser For The Motor Neurone Disease Association since 2015
Sadie @AlsSpouse
405 Followers 585 Following recently lost my beautiful husband after a brutal 2 year tornado called ALS. we need a cure, promising therapies, expanded access and a chance to survive.
Raisinbundoll @raisinbundoll
3 Followers 658 Following
JamieRoseBerryy @JamieRoseBerryy
1K Followers 1K Following Fierce Freespirit fighting for ALS freedom & ALS rights "We’re simply asking for a fighting chance to live the lives that we were meant to live" #ALSLivesMatter
MNDA Forwards500 @forwards500
260 Followers 578 Following lost my beautiful mum to MND, so trying to be positive, raise funds and awareness. doing 500 miles in 6 days this August. https://t.co/QagiaMiiN7
Sherry Quisenberry @sherryquis
2K Followers 1K Following A Kentuckian living in GA. Living with PLS/ALS and pissed that no access to real treatment exists. Love books, good jokes, my family and the changing seasons.
Allessandra Gaiotti @allie_gaiotti
576 Followers 741 Following VT | Mercyhurst Alum '18 | insta: @allie_gaiotti | F*ck ALS
Darryl Borsato @BorsatoDarryl
1K Followers 1K Following ALS Fighter, proud husband and SOD-1 Mutant #FuckALS #WorldStrongestALSPatient ALS Action Canada board member / ALS Society of BC Advocacy Committee member
Lorri Cavaliere @LorriCav
1K Followers 4K Following A mom in CT, fighting and advocating every day for the life of my 32-year old daughter, Alexandra, diagnosed with sporadic bulbar-onset ALS in July of 2020.
rebecca trahan @takeheartlive
319 Followers 2K Following fierce advocate of all women knowing heart disease is their #1 health risk. inform. act. prevent. designer by day solving communication problems creatively. 💔
LauraHelmsMartin @Laurahmartin
6 Followers 47 Following
Chris Burris @ChrisBu07706217
10 Followers 46 Following
Joe Jordan @CoachJordanWM
989 Followers 2K Following Former Head Baseball Coach (09-22), Video Teacher,West Milford HS. Felician Baseball Alum. Opinions mine & not of WMHS or WM School District. Go Highlanders!
West Milford Baseball @BaseballWM
867 Followers 726 Following Official Twitter page of West Milford High School Baseball.
ALS CURE Project @alscureproject
689 Followers 511 Following The purpose of the ALS CURE Project is to provide laser focused leadership and sponsor scientific research leading to a cure for ALS (aka. Lou Gehrig’s Disease)
Sólo Cantar Space @SoloCantarSpace
13 Followers 175 Following celebrating the healing power of music. created by LeLaina Romero, inspired by her dad Luis. first event supports @alsncchapter 4/30/22 in Durham, NC
Greg Bauer @GJBest1982
719 Followers 433 Following Devoted father and husband to the best girls on earth. Penn State Football alum. ALS advocate and warrior.
FTDtalk @FTDtalk
3K Followers 2K Following We are the @jonrohrer lab @UCLIoN - our work aims to help people with frontotemporal dementia and associated disorders - we run the @GENFI1 FPI @EDoFTD studies
Hayek Medical @HayekMedical
795 Followers 1K Following Pioneering #Respiratory Solutions, Hayek Medical is the world's home of Biphasic Cuirass Ventilation (BCV), changing the way you think about #Pulmonary Care.
Picapau67 @pjalves10111967
199 Followers 1K Following All conventional and unconventional thoughts and views are my own. Hungry for more…Radically open-minded!
Author Kris Francoeur.. @KFAnnaBelleRose
7K Followers 7K Following I'm Kris Francoeur - author, ghostwriter, educator, wife of an ALS warrior. Four published romance novels, one coming soon, and a memoir on grief. No DMs.
Kristin Pederson @Frecklykdp23
54 Followers 586 Following sister of Tyra, ALS survivor. check out her website:)
Luisaortizrois @luisaortizrois
147 Followers 582 Following amar a Dios sobre todas las cosas y a mi prójimo como a mi mismo
beanish 🐝 @bean_ish
329 Followers 1K Following ALS traveler ... Wife mom sister aunt friend neighbor activist legumist deltiologist... Team Pete forever #ENDALS #ALSAwarenessMonth #iamals
Scott Smith @ScottFightsALS
9K Followers 497 Following Father, husband, gym owner, ALS warrior and storyteller. Founder of BodySmith and Flex On ALS. 💪
Sarah Chasteen @sarah_chasteen
10 Followers 16 Following
West Milford Wrestlin.. @wmhswrestling
473 Followers 257 Following West Milford Twp High School Highlander Wrestling Program. 13x Passaic County Champs/17x Conference Champs. #hometownpride
Brian Taylor @coachbrian6262
272 Followers 374 Following Hi I’m Brian...dad, husband, nice guy, als warrior
UNCW Rugby @UNCW__RUGBY
553 Followers 459 Following est. 1983 our players are good, our fans are better! 25-0 Homestreak #onechop
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
My ALS World @myalsworld
556 Followers 552 Following I was diagnosed with ALS / MND in May 2019. I'm 44. he/him. Now part time Software Developer due to #ALS #MND
Greg Bauer @GJBest1982
719 Followers 433 Following Devoted father and husband to the best girls on earth. Penn State Football alum. ALS advocate and warrior.
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
Tom Ford @TFordATC
2K Followers 2K Following Husband, Father, Grampa, Athletic Trainer and Harlem Shake extraordinaire! Now living with ALS. https://t.co/gShaorNnU8
Social Distortion @SocialD1
110K Followers 2K Following
Greg Gowe @GregGowe
10K Followers 379 Following Dad. Husband. Lawyer at TELUS ("retired" by ALS). Advocate. I type with my eyes.
Joe Biden @JoeBiden
38.1M Followers 46 Following Husband to @DrBiden, proud father and grandfather. Ready to finish the job for all Americans. Official account is @POTUS.
Evan Campa @EvanCampa
3K Followers 2K Following Planting a beautiful garden in a pile of shit (ALS). Mama to 2 little loves, wife of @ebencathey. UIUC, VU & Peace Corps alum. Autism consultant @VanderbiltU
Susan G @graysu
64 Followers 519 Following Wife, Mother, Grandmother, Daughter, Sister, Friend and hoping to win a battle I didn’t choose. Diagnosed with limb onset ALS 11/13/2019.
Mike Harrington @Shankapotomas
3K Followers 928 Following Just a dude with ALS. Not dead yet, though.
Pennie @Pennie59401954
17 Followers 28 Following
EverythingALS @everything_als
2K Followers 838 Following We are a patient-focused non-profit bringing technological innovations and data science to support efforts, from care to cure, for people with ALS.
Misty Tincher @tincher_dawn
195 Followers 232 Following Wife, Mom of 2 boys.. ALS fighter for my husband!!
Ellen DeGeneres @EllenDeGeneres
74.4M Followers 25K Following Comedian, talk show host and ice road trucker. My tweets are real, and they’re spectacular.
𝔼. 𝔸. 𝕃𝕒�.. @LaneyHighSchool
2K Followers 255 Following Official Twitter of Laney HS. Shop online at our official store https://t.co/kBjfRfzYM0
Ed Gilroy @GilroyE_AD
243 Followers 344 Following CMAA. Retired. Teacher 1977-2019. Athletic Director at Trask HS 2002-2019, 2021. NCADA State Coordinator for Professional Development.
Bob Forster @BF31789
123 Followers 30 Following diagnosed with ALS 12/14 APPROVE NUROWN NOW #approvenurown
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
Steve Haberstroh @stevehaberstroh
615 Followers 415 Following wife. son. family. dog. wealth management. golf. fishing. wake forest. cure ALS. https://t.co/hI7YQDJP8v
Team Gleason @TeamGleason
6K Followers 495 Following Nonprofit founded by former New Orleans Saints player, @SteveGleason, after his diagnosis with Amyotrophic Lateral Sclerosis (ALS) in 2011. NO WHITE FLAGS
Kevin Swan @KevinSwan_
1K Followers 1K Following #dad #husband #ALS #Writer #Cubs #Bucs #Sundevil #Jewish #creativity #politics #NYC #entrepreneur Founded @A_Life_Story_ Writer for @medium
Deputy Skaggs @DeputySkaggs
2K Followers 178 Following Proud dad, Deputy Sheriff & 2nd-gen LEO. Passed HAILEY'S Law, coded https://t.co/aRTy1iQLRi & now administer https://t.co/aDvzhTWO0e to serve & protect missing kids. #AMBERAlert
Ellen Degeneras just @EllenDegenerasj
34 Followers 19 Following
Ellen Degeneras @therealellen
47 Followers 51 Following
NEALS Consortium @NEALSConsortium
3K Followers 63 Following The Northeast ALS Consortium (NEALS) is an international, independent, non-profit group of researchers who collaboratively conduct clinical research in ALS
debbie kochak @debbie49797149
21 Followers 29 Following
Sandy Morris @sandymorris333
6K Followers 3K Following Incredibly blessed wife, mother, ALS warrior, and necessary troublemaker.
Phil Green @pjgreen
3K Followers 1K Following Father to 4. Husband to 1. Right-brained.. 2x Rose Bowler. 1x Nat'l Champ. ALS Advocate. PLWALS. Type with my eyes.. #PurpleReign #NoWhiteFlags #NotTodayALS
Suzanne Beers @SuzanneBeers2
169 Followers 750 Following
Pulte @pulte
3.1M Followers 466 Following The Philanthropist. Inventor of XPhilanthropy. I give away money, food, shelter & medicine!
Kyle Blake @KyleB_91
175 Followers 190 Following ALS Warrior dx Bulbar Feb 2018. Husband and father of three great kids. Texas Aggie!
FDA Biologics @FDACBER
24K Followers 215 Following Latest information from the Center for Biologics Evaluation and Research. Contact us at 1-800-835-4709 or [email protected]. http://t.co/5Fo6rzyhYQ
Mary Kay Turner @MaryKayTurner1
1K Followers 716 Following Government Affairs | Health Policy| Mom| Dog Lover | Oregon Ducks Fan| Traveler| Defender of Biopharma | Innovation Matters | ALS Advocate| Opinions Are My Own
ALS Crowd @ALSCrowd
966 Followers 551 Following ALS Awareness to empower patients and to close the gap between researchers, patients, and the community.
Bruce Springsteen @springsteen
1.3M Followers 39 Following On tour in 2023. New Album “Only The Strong Survive” out now! Listen Here: https://t.co/8pURk3cdFA
Oprah Winfrey @Oprah
41.7M Followers 312 FollowingFor the last 5 days I have swam with my daughters. My ALS makes each time a massive undertaking, but their huge smiles are truly everything. Good night moon.
In exactly one week @US_FDA and @BrainstormCell will meet to discuss NurOwn. The ask from the ALS community is simple: Give NurOwn an Advisory Committee Meeting like every other treatment. It’s time to let the science speak for itself.
⚽️ 🏈 Students are representing their favorite teams today in Buctown! #SpiritWeek #Homecoming2021 @NewHanoverCoSch
When my older daughter left for school this morning she said to me, “Bye daddy, I won’t see you again until tonight when you finish work.” So I decided to surprise her by picking her up from school. Happy weekend all.
This week I got to see my older daughter turn 6. Got to tell her in my raspy ALS voice that I am so proud of her. Got to hug her and her sister. The last 4 years have been far different than I imagined. But I’m still here. And for that I am truly grateful.
It was amazing to see communities all over the country come together on #LouGehrigDay, all with a passion to FINALLY put an end to #ALS. We can't wait to see what the celebration will be like when treatments and cures are available. #EndALS
My 5 year old helped me walk to my bed tonight. Once she made sure my ALS riddled body was seated, she climbed next to me, looked into my eyes and asked the following question: “Daddy, when you were my age did you worry about dying?” Let’s end ALS, please. Good night moon.
My older daughter described me tonight as being incredibly patient. When we asked why she said, “I mean, Daddy, you’ve been waiting 4 years for ALS medicine.” Advocacy and optimism run deep already. Good night moon.
My 3 and 5 year old daughters have seen my amazing wife feed me, help me get dressed, get into my wheelchair and so much more. I dream every day about the dinner where I can say to them, “Mommy doesn’t have to do any of that anymore because we found cures for Daddy’s ALS.”
Pieces of a life. Memories of what was. Of what was to be. Memories of #ALS Today is Fred’s birthday. He died waiting. Every moment. Birthday’s Matter. Cure #ALS Give the gift that will go on giving. #NoWhiteFlags #EndALS #EnoughIsEnough #NoComment ✌🏻🍻😎
We have the chance to dream of a better tomorrow because someone, somewhere fought for us. We may never know who but I plan to truly seize tomorrow as a thank you. Good night moon.
Everyone should feel comfortable and empowered in their own home. Check out the resources below covering all things related to home care for those living with #ALS or providing care to a loved one. We're here for you! bit.ly/2Q23W71
@gregkochak @iamalsorg I am honored to have known him. Will fight in his honor
@gregkochak @iamalsorg Twitter needs an I fucking hate this button
@gregkochak @iamalsorg It was an absolute privilege to hear about Greg’s journey and connect with him through this community. To say “I’m sorry” doesn’t begin to do it justice. Praying. Sending love. We’re here for you if you need us ♥️
@gregkochak @iamalsorg I’m sorry for your loss. 🙏🙏🙏
@gregkochak @iamalsorg This EXACT beast took my mom not long ago. My heart breaks for you. My mom fought like hell to the end.
@gregkochak @iamalsorg Brave heart. Courage. Love. Respect and prayer. This ALS community has affected me more than any other group I have engaged with. I was a pastor- University Ombuds- Government Adjudicator for disabled and I stumbled on @ChrisSnowCGY @iamalsorg @bsw5020 . You changed me. Love
@gregkochak @iamalsorg Oh God! I send you my heartfelt condolences. What a handsome man. I am so very sorry! SOMETHING HAS GOT TO FUCKING GIVE !!!!
Trends for United States
You might like
