PJ's Protocol @pjs_protocol

to assist in dissemination about PJ's Protocol, established March 2, 2015. Goal is to educate those on Steroid deficiency ,chronic steroid use & adrenal crisis. Joined April 2018

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brian nicholoff @Bpn9211Brian

90 Followers 761 Following

Anna Luiza @sma_anna2019

416 Followers 2K Following Official intl profile of @ame_anna2019 👧🏻 SMA1 fighter 🎂2 years old 💉 My life DEPENDS on Zolgensma! 🧬 To help Anna ⬇️ https://t.co/Txwu5yVSfj

FRANCOJATTO @francojatto

108 Followers 1K Following great good

Mason was 3 when diagnosed with #Duchenne Muscular Dystrophy in Nov 2016. Raising Awareness and Funds for Masons future. Tweets by me, his mum.

Masons Muscles @MusclesMasons

428 Followers 703 Following Mason was 3 when diagnosed with #Duchenne Muscular Dystrophy in Nov 2016. Raising Awareness and Funds for Masons future. Tweets by me, his mum.

Our mission, to raise awareness & funds to find a treatment/cure for Duchenne Muscular Dystrophy (DMD). Sadly, we lost our Shiv on 20 Mar 23. Go fly our angel!

Smile with Shiv @svt_mands

1K Followers 2K Following Our mission, to raise awareness & funds to find a treatment/cure for Duchenne Muscular Dystrophy (DMD). Sadly, we lost our Shiv on 20 Mar 23. Go fly our angel!

4 Jake's Sake @4jakes_sake

636 Followers 1K Following Our mission is to help families living with Duchenne make their homes and lives accessible.

Siobhan F @shivvyneato

46 Followers 148 Following

unregistered barrister - mediator - FMA board member. Fundraiser Duchenne UK. Legal Consultant. Family law. EURORDIS DITA drug task force

Janet Bloor @3lurchers

286 Followers 548 Following unregistered barrister - mediator - FMA board member. Fundraiser Duchenne UK. Legal Consultant. Family law. EURORDIS DITA drug task force

Laura McLinn @LauraMclinn

934 Followers 2K Following Founding President, Best Day Ever Foundation. Passion for helping patients access treatments. Duchenne mama bear.

I'm a little boy who was diagnosed with Duchenne Muscular Dystrophy in January 2016. I tweet to raise awareness & funding for DMD. Follow my journey

Defending William Aga... @DefndwilliamDMD

182 Followers 348 Following I'm a little boy who was diagnosed with Duchenne Muscular Dystrophy in January 2016. I tweet to raise awareness & funding for DMD. Follow my journey

Heather Nicholoff @HNicholoff

21 Followers 78 Following

John Gloyeske @JGloyeske

51 Followers 2K Following Sr. Project Manager - Indiana University Health

Donna/Kenny Swan @DonnakennyS

7 Followers 133 Following

SEND Mum | Parent Carer | Disability Rights Advocate & Activist | Accessibility & Inclusion Campaigner | Healthcare Equality & Ethics Enthusiast

Who Really Cares? @TheParentCarer

4K Followers 5K Following SEND Mum | Parent Carer | Disability Rights Advocate & Activist | Accessibility & Inclusion Campaigner | Healthcare Equality & Ethics Enthusiast

Felix is an 8 year old with DMD, a devastating muscle wasting terminal disease. ]

With your help, we believe can save Felix and all other boys with Duchenne.

Team Felix @TeamfelixJJ

286 Followers 174 Following Felix is an 8 year old with DMD, a devastating muscle wasting terminal disease. ] With your help, we believe can save Felix and all other boys with Duchenne.

Kris Nicholoff @kris_knicholoff

262 Followers 2K Following

Duchenne Advocate/Rare Disease Activist Mom, Designing Mom-Creating awareness & advocating for approval of safe & effective drugs. Words are always my own.

Terri Ellsworth @TerriEllsworth

2K Followers 2K Following Duchenne Advocate/Rare Disease Activist Mom, Designing Mom-Creating awareness & advocating for approval of safe & effective drugs. Words are always my own.

Live Walls | Moss Art | Plantscapes | Planters | Green Roofs | Artificial Turf & Greenery | Installation | Maintenance Woman-Owned

Naturspire @GreatGrowins

Duchenne Muscular Dystrophy,Disability issues,Greenpeace,Felines,Politics, Gardening,Books,Sunsets,Genealogy,Finding my Tribe,Always learning,Be kind,Ukraine✌🌈

Bird @Lady1bird1

290 Followers 735 Following Duchenne Muscular Dystrophy,Disability issues,Greenpeace,Felines,Politics, Gardening,Books,Sunsets,Genealogy,Finding my Tribe,Always learning,Be kind,Ukraine✌🌈

We are a 501(c)(3) nonprofit public charity raising awareness and educating about breathing muscle weakness in Neuromuscular Disease. Our focus is NIV.

Breathe with MD, Inc. @BreathewithMD

866 Followers 3K Following We are a 501(c)(3) nonprofit public charity raising awareness and educating about breathing muscle weakness in Neuromuscular Disease. Our focus is NIV.

Little Hercules Fdn @LHF_EndDuchenne

738 Followers 1K Following We serve the rare disease community through access advocacy and good policy. Patients and families first.

brian nicholoff @Bpn9211Brian

90 Followers 761 Following

John Owen's Adventure / Raising awareness and research $ for Duchenne Muscular Dystrophy / Don't let Duchenne derail another boy, stop it dead in its tracks

JOA Inc. @JOAInc

337 Followers 109 Following John Owen's Adventure / Raising awareness and research $ for Duchenne Muscular Dystrophy / Don't let Duchenne derail another boy, stop it dead in its tracks

Nationwide Children’s Hospital Video Producer 🦋 Living life to share the many amazing life-saving stories happening at Nationwide Children’s! 🎥

Gretchen Walsh @Gretchen_NCH

3K Followers 2K Following Nationwide Children’s Hospital Video Producer 🦋 Living life to share the many amazing life-saving stories happening at Nationwide Children’s! 🎥

Joining Jack @alljoinjack

61K Followers 2K Following We are joining Jack in the fight to find a cure for duchenne muscular dystrophy. Will you?

Fundraising Co-ordinator, Harrison's Fund, helping to find a cure for Duchenne, Granny to 8, Love Baking, Gardening, Crafts. #MakeTime

Jenni... @Jennijjs

1K Followers 1K Following Fundraising Co-ordinator, Harrison's Fund, helping to find a cure for Duchenne, Granny to 8, Love Baking, Gardening, Crafts. #MakeTime

Bridging the Gap for Mental Health Support. Funding families facing Duchenne (DMD) to access the vital support they require. #TogetherWeRise 💪 #MentalHealth 🧠

Harrison's Fund @HarrisonsFund

3K Followers 2K Following Bridging the Gap for Mental Health Support. Funding families facing Duchenne (DMD) to access the vital support they require. #TogetherWeRise 💪 #MentalHealth 🧠

Janet Bloor @3lurchers

286 Followers 548 Following unregistered barrister - mediator - FMA board member. Fundraiser Duchenne UK. Legal Consultant. Family law. EURORDIS DITA drug task force

Save Our Sons Duchenne Foundation is the peak body for Duchenne muscular dystrophy in Australia to give hope and change lives.

Save Our Sons Duchenn... @SaveOurSons

2K Followers 224 Following Save Our Sons Duchenne Foundation is the peak body for Duchenne muscular dystrophy in Australia to give hope and change lives.

Muscular Dystrophy Australia is the leading peak national organisation providing support and services to the Australian Muscular Dystrophy community.

Muscular Dystrophy Au... @MDAust

535 Followers 165 Following Muscular Dystrophy Australia is the leading peak national organisation providing support and services to the Australian Muscular Dystrophy community.

Stand for Duchenne @DuchenneCanada

222 Followers 50 Following

Jett Foundation @JettFoundation

2K Followers 1K Following Empowering families. Fighting Duchenne muscular dystrophy.

Parent Project aps @Parent_Project

1K Followers 427 Following Associazione italiana di pazienti e di genitori con figli affetti da distrofia muscolare di Duchenne e Becker.

La Force se donne pour mission de rassembler la communauté de la DMD, autour d’un objectif commun : accéder aux nouveaux traitements le + rapidement possible

La Force DMD @LaForceDMD

444 Followers 753 Following La Force se donne pour mission de rassembler la communauté de la DMD, autour d’un objectif commun : accéder aux nouveaux traitements le + rapidement possible

4 Jake's Sake @4jakes_sake

636 Followers 1K Following Our mission is to help families living with Duchenne make their homes and lives accessible.

ern euro_nmd @euro_nmd

2K Followers 686 Following Building bridges and breaking barriers in rare neuromuscular diseases.

#Santhera is passionate about improving the lives of patients suffering from a rare disease. #Duchenne #DMD #neuromuscular #theirfutureourfocus #raredisease

Santhera @Santhera

765 Followers 228 Following #Santhera is passionate about improving the lives of patients suffering from a rare disease. #Duchenne #DMD #neuromuscular #theirfutureourfocus #raredisease

JB's Keys @JBsKeys

286 Followers 205 Following Unlocking the Doors to awareness, treatment, and research for Duchenne Muscular dystrophy.

TREAT-NMD® @TREAT_NMD

4K Followers 542 Following Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world.

Laura McLinn @LauraMclinn

934 Followers 2K Following Founding President, Best Day Ever Foundation. Passion for helping patients access treatments. Duchenne mama bear.

We connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter.

Muscular Dystrophy UK @MDUK_News

17K Followers 3K Following We connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter.

Solid’s mandate is to improve the lives of patients living with devastating neuromuscular and cardiac diseases. #TogetherWeAreSolid

Solid Biosciences @Solid_Bio

2K Followers 206 Following Solid’s mandate is to improve the lives of patients living with devastating neuromuscular and cardiac diseases. #TogetherWeAreSolid

Douglas Ingram @douglas_ingram

729 Followers 26 Following

Commercial-stage biopharma company focused on the discovery & development of precision genetic medicine to treat rare neuromuscular diseases. https://t.co/HFP4txOCxe

Sarepta Therapeutics @Sarepta

6K Followers 62 Following Commercial-stage biopharma company focused on the discovery & development of precision genetic medicine to treat rare neuromuscular diseases. https://t.co/HFP4txOCxe

User-led organisation, campaigning for choice, control & quality of life for adults with #MuscularDystrophy and related conditions. We offer peer support & info

Pathfinders Neuromusc... @PathfindersNMA

2K Followers 423 Following User-led organisation, campaigning for choice, control & quality of life for adults with #MuscularDystrophy and related conditions. We offer peer support & info

Best Day Ever Foundation is a 501(c)(3) raising awareness for Duchenne muscular dystrophy and providing educational support and resources for families.

Best Day Ever Foundat... @BestDayEver513

29 Followers 18 Following Best Day Ever Foundation is a 501(c)(3) raising awareness for Duchenne muscular dystrophy and providing educational support and resources for families.

Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease. We are the leading Duchenne muscular dystrophy charity in the UK.

Duchenne UK @DuchenneUK

5K Followers 922 Following Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease. We are the leading Duchenne muscular dystrophy charity in the UK.

Breathe with MD, Inc. @BreathewithMD

866 Followers 3K Following We are a 501(c)(3) nonprofit public charity raising awareness and educating about breathing muscle weakness in Neuromuscular Disease. Our focus is NIV.

A free summer camp for kids, teens, and adults of all ages with muscular dystrophy and select neuromuscular disorders in Connecticut, Colorado, and Washington.

Camp Promise @camppromise

165 Followers 182 Following A free summer camp for kids, teens, and adults of all ages with muscular dystrophy and select neuromuscular disorders in Connecticut, Colorado, and Washington.

MDC's mission is to help people with neuromuscular disorders live life on their own terms.
#WalkRollMDC #MuscularDystrophy
FR: @Action_Musclee

Muscular Dystrophy Ca... @MD_Canada

5K Followers 1K Following MDC's mission is to help people with neuromuscular disorders live life on their own terms. #WalkRollMDC #MuscularDystrophy FR: @Action_Musclee

Emma Jerred @Em_1978

774 Followers 878 Following Cure Duchenne Muscular Dystrophy xx #TeamSam

FightingBackForJack @Fightingbk4Jack

782 Followers 548 Following Family fundraising group for Muscular Dystrophy UK. Our Muscles Matter

Siobhan F @shivvyneato

46 Followers 148 Following

Media and campaigns organisation dedicated to raising awareness of muscular dystrophy and changing attitudes towards disability.

Muscle Owl @MuscleOwl

8K Followers 3K Following Media and campaigns organisation dedicated to raising awareness of muscular dystrophy and changing attitudes towards disability.

Wife and mother,from Coatbridge in Scotland but now live in London,my aim in life is to find a cure for Jake who has Duchenne Muscular Dystrophy,he is our life

cathie mcguire @cathie0334

606 Followers 407 Following Wife and mother,from Coatbridge in Scotland but now live in London,my aim in life is to find a cure for Jake who has Duchenne Muscular Dystrophy,he is our life

Bird @Lady1bird1

289 Followers 735 Following Duchenne Muscular Dystrophy,Disability issues,Greenpeace,Felines,Politics, Gardening,Books,Sunsets,Genealogy,Finding my Tribe,Always learning,Be kind,Ukraine✌🌈

Little Steps - Associ... @tali_steps

125 Followers 263 Following עמותת צעדים קטנים למען ילדים חולי ניוון שרירים דושן ובקר. Israeli association for Duchenne/Becker MD

Masons Muscles @MusclesMasons

428 Followers 703 Following Mason was 3 when diagnosed with #Duchenne Muscular Dystrophy in Nov 2016. Raising Awareness and Funds for Masons future. Tweets by me, his mum.

Vision-DMD Project @Vision_DMD

487 Followers 143 Following Project aiming to advance clinical development of orphan drug Vamorolone for treatment of DMD.

AnnemiekeAartsma-Rus @oligogirl

3K Followers 456 Following Translating science from bench to bedside and from jargon to lay language

Defending William Aga... @DefndwilliamDMD

182 Followers 348 Following I'm a little boy who was diagnosed with Duchenne Muscular Dystrophy in January 2016. I tweet to raise awareness & funding for DMD. Follow my journey

Who Really Cares? @TheParentCarer

4K Followers 5K Following SEND Mum | Parent Carer | Disability Rights Advocate & Activist | Accessibility & Inclusion Campaigner | Healthcare Equality & Ethics Enthusiast

Destroy Duchenne‘s mission is to Complete the Cure™ for Duchenne muscular dystrophy by advancing gene-editing and gene therapy technologies into human practice.

Destroy Duchenne @destroydisease

526 Followers 122 Following Destroy Duchenne‘s mission is to Complete the Cure™ for Duchenne muscular dystrophy by advancing gene-editing and gene therapy technologies into human practice.

Terri Ellsworth @TerriEllsworth

2K Followers 2K Following Duchenne Advocate/Rare Disease Activist Mom, Designing Mom-Creating awareness & advocating for approval of safe & effective drugs. Words are always my own.

Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement

World Duchenne Organi... @worldduchenne

3K Followers 976 Following Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement

Smile with Shiv @svt_mands

1K Followers 2K Following Our mission, to raise awareness & funds to find a treatment/cure for Duchenne Muscular Dystrophy (DMD). Sadly, we lost our Shiv on 20 Mar 23. Go fly our angel!

Women's Triathlon team promoting education and funding for Duchenne-the #1 fatal genetic disorder diagnosed in childhood-A progressive muscle wasting disease.

Gals For Cal @GalsForCal

584 Followers 2K Following Women's Triathlon team promoting education and funding for Duchenne-the #1 fatal genetic disorder diagnosed in childhood-A progressive muscle wasting disease.

President of Russo Partners, a communications firm that works with innovators in healthcare and technology — and the home of the Sports-Health Alliance

David Schull @davidschull

8K Followers 9K Following President of Russo Partners, a communications firm that works with innovators in healthcare and technology — and the home of the Sports-Health Alliance

Our goal is to cure Duchenne Muscular Dystrophy in time to save Charley's life and the lives of thousands of boys like him.

Charley's Fund @CharleysFund

909 Followers 224 Following Our goal is to cure Duchenne Muscular Dystrophy in time to save Charley's life and the lives of thousands of boys like him.