Rupali Ramtekkar @RupaliDoiphode
SMA fighter mom donate @ https://t.co/KNDS6pKbfj Pune Joined August 2012-
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#August2021 #SMAAwarenessMonth "Factsheet on SMA" SMA landscape is changing now. There's better understanding of pathogenesis, natural history n d multidisciplinary care n novel medicines. Although we have come so far but we have miles to go before we sleep...#BattleAgainstSMA
@rashtrapatibhvn Pls do something for SMA community kids because they are suffering from long time.š Inspite of availability of drugs in India they are unable to procure it because of the exorbitant cost of drug and desparately need govt support @Subhash44690696 @curesmaindia
Heartfelt gratitude šš» šš» Honourable Health Minister @rajeshtope11 listenin our plea to save #SpinalMuscularAtrophy Patient. @curesmaindia shall remain forever indebted 2 U Sir. Ur name will b written in golden letters as d 1st health minister who helped us in #BattleAgainstSMA
Itās Yuvaanās life against, SMA- an extremely rare genetic disorder & Zolgensma- the worldās Costliest Medicine.Donāt let him fight alone. Join hands with me to give Yuvaan a chance to breathe.@SonuSood @SoodFoundation @FoundationSonu #ihelpyuvaan Donate: bit.ly/3qFmg40
ą¤ą¤ ą¤ą„ą¤ą„ą¤¶ą„ ą¤®ą¤¦ą¤¤ या ą¤ą¤æą¤®ą„ą¤ą¤²ą„ą¤Æą¤¾ą¤ą¤¾ ą¤ą„व ą¤µą¤¾ą¤ą¤µą„ ą¤¶ą¤ą¤¤ą„ š GOOGLE PAY/PHONE PAY NO: 8237945466 / 7875012055 š UPI ID : SUPPORTYUVAAN@YESBANKLTD š BANK ACCOUNT: YUVAAN AMIT RAMTEKKAR ACCOUNT NO: 40150960390 IFSC : SBIN0017292 SBI BRANCH RAVET š IMPACTGURU.COM/FUNDRAISER/HEL⦠@YuvaanFightsSMA
Baby Yuvaan is fighting a dangerous illness - SMA Type 1, he needs #Zolgensma, costs $2.1million or about Rs 16cr. Even Rs. 10, 50, 100 or any other amount, can help. @YuvaanFightsSMAĀ Ā Donate @ImpactGuruĀ impactguru.com/s/save-baby-yuā¦
.@YuvaanFightsSMA with courage and might, but he needs #Zolgensma worth Rs. 16 CR ($2.1 million) to survive the world's most expensive illness. @ImpactGuru Link to donate: impactguru.com/s/baby-yuvaan-ā¦
A 15 months old baby won't survive without your help, he needs 16 crore for his treatment. @YuvaanFightsSMA, is suffering from a rare disease called 'SMA' and I request you to share this message and donate. Please help as much as you can impactguru.com/fundraiser/hel⦠Gpay :7875012055
Baby Yuvaan of 15 months suffering from rare disease #SMA required urgent treatment of #ZolGenSMA from USA cost $2.1 million (16 cr). @anandmahindra please help us to save yuvaan without treatment he won't survive. #ihelpyuvaan Donation link & details : impactguru.com/fundraiser/helā¦
Let's save one life, let's save yuvaan ą¤ą¤²ą¤¾ ą¤ą¤ą¤¤ą„र ą¤Æą„ą¤ą¤Æą¤¾ ą¤ą¤Ŗą¤²ą„या ą¤Æą„ą¤µą¤¾ą¤Ø ला ą¤µą¤¾ą¤ą¤µą„या,ą¤¤ą„ą¤®ą¤ą„ ą¤ą¤ मदत ą¤ą¤ ą¤ą„व ą¤µą¤¾ą¤ą¤µą„ ą¤¶ą¤ą¤¤ą„. #म #ihelpyuvaan @CMOMaharashtra @PawarSpeaks @AjitPawarSpeaks @AmitV_Deshmukh @Riteishd @SonuSood @bb_thorat @NANA_PATOLE @zeeshan_iyc @MeDeshmukh @vishwajeetkadam .
Yuvan Ramtekkar, a 13-month-old baby, has a very rare disease called as 'spinal muscular atrophy'. To treat him a injection costing 16 crores needs to he imported from abroad. Request you all to help Yuvan as much as possible. Mother Rupali- 8237945466 impactguru.com/fundraiser/helā¦
PLEASE HELP! Today Yuvaan turns to 15 months of age. Please make him possible to celebrate his 2nd birthday so please help him to get #ZolgenSMA #SMA 16 cr is a life price of yuvaan. @narendramodi @OfficeofUT @rajeshtope11 @abpmajhatv @IndianExpress @aajtak @htTweets @ZeeNews
Everyone says cute,handsome!! Can everyone please tell me should I have right to live.But for my life medicine is in USA (#ZolGenSMA) cost 16cr and I am living in INDIA. What is wrong with me?? Please give answer and help me.#SMA #babyyuvaan_fights_sma @SonuSood @BeingSalmanKhan
Ray of hope for the SMA fighter Yuvaan (14 months old) is #ZolGenSMA (USA)cost 16 crore rs. Please help to speedy recovery due to less time in hand.Spinal Muscular Atrophy (SMA) is progressive rare genetic disorder affect muscle weakness. @anandmahindra @MukeshAmbanima @PMOIndia
We cannot let down the hope for SMA fighter Yuvaan(14 months) and #ZolGenSMA (USA)cost 16 cr. Please help us!! @milokmat @LoksattaLive @ndtv @abpmajhatv @aajtak @samtv @ibnlokmattv1 @TV9Marathi @zee24taasnews @SakalMediaNews @mataonline @BBCHindi @PudhariGroup777 @IndianExpress
@PawarSpeaks @abpmajhatv @PMOIndia @CMOMaharashtra @ndtv Please help hapless Yuvaan parents to collect 16 crore for treatment called #ZolGenSMA from USA for Spinal muscular atrophy disease.Only 65 lakhs donation collected in 75 days.Only ray of hope is #ZolGenSMA . Please help!!
#ihelpyuvaan Yuvaan 14 months old needs world costliest drug to save his life #SMA disease #ZolGenSMA (16 crore drug cost) @sachin_rt @virendersehwag @imVkohli @AnushkaSharma @PMOIndia @CMOMaharashtra marathi.abplive.com/news/pune/saveā¦
CMRF please help to yuvaan for his treatment.Yuvaan is a SMA fighter need world costliest drug called #ZolGenSMA therapy from USA which cost 16 crore. @PMOIndia @OfficeofUT @CMOMaharashtra @AjitPawarSpeaks @PawarSpeaks @kolhe_amol @MPShrirangBarne @nsitharaman @Dev_Fadnavis
ą¤Øą¤®ą¤øą„ą¤ą¤¾ą¤° मला ą¤µą¤¾ą¤ą¤£ą„ą¤Æą¤¾ą¤øą¤¾ą¤ ą„ ą¤®ą¤¾ą¤ą„ ą¤ą¤ बाबा ą¤ą„प ą¤Ŗą„ą¤°ą¤Æą¤¤ą„न ą¤ą¤°ą¤¤ ą¤ą¤¹ą„त ą¤¤ą¤°ą„ ą¤ą¤Ŗą¤£ ą¤¹ą„ ą¤Æą¤¾ ą¤®ą¤¾ą¤ą„या ą¤ą¤ą¤£ą„ą¤Æą¤¾ą¤ą„या ą¤²ą¤¢ą¤¾ą¤ ą¤®ą¤§ą„ą¤Æą„ मदत ą¤ą¤°ą¤¾. ą¤®ą¤¾ą¤ą„या ą¤ą¤”ą„ ą¤µą„ą¤³ ą¤ą„प ą¤ą¤®ą„ ą¤ą¤¹ą„. bit.ly/3v81OtE @Dev_Fadnavis @nitin_gadkari @drharshvardhan @smritiirani @narendramodi @nsitharaman
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