Interstitial Cystitis Association @ICHelp
The mission of the ICA is to ensure efficient diagnosis and optimal care for people affected by IC/BPS through advocacy, education, and community. ichelp.org Akron, OH Joined October 2009-
Tweets4K
-
Followers4K
-
Following643
-
Likes105
🎉 The 2024 IC Awareness Month Proclamations were a success! The ICA, with the support of the IC/BPS community, worked hard to achieve this recognition and our efforts are making a difference in increasing visibility and understanding of the condition.
📝 Apply for the ICA Medical Advisory Council! The MAC plays a leadership role by providing medical and scientific expertise to advance the ICA mission. To learn more and/or apply, visit ichelp.org/icamedicaladvi… The deadline to apply is TODAY Monday, September 30, 2024.
The ICA is conducting a survey to better understand and support our IC/BPS community. By sharing your experiences and background, you help us identify the unique needs of our community. Take the survey here: surveymonkey.com/r/2024ICASurvey #InterstitialCystitis #BladderPainSyndrome
🧢 Join us in celebrating our 40th Anniversary and show off your new ICA gear! 🔗 Head over to bonfire.com/store/intersti… to order your 40th Anniversary merch for IC Awareness Month! #InterstitialCystitis #BladderPainSyndrome #ICBPS #Merch
🎉 Thank you to our amazing sponsors! We are incredibly grateful to our sponsors for making this month's Together for Tomorrow event possible. Thank you for helping us celebrate our 40th anniversary and raise awareness for IC Awareness Month! #InterstitialCystitis #ICBPS
During IC Awareness Month, we encourage you to print this flyer and take it to your doctors’ offices, or email it to them, asking them to display it prominently, even in the bathrooms. 💚 Let’s work together to make a difference! Access the flyer here: cutt.ly/icaflyer
📝 Apply for the ICA Medical Advisory Council! The MAC plays a leadership role by providing medical and scientific expertise to advance the ICA mission. To learn more and/or apply, visit ichelp.org/icamedicaladvi… The deadline to apply is Friday, September 20, 2024.
Here’s how you can help to make a difference in the lives of people living with IC/BPS: Donate to the ICA Facebook Fundraiser: facebook.com/share/B9jTcAkH… Donate and/or fundraise on ICA’s Fundraising platform: justgiving.com/campaign/ica40… 💙 Together, we can make a lasting impact!
Do you suffer from interstitial cystitis and bladder pain syndrome (IC/BPS)? Have you tried multiple pain management options? A targeted solution is being studied, and you can be a part of it! Learn more at icbpsclinicalstudy.com/Index.aspx?AD=… #ICresearch #interstitialcystitis #icbps
📅 Join us on Thursday, September 26th at 12:00 PM EST for an important webinar featuring Kristi Ninnemann, ICA MAC Member. This webinar will continue our crucial conversation on this sensitive topic. 🔗 To register, visit cutt.ly/together4tomor… #InterstitialCystitis
🎁 Fundraise to win these prizes! It's easy to start your fundraiser! Simply visit cutt.ly/ica40 and click "Start Fundraising"! 💚 Raise $50 for an #ICAwareness Wristband. 💚 Raise $250 for a 40th Anniversary T-Shirt. 💚 Raise $500 for a 40th Anniversary Hoodie.
📅 Join us on Thursday, September 26th at 12:00 PM EST for an important webinar featuring Kristi Ninnemann, ICA MAC Member. 🔗 To register, visit cutt.ly/together4tomor… To view part 1 of this series, visit youtu.be/Y22TTR47JUE #InterstitialCystitis #BladderPainSyndrome
Prelief® is a medical food that can aid in the dietary management of IC - helping to reduce acid in foods and drinks. Visit Prelief.com for more info!
🧢 Join us in celebrating our 40th Anniversary and show off your new ICA gear! 🔗 Head over to bonfire.com/store/intersti… to order your 40th Anniversary merch for IC Awareness Month! #InterstitialCystitis #BladderPainSyndrome #ICBPS #Merch
The ICA is conducting a survey to better understand and support our IC/BPS community. Together, we can make a difference and ensure everyone feels heard and supported. Take the survey here: surveymonkey.com/r/2024ICASurvey #InterstitialCystitis #BladderPainSyndrome #ICBPS
📅 Join us on Thursday, September 26th at 12:00 PM EST for an important webinar featuring Kristi Ninnemann, ICA MAC member. 🔗 To register, visit cutt.ly/together4tomor… #InterstitialCystitis #BladderPainSyndrome #ICBPS #IC #ICAwarenessMonth #ICAwareness #Webinar
During IC Awareness Month, we encourage you to print this flyer and take it to your doctors’ offices, or email it to them, asking them to display it prominently, even in the bathrooms. 💚Access the flyer here: cutt.ly/icaflyer #InterstitialCystitis #IC #BPS
✨ THE DESERT HARVEST DIFFERENCE ✨ If you are taking Aloe Vera for your IC symptoms, know that not all Aloe Vera is created equal. #aloevera #desertharvestaloevera #thedesertharvestdifference #icsupport #pelvicpainsupport #anthraquinonefree
💚Help us reach our goal of raising $40,000 for our 40th Anniversary! With just a couple weeks left of IC Awareness Month, we need your support to get there. 💚 Donate today or set up a personal fundraising page at cutt.ly/ica40. #InterstitialCystitis
📝 Apply for the ICA Medical Advisory Council! The MAC plays a leadership role by providing medical and scientific expertise to advance the ICA mission. To learn more and/or apply, visit ichelp.org/icamedicaladvi… The deadline to apply is Friday, September 30, 2024.
Jill Heidi Osborne �... @icnjill
3K Followers 1K Following US Urologic Pelvic Pain Spokesperson - Breast Cancer Survivor - IC Network - Health care activist - Live Weekly Support Meetings on YT & FB
Princess, The Tower @APainPrincess
29K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
StephaniePrendergast @PelvicHealth
7K Followers 2K Following Pelvic Health & Rehab Center cofounder, #pelvicfloorPT, coauthor of Pelvic Pain Explained, Past-Prez of @pelvicpainorg, committed to improving #pelvichealth
Jocelyn J. Fitzgerald... @jjfitzgeraldMD
41K Followers 5K Following Urogynecologist and Pelvic Reconstructive Surgeon⚖️ Gyneconomics ⚖️ IG/Bluesky @jjfitzgeraldMD 💡Opinions are my own and do not reflect my employer.
Bladder Health UK @BladderHealthUK
5K Followers 3K Following Raising awareness and supporting sufferers of #bladderproblems in the UK | #IC #cystitis #UTIs | Call us in confidence | 0121 702 0820 #WeeNeedToTalk
AUGS @urogynsociety
6K Followers 2K Following American Urogynecologic Society (AUGS) @urogynjournal @voicesforpfdFor Grace: Women In P... @forgrace
10K Followers 2K Following For Grace promotes better care and wellness for women in chronic pain. Catch the live stream of our groundbreaking 2023 Women In Pain Conference @ https://t.co/cuokTN2Hy4
Kenneth M Peters MD @KennethMPeters1
2K Followers 1K Following Chair of Urology, Beaumont Hospital, Royal Oak, Michigan. Very proud of the great team of urologists, nurses and support Staff who provide outstanding care
ICS @icsoffice
6K Followers 465 Following The International Continence Society is a membership society for medical professionals concerned with treating incontinence and pelvic floor disorders.
Lene Andersen @TheSeatedView
5K Followers 4K Following Author, #ChronicIllness #Rheum #Disability Advocate, Photographer, Writer & @HealthCentral #RA site Power Advocate. Is your woke accessible? She/her
prisha patel @NathwaniPatel
3 Followers 4 Following
richard m @richard02442681
53 Followers 520 Following
Savannah @funvannah
16 Followers 21 Following
Caroline Miller @CarolineMi49072
2 Followers 40 Following
Rosie @Rosie67196961
528 Followers 2K Following
Abeam Awfsa @AbeamAwfsa
4 Followers 199 Following
NURSE ANGIE P #UNbrok... @nurseangela3420
68 Followers 500 Following servant of true God of Israel #UNbrokendolls Ministries Worship leader, Motivational speaker, comedian, digital editor and writer or whateva GOD WANTS 🌼🌸
Sandy A. Walker @sandyamick
67 Followers 361 Following Directors of Facilities at large church in Brentwood TN. Enjoy spending time with my energetic and fun family.
SubVesica @subvesica
2 Followers 30 Following New urogynecology standard operating procedure for bladder pain and interstitial cystitis. Coming soon.
Barbara Martin @BarbaraMar49608
3 Followers 14 Following
Kacie @rosealbatross
118 Followers 313 Following 🎶 is she tough? listen bud: she’s got partially squirrel blood🎶
Kirsten @Kirsten259
66 Followers 2K Following
MGM @MGM80176332
46 Followers 199 Following
maevi ₊˚ෆ @mockler15128
14 Followers 36 Following
Tamalyn @Tamalynharley
80 Followers 447 Following DogMom🐶KindnessAlways💜My Faith is bigger than my Fear🙏Disabled Advocate Interstitial Cystitis,Fibro,Endo,TraumaticPTSD💜OUISER,MADEA,THELMA&LOUISE💜SMOOCHES
Bethany @Bethany388514
0 Followers 50 Following
Lactoferrin Co. @LactoferrinCo
528 Followers 108 Following The Lactoferrin Co | Home of Lactoferrin 95+ Pure, unblended lactoferrin powders & capsules. Backed by science
Mindy Pehrson @MindyPehrson
413 Followers 2K Following “Go where you are celebrated – not tolerated. If they can’t see the real value of you, it’s time for a new start.” – Unknown
Dawin Musungu @DawinMusun67453
67 Followers 1K Following
Boyle1832 @Boyle18321
299 Followers 6K Following
Dee Dee Mega Doo Doo @cowboytoez
43 Followers 156 Following 23 and stressed. Political Science. Nuclear Deterrence. Great hips.
Kathie Marchant @mar86888
3 Followers 34 Following
Laurie @Laurie504733459
1 Followers 38 Following
Symptom Tracker App @SymptomPlusApp
169 Followers 3K Following Quickly log symptoms, medications, triggers, appointments, & more. Perfect for busy people, export & share reports, view correlations, logs, & your care team!
Think Dynamic Digital @thinkdynamicdig
0 Followers 18 Following
Lulu @Lulu32598579
2K Followers 2K Following Atheist, humanitarian, animal activist, environmentalist and mental.Dystopian. 1984. Let's agree to disagree. RT doesn't mean I agree or accept the tweet.
Mike Ebner @MikeEbner7
3 Followers 198 Following
BlaBla9988 @EditKimliksiz
5 Followers 235 Following
حسناء🔻فلس�... @Hasna__Ahmed
481 Followers 399 Following سلام على قلوب عرفت الحق ولم تركن للباطل.مهما طال الليل واشتد الألم🍂فلابد لفجر أن يلوح بعد الظلَم. خريجة أكاديميةعلوم شرعية،معلمةقواعدالتجويد📚إسعافات أولية💉
monica 赵康慧 @Monicazhao32059
0 Followers 4 Following
Nan Axelton @NanAxelton
546 Followers 1K Following Writing historical fiction-first novel in progress- while a cozy mysteries series with historical elements, waits to be put on the page.
Gianna @flamingcunt69
19 Followers 82 Following username created in regards to previous vaginal burning
aMayzing Mayla @Mayla35157045
6K Followers 7K Following Native Texan, love God, country, state. President Trump is AMAZING!! BTW DONT DM ME. DMs piss me off
Zully @Zulmariscal
0 Followers 11 Following
crazieboi98(ilovesmal... @doingsexwitheli
163 Followers 598 Following Have fun getting through my spike traps and rolling boulders haters
M Kendall @MKendall470946
60 Followers 149 Following
Kayley Robinson @kmrobs23
625 Followers 787 Following Videographer | Photographer | FAA Certified Drone Pilot
Bassem Beltagy @Beltagy1
2 Followers 84 Following Complementary Medicine and Clinical Nutrition Specialist الوهم نصف الداء، والاطمئنان نصف الدواء، والصبر أول خطوات الشفاء. صلوا على الحبيب المصطفى منبع الصفا ﷺ
Phil McCutchen @PastorPhilBCC
1K Followers 3K Following Husband to Cheri, Dad to 3, Pop to 8. Pursuing truth, beauty & wisdom. Imagining a world where everyone following the life and teaching of Jesus.
Karin Miller @KarinMiller23
244 Followers 2K Following
Megan Bresler @pokersigma
140 Followers 2K Following
[email protected] @1dnelson1
24 Followers 635 Following
tangodream @tangodream
405 Followers 889 Following 💙 Minnesota native, proud liberal, small business owner🌈 Bluesky: dreamspinner3.bsky.socisl
Jill Heidi Osborne �... @icnjill
3K Followers 1K Following US Urologic Pelvic Pain Spokesperson - Breast Cancer Survivor - IC Network - Health care activist - Live Weekly Support Meetings on YT & FB
StephaniePrendergast @PelvicHealth
7K Followers 2K Following Pelvic Health & Rehab Center cofounder, #pelvicfloorPT, coauthor of Pelvic Pain Explained, Past-Prez of @pelvicpainorg, committed to improving #pelvichealth
Bladder Health UK @BladderHealthUK
5K Followers 3K Following Raising awareness and supporting sufferers of #bladderproblems in the UK | #IC #cystitis #UTIs | Call us in confidence | 0121 702 0820 #WeeNeedToTalk
AUGS @urogynsociety
6K Followers 2K Following American Urogynecologic Society (AUGS) @urogynjournal @voicesforpfd
U.S. Pain Foundation @US_Pain
14K Followers 2K Following Dedicated to improving life for people with pain through advocacy, education & peer-led support. Visit https://t.co/0Cw426dTjY.. RTs ≠ endorsements.For Grace: Women In P... @forgrace
10K Followers 2K Following For Grace promotes better care and wellness for women in chronic pain. Catch the live stream of our groundbreaking 2023 Women In Pain Conference @ https://t.co/cuokTN2Hy4
ICS @icsoffice
6K Followers 465 Following The International Continence Society is a membership society for medical professionals concerned with treating incontinence and pelvic floor disorders.
American College of R... @ACRheum
36K Followers 4K Following Global medical society providing education, research, advocacy, and practice management support to over 10,500 rheumatology professionals since 1934.
Lene Andersen @TheSeatedView
5K Followers 4K Following Author, #ChronicIllness #Rheum #Disability Advocate, Photographer, Writer & @HealthCentral #RA site Power Advocate. Is your woke accessible? She/her
West Coast Mint @west_coast_mint
701 Followers 3K Following Thoughtfully Curated Products — Including our Premium Sourced D-Mannose. Providing Support for UTIs & IC. We’re Listening. 💙
Ironwood Pharma @ironwoodpharma
4K Followers 376 Following Ironwood Pharma: dedicated to making a difference for people living with GI diseases. Terms: https://t.co/FNMbzgjrnW
Desert Harvest @DesertHarvest
266 Followers 337 Following 🌿 Science-backed wellness with the power of Aloe Vera. Clinically proven solutions for bladder health, skin, & more. Family-owned, pioneering since 1993.
Stephen Freedland, MD @SFreedlandMD
1K Followers 486 Following Editor Emeritus of @pcan_journal; Dir of CIRCL, studying effects of lifestyle choices on cancer risk and progression; AD Education/Training @CSCancerCare.
United Spinal @UnitedSpinal
11K Followers 982 Following Empowering wheelchair users to live independent and authentic lives ♿️
Spina Bifida Associat... @SpinaBifidaAssn
27K Followers 19K Following Working to build a better and brighter future for all those impacted by Spina Bifida.
SWIU @SWIUorg
4K Followers 2K Following Society of Women in Urology. An organization composed of women in diverse urologic subspecialties dedicated to support and promote women in the field.
Society for Basic Uro... @UrologySBUR
1K Followers 596 Following Established in 1986, the Society for Basic Urologic Research (SBUR) is a US-based medical society dedicated to urologic research.
RetireSafe @RetireSafeorg
288 Followers 882 Following RetireSafe is a grassroots non-profit organization that educates and advocates on behalf of America's seniors on the issues most important to them. #standup65
NPWH @NPWH
2K Followers 812 Following National professional membership org for WHNPs and other advanced practice RNs. The nation’s leading voice for courageous conversations about women’s health.
BHealth @bhealth_
2K Followers 492 Following This is the official Twitter account for the National Association for Continence (NAFC). We provide education and support around bladder and bowel health.
MS Focus: The Multipl... @MS_Focus
17K Followers 811 Following MS Focus: The Multiple Sclerosis Foundation helps people with MS live at their best through free programs, services and education.
MS Assoc. of America @MSassociation
10K Followers 916 Following National nonprofit org & leading resource for the #MScommunity, #ImprovingLivesToday through vital services & support. Get texts from MSAA: https://t.co/WOe1CxzOaX
HealthyWomen @HealthyWomen
18K Followers 2K Following We are the nation’s leading not-for-profit, independent health & wellness information source for women. | #RealWomenRealStories
Crush It For Curtis F... @bladdercaUS
357 Followers 953 Following Advocacy organization with strategic priorities on #bladdercancer We aim to support cancer research efforts & be a voice for the bladder cancer community
Chesapeake Urology @ChesUrology
2K Followers 661 Following Chesapeake Urology is the premier urology group in Maryland & one of the nation’s leading urology practices w/ a staff of more than 725 including 87 physicians.
Mary Jo Wallo @BlueThong
174 Followers 80 Following Founder of Blue Thong Society / Launched April 1, 2006.
Bladder Cancer Advoca... @BladderCancerUS
7K Followers 3K Following Creating better todays and more tomorrows for bladder cancer patients and families since 2005.
Sherrie Palm @sherriepalm
794 Followers 1K Following APOPS Association for Pelvic Organ Prolapse Support Founder/CEO
American Geriatrics S... @AmerGeriatrics
26K Followers 3K Following We are a nationwide society of geriatrics healthcare professionals dedicated to improving the health, independence, and quality of life of older people.
ACOG @acog
56K Followers 769 Following ACOG is a premier professional membership org. representing 60,000+ ob-gyns. We're dedicated to improving #womenshealth. Follow us at @acogaction for advocacy.
Alliance for Aging Re... @Aging_Research
9K Followers 2K Following Dedicated to changing the narrative to achieve healthy aging and equitable access to care. RTs ≠ endorsements
Jenni Clausen @jenniclausen
447 Followers 584 Following Teacher, math enthusiast, nature lover, cat owner, mom of 2 interesting kids
Michael H. Hsieh, MD,... @perforin
2K Followers 572 Following #Urology @gwsmhs @childrenshealth,@AmerUrological Rsrch Advoc Chr @ASTMH #Schistosomiasis Comm Chr,Edit @PLOSNTDs @FrontUrology, Pres @ACMCIP,rows @CRCRowDC
IC Positively @ICPositively
405 Followers 287 Following Miss Mar- ICer & Founder of http://t.co/jI2xYJXaOG
Caregiver Action Netw... @CaregiverAction
11K Followers 4K Following Helping family caregivers nationwide #PlugInToCare! Listening, learning & connecting here 🧡 We primarily post on Threads, Instagram, Facebook and LinkedIn.
Alana @alanasaltz
7K Followers 2K Following Have left Twitter. Find me on Bluesky & LinkTree below. Disability rights activist & writer. Chronically ill, ND, & disabled. EiC @BlanketSea. She/they 🌈♿️😷
National Pain Report @NatPainReport
7K Followers 124 Following The #1 independent online news source for people in pain and the families and professionals that care about them. See us on http://t.co/jIwJQBJZfL
Frank Tu, MD,MPH @Dr_Tu_gynesurg
1K Followers 81 Following Chicago gynecologist treating endometriosis, fibroids, and pelvic pain combining advanced surgery with multidisciplinary medical therapy. tweets my own views
Cara Reay @NicholaCReay
2K Followers 4K Following Mum of one, Living with #HSD & #Psoriasis, Lover of the city of #Liverpool & #Beatles mad! Keen #Comper.
Megan @PatientPhD
302 Followers 423 Following I read and write like it's an addiction. I teach. I advocate. I design objects and interfaces. I laugh often, but rarely early. (SLE/AOSD/TRAPS) #rheum #lupus
Hip Replacement @HipReplacement
4K Followers 2K Following For #HipReplacement patients, a public service of the Foundation for the Advancement in Research in Medicine, Inc. & @BoneSmart (https://t.co/m4i3w2MJOA )
Grayson - graysongoal... @GraysonGoal
7K Followers 5K Following All views mine / not active here | Accessibility, health equity, sex-ed, changing the world
Craig Baylor @CraigBaylor
4K Followers 3K Following
mauricio @mauriciogc77
522 Followers 470 Following
HealthResource4U @HealthResorce4U
18K Followers 21K Following The biggest collection of Health Resource tips related to #acne,#fitness,#Weightloss,#diet,#flatstomach,#diabetes,#health,#disease ,#nutrition,#sixpackabs,#abs.
Nutrition Basics @NutritionBasic
2K Followers 2K Following Nutrition facts and detailed information on natural sources of vitamins & minerals and their uses for healthy living!
CureMyWife.com @curemywife
2K Followers 2K Following A #Christian support network for women suffering from #chronicillness and #chronicpain - #lupus, #fibro, #spoonie, #cfs #lovelife... http://t.co/PakmC1lGgT
Mosquito Afrorhyncus @Afrorhyncus
40 Followers 136 Following Follow what has been revealed to you by your Lord and do not follow any other Lord apart from Him. Yet little do you care to remember. (Al-A'raf 3)
Katie Cadigan @whenmedicine
5K Followers 5K Following Director, with @CollegeInMind, of PBS' When Medicine Got it Wrong: the fight for better mental health research, care, policies & understanding
Susan Tolles @susantolles
3K Followers 3K Following Christian Life Purpose Coach, Speaker, Author. Helping women SHINE by living their God-given purpose. Love Jesus, Chocolate, Grandbaby snuggles.
Melony Sanders @SunMeilan
693 Followers 678 Following I'm a freelance writer who writes primarily for Helium. I write about anything, but particularly love crime fiction.
Fairwinds Hawaii @FairwindsHawaii
7K Followers 7K Following Fairwinds Hawaii, AKA Marty Mcly -- Earth, Wind, Fire, heed my call! I AM CAPTAIN PLANET!!!











