The Picture of Dorian Gay 🏳️🌈🏳️⚧️ @manamachina
Dorian. Chronically and mentally ill autistic, gay, trans man with PTSD. Geek. Yarn crafter, sober, writer, survivor. He/him 🏳️🌈🏳️⚧️ St. Catharines, ON, Canada Joined March 2009-
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Drag isn’t just an art form — it’s an act of resistance and advocacy. We can’t wait to watch the latest season of #WereHere starting April 26 on @StreamOnMax!
The Wiggles for YA YA
My beef with David Simon got Luke Skywalker to say where he stands, so I am going to call it a day. Free Palestine and may the Force be with you ✊🏾🇵🇸
My beef with David Simon got Luke Skywalker to say where he stands, so I am going to call it a day. Free Palestine and may the Force be with you ✊🏾🇵🇸
Okay, I'm seeing a lot of talk about a sequel to Baldurs Gate 3 and who should handle it and what they should do and listen... Hear me out, I have a pitch.
FINALLY someone used the term correctly and challenged the fear mongering media
Fetishise gun ownership.
Fetishise gun ownership.
Keep ur eyes on ur own paper
Keep ur eyes on ur own paper
MSF extends our condolences to @WCKitchen (WCK) and the families of the seven aid workers killed in an Israeli strike on 1 April. We are outraged by this deadly attack on humanitarian workers trying to provide food to people in dire need.
Mikki Kendall @Karnythia
165K Followers 1K Following Proud descendant of Hex Throwing Goons. Amazons, Abolitionists and Activists & NYT and Indie Bestseller Hood Feminism. Plays with fire.
🗽Sydette Cosmic Dr.. @Blackamazon
61K Followers 8K Following she/her your Gorgoness . the live child of Medusa, Cassandra, Fanny and the Tigress current : @usc searching Tatted Nerdy and Curvy
Fiqah is @sassycrass... @sassycrass
14K Followers 2K Following I woke up early this mornin, I don't think ya'll heard me, I woke up early this mornin. But I still ain't seen the sun.
Louisa 🌈👭 @LouisatheLast
41K Followers 2K Following Big mean sweaty dyke just looking for trouble. Friend of Garak. Cis-ish, she/her, graphic designer, race traitor, obesity glorifier. Opinions all mine. 🌹🍞🌹
Your Tiny Journalist .. @thewayoftheid
43K Followers 2K Following @BlockClubChi’s Award-winning Bronzeville Reporter. @HeadlineClub board. @NerdgasmNoire’s Low End Kid. Dorothy Parker enthusiast. @HoodFeminism 4eva. FTN.
Shepherd @NeolithicSheep
37K Followers 394 Following 'Swear to god, you are like if the Foxfire books were set in hell.' - @UrsulaV Sort of famous in the eyes of the law. Trans. He/him I canceled Thoreau.
Cypher ⚔️ 🏳️.. @cypheroftyr
46K Followers 23K Following Sr. Writer on #WonderWomanGame - @MonolithDev |#Twitch Partner | Sponsored by @LogitechG |@RivalsWaterdeep| @MotherLandsRPG CD |@TakeThisOrg Board| She/Her
Mantic Nixie Stream G.. @noveldevice
1K Followers 627 Following Sparkly pink safety net. Scars from honorable wounds shall not be considered a fault. I'm in the other place too now. Same name.
yams yams bigelow @angelsscream
2K Followers 4K Following Classically beautiful since 1985 Major General of the bi/pan agenda Creator of the term #dollarstorethor for Hawley slay, serve, survive, thrive she/her
Ben's Dunkin Addictio.. @karaisshort
2K Followers 897 Following Teacup Terror. @Blackamazon called me a Pop Culture Curator and I think that's fair. BLACKITY BLACK. Not Ben Affleck 😂. @DemGirlsPodcast is on hiatus 😊
Howard Handupme @xicacha
1K Followers 1K Following Midwest Negress. She/Her. Some of those who work forces are the same that burn crosses. #BlackLivesMatter
Wizened husk haunting.. @unholyglee
790 Followers 1K Following Jay. Black. Fat. Queer. Cranky. Dandy. Nerdy. 0 damns. Actually 15 crows in a trench-coat. PayPal: [email protected] Square: https://t.co/L9QFW7WI78
Adrian Bott @Cavalorn
11K Followers 1K Following Author of MG/YA fiction & game stuff. Rants about folklore. Opinions my own. He/him. Lead Writer for @PlayWarframe (you shiny things)
RaymondStoller @StollerRay96822
83 Followers 2K Following
Mouslee @Mouslee299564
28 Followers 2K Following
Brent Janse van Vuure.. @BrentJvV
366K Followers 234K Following 🚀 Digital Marketing Nerd | 💼 Entrepreneur | 📱 Social Media 101 | 🌍 Passionate about people, places & stories | ✉️ Let's connect | 🇿🇦🏳️⚧️🏳️🌈
Jonny Phillip @JonnyPhill23007
26 Followers 47 Following
Osuolale John Makanju.. @osuolale_john
16 Followers 107 Following
April Denning @DenningApr40711
0 Followers 1 Following
ScienceThem @ScienceThem
12 Followers 333 Following Biomedical Research Trainee | PSU | they/them| #hEDS | #POTS | Disabled Scholar | non-trad | Opinions are my own
lori manny @lori_manny
126 Followers 946 Following sexy and naughty 👿…. life is precious make use of your time wisely😍
Mathew jas @OlivePok62853
41 Followers 123 Following Single gay here looking for someone truthful to spend the rest of my life with ❤️💋
Grant Stoner @Super_Crip1994
4K Followers 991 Following Award-winning accessibility journalist | Words: @CanIPlayThat, @FanbyteMedia, @IGN, @LauncherWP @WIRED etc. | email: [email protected] (he/him)
Joseph Okee @JosephOkee17294
5 Followers 8 Following
James @bookamphetamine
541 Followers 3K Following Books are my drug of choice and I am very much addicted.
Cyril Cyclist @CyclistCyril
12 Followers 176 Following
Inekrfax @frankiebwrites
511 Followers 1K Following I read books and sometimes I write them. Professional Podcast Binge Artist and PhD Researcher. (they/them)
Reignite @reignitepod
678 Followers 596 Following A podcast by two friends who love storytelling, video games, and romance! Hosted by @frankiebwrites and @dj_stormageddon!
The Warren Way Point @way_warren
281 Followers 908 Following An account for the warren and it's inhabitants. On Cusabo land. redistributor of blood money. Harry Potter fans and Twitter advertisers DNI
Yo' Mama! (They/Them) @espenza
2K Followers 5K Following Language is always political. Language is never neutral. The purpose of language use is to influence behavior.
FunkiOne @OneFunki
176 Followers 529 Following I am me, there is no other— they/them. I am the mighty unicorn, but my friends know me as the indoor kitty.
Dotado_gostoso @as28954664
806 Followers 5K Following New in Dubai, looking for friends to explore the city.
Brittney 👑🍑 @itspeachia
697 Followers 1K Following Pizza, Video Games, & Sass.🍕🎮💋 Final Fantasy enthusiast. Hearing impaired. Lover of corgis. Geralt of Rivia simp. @officialsdgc party member. She/Her. 🏳️🌈
Ana Noriega @awk_poodoo
706 Followers 5K Following Anti-fascist Library worker. Chicanx con orgullo. she/her. No reform, just abolition we are all in this together. People matter more than property.
prestige gee @Ugwuezumbachi
45 Followers 171 Following
George smith @Georges16006651
11 Followers 48 Following If you don’t follow me back it’s your loss because I have nothing to lose.
Evan Nil Christie @christie_nil
0 Followers 87 Following They/She, 29. 🕯🌈 Neurodivergent stitch witch with an affinity for the old, the obscure and all things queer. Working where past artifacts lay dormant.
@[email protected] @saybwee
345 Followers 371 Following A blue fluff who loves most people, but is an anxious hermit. Tarantula keeper. General animal nerd. Lvl 39. They/them, gay for 💙 Wah 💙
Noncompliant AF Write.. @impertrix
194 Followers 2K Following Aries violence. Sultana of sideeye and snark. Black Elder Gay. Straight shooter. Eld Bisexual/pan thoughts. Aintshitness on deck. She/her.
Meg Sharkey @megsharkey
660 Followers 5K Following Developer @servicenow, music maven, doggo mom, urban cyclist, #SFGiants fan, bookworm, goofball. she/her. Wife to @melchev331 #GenX @megshark@universeodon
Marii🏳️⚧️.. @Marii_Ojex
861 Followers 5K Following Black Trans Woman Dancer, dreamy chocolate lover and fighter against Transphobia.🚫 #TransLivesMatter https://t.co/WybclLcGkC
better-ish @betterishtweets
189 Followers 136 Following sober, gay, and annoying. doing better. well, better-ish.
MelTheMusicMan @MelTheMusicMan1
196 Followers 729 Following Acoustic guitarist, singer, geek, noob gamer, trans man (he/him/his pronouns), animal lover, amateur artist, and culinary enthusiast.
UBI Works 🇨🇦 @ubi_works
19K Followers 6K Following Canada's largest national Basic Income advocacy network. Follow our sister org promoting Land Value Tax and Common Wealth Dividends: @CommonWealth_ca
Fay 🌘 (they/she) @nappucats
135 Followers 826 Following 🍵 tea fuelled artist ✨ drawing whimsical, cute, weird things 🌸 30 y/o, they/she 🧠 adhd & mental health 🎀 lesbian™ 🌈 gaming love 🍃 nsfw/kink (!) 🔞
Mahmoud Hinnawi @GazaReality
4K Followers 7K Following Mahmoud Hinnawi, 36, is #photojournalist in #Gaza. I am interested in human interest stories about #children and people generally in gaza.. 00972567602231
JadeEJF @JadeEJF
848 Followers 735 Following Redheaded Midwesterner moves to Seattle. Hijinks ensue. Same screenname on bsky
C-Dub @CJWalt
1K Followers 5K Following Making it through life, while planning the next adventure! 💍👬 Life is TOO short! SD 6/30/2015 🌈🌪️⚡️❄️ #BLM #MeToo #LGBTQ+ #HealthCare4All #AnimalRights
les milstein @les_milstein
121 Followers 1K Following
Mikki Kendall @Karnythia
165K Followers 1K Following Proud descendant of Hex Throwing Goons. Amazons, Abolitionists and Activists & NYT and Indie Bestseller Hood Feminism. Plays with fire.
🗽Sydette Cosmic Dr.. @Blackamazon
61K Followers 8K Following she/her your Gorgoness . the live child of Medusa, Cassandra, Fanny and the Tigress current : @usc searching Tatted Nerdy and Curvy
Fiqah is @sassycrass... @sassycrass
14K Followers 2K Following I woke up early this mornin, I don't think ya'll heard me, I woke up early this mornin. But I still ain't seen the sun.
Daniel José Older @djolder
54K Followers 8K Following NYT bestselling author of Ballad & Dagger and Midnight Horizon; a story architect of Star Wars: The High Republic. (he/him)
Louisa 🌈👭 @LouisatheLast
41K Followers 2K Following Big mean sweaty dyke just looking for trouble. Friend of Garak. Cis-ish, she/her, graphic designer, race traitor, obesity glorifier. Opinions all mine. 🌹🍞🌹
Your Tiny Journalist .. @thewayoftheid
43K Followers 2K Following @BlockClubChi’s Award-winning Bronzeville Reporter. @HeadlineClub board. @NerdgasmNoire’s Low End Kid. Dorothy Parker enthusiast. @HoodFeminism 4eva. FTN.
Space Witches, Esq. @popelizbet
5K Followers 1K Following law, poetry, pisstocity, chicken & waffles, relentless do-gooder. kathreggate. they/them; ka/kan. will demand your poems. My employer DGAF. icon by @L0ST_VEGAS
Shepherd @NeolithicSheep
37K Followers 394 Following 'Swear to god, you are like if the Foxfire books were set in hell.' - @UrsulaV Sort of famous in the eyes of the law. Trans. He/him I canceled Thoreau.
Liam O'Brien @VoiceOfOBrien
525K Followers 453 Following Actor on the streets and a Fighter in the sheets. Spending time in games, animation, and on #CriticalRole https://t.co/34sm0SwD4i
Cypher ⚔️ 🏳️.. @cypheroftyr
46K Followers 23K Following Sr. Writer on #WonderWomanGame - @MonolithDev |#Twitch Partner | Sponsored by @LogitechG |@RivalsWaterdeep| @MotherLandsRPG CD |@TakeThisOrg Board| She/Her
Dragon Age @dragonage
254K Followers 49 Following The official Twitter account for Dragon Age. #Dreadwolf - ESRB Rating Pending: Likely Mature 17+
Patrick Weekes @PatrickWeekes
45K Followers 216 Following Writer. Repped by @davidhalesmith. Views strictly mine. (they/them) 🏳️🌈 Account rarely updated. Mastodon: PaladinBard @ https://t.co/pf20j6wmOe. Bluesky: TrickWeekes
Mantic Nixie Stream G.. @noveldevice
1K Followers 627 Following Sparkly pink safety net. Scars from honorable wounds shall not be considered a fault. I'm in the other place too now. Same name.
yams yams bigelow @angelsscream
2K Followers 4K Following Classically beautiful since 1985 Major General of the bi/pan agenda Creator of the term #dollarstorethor for Hawley slay, serve, survive, thrive she/her
Ben's Dunkin Addictio.. @karaisshort
2K Followers 897 Following Teacup Terror. @Blackamazon called me a Pop Culture Curator and I think that's fair. BLACKITY BLACK. Not Ben Affleck 😂. @DemGirlsPodcast is on hiatus 😊
Howard Handupme @xicacha
1K Followers 1K Following Midwest Negress. She/Her. Some of those who work forces are the same that burn crosses. #BlackLivesMatter
Jack @OiShinyThings
6K Followers 2K Following Jewellery maker and collector of shiny things. He/Him. #TurtleOfCalm at: https://t.co/3BKboIfGzv
Sumalee Montano @sumaleedotcom
31K Followers 5K Following 🇵🇭🇹🇭 I face act, voice act & produce. Films: #BlackBarbieDoc #NannyFilm #RiotsvilleUSA #TheDeal On 📺: Dan Brown's #TheLostSymbol she/her #BlackLivesMatter
John Phipps: Big Hair.. @MagitekDad
13K Followers 1K Following @officialSDGC creator/host, Magitek Armor Pilot. Fitness/JRPGs/whiskey. Your incredibly handsome, muscular dad. Head of Village Security. My opinion is law.
saira @sairaspooks
189K Followers 819 Following unapologetic brown girl. may the dread wolf take you — [email protected] • https://t.co/1zpuwJZmTi • @gamersupps, @beacn
Grant Stoner @Super_Crip1994
4K Followers 991 Following Award-winning accessibility journalist | Words: @CanIPlayThat, @FanbyteMedia, @IGN, @LauncherWP @WIRED etc. | email: [email protected] (he/him)
Dr Ezra Horbury @EzraHorbury
1K Followers 594 Following Lecturer @UoYEnglish | PhD (Cambridge) | Early modern theology & queer theory | Book: Prodigality in Early Modern Drama (https://t.co/2bJuArWR7o). They/them
ESA's Juice mission @ESA_JUICE
22K Followers 84 Following The official @ESA feed for #ESAJuice, the Jupiter Icy Moons Explorer. Launched on 14 April 2023 to study Jupiter and three of its icy moons 🛰️
Inekrfax @frankiebwrites
511 Followers 1K Following I read books and sometimes I write them. Professional Podcast Binge Artist and PhD Researcher. (they/them)
Reignite @reignitepod
678 Followers 596 Following A podcast by two friends who love storytelling, video games, and romance! Hosted by @frankiebwrites and @dj_stormageddon!
Anthony Rapp SAG-AFTR.. @albinokid
174K Followers 3K Following A pale actor/writer/singer/director/gamer/Union Activist Speaking inquiries: @collectivespkrs He/him Bookable on @cameo
Veerender Singh Jubba.. @Veeren_Jubbal
9K Followers 1K Following Media/Games Critic. Sensitivity Consultant. Made #StopGamerGate2014. Streamer. Card Lord. Dapper Sikh with NFT. (Nice F**kin' Turban).
Brittney 👑🍑 @itspeachia
697 Followers 1K Following Pizza, Video Games, & Sass.🍕🎮💋 Final Fantasy enthusiast. Hearing impaired. Lover of corgis. Geralt of Rivia simp. @officialsdgc party member. She/Her. 🏳️🌈
Josh "Anoriand" Fagun.. @AnoriandGD
3K Followers 3K Following Streamer | Voice Actor | GM - A Tale Of Two Lions | Swamp Thing/Dimension 20 | Julian Morris/Shikar | He/Him | Biz ✉️ [email protected]
Nightly Question by S.. @NightlyQuestion
713 Followers 1 Following Nightly Question by @StevenSpohn is a series to help you connect with your loved ones and yourself. Answer them by replying or use them in conversation offline
Juno @ MCM London L-1.. @GalacticJonah
30K Followers 1K Following Juno / Jonah (he/they) | freelance artist | trans & queer 🏳️⚧️ | Commission info on my website. Project inquiries via email please ✨
Luis Carazo @Luiscarazo
27K Followers 508 Following Actor/ttrpger. Paladin at❤️but not the lawful good kind. Bearded 5 yr old. Various criminals on TV, Zerxus on ExU Calamity. I die in most stuff. I'm on 🌅🧵📷
Brennan Lee Mulligan @BrennanLM
296K Followers 2K Following @dimension20show | @WorldsBeyondPod | @CollegeHumor | @Droppouttv | @WayfinderExp | @storypirates | Bigger - @ucbtla | House of Gains - @TheYardTheater | He/Him
OUTniagara @outniagara
275 Followers 289 Following
Lynda Carter @RealLyndaCarter
448K Followers 1K Following Singer, Actress and proud Mom! Listen to my new single #LettersfromEarth: https://t.co/8r3ycFqOTS
Sacha Coward @sacha_coward
65K Followers 5K Following LGBTQ+ history dude (He/Him) 🌈 Research, Tours & Escape Rooms. Mermaid lover. Lifts heavy things for attention. https://t.co/wyMa5nolIo
Mark Hamill @MarkHamill
5.1M Followers 2K Following Believe in yourself! Work hard, never give up & anything's possible! OR: Kick back, relax & aim low: You'll never be disappointed...😜 I IGNORE ALL DMs!
UBI Works 🇨🇦 @ubi_works
19K Followers 6K Following Canada's largest national Basic Income advocacy network. Follow our sister org promoting Land Value Tax and Common Wealth Dividends: @CommonWealth_ca
Diane Duane @dduane
22K Followers 6K Following 40+ yrs in print, 50+ novels, asst'd TV/film, NYT B'seller List a few times, etc etc. Rarely here now. Where to find me: https://t.co/7aKZ7JCqda
Kristen Chapman @KCGibbons
7K Followers 7K Following An artist, working collaboratively to cultivate spaces for stories & meaningful connections through creative engagement. Also funny. she/her
Mandy Patinkin @PatinkinMandy
343K Followers 441 Following Mandy He/Him Kathryn she/her & sometimes Gideon he/him - TikTok @mandypatinktok IG @mandypatinkin WELCOME REFUGEES, BLACK LIVES MATTER, SCIENCE IS REAL
Claudia Black SEP @TheClaudiaBlack
57K Followers 954 Following “Almost Sci-fi Royalty” AKA “Claudia F*CKING Black” Trauma & Creativity Coach. C-PTSD and PTSD. ADHD. She/Her. BLM. #stopasianhate Insta @theclaudiablack
Kendra @kendrawcandraw
30K Followers 803 Following Comic artist, writer. Pig of many talents. God's silliest little clown. Rep: @msmariavicente. They/them. Occasionally NSFW/18+ https://t.co/6fXrxtly6b
Chloe Howie 🍉 @Chloe_HowieCB
3K Followers 648 Following YouTuber | Aviation Documentarian | Creator of the Disaster Breakdown YouTube Channel: https://t.co/um2zSPHvUW
Lucy Worsley @Lucy_Worsley
252K Followers 428 Following
The War and Society C.. @warandsociety
2K Followers 270 Following A new gender balanced, ethnically diverse group for the study of war & societies at war. Join us & help reshape the way the field operates for a new generation
Markia Jenai @Mjenai_art
7K Followers 794 Following Illustrator | ✨Inspired by AfroAtlantic cultures and history ✨ Represented by @astound_us ✨ KidLit profile: @markiajenaiart
gender of the day @genderoftheday
86K Followers 0 Following Genderbot lets us outsource our feelings about gender to a bot, which I think should free up a lot of mental space for other things. Botparent: @mishafletch
Bungie @Bungie
2.9M Followers 351 Following News, updates, and community love from the developers of @DestinyTheGame and @MarathonTheGame. For status updates about the game, follow @BungieHelp.
Destiny 2 @DestinyTheGame
2.8M Followers 62 Following Destiny 2: The Final Shape, June 4, 2024. ESRB: TEEN. Created by @Bungie. Some content shown may require purchase. Dates/content subject to change.
Potate™️ @LoungingPotato
319 Followers 2K Following He/Him. Unfortunately for myself, I am only attracted to men. Only child with lonely child tendencies. Twitch Affiliate (allegedly)
Chris Cinneas, aka Th.. @painting_pirate
912 Followers 1K Following Mini painter, voice actor, pirate. https://t.co/oblwbdXdWB He/Him. [email protected] https://t.co/8eZ7YutHup
Kitfox Games 🦊 @KitfoxGames
41K Followers 351 Following 🔸 Making intriguing worlds with heart 🔸 Loose Leaf, Boyfriend Dungeon, Dwarf Fortress, Caves of Qud, Six Ages 2 & more! 🔸 Join: https://t.co/1rqbfUGnDL
Liminal Spaces @SpaceLiminalBot
1.3M Followers 1 Following Trip on the verge of reality || if you want any content removed, please dm @artumouza || OP sources on @LiminalLinks
Jim Martin @Gingerheaddad
4K Followers 3K Following Parent of ND & trans kids, fundraiser, greying redhead. Faves: Watergate, chocolate, movies, baseball, history, penguins, #Skylanders, raisins. Anti #ableism
Evan Sullivan @EvanPSullivan
2K Followers 3K Following PhD | History professor at @sunyadk | Historian of disability, gender, & war | Father, husband, & cat dad | Tweets are my own
cohost.org/hthrflwrs @HTHRFLWRS
10K Followers 960 Following trans game dev - they/she - sapient entity - working on SNAKE FARM and THE LAST DAYS OF FRIENDSHIP VALLEY - EXTREME #MEATPUNKS FOREVER: THE TTRPG out now
Matt Storm aka Storma.. @dj_stormageddon
2K Followers 2K Following Jewish Non-binary Pansexual. Kesha, CRJ & TSwift Super Fan. Venom lover. Cohost on @reignitepod @funandgamespod @Screen_Snark. Editor of The @GameInformer Show.
hana kim • 김하�.. @_hanatwothree
2K Followers 2K Following haw-nah • she/they • late 20s kr-jp-am lesbian puppygirl writing stuff and posting about gundam • games @IGN, @GameSpot • local @thefastpitch • 🏳️⚧️
Vicki @v1ckster25
355 Followers 213 Following Dog Mom. Tweets are mostly pitbulls and politics. Go Hokies 🦃 She/Her 🏳️🌈
Game Session Podcast @GameSessionPod
29 Followers 38 Following Video Game Podcast hosted by @TheSethRokage. Livestreamed on Twitch. Contact: GameSessionPod @ Gmail Season 2 is here!
GAINS @GAINS_af
359 Followers 0 Following It's not about what you lose, it's about what you gain. Blogging about fitness & self-improvement since 2013. CW for diet discussion. Run by @gains_tweets.
Tenacious Unicorn Ran.. @TenaciousRanch
18K Followers 940 Following
Katie 💫 Casey @spiffykt
974 Followers 387 Following Less gay as in "I empathize with the plight of the X-Men," more queer as in "Magneto was right." she/her
Dragon🐉🏳️�.. @DragonC0mmander
137 Followers 692 Following Trans |🔞| He/They | Hoarder of knowledge, stories, and vicarious experiences | BioWare trash | #TransRights #BLM
Tasting History @TastingHistory1
33K Followers 285 Following Bringing Food and History together through recreating the dishes of Yore, Yesteryear, and Olden Times. Huzzah! #tastinghistory
Caitlin is home. 💔💔💔
We received the call that Caitlin’s flameless cremation happened yesterday. Her cremains will be here soon. 💔 For those of you who have contacted us about help, we are fine, but please feel free to use Caitlin’s GoFundMe for any help you wish to give. gofundme.com/f/lynne-michae…
This shit right here is why people need to be bullied and handed ass beatings.
That is stimming.
Caitlin update. Overnight continued to be full of seizures. We had hard discussions about what comes next w/ Palliative. Caitlin received a major drug load that finally stopped the seizures, but she is out & needs the hospital bipap to breathe. Please keep her in your thoughts.
Caitlin update. We are in the Lurie Children’s Hospital PICU after a 4-seizure ambulance ride. We have the small room we had in 2019. 34 seizures today after barrels of emergency meds. Seems she also has a UTI. Waiting for Lynne to arrive with our things.
The local ER here is really not great. Dirty. Confused staff. Patients in all of the halls. 😔
Caitlin update. Not great. Not responding well to all of the meds. We are getting transferred to the Lurie PICU, so three-hour ambulance ride coming. It is likely insurance won’t cover some of the ambulance trip.
We are at the local hospital ER. Caitlin is not responding fully to the IV emergency meds and is still having seizures. This is very bad. Please keep her in your thoughts.
How to deep throat: 1. Take singing lessons 2. Hold your thumb in your fist like you don’t know how to throw a punch. Suppresses the gag reflex. That’s literally it. Pull it out on special occasions and make them fucking earn it. You’re welcome.
Caitlin update. Her epileptologist is increasing one of her seizure meds. Unfortunately, that might increase the heart weirdness. So fingers crossed it doesn’t have bad side effects.
Caitlin update. Not great. Today started with a long-lasting seizure that needed emergency meds. Though she has had bright moments this week, she is very weak, still having many desats, and her motility is not back to normal. This “custodial care” remains exhausting for us.
It would be nice to have some good days with good news instead of the never-ending stream of bad news and additional frustrations.
Caitlin update. Well, that sucked. Bradycardia in the morning transitioned to over 20 desats today. Caitlin was just not herself. Very tired and distant.
Caitlin update. She had a bit of a quietly rough night with bradycardia. Lots of alarms on her pulse oximeter for very low heart rates. She is sleeping almost constantly. Hoping she’ll perk up a bit by watching wrestling later today,
Caitlin is finally perking up a bit by listening to some new albums she just got by The Slits and Mannequin Pussy. (Our daughter is much more punk rock than us.)
Caitlin update. She is tired, but home. The basics are she is currently medically stable, and they made the call that we know what we are doing with her Palliative Care and might as well be home. None of the medical mysteries were solved, so this is just a momentary reprieve.
FRIENDS AND FAMILY OF CAITLIN!!! SHE HAS BEEN DISCHARGED FROM THE HOSPITAL AND IS HOME WITH HUGO THE CAT AND HER PARENTS!!! 😸
Sitting in the PICU room and waiting for Caitlin. The MRI has not but smooth at all. Lots of problems getting it all sorted out. This is ending up being a five-hour process.
Caitlin update. Day 35 at Lurie in the Pediatric Intensive Care Unit. Today she is getting a massive MRI on her digestive system looking for answers. She will be under anesthetic, so there are notable risks. As always, good thoughts are appreciated.
Best girl with her best boy. 🩵🐾
Caitlin update. She is still in the PICU. There is only minimal progress over the last 3 days, but Caitlin has avoided any new mysteries or problems. I am taking care of Uncanny stuff.
We have been in the hospital for 111 days over the last 20 months.
Caitlin update. After a chaotic week, the weekend has been quiet and stable other than some desats. We are still having clogging issues with her feeding tube, but there is sadly no alternative. Otherwise, everything is now moving in the right direction.
Caitlin update. After a chaotic week, the weekend has been quiet and stable other than some desats. We are still having clogging issues with her feeding tube, but there is sadly no alternative. Otherwise, everything is now moving in the right direction.
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