G Ibe 🐼 @HunReally
#PANS #PANDAS #panspandasuk Mum of a PP Warrior #MentalHealthMatters #MentalHealthAwareness #bemyvoice https://t.co/XWCn9QLvaO https://t.co/jiG6iFDM9V London, England Joined October 2018-
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Exactly this 💔
“When we say PANS is hard we mean it is really, really, really hard” #PansPandasHour
Awareness is key 💚 so many young people/adults with 🧠 inflammation triggered by a Virus &/infection are misdiagnosed 😔 #PansPandasHour
In England, data reporting on Invasive Group A Strep has been completely stripped of all information about deaths caused by the infections.
Such a 💔situation. #PANS #PANDAS needs to be highlighted within #MedTwitter, it needs recognition, it needs early diagnosis, it needs robust treatment. #nhs please support these families!
(PDF) Detection of Streptococcus pyogenes M1UK in Australia and characterization of the mutation driving enhanced expression of superantigen SpeA researchgate.net/publication/36…
Why aren’t more people outraged by the lack of appropriate treatment pathways for 🧠 inflammation triggered by a virus &/or infection #PansPandasHour We need to come together to bring about change 🙏🏻💚
We envision a world where PANDAS is rapidly diagnosed and promptly treated using effective therapies covered by all health insurance companies. Join us by sharing this content! Read the full story here: undark.org/2024/04/03/pan…
I'm dragging myself to #PansPandasHour. My 7👧has a new painful tic + the rashes she's had since #covid r bck. But, I had to thnk @natashaloder for ⤵️. Coverage is 🙏. On the rash, I know I keep asking but...any ideas ? @1goodtern @CounsellingSam @LongCovidKids @drclairetaylor
We envision a world where PANDAS is rapidly diagnosed and promptly treated using effective therapies covered by all health insurance companies. Join us by sharing this content! Read the full story here: undark.org/2024/04/03/pan…
#Pans #Pandas is such a debilitating illness - there needs to be more awareness & improved treatment pathways 🙏🏻💚 #PansPandasHour
"There is this voice inside which can't get away. It is really awful." PANS and PANDAS is a medical condition that affects children. It is currently not recognised by the NHS and awareness is key. For more advice and support, visit: @Pandaspans @MindCharity
"There is this voice inside which can't get away. It is really awful." PANS and PANDAS is a medical condition that affects children. It is currently not recognised by the NHS and awareness is key. For more advice and support, visit: @Pandaspans @MindCharity
"There is this voice inside which can't get away. It is really awful." PANS and PANDAS is a medical condition that affects children. It is currently not recognised by the NHS and awareness is key. For more advice and support, visit: @Pandaspans @MindCharity
Please read Ava’s story #Pans#Pandas #PansPandasHour 👇🏻
Ava changed overnight devonlive.com/news/devon-new…
Please listen to this fab #podcast to learn about #Pans #Pandas and the horrific impact these conditions are having on families. Awareness is key to positive support #SEND #education #PansPandasHour redcircle.com/shows/662b1da0…
“Those with PANS/PANDAS need and deserve a cure” #PansPandasHour
Please watch & RP 2 raise awareness of #Pans #Pandas 2 bring much needed change in diagnosis & treatment of these horrific conditions causing untold suffering to children/teens. Left to fester can cause irreparable damage and symptoms can be carried to adulthood #PansPandasHour
"I thought he was having some sort of breakdown. I felt like we were losing him." Kyleigh Callow is the mother of 8-year-old Phoenix who suffers from PANDAS, a medical condition that can affect children's brain. For more support and advice, visit: @Pandaspans @MindCharity
Jane Bird @JaneBird53889
1 Followers 18 Following
EnoughAlready @EJHNetherlands
146 Followers 446 Following
PansMom @ThePansMom
8 Followers 627 Following Dedicated parent and former educator passionate about raising awareness and understanding of PANS/PANDAS.
ELON_DOGECoin @Elon_Dogecoin11
791 Followers 6K Following CEO Elon Musk 👨🚀👇.. Space𝕏🛰️🚀, Tesla🚘 📉.. (MAGA)🇺🇲 (Grok.3)….(Doge…Father)
Helen Pearce @HelenPe28465597
261 Followers 515 Following Pans Pandas Awareness - Stronger Together - Time for Change
Reine Corley @CorleyReine
13 Followers 231 Following
Laptop Token Base BOT... @JeanineFrazzit1
48 Followers 1K Following
Sarah O'Connell @SarahOC_MECFS
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J @dj_jazzy_j1
21 Followers 849 Following
M @MustBeMam
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Paula @paula890590
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Fan of Democracy @StutlerMelissa
458 Followers 2K Following PANS/PANDAS Activist, Proud Snowflake, Editor, Writer, Painter, Mom, Wife, Alto, Cat Person
Richard Brooke-Powell @RichardBrookeP2
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Sudarshini Ramanathan @darshi_r
1K Followers 847 Following A/Professor of Neuroimmunology @Sydney_uni @syd_health; clinician scientist, NHMRC Investigator Fellow; Head, Translational Neuroimmunology Group
Lindsey Briggs @LindseyBriggs42
6 Followers 102 Following
Caroline Mackay @Cazdmac11
9 Followers 41 Following
Pathogen Hunter @lymehater
828 Followers 5K Following Lyme disease advocate, tennis player, biomedical researcher, skier, reader, gourmet cook, antique hunter, world traveler, geek with varied interests.
Claire Grierson @ClaireGrie39296
26 Followers 154 Following
miriambyrne @miriambyrne4
42 Followers 532 Following
Courtney Bowers @CourtneyBo74030
38 Followers 133 Following Social Worker in NI. Mum of a PANDAS child. #panspandas. Fighting for help/support/treatment.
Kathy McGarvey @Kat_mcgarvey
94 Followers 472 Following Mom,Teacher, Social Sci Major, Special Education, Mental Health Literacy Advocate, Trauma Sensitive Therapy Background #neurosequentialmodeloftherapeutics
Cheri @mamahaugen
66 Followers 1K Following
PANDASMama @PandaMama2024
629 Followers 7K Following Parent raising awareness of #PANDAS #PANS ~ #BrainInflammation in children triggered by #infection / #virus. #NoMoreLostChildren. #ChangeIsComing Opinions mine
joanne gill @joanneG007
207 Followers 448 Following
WelshCatLadyBarbara @Bearfirestrong
1K Followers 3K Following Figuring life out one day at a time! Mourning the loss of my precious Mum who had Alzheimer’s Disease 🖤
Dr Anjali Agarwal @Dranjaliphysio2
1K Followers 4K Following Health care Professional, consultant Physiotherapist. Lifestyle consultant. Vice Chair Long covid Physio, treats #EDS #Hypermobility #POTS
Lyme disease and PANS @LymePANS
24 Followers 111 Following
Rebecca W1986 @W1986Rebecca
497 Followers 2K Following Mum. English Teacher. PansPandas advocate. SEND. MA in Education. Teach First Ambassador.
ManfullPhD @ManfullPhD
206 Followers 300 Following Happy psychologist writing about wine & stories of people who make it...until I was thrust into writing about an autoimmune encephalitis disorder called PANDAS.
Ashley Roberts @AshleyR89677089
258 Followers 233 Following Consultant, Mother, friend, activist DEVOTED to bringing awareness to Pans/Pandas and the urgent care children and families need. Thankfully my daughter LIVED!!
Alejandra Cooling @CoolingCooli2
13 Followers 65 Following
Julia Caro - Lampard ... @JuliaCa20602661
5K Followers 7K Following Autistic #LampardInquiry/MH/Autism/LD/SEND Speaker/Barrister. Chris Notà’s mum SIG Co Chair Autism-LD-ND Suicide Prevention @ChrisNInquest. Lives with cancer
Fran Coffey @coffey_fran
256 Followers 818 Following
Susan Ratib @SuemacR
33 Followers 103 Following
Sandra Douglas, BS Ch... @East_Texas_Doug
3K Followers 6K Following Portfolio Mgt, Crypto, Chemical Eng, Oil Refining & Trading, Manufacturing, ASTM Lab Ops, Wife of Navy Vet & Eng Tech Prof, Robots/Cobots, AI
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5K Followers 2K Following Obsessive Compulsive Disorder isolated me to my bedroom for two years of my life. Now I work to spread awareness through my blog, “Obsessively OCD.”
Natanya Rose @natanyarosee
51 Followers 127 Following they/them | Licensed Cosmetologist | Wear a mask | Tik Tok 12k+ | Disability and chronic illness awareness |
battalionsurgeon @battalionsurge1
164 Followers 415 Following Former Battalion Surgeon, family medicine doctor, vaccine injured daughter, husband, dad, “old” time doc, big Miami Dolphin fan! posts are not medical advice
James @MFCIRed
563 Followers 935 Following
Caitlin Says #DoNotGo... @theathenakeene
761 Followers 4K Following ✨ 26. i’m always tired. aspiring writer, filmmaker. former 🐼 kid. current 🐼 adult. chronically ill. feminist. nerd. & overall cryptid. she/her pronouns. 🌹
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647 Followers 550 Following Creating a community of support for family members, spouses, partners, parents, adult children and chosen family of OCD Sufferers and their community
Armin Schwarzbach @ArminLabs
2K Followers 2K Following Specialized #lymedisease #Borreliose #ticks #coinfections #tickbornediseases #EliSpot #Tickplex
Melissa Halvorson Smi... @nsjs1234
7K Followers 2K Following North Dakota born and Michigan resident.
collinsfyi @collinsfyi1
21 Followers 131 Following
PansMom @ThePansMom
8 Followers 627 Following Dedicated parent and former educator passionate about raising awareness and understanding of PANS/PANDAS.
Herbert Smith Freehil... @hsfkramer
11K Followers 1K Following A global legal powerhouse uniquely positioned to help you achieve your most ambitious objectives
Sir George Monoux Col... @MonouXcollege
3K Followers 561 Following Sir George Monoux College is a sixth form based in Walthamstow.
Kirstie Allsopp @KirstieMAllsopp
426K Followers 2K Following Tyranny is the deliberate removal of nuance. Albert Maysles.🚮 🏳️🌈I’m Passionate about making it easier to move. What doesn’t kill you makes you stronger.
Sarah O'Connell @SarahOC_MECFS
5K Followers 5K Following #pwME patient 13 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
Rebecca W1986 @W1986Rebecca
497 Followers 2K Following Mum. English Teacher. PansPandas advocate. SEND. MA in Education. Teach First Ambassador.
Fan of Democracy @StutlerMelissa
458 Followers 2K Following PANS/PANDAS Activist, Proud Snowflake, Editor, Writer, Painter, Mom, Wife, Alto, Cat Person
Amanda Connon @connon_amanda
254 Followers 343 Following Mother of a child with PANDAS, trying to spread the word of this awful illness 💔
Helen Pearce @HelenPe28465597
261 Followers 515 Following Pans Pandas Awareness - Stronger Together - Time for Change
Dritan Agalliu @DAgalliu
2K Followers 2K Following A neuroscientist with a passion for visual & performing arts, classical & jazz music and dance in search of new adventures in NYC. Opinions are my own.
PANDASMama @PandaMama2024
629 Followers 7K Following Parent raising awareness of #PANDAS #PANS ~ #BrainInflammation in children triggered by #infection / #virus. #NoMoreLostChildren. #ChangeIsComing Opinions mine
Lucy McDonald @lucymcdonald
5K Followers 2K Following Writer. Child and teen counsellor. Host of PANS/PANDAS Stories podcast https://t.co/QLgs5pOX7D… https://t.co/atm7QWH61M
Richard Brooke-Powell @RichardBrookeP2
1K Followers 1K Following Lyme disease bitten Vermont1984 been ill since with Borreliosis Bartonella (cat scratch disease)EBV coccidioides patient/advocate. Anti wrongs
Lyme disease and PANS @LymePANS
24 Followers 111 Following
Dr Anjali Agarwal @Dranjaliphysio2
1K Followers 4K Following Health care Professional, consultant Physiotherapist. Lifestyle consultant. Vice Chair Long covid Physio, treats #EDS #Hypermobility #POTS
WelshCatLadyBarbara @Bearfirestrong
1K Followers 3K Following Figuring life out one day at a time! Mourning the loss of my precious Mum who had Alzheimer’s Disease 🖤
joanne gill @joanneG007
207 Followers 448 Following
Fresh Start in Educat... @FreshStartEdu
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Tom Swarbrick @TomSwarbrick1
53K Followers 6K Following Host of Tom Swarbrick at Drive Mon-Fri 4-6pm @LBC + massively amateur golfer insta: https://t.co/dSKklLgeXK
Shelagh Fogarty @ShelaghFogarty
129K Followers 6K Following Presenter @LBC 1-4pm weekdays, writer, event host, podcasts https://t.co/hWZTd7seRE Contact https://t.co/bOQKFBk7Oa
Good Law Project @GoodLawProject
291K Followers 791 Following We use the law to resist hate and bring hope. Support us: https://t.co/G0W2MDJOUv Contact us securely: https://t.co/tUCJXAfSCq
Carol Vorderman @carolvorders
887K Followers 3K Following ‘NOW WHAT?’ book out now https://t.co/VMu8aMRRHs Award winning broadcaster and campaigner Politically independent. https://t.co/rox0cPaS4f
Ledbury Books @LedburyBooks
1K Followers 519 Following Independent book shop in rural Herefordshire. Described by The Times as especially impressive! (honest - I've still got the cutting).
Leroy Logan MBE @LeroyLogan999
9K Followers 633 Following (A) Award winning autobiography ‘Closing Ranks’: https://t.co/YEmk30Z9Pk. (B) Chair of @T2AAlliance & (C) Trustee at @DTTLondon & @TCLondonUK
Metropolitan BPA @MetBPA
3K Followers 2K Following Improving the working environment of Black and minority ethnic #Police Officers & Staff. Enhancing quality of service to #London communities. Not monitored 24/7
Secret Headteacher @secretHT1
73K Followers 3K Following Primary HT. Speak honestly about life as a HT and teaching in general. DMs always open for advice or questions. Blogging about life as an HT, warts and all.
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Sandra Douglas, BS Ch... @East_Texas_Doug
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