Action FCS @ActionFCS
Charity working to improve the lives of people affected by Familial Chylomicronaemia Syndrome (FCS), previously called LPLD Alliance actionfcs.org UK Joined February 2017-
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Thank you Prof Lucy Chappell for highlighting our @NIHRcommunity funded project to build a patient led Rare Disease Research Network platform - “a community led approach to rare disease research’ at the @RDRUKHub conference today with @plrh_cambridge
Busy day with more than 70 MEPs attending and pledging their commitment to the Cardiovazcular Health plan #VoteHealth2024. @fhpatienteurope @EUCVHAlliance
Busy day with more than 70 MEPs attending and pledging their commitment to the Cardiovazcular Health plan #VoteHealth2024. @fhpatienteurope @EUCVHAlliance
Thank you @ManfredWeber for stopping by our exhibit! Cardiovascular disease is Europe's leading cause of death. Members of the Parliament, join us this week to learn more about how you can help improve cardiovascular health across Europe! #VoteHealth2024
Advocating for a crucial cause in Strasbourg: supporting the introduction of a Cardiovascular Health Plan across Europe. Cardiovascular disease impacts 60 million lives annually. Vote Cardiovascular Health 2024! @EUCVHAlliance @EPPGroup @psdparleuropeu @ppdpsd
Join our practical webinar focusing on Familial Chylomicronaemia Syndrome (FCS) providing tips and tricks for eating well within the dietary recommendations of >20g fat per day, restricted sugars, no alcohol. #FCSAware2023 @fhpatienteurope Register here us06web.zoom.us/webinar/regist…
Fantastic response to the #FCS10gFatChallenge. Big thanks to those who took the Challenge, but also to those who commented, shared and liked the posts. Raising awareness is key to #diagnosis Understanding its impact highlights support that's needed @fhpatienteurope @society_eas
Thank you for the acknowledgement and for your support. Let’s all work together to find ways to ease the burden @fhpatienteurope
Thank you for the acknowledgement and for your support. Let’s all work together to find ways to ease the burden @fhpatienteurope
Really looking forward to meeting the FH (Familial Hyperlidiaemia) community again, this year including others with FCS. This year we’ll be there with our chair as part of the FH Europe Foundation team! #EngagedforChange @fhpatienteurope
My FCS day of support: Planned having Weetabix for breakfast, only had semi-skimmed milk (would have used 50% 10g) So 4 x Granny Smith apples over the day. 1.5 Litres water, some OJ. Then a lovely Chana Dall dry fried + Guinness Zero, it is Friday. @fhpatienteurope #FCSAware2023
Thanks for your support J-P! Appreciated.
Supper of gnocchi, passata, courgette, onion, garlic, shitake mushroom, herbs and a bit of low-fat ham. Yum! >1.5g fat. Had another coffee, 2 apples and a satsuma, a crumpet and marmelade (2.1g fat). Day total >8g fat #FCS10gFatChallenge #FCSAware2023 @ActionFCS @fhpatienteurope
In the FCS awareness day, how to break hunger while eating less than 10 gr fats per day? Take one or more nice coffees with a drop of oats "milk" and sweetened with stevia extracts... near zero fats! #FCS10gFatChallenge #FCSAware2023 @fhpatienteurope @ActionFCS @FedericaFogacci
Thank you for your support! @afgcicero
Thank you for your support! @afgcicero
Such a great photo!
Today is FCS Awareness Day and I accepted the invitation by @fhpatienteurope to join the #FCS10gFatChallenge and support the FCS community to raise awareness and knowledge about the impact of #FCS has on people living w/ this condition #EASSoMe #FCSAware2023 @ActionFCS
@FedericaFogacci @ActionFCS Fabulous to have you on board for this impactful- real life campaign @FedericaFogacci ! By engaging clinicians & researchers to experience the challenge of a super low fat diet they better grasp the daily challenges people with #FCS & … #HoFH face EVERY DAY beyond eating low fat
Fab photo of Magda - nominated as poster girl for the #FCS10gChallenge #FCSAware2023 @fhpatienteurope
Fab photo of Magda - nominated as poster girl for the #FCS10gChallenge #FCSAware2023 @fhpatienteurope
On this #FCSAwarenessDay we support all our patients, caregivers, and advocates #livingwithFCS and challenge you to take the #FCS10gFatChallenge.

FH Europe Foundation @fhpatienteurope
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