Nicole Cimbura @nicolecimbura
United States Joined September 2016-
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#DiabetesAwarenessMonth life as a Type 1 diabetic is hard, trying to keep that A1C in a “normal” range. It’s like managing a 2nd job. This awesome kid of mine has been managing this since she was 8. Learn more 👇 instagram.com/reel/CzI5pX2IZ…
Would you like to participate in an ALS clinical trial & have been turned away? Are you interested in changing the trajectory of ALS? If so you may qualify for @PrileniaTx Pridopidine expanded access program brought to you by #Act4ALS. Check this out 👇! @glen_rouse @rett_may
Would you like to participate in an ALS clinical trial & have been turned away? Are you interested in changing the trajectory of ALS? If so you may qualify for @PrileniaTx Pridopidine expanded access program brought to you by #Act4ALS. Check this out 👇! @glen_rouse @rett_may
Here is another EAP brought to you by #Act4ALS. Thank you to the many ALS community members who fought diligently to pass this in Congress in 2021. If you don't qualify for an ALS trial you might be fortunate enough to get into this EAP. Learn more here. #EveryPointMatters
Here is another EAP brought to you by #Act4ALS. Thank you to the many ALS community members who fought diligently to pass this in Congress in 2021. If you don't qualify for an ALS trial you might be fortunate enough to get into this EAP. Learn more here. #EveryPointMatters
#Act4ALS is having a real impact on the ALS community getting drugs into bodies for those PLWALS who don't qualify for a trial. Here is 1/3 trials funded by the law that was announced at the NEALS conference today. Take a look! reporter.nih.gov/project-detail…
Cathy why don't you lean in and help @BrainstormCell figure out this path if you think it would work?Remember they are a small bio-pharma country from Israel who I'm sure would appreciate assistance.I’ve worked on RTT & EAP & the FDA never mentioned this.Who has succeeded w/ it?
Cathy why don't you lean in and help @BrainstormCell figure out this path if you think it would work?Remember they are a small bio-pharma country from Israel who I'm sure would appreciate assistance.I’ve worked on RTT & EAP & the FDA never mentioned this.Who has succeeded w/ it?
I am with you, Sandra, Brian & the rest of the community who would like to have the opportunity to try @brainstorm’s #NurOwn.We need approval for a phase 4 trial.
Cost recovery doesn't work for cell therapy, where you must scale up. If @BrainstormCell’s #NurOwn is not approved & if the $ is found to do another trial w/out approval by the time that trial is complete, everyone living today & the next 2 generations will be DEAD!
Cost recovery doesn't work for cell therapy, where you must scale up. If @BrainstormCell’s #NurOwn is not approved & if the $ is found to do another trial w/out approval by the time that trial is complete, everyone living today & the next 2 generations will be DEAD!
Sandra, I 100% agree with you! Mike died waiting. Mike’s Mayo neurologist spoke at the ad com discussing its unprecedented benefits and yet it was voted down. @alsadvocacy please stop hurting the communities chances for #NurOwn.
I 100% stand with this statement! The PIs who have first-hand experience with patients receiving the treatment should carry more weight than the “experts” looking at numbers on a computer.
I 100% stand with this statement! The PIs who have first-hand experience with patients receiving the treatment should carry more weight than the “experts” looking at numbers on a computer.
Thank you, @stevens_nation, for speaking out today regarding Eric's experience with #NurOwn stating that "Without NurOwn, he has declined" and "NurOwn enhances his quality of life."
Thank you, @Sampat_md, for speaking at today's #NurOwn ad comm, and I believe the entire community will stand with your statement that "Any preservation of function is clinically meaningful." #EveryPointMatters #NurOwnWorks
"We must work quickly to save the next ALS vintage & possibly some of us from this one. Please hurry! The waiting is deadly." @sandymorris333 Thank you, Joe, for your testimony for today's # NurOwn's ad comm; it was so powerful. 🌻🌻🌻 #NurOwnWorks #EveryPointMatters
Dear @US_FDA please take into account this evidence in reviewing #NurOwn "Progression slowed down and improved function" @Smithstrongmom1 #EveryPointMatters #NurOwnWorks
#EveryPointMatters thank you @RunningMama0522 for representing the ALS community with a special note to those Veterans living with the brutal disease. #NurOwnWorks
This is exactly why NurOwn must move forward to slow down this turnstile of death. #NurOwnWorks
This is exactly why NurOwn must move forward to slow down this turnstile of death. #NurOwnWorks
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswritesAZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_sethSarah Nauser @SarahNauser
12K Followers 514 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirlJamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)Shah Minokadeh, M.D. @MinoShah
4K Followers 728 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALSLisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 906 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.Mandi @RunningMama0522
2K Followers 1K FollowingALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AISunlitAura @AuraSunlit87176
1 Followers 855 Followingna_veed965 @veed9651704
2 Followers 964 FollowingDeepaK Kumar @Deepak13900
18 Followers 140 Following A Father & Husband..... symptoms onset since 2021 waiting for my Dx. Neuronata-R works ....Kathy @Kathy7483672148
123 Followers 432 Following Married to the love of my life who is dying from 100% Fatal ALS,mama, grandmama, full time caregiver. Counting everyday with my hubby as a blessing. #ALSsucksDana Porrello @Dazzydana
90 Followers 182 FollowingBuzzdaq🧮⛳️⚾�.. @Buzzdaq1
271 Followers 802 Following Buzz (Mark), semi-retired tax guy, now most-time trader...Always keep learning... Sox & WooSox, B's, Pats, C's... #StocktwitsJulie Suarez @epjjule
7 Followers 186 Following Wife,corgi mom,stepmother,aunt,baby sister,cousin and friend determined to help beat #ALS.Army brat! Texan (kinda).#ALSWarrior #EPSTRONG #GEAUXTIGERSEmily V Brown @vwjunkie58
272 Followers 3K Following Innovator at heart, proud member of Elon Musk's visionary team. Transforming ideas into reality for a sustainable and exciting future. 🚀adpsaon8gfme @aon8gf57049ybx
34 Followers 1K Following Awesome, you can earn 500-5000 usdt every day here, join now telegram:https://t.co/qPnXw0g0TvalsHATER @HaterAlss
38 Followers 202 FollowingKeanu Reeves @KeanuReeve47861
181 Followers 2K Following I'm Keanu Charles Reeves I'm Movie Actors & Movie DirectorParody Elon @officialparody0
557 Followers 5K Following Musk is the founder, chairman, CEO and chief technology officer of SpaceX; angel investor, CEO, product architect and former chairman of Tesla🚀maye musk✪ @maye_musk_mm
62 Followers 655 Following Bestselling International Author #AWomanMakesAPlan 📖Doctor of Dietetics 👩🎓 Supermodel 😉💃 #ItsGreatToBe75 Agents⬇️BTS Army @BTSArmy26035
83 Followers 326 Following It a painful thing that my fans no longer believes in me,I am sending this message to whosoever that's using my picture to deceive my fans and also fake fans clSoughsh @Soughsh21644
18 Followers 2K FollowingSKYROS MALDIVES @SKYROSMALDIVES
26 Followers 400 Following Maldives Island Tour Operator Specialized in TRAVEL & TOURISM Leading International Tour Operator and Travel agent in the Maldives.Mr. George @JessBender96245
191 Followers 853 FollowingŞükrü Koçak @krKoak99101
45 Followers 197 FollowingDan Marlow @mung_nation
103 Followers 157 Following Trying to be the person I know I can be. ALS changed my life. Surrounded by girls.Matthew White @MattWhiteKCL
281 Followers 368 Following ARUK Research Fellow studying frontotemporal dementia and motor Neurone disease @KingsCollegeLon formerly @BabrahamInst & @cardiffuniHaley Jeff @haleyjef4
15 Followers 341 Following Oh Lord, Don't make my life road easier, Don't make my life a walk so smooth, Instead, make me stronger by the day.Kevin Geraghty @KevinMGeraghty
229 Followers 350 Following 40 year old hell bent on living and fighting #ALS with every fiber of my being. If you’re going through hell, keep going. #IAMALS #EndALS #fuckALSMaría Teresa García.. @MaraTer55802755
796 Followers 3K FollowingDale Barker @DaleBar19817978
4K Followers 5K Following Married, Christian, Army veteran, retired employment specialist. Love our Republic and will continue to stand united with conservative leaders.Britt Massei @brittmassei
185 Followers 417 Following Founder & CEO Whole in One Health. Bringing Health to the Information Age. Started with brain health @AlzMeterApp Seeking investor partners for The Big Build!kyle Benjamin @Benjamin53377
286 Followers 4K Following 🔺Do you wish to be a member of the Illuminati and become rich, famous, powerful and excel in life..🔺Carol Savory-Heflin @heflin_savory
0 Followers 112 FollowingKeith Lawrence @Keiith_ue
72 Followers 287 FollowingTiffany Jones🔎𝕏 @mamalove__27
359 Followers 2K Following I do what I do instinctively, and that’s me. If you like me, that’s fine; if you don’t like me then don’t watch me.☺️❤️Elin Adcock @elin_adcock
88 Followers 263 Following An ALS/FTD advocate and a vintage VW enthusiast, I am here to amplify voices, support caregivers, change healthcare policies and hoping to #endALS #fight2endALSStacy Lindborg @stacy_lindborg
12 Followers 52 FollowingRyan @CureHDWeWontBe
157 Followers 383 Following 45 with Huntingtons disease. Bachelors in Finance. Did 12 Spinal taps in tominersen trial now in Sage. Advocating for $3 Billion annually to cure rare neuro.Jonathan Brent M.D., .. @DrJBrent
277 Followers 1K FollowingMake money easily @ny2O72n2UkAgG9
8 Followers 599 Following MEXC focuses on financial management, stocks, cryptocurrencies, digital assets and investments. Currently, new users can get free dollars when they sign up.Maceo Carter @MaceoCarter
931 Followers 552 Following Father, Husband, UNC Tarheels Fan, Sibling, Living with ALS. #MelanatedpALS&cALSMichelineLosser @LosserMich93807
125 Followers 2K FollowingStacy @castillostacy68
196 Followers 3K Followinggemofhighlands @gemofhighlands
7 Followers 60 FollowingMartina de Majo @MartinadeMajo
213 Followers 412 Following Alien with Extraordinary ability, Neuroscientist, love singing & eating. Opinions are mine.Michael Campbell @ObispoSouth
128 Followers 255 Following 'Life is What Happens To You While You're Busy Making Other Plans.' John Lennon #EndALS #Fight2EndALSCrazyJane5555 @CJane5555
187 Followers 1K Following Hii I’m Jane also known as crazy Jane I’m an influencer and live streamer on kik I do makeup tutorials, cosplays, sometimes play video-games, kik: CrazyJane5555Beau Choi @BChoi7009
125 Followers 3K Followingfazza @fazza453535
177 Followers 351 FollowingKeanu Reeves Charles @KeanuCharles41
133 Followers 343 Following Thanks for accepting my request I am keanu Charles Reeves a Canadian actor,I live in LA California United States .and i must say that you are a good fanStampOutMND @StampOutMnd
316 Followers 1K Following Charity Fundraiser For The Motor Neurone Disease Association since 2015Ashton Spillman @ashtonmspillman
275 Followers 1K Following Neuroscience PhD student @asu & @barrowneuro researching synaptic biology in #FTD | @uarizona alumBrian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswritesAZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_sethSarah Nauser @SarahNauser
12K Followers 514 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirlJamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)Shah Minokadeh, M.D. @MinoShah
4K Followers 728 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALSLisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 906 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.Mandi @RunningMama0522
2K Followers 1K FollowingALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AIWriting Wanderer @mawson_lee
732 Followers 978 Following #amwriting #ampublishing. Spiritual fiction & magical children's. In loving memory of Michael Lee (11yrs #MND). Off topic stuff too. 🏴 🇦🇺Jackie Gonzalez @JackieG30346019
877 Followers 427 Following Retired teacher, proud grandmother of two beautiful girls.Keith Mayl @DrMayl
535 Followers 659 Following MD, PhD. Expertise in neurodegeneration with a focus on ALS-FTD. Medical Director at Servier.Dana Porrello @Dazzydana
90 Followers 182 FollowingKathy @Kathy7483672148
123 Followers 432 Following Married to the love of my life who is dying from 100% Fatal ALS,mama, grandmama, full time caregiver. Counting everyday with my hubby as a blessing. #ALSsucksJennifer Green @mrslambgreen
47 Followers 121 FollowingMatthew White @MattWhiteKCL
281 Followers 368 Following ARUK Research Fellow studying frontotemporal dementia and motor Neurone disease @KingsCollegeLon formerly @BabrahamInst & @cardiffuniChen Eitan @Chen_Cep_Eitan
227 Followers 292 Following Postdoctoral Fellow @NIH_NINDS | ALS researcher | focusing on neurogenetics in neurodegenerative diseasesDr Ahmad Al-Khleifat @AhmadAlKhleifat
2K Followers 351 Following Clinician and Scientist interested in ALS genetics. King’s College London @kingsmndRep. Elissa Slotkin @RepSlotkin
107K Followers 709 Following Congresswoman for #MI07. Working for lower healthcare costs, stronger supply chains, and better jobs. Proud Michigander, former national security professional.Jared Doerfler @DoerflerJared
35K Followers 764 Following I write a weekly newsletter discussing the business side of golf | @readperfectputt ⛳️ | Former College Golfer🏌️ | Wife is way too good for me |Michael Campbell @ObispoSouth
128 Followers 255 Following 'Life is What Happens To You While You're Busy Making Other Plans.' John Lennon #EndALS #Fight2EndALSALS Canada @ALSCanada
7K Followers 2K Following We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for a future without ALS.Martina de Majo @MartinadeMajo
213 Followers 412 Following Alien with Extraordinary ability, Neuroscientist, love singing & eating. Opinions are mine.Ashton Spillman @ashtonmspillman
275 Followers 1K Following Neuroscience PhD student @asu & @barrowneuro researching synaptic biology in #FTD | @uarizona alumWarrior Mama @AprilDaly6
916 Followers 1K Following Mama warrior, advocate for those with SUD, harm reduction, criminal injustice and homelessness, fibro pt MPH❤️⚾️✝️ 🏃🏻♀️Laurie Heifetz, write.. @thetravelprose
2K Followers 4K Following Fodor’s | The Knockturnal | USA Today | NY Post | Ent • Trav • Food • Tech • NFT• #Sustainability. https://t.co/Ux8H9776oTCongresswoman Madelei.. @RepDean
72K Followers 1K Following Congresswoman serving Pennsylvania’s Fourth District - Montgomery and Berks Counties | Committees: @HouseJudiciary & @HouseForeign | "Courage is in the air"Keanu fans @Keanureev398244
354 Followers 956 Following Thanks for being a fan I really appreciate I am here to stay in touch with all my fans that as been a help to my careerSam & The Bucket List @SJHH32
560 Followers 1K Following #MNDWarrior diagnosed 5/3/22, aged 35. Living with MND and living my BEST life! Husband ~ Daddy ~ Son ~ Brother ~ Friend.Betty’s Brigade Fou.. @No_More_ALS
354 Followers 530 Following We Are… the Betty’s Brigade Foundation ________ We Are… Fighting ALS Together _________________ - to raise ALS awareness & fundingMelanin Children Matt.. @ChildrenMelanin
358 Followers 322 Following Serving children, healing families and educating society; while enhancing awareness surrounding childhood rare diseases pedi-ALS/sptlc2 & resources for autismDr. Jen Wolkin | ADHD.. @drjenwolkin
83K Followers 3K Following •Neurodivergent Neuropsychologist •Sharing ADHD + Trauma Info • Helping you SurThrive✨Trauma Changes the Brain + So Does Healing✨ XO, Dr. JenTom Fitz 👨🏻�.. @_wobblewobble
529 Followers 428 Following I’m just a guy fighting ALS the best I can, tweeting about all things programming 👨💻and my toddler 👼Brian Heaney @BrianH991
141 Followers 247 Following Husband, father, sports fan, ALS, wheelchair, go habs!T D Wood 🇺🇸 �.. @TDWood69
312 Followers 459 Following Family man, retired USAF, #ALS Battler/Collector of sports cards-PC George Foster/Seattle Mariners ⚾/Seattle Seawolves, London Irish, Crusaders 🏉/Purdue 🏀🏈Barbara Russ @BarbaraRuss707
651 Followers 2K Following Christian, Mother, Nanny, Paralegal and Breast cancer survivor. Passionate about scripture, history, politics and the law.Shari Bracy @sharibracy
121 Followers 333 Following Sales Enablement Leader, ALS and Alzheimer’s Advocate, Sports loverGül Gül @ErenE98766777
10 Followers 170 Followinggönül gönül @BrKezban
40 Followers 585 FollowingStacey Tinianov (she/.. @coffeemommy
5K Followers 2K Following Strategic Advocacy & Engagement. Co-Creation & Community Building. 💗 Coffee drinker. Gardener. Wife. Mom. Breast Cancer. 🙃 @AdvocateCollab @RabbleHealthPetpam10 @petpam10
390 Followers 2K Following Equal rights for all. Proud Mom and Mimi. ALS caregiver and advocate.Judy Dudley @JudyDudley
564 Followers 2K Following Mother, Grandmother, Outdoors Enthusiast. President of Britannia Winter Trail and volunteer groomer!Lee Morrison @LeeMorrison2022
389 Followers 886 Following Disabled, ALS fighter, power chair, USMC & Army Veteran, Book seller on AbeBooks @ https://t.co/pFVnC80NOW NO DM!!!!! You WILL be blocked!!James Clarke @Clarkiejc1979
411 Followers 218 Following Fighting hard against MND insta: jamesclarke_kfRachel Ludwig @racheljludwig
264 Followers 135 Followingcathy johnson @cathyjo68317467
471 Followers 548 Following FTrump Blue Blue Blue. Women’s rights. ALS sucks.Shelley Baumgartner @6baums
90 Followers 276 Following Army Veteran, Nurse Practitioner, Wife, Mother of 4, Patriot!MNDANorwichWaveney @MNDANorWave
423 Followers 446 Following Norwich & Waveney branch of the Motor Neurone Disease Association. Branch area defined by all NR and IP21-27 postcodes inclusive. Facebook: MNDANorwichWaveneybeat_als @beatals44
380 Followers 397 FollowingMike @Bouldermike
63 Followers 650 FollowingAjay Sampat, MD @Sampat_md
475 Followers 37 Following Father, husband, son, and brother. Clinical educator and neurologist. Person living with ALS.Antonious Block @BlockAntonious
234 Followers 642 Following Son, brother, cousin, husband, father, & uncle. Pilgrim and Puritan. Hopeful. ALS diagnosis the summer of 2022. Texas Aggie.Rodney Smith Jr @iamrodneysmith
155K Followers 82 Following Founder of Raising Men & Women Lawn Care Service - 501(c)(3) | We provide free lawn care to the elderly, disabled, single parents , veterans.Went for a walk (or roll depending on your perspective) at Barnet Marine Park in Burnaby. Wheelchair handled the trail better than my dog Momo, who got tired and rode with me for over half of the walk. #IamALS, #NotTodayALS
Want to make sure you get all of I AM ALS' most important updates directly to your inbox? Sign up to receive our email updates! You'll get our biweekly newsletter, notifications of any breaking news, and maybe even invitations to events in your local area. iamals.org/action/join-th…
Eli of Silvis, IL who recently signed up for our 50-yard challenge received his starter pack in the mail which included his Raising Men shirt, safety glasses, and ear protection. He is now fully equipped and ready to take on the challenge ! Do you have any words of advice for…
Join us at a ballpark near you this summer for #lougehrigDay! ⚾ The Live Like Lou team will be in EIGHT cities to celebrate! Tickets can be purchased here: livelikelou.org/events?utm_cam… #livelikelou #als #alsawareness #lougehrig #lougehrigsdisease #mlb #baseball #LG4Day
.#NurownWorks👇👇👇 @DrCaliff_FDA @FDACBER
My son Justin & I stay up late, it's kind of our time. Last night he was adjusting my paralyzed body when I realized that my fingers were really able to move in that position. We both smiled big. To the average bear, this is silliness, but to us, it's pure goodness💫 #NurownWorks
Today, I was back on the sidelines for my younger daughter’s game. In the grand scheme of things, seven months is not a long time, but when you are living with ALS it is everything.
The deadline to add a name to a flag is May 2nd, so if you haven't yet, now is the time. Add your name or a loved one's name to a flag so they can be honored at this year's flag display in DC. iamals.org/action/2024fla…
@sabrevaya @BellinaDeb @nicolecimbura @pjgreen @stevens_nation @klink52 Absolutely! I’m forever grateful for @nicolecimbura and how she has stayed the course and been such a great friend throughout our journey. Incredibly strong and an amazing representative for this community. Thank you Nicole 💚
@nicolecimbura @pjgreen @stevens_nation @klink52 @KandySimons beautifully said Nicole. thank you!
@nicolecimbura @pjgreen @stevens_nation @klink52 @KandySimons The ALS community has no better advocate than Nicole. She has stayed the course all of these years to honor Mike and everyone living with this relentlessly horrible disease.
@BellinaDeb @nicolecimbura @pjgreen @stevens_nation @klink52 @KandySimons Brian says that all the time - “If Nicole can stay in this fight, then I can too” ❤️❤️
Dr Silverman, the inventor of Lyrica and now NU-9, received Esselen award, spoke about our collaborative efforts and invited me as guest of honor to the event. Let’s move NU-9 forward. Let’s do this!!
I can't believe this guy is 20 today. Happy birthday to my son Silas. Yes.. I made that cake lol! I It took forever to make. It is supposed to be Lego in case you can't tell. 😆
"Frankly eye-popping!" That's what renowned ALS researcher, Dr. Bob Brown of @UMassChan, said about #NurOwn biomarker results when speaking with other researchers at the ALS/MND Conference on December 10, 2021. Now we know why. Dr. Brown is the senior author on the NurOwn…
.@SethPoling10 fought so hard to stay afloat for his beautiful wife and his most adorable mini-Seths. His kind heart is so missed by all of us here.
I am taking a break from social media as I try to navigate a heavy decision... ending this journey #ALS
Here we go!
The @US_FDA granted $BCLI a positive Special Protocol Assessment (SPA) for this trial and formally agreed that the design and planned analysis for our phase 3b trial adequately address the objectives necessary to support a regulatory approval. ir.brainstorm-cell.com/2024-04-09-Bra…
Members of the Forbes Tate Partners team watching the eclipse: Proving once again that we're experts at navigating shadows and illuminating insights. 🌒😎