Alport Syndrome Foundation @AlportSyndFndn
Improving patient lives through education, empowerment, advocacy, and research with a vision to conquer #Alportsyndrome. alportsyndrome.org USA Joined August 2010-
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Following705
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Thank you for the opportunity!! @AlportSyndFndn
Thank you for the opportunity!! @AlportSyndFndn
ASF’s Research Program has awarded funding of $132,825 to Drs. @carmen_halabi and @JeffMinerPhD of @WUSTL to study the presence of aortic aneurysms in Alport mice. Learn more: alportsyndrome.org/april-2024-new… #Alportsyndrome
To aid patients in their search for a living kidney donor, ASF gathered input from Alport patients who received a living donor kidney, their donors, & transplant nephrologist Dr. Alexander Wiseman. Read “Considerations When Seeking a Living Kidney Donor”: alportsyndrome.org/wp-content/upl…
Thx to Dr. Michelle Rheault reminding the nephrology world about women with X-linked kidney diseases at ISN World Congress in Buenos Aires!
Preparing to leave for WCN but still living vicariously through @Vanessad884 who is presenting her poster on Alport syndrome at the @wtccmr basement membrane meeting!
Special session kicking start with the #LivingExperience of #AlportSyndrome @AlportSyndFndn, and the importance of #patient #scientist collaboration! @wtccmr #ECMatrix #BasementMembrane
Kidney Cysts in Children with Alport Syndrome: a Report of Three Cases Authors highlight that kidney cysts in adolescents with suspected AS should not discourage clinicians from testing for pathogenic COL4A3–COL4A5 variants buff.ly/3J5sSD9
Take a look at a newly published paper in LSA: Genetic reprogramming with stem cells regenerates glomerular epithelial cells in Alport syndrome @KalluriLab @Val_LeBleu @BCM_InternalMed hubs.la/Q02rwlsS0
Clinical Significance of the Cystic Phenotype in Alport Syndrome buff.ly/43yl5Hj #OpenAccess #VisualAbstract
It's our final #FactFriday of the month. This month, we featured Alport syndrome with the help of @AlportSyndFndn, the most incredible resource for people impacted by Alport syndrome!
We are grateful for the opportunity to interview Rachel, a female living with Alport syndrome & a future genetic counselor! Listen to her full interview including how her diagnosis led her to a career in health care and what she hopes for her future: open.spotify.com/episode/06xTK6…
In this 90-second video, Dr. Bradley Warady (@funsocdoc) of ASF’s Medical Advisory Committee explains why enrolling in the ASF Alport Patient Registry is a simple yet critical step that patients can take to advance #Alportsyndrome research. youtu.be/ZsgHy7HDxdI?fe…
Free access through May 12: Quantitative assessment of glomerular basement membrane collagen IV α chains in paraffin sections from patients with focal segmental glomerulosclerosis and #AlportSyndrome gene variants. @pongpratch authors.elsevier.com/a/1iov5JOcpvJIg
Today we have two facts about women with X-linked Alport syndrome. Thank you to @AlportSyndFndn for providing us with these facts which reflect the most up to date information on how this disease impacts females who are #NOTJUSTCARRIERS.
In our new video, Dr. Caitlin Carter answers patient-submitted questions regarding medications for pre- and post-transplant pediatric #Alportsyndrome patients. Topics include common side effects, dosing considerations, and more. youtu.be/gwLwQIbaN6Y?fe…
This #AlportWorkshop shows how rapidly drug development has moved forward in this space At the 1st workshop 10yrs ago, they were no treatments known to be efficacious & no industry partners present Real & ongoing progress from the Alport community is definitely fuelling this
Having a great time at the #AlportWorkshop in Nicosia! ☀️ showing some data that throws the glycocalyx into the mix as a contributor to proteinuria in Alport Syndrome & pregnancy! 🤰
Though an estimated 850 million people worldwide live with kidney disease, there is hope for improving #KidneyHealthforAll. In honor of #WorldKidneyDay, KDIGO has released the new CKD Guideline. "We now have effective treatments proven in randomized trials to not only…
Just out today, #WorldKidneyDay2024 and start of the #AlportSyndrome Workshop in Cyprus, Open Access article: Alport syndrome and Alport kidney diseases – elucidating... : Current Opinion in Nephrology and Hypertension journals.lww.com/co-nephrolhype… @pongpratch
It's Friday, which means it's time for another #FactFriday! This month we are partnering with @AlportSyndFndn on our Carrier Connections program to raise awareness of X-linked Alport syndrome and how females are impacted.
Michelle Rheault @rheault_m
15K Followers 5K Following Ped nephrologist, Division director #NephJC Opinions my own COI: Chinook,Travere,ELOXX, R3R,Aurinia,Otsuka. Alis volat propriis.(she/her) Pronounced “row”
Joel M. Topf, MD FACP @kidney_boy
62K Followers 4K Following Saying the product of the kidneys is urine is like saying the product of a factory is pollution. Urine is a by-product. The product is homeostasis COI: link👇🏼
𝐉𝐨𝐬𝐞𝐩�.. @drjosflynn
7K Followers 1K Following Division Head, Nephrology @seattlechildren /Editor in Chief, @Ped_Neph /Past-President, @ASPNeph / He/Him/His 🏳️🌈 / All opinions are my own.
CJASN @CJASN
28K Followers 1K Following The leading voice for the latest advancements in clinical nephrology. Official publication of @ASNKidney. Impact Factor 9.8.
American Society of P.. @ASPNeph
10K Followers 670 Following Promoting optimal care for children with kidney disease through advocacy, education & research; and disseminating advances in clinical practice & investigation
Women In Nephrology @womeninnephro
9K Followers 4K Following WIN strives to help women advance in the field of nephrology and also advocates for education and research relevant to women. 🏳️🌈🏳️⚧️ #womeninnephrology
Arkana Laboratories @arkanalabs
10K Followers 2K Following Arkana Laboratories is a center for esoteric pathology focused on one thing: improving care for patients.
Katalin Susztak @KSusztak
6K Followers 3K Following Physician-scientist at the University of Pennsylvania. Determined to understand chronic kidney disease development
Matthew Sparks, MD @Nephro_Sparks
21K Followers 7K Following PD @DukeKidney & @VADurham|@RenalFellowNtwk|@ASNKidney Comm Dir|@NephJC|#NephMadness creator|#NSMC APD|@kidneynews|@Neph_SIM Ad Board|🏳️🌈ally
Ben Humphreys @HumphreysLab
6K Followers 2K Following Humphreys Lab: Stem Cell and Regenerative Biology of the Kidney -- Views my own, He/Him/His, COI: Chinook, Janssen, Pfizer
Jeffrey H. Miner @JeffMinerPhD
2K Followers 294 Following Professor, Washington Univ. in St. Louis. Interests: ECM, kidney (Alport & Pierson syndromes), podocytes, and cytoskeleton. I'm a Missouri Cynic: Show Me!
Gary Singer @GarySing.. @GarySingerMD
5K Followers 4K Following Husband, father of 4, #nephrologist #HomeDialysis #Transplant advocate Tweets ≠ medical advice & retweets ≠ agreement #NephTwitter 🇨🇦 🇺🇸 🟦 🎗️
Kevin J. Fowler Princ.. @gratefull080504
5K Followers 3K Following Consulting business: recruiting early intervention kidney disease + kidney transplant trials;Moved from Chicago back home to STL; Move treatment of CKD upstream
Mohamed H. Hassanein .. @kidneymo
3K Followers 2K Following Kidney MD FACP FNKF FASN @UMMCneph via @CleClinicKidney | @GlomCon | 🇪🇬 | Son of a legendary father | Tweets mine & ❌ medical advice | استشاري امراض الكلى
Shweta Shah M.D; FASN @nefron1310
1K Followers 1K Following Pediatric Nephrologist | Pinterest mom | Kathak dance learner | #ASPN FOAMed @littlebeans22 |#NSMC2021 #NephTwitter @IPNAJC
Tiffany Caza @Tiff_Caza
4K Followers 2K Following I am a kidney pathologist, researcher, and life-long learner seeking personal and professional growth. I work @arkanalabs, but tweets are my own opinion.
Rachel Lennon @RLWczyk
2K Followers 943 Following Paediatric Nephrologist/ Director of the Wellcome Centre for Cell-Matrix Research/ Runner/ Cyclist/ Manchester UK/: views are my own.
sidsdoc @sidsdoc
4K Followers 4K Following Pediatric Nephrologist & Renal Transplant Physician at Medanta The Medicity Hospital, India. Passionate for Critical Care Pediatric Nephrology & Transplant!
Ibrahim Shatat @pedsnephrology
1K Followers 705 Following
NKF Advocacy @NKF_Advocacy
3K Followers 529 Following We work with Congress, federal agencies, and states to further legislation and regulations that improve care for kidney disease patients. #MyKidneyVoice
FaustoMarinez @FaustoM98106
33 Followers 1K Following
Carmen Halabi @carmen_halabi
208 Followers 171 Following
Liz Drew @LizzieDrew
19 Followers 86 Following
Hassan Saei @HassanSaei
112 Followers 220 Following Ph.D. candidate @InstitutImagine 🇫🇷 #genetics #nephrology #Omics #stemcell
EVIL @EVILScienceUoN
300 Followers 409 Following Endothelial and Vascular Imaging Laboratory at the University of Nottingham Centre of Cancer Sciences. Defining world-leading research since 2017.
A⭐️ @MrsKunene08
165 Followers 793 Following
Elizabeth Fieg (she/h.. @ElizFiegCGC
1K Followers 1K Following Senior genetic counselor and program manager @BrighamWomens, Harvard Undiagnosed Diseases Network site coordinator, Gattaca understudy. Tweets are my own.
Susan Twardy @SusanTward37370
88 Followers 5K Following
Abdelhamid Hamdy @abdelhamed012
2K Followers 5K Following اللهم إنى أسألك اليقين والعافية nephrologist.MRCP
Hisako Schellhammer @HSchellham74471
73 Followers 5K Following
8vboua8anvdksl @lalcbgb6ty38
12 Followers 385 Following You are now invited to join a (cryptocurrency) discussion group created by an international team of financial analysts. ws link:https://t.co/Y8RzscQXwR
anneokendrick @anneokendrick
0 Followers 48 Following
Eileen_ @Eileen133694656
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Irina Marcovich @irinamarcovich
190 Followers 746 Following
Ryan Hansford @HansfoRya
49 Followers 5K Following
Cassandra Hodell @hodel_cassan
25 Followers 5K Following
Ivabradina @Ricardo37380988
335 Followers 3K Following Interested in: Internal medicine || Infectious diseases || Neuroendocrinology || Research || Sporting/Off-roading vehicles ll History II Geography 🇲🇽
Debora Gisch @DeboraGisch
291 Followers 2K Following Postdoctoral Indiana University School of Medicine https://t.co/65M5jlKaKH
Jennifer Christian @Jennife57557193
6 Followers 99 Following
Milena Rzodkiewicz @mirzo624
3 Followers 58 Following
Alexandra Raisman @Aly_Raisman
979K Followers 649 Following 💙 Use social media to spread kindness 🤗 Take time for yourself 🦋 Author of FIERCE & new children’s book From My Head To My Toes [email protected]
Leases @leases6595
27 Followers 2K Following
Ariosto Lugo @ariosto_lugo
22 Followers 173 Following
Lola-rose Bendu @BenduLola
54 Followers 5K Following
Ashley Semonick @ASemonick87156
43 Followers 5K Following
Sesmough @sesmough13775
63 Followers 1K Following I live alone now and enjoy business, traveling, shopping, food and music. I have a calm personality and I hope we can be friends.
Shaste @Shaste516987
75 Followers 1K Following I live alone now and enjoy business, traveling, shopping, food and music. I have a calm personality and I hope we can be friends.
Shothi @shothi32873
28 Followers 1K Following I live alone now and enjoy business, traveling, shopping, food and music. I have a calm personality and I hope we can be friends.
Seeser @Seeser555171
28 Followers 1K Following I live alone now and enjoy business, traveling, shopping, food and music. I have a calm personality and I hope we can be friends.
Teshese @teshese77635
40 Followers 1K Following I live alone now and enjoy business, traveling, shopping, food and music. I have a calm personality and I hope we can be friends.
Tracy Woodham - IHDT .. @punc17tracyw
410 Followers 281 Following Registered Nurse after completing the Nursing Associate post and stepping onto the Adult Nursing Degree - not bad for a 53 year old!
Tika Tkemaladze @TikaTkemaladze
308 Followers 491 Following Clinical geneticist, Head of the Department of Molecular and Medical Genetics, Tbilisi State Medical University, ESHG board member, FDNA scientific board member
Cindy Novak DeLaurell @CindyJNovak
126 Followers 330 Following Warbirds, tanks, family. My heart lives at KCNO & POF. RiseUp Project. Pharma IT, Public Speaking, trying to make my small bit of the world a better place.
dana @dana4181266754
5 Followers 102 Following
Health Equity in Tran.. @transplants4all
147 Followers 97 Following We are focused on restoring Medicare coverage for non-invasive transplant patient blood tests to detect early signs of organ rejection.
Nargess Khalilgharibi @NargessKGharibi
220 Followers 520 Following Biophysicist @YanlanMao lab @MRC_LMCB @UCL | Interested in tissue mechanics | #preLighter
manjusha a @manjusha_a
436 Followers 440 Following Pediatric Nephrologist Holy Cross Hospital Kollam Kerala #nephrology #learnerforever
Tom Oates @jfnephlolz
1K Followers 791 Following Nephrologist in London @NHSBartsHealth. Still do a bit of Gen Med. Frusemide is not nephrotoxic.
Caitlyn Vlasschaert @DrFlashHeart
3K Followers 3K Following MD/PhD • Nephrology, genetics, and clonal hematopoiesis 🧬 • Internal medicine resident, recent PhD grad, and new mom • @NSMCinternship grad → exec
Janewit Wongboonsin, .. @janewitwong
1K Followers 1K Following Kidney doc @BWHkidney @MGHkidneys |CMR @umnmedresidency| MS @PublicHealthUMN | @Clingenresource biocurator | Bringing Genomics medicine to Thai kidney patients
Katsu Funai @KatsuFunai
4K Followers 2K Following Japanese scientist, dad of five boys, Daft Punk & Chelsea | Funai Lab @ Utah | 船井 勝彦
Dr. Louise Oni @louise_oni
2K Followers 3K Following U.K Senior Lecturer & honorary NHS consultant in paediatric nephrology with interest in renal inflammatory diseases. All comments are personal opinion.
Michelle Rheault @rheault_m
15K Followers 5K Following Ped nephrologist, Division director #NephJC Opinions my own COI: Chinook,Travere,ELOXX, R3R,Aurinia,Otsuka. Alis volat propriis.(she/her) Pronounced “row”
Joel M. Topf, MD FACP @kidney_boy
62K Followers 4K Following Saying the product of the kidneys is urine is like saying the product of a factory is pollution. Urine is a by-product. The product is homeostasis COI: link👇🏼
AJKD @AJKDonline
41K Followers 4K Following The American Journal of Kidney Diseases is the official journal of @nkf | 2022 Impact Factor: 13.2 | https://t.co/4McxH1FImg | https://t.co/jbvs9ghvKP
𝐉𝐨𝐬𝐞𝐩�.. @drjosflynn
7K Followers 1K Following Division Head, Nephrology @seattlechildren /Editor in Chief, @Ped_Neph /Past-President, @ASPNeph / He/Him/His 🏳️🌈 / All opinions are my own.
Pediatric Nephrology @Ped_Neph
6K Followers 294 Following Original clinical research and reviews on all aspects of acute & chronic diseases affecting kidney function in children. Official journal of IPNA @IPNA_PedNeph
CJASN @CJASN
28K Followers 1K Following The leading voice for the latest advancements in clinical nephrology. Official publication of @ASNKidney. Impact Factor 9.8.
American Society of P.. @ASPNeph
10K Followers 670 Following Promoting optimal care for children with kidney disease through advocacy, education & research; and disseminating advances in clinical practice & investigation
Int Society of Nephro.. @ISNkidneycare
26K Followers 473 Following International Society of Nephrology #ThisIsISN • World Congress of Nephrology: @ISNWCN • ISN Frontiers Meetings: #ISNFrontiers • Young Nephrologists: #ISNyoung
Women In Nephrology @womeninnephro
9K Followers 4K Following WIN strives to help women advance in the field of nephrology and also advocates for education and research relevant to women. 🏳️🌈🏳️⚧️ #womeninnephrology
Arkana Laboratories @arkanalabs
10K Followers 2K Following Arkana Laboratories is a center for esoteric pathology focused on one thing: improving care for patients.
Nephrology Journal Cl.. @NephJC
36K Followers 1K Following A twice monthly nephrology journal club that meets on Twitter. Hashtag #NephJC
World Kidney Day @worldkidneyday
25K Followers 1K Following World Kidney Day's objective is to raise awareness globally of the importance of Kidney Health and to increase screening for chronic kidney disease
Katalin Susztak @KSusztak
6K Followers 3K Following Physician-scientist at the University of Pennsylvania. Determined to understand chronic kidney disease development
Matthew Sparks, MD @Nephro_Sparks
21K Followers 7K Following PD @DukeKidney & @VADurham|@RenalFellowNtwk|@ASNKidney Comm Dir|@NephJC|#NephMadness creator|#NSMC APD|@kidneynews|@Neph_SIM Ad Board|🏳️🌈ally
JASN_News @JASN_News
22K Followers 1K Following The leading kidney journal in the world. Official publication of @ASNKidney. Impact Factor 13.6.
Ben Humphreys @HumphreysLab
6K Followers 2K Following Humphreys Lab: Stem Cell and Regenerative Biology of the Kidney -- Views my own, He/Him/His, COI: Chinook, Janssen, Pfizer
Jeffrey H. Miner @JeffMinerPhD
2K Followers 294 Following Professor, Washington Univ. in St. Louis. Interests: ECM, kidney (Alport & Pierson syndromes), podocytes, and cytoskeleton. I'm a Missouri Cynic: Show Me!
ASN Kidney360 @ASNKidney360
11K Followers 2K Following Covering a 360° view into nephrology advancements. Global, peer-reviewed, open-access, and online only. Official publication of @ASNKidney.
Swapnil Hiremath @hsw.. @hswapnil
22K Followers 5K Following Nephrologist = kidney doc, #NephJC cofounder; Work @OttawaHospital @UOttawa; No PhrMA conflicts; QT hater; MPH 🤷🏽♂️; He/Him/His; @FreelyFiltered panelist
Kevin J. Fowler Princ.. @gratefull080504
5K Followers 3K Following Consulting business: recruiting early intervention kidney disease + kidney transplant trials;Moved from Chicago back home to STL; Move treatment of CKD upstream
Carmen Halabi @carmen_halabi
208 Followers 171 Following
Lorna Milne @lornakmilne
226 Followers 307 Following final year PhD student @UoN_BDI | imaging mass spec, glycobiology & renal disease 🍬
Creative-Med-Doses @Creativemeddose
15K Followers 409 Following Increasing visual memory and fun in medicine by creating engaging visual art, comics and cartoons #Meded #usmle #FOAMed, https://t.co/Vtkep6z41m
Alexandra Raisman @Aly_Raisman
979K Followers 649 Following 💙 Use social media to spread kindness 🤗 Take time for yourself 🦋 Author of FIERCE & new children’s book From My Head To My Toes [email protected]
KidneySK @KidneySk
135 Followers 284 Following The Kidney Foundation of Canada is the national volunteer organization committed to reducing the burden of kidney disease.
Roser Torra @torra_roser
3K Followers 2K Following nephrologist, President elect of @ERAkidney @FPuigvert @UABBarcelona @IRSantPau, FERA, enthusiastic about genetic kidney diseases, enjoying life, views my own
Caitlyn Vlasschaert @DrFlashHeart
3K Followers 3K Following MD/PhD • Nephrology, genetics, and clonal hematopoiesis 🧬 • Internal medicine resident, recent PhD grad, and new mom • @NSMCinternship grad → exec
Mónica Furlano @m_furlano
795 Followers 367 Following Nephrologist, Inherited kidney diseases working group @SENefrologia, @FPuigvert, @EuRefNetwork @UABarcelona 🌟
Stephen Decker @decker_st
273 Followers 704 Following Dad | Physiologist | Postdoc @KatsuFunai studying Alport Syndrome (XLAS) | PhD @UMassO2MLab | Mitochondria are my first love | Views are my own, no endorsements
Kaye E Brathwaite MD @KayeBrathwaite
680 Followers 855 Following Pediatrician. Nephrologist. Kid Advocate. @GlomCom 21. Physician Scientist.
Kaitlyn Deggs @DeggsTV
174 Followers 82 Following @gaylordcollege Alum. Dallas native. Multimedia Journalist for @NewsOn6. Probably running, traveling, or watching college sports. [email protected].
International Society.. @ISGDtweets
1K Followers 731 Following We're a professional society for glomerular disease experts. Founded 2022. President: @Tobias_B_Huber También en español: @ISGD_la
Penn @Penn
218K Followers 1K Following Official profile for news, events and interesting updates from the University of Pennsylvania. Account managed by University Communications.
AlessiaFornoni @MiamiAlessia
279 Followers 119 Following Professor of Medicine. Nephrology Division Chief. Drug Discovery Director. MSTP associate Director. CTSI KL2 director. Addicted to innovation!
Alex Chang, MD, FASN,.. @alexchangmd
2K Followers 1K Following Associate professor, clinician-scientist/dad/husband interested in early prevention/treatment of kidney disease @geisinger @geisingerRsrch tweets=personal views
TJ Mayfield @tjmayfield_
778 Followers 248 Following 328 | If it ain’t beneficial, it’s artificial | Job 13:15 | *Views expressed here are my own*
Karger Publishers @KargerPublisher
3K Followers 409 Following Connecting People and Science #KargerPublishers #publishing
The UK Kidney Associa.. @UKKidney
12K Followers 656 Following The leading professional body for the UK kidney community. Dedicated to improving lives by supporting professionals in the delivery of kidney care & research.
USD @uofsandiego
15K Followers 164 Following Welcome to the official X account of the University of San Diego.
RareDiseaseDiversityC.. @rarediseasediv1
163 Followers 45 Following
Ask Renal @Ask_Renal
1K Followers 231 Following The new #AskRenal bot. Crowdsourcing answers to Nephrology questions! A @nephjc initiative, based @UAlberta #Academic a/c. Bot Questions? DM - @dr_nikhilshah
Cathy Quinlan @CathyQ.. @KidneyCathy
4K Followers 2K Following @[email protected] Academic paediatric nephrologist with a relentless desire to learn and end #kidneyfailure for kids. Melbourne RCH/MCRI/UoM ☘️🇦🇺
Stony Brook Nephrolog.. @SBNephrology
277 Followers 322 Following
Gabrielle Gordon @UrineLuck_G
176 Followers 570 Following Donor Derived Cell-Free DNA & Renal Genetics Consultant in the Northeast
Natera @NateraGenetics
14K Followers 3 Following Our cell-free DNA tests help inform more personalized health care decisions 🧬 Follow us: @NateraOncology @NateraWomen @NateraNeph
Silvia Ferrè, PhD @SilviaFerre_it
564 Followers 2K Following Clinical Scientist | Been: @NKF @UTSWNephrology @Radboudumc | Made in Italy | Views my own
Eloxx Pharmaceuticals @eloxx_pharma
175 Followers 32 Following Clinical-stage biopharmaceutical company developing novel RNA-modulating drug candidates to treat rare and ultra-rare premature stop codon diseases.
Medscape Kidney @MedscapeKidney
5K Followers 663 Following Medscape Nephrology provides you with breaking medical news; reference on drugs, diseases, and procedures; and free CME.
Lauren Drew @GrassrootsDrew
594 Followers 973 Following Recovering Attorney, NJ Transplant, Dir. of Congressional Relations @nkf_advocacy, formerly of @HospiceAction Network. #livingdonor Opinions are mine alone.
New York Times Opinio.. @nytopinion
802K Followers 1K Following We amplify voices on the issues that matter to you. | Tell us what you think: [email protected]
Genetic Counselors @GeneticCouns
15K Followers 641 Following National Society of Genetic Counselors (NSGC) is the leading voice, authority and advocate for the genetic counseling profession. RT does not equal endorsement.
Gbadegesin Lab @GbadegesinLab
1K Followers 1K Following Peds kidney Doc, Physician Scientist, Assoc Dean PSD @DukeMedSchool. Leveraging kidney genomics to discover effective & safe therapy for nephrotic syndrome.
UPenn Million Dollar .. @MDBRide4Rare
1K Followers 400 Following Riding for rare disease research since 2014! Check us out! https://t.co/KmHVtNwzXA
WUSM Department of Me.. @WUDeptMedicine
3K Followers 503 Following Recognized Leaders in Medicine -- For more than a century, we have fostered a tradition of excellence in patient care, education and research.
CTTI @CTTI_Trials
3K Followers 610 Following Mission: Develop & drive adoption of practices that increase quality/efficiency of #ClinicalTrials. Follows/RTs ≠ endorsements #InnovationThroughCollaboration
GeneDx @GeneDx
7K Followers 839 Following GeneDx is paving the way for faster diagnoses and more precise care plans through genomic and clinical insights.
Afton DeLucca @AftonDelucca
21 Followers 95 Following Mom | Patient Engagement Coordinator| Alport syndrome patient | Bird enthusiast
Pulse Infoframe @pulseinfoframe
620 Followers 1K Following Accelerating science and research with real world evidence, from real patients, in real time. #realworldevidence #raredisease #cancer
Mary-Beth Roberts, MS.. @therenalgc
357 Followers 443 Following Genetic counselor. Passionate about #RenalGenetics. Renal SIG co-founder. Views are my own. 🇳🇿 in 🇺🇲 https://t.co/Os0hx4LuQu
Podocyte2021 @podocyte2021
678 Followers 714 Following 13th International Podocyte Conference, Manchester UK 🐙 #podocyte2021
VICTOR SANNA 🇻🇪.. @VICTORSANNA
3K Followers 5K Following Pediatric Nephrologist Valencia-Venezuela. 5th place #NephMadness2023 7th place #NephMadness2020 Top 10 influencer for Nephrology 2020 and 2021
M Abdul Qader🇧🇩 @md_abdulqader83
1K Followers 3K Following Nephro Paediatrician @squarehospital | Clinical Fellow (NUH, Singapore) | #NSMC 2021 | #SoMe | #Communication @IPNA_PedNeph | #Junior council @asian_PNA
Sudha Mannemuddhu, MD.. @drM_sudha
2K Followers 1K Following Nephrologist @EastTNChildrens I Asst. Prof @UTKnoxville MedicalCenter I #PedNephSG @ASPNeph #ASPNFOAM | @littleBeans22 @IPNAJC @NSMCInternship tweets≠med advice
IPNA Journal Club �.. @ipnajc
1K Followers 378 Following IPNA Journal Club Initiative by @IPNA_PedNeph Communications & #SoMe committee
Thank you for the opportunity!! @AlportSyndFndn
ASF’s Research Program has awarded funding of $132,825 to Drs. @carmen_halabi and @JeffMinerPhD of @WUSTL to study the presence of aortic aneurysms in Alport mice. Learn more: alportsyndrome.org/april-2024-new… #Alportsyndrome
@brian_rifkin @YaleNephrology @brewster_ursula It’s lovely here!
Looking forward to joining @YaleNephrology tomorrow to talk about hyponatremia! (Just kidding. It’s on Alport Syndrome. It’s always on Alport Syndrome)
Looking forward to ISN #WCN2024 Buenos Aires! Check out moderated posters on 1) Molecular diagnostic yield 4 Alport Syndrome phenotypes @janewitwong @kidneyomicsamps @AndrewMallett8 WCN24-AB-478 (SUN-116) and 2) opportunities to improve hematuria eval WCN24-AB-1303 (SUN-191)
Big congrats to Kaye Brathwaite @KayeBrathwaite for winning a travel award for her #AlportSyndrome research at the @amsocmatbio Basement Membranes workshop in Manchester @AlportSyndFndn @RLWczyk @WUSTLPeds
Thx to Dr. Michelle Rheault reminding the nephrology world about women with X-linked kidney diseases at ISN World Congress in Buenos Aires!
Clinical Significance of the Cystic Phenotype in Alport Syndrome buff.ly/43yl5Hj #OpenAccess #VisualAbstract
Kidney Cysts in Children with Alport Syndrome: a Report of Three Cases Authors highlight that kidney cysts in adolescents with suspected AS should not discourage clinicians from testing for pathogenic COL4A3–COL4A5 variants buff.ly/3J5sSD9
One of the cool projects I’m so happy I contributed to during my postdoc in the @KalluriLab In this study led by @Val_LeBleu we identified the cellular origin of the fibrotic #Alport syndrome and uncover a regenerative mechanism mediated by a horizontal genetic reprogramming
Podocytes are the rate-limiting glomerular cells for type IV collagen chain production, and horizontal gene transfer or cell fusion with stem cells rescues the renal phenotype in Alport syndrome @KalluriLab @Val_LeBleu @BCM_InternalMed bit.ly/4cIvIvs
Podocytes are the rate-limiting glomerular cells for type IV collagen chain production, and horizontal gene transfer or cell fusion with stem cells rescues the renal phenotype in Alport syndrome @KalluriLab @Val_LeBleu @BCM_InternalMed bit.ly/4cIvIvs
Take a look at a newly published paper in LSA: Genetic reprogramming with stem cells regenerates glomerular epithelial cells in Alport syndrome @KalluriLab @Val_LeBleu @BCM_InternalMed hubs.la/Q02rwlsS0
Enjoyed exploring Manchester 🇬🇧 on my first day, especially the university campus. Excited for the ASMB 2024 workshop on basement membranes and to start proteomics project with Rachel's team @RLWczyk next week! @amsocmatbio #AlportSyndrome #Manchester
Special session kicking start with the #LivingExperience of #AlportSyndrome @AlportSyndFndn, and the importance of #patient #scientist collaboration! @wtccmr #ECMatrix #BasementMembrane
Preparing to leave for WCN but still living vicariously through @Vanessad884 who is presenting her poster on Alport syndrome at the @wtccmr basement membrane meeting!
My children’s book From My Head To My Toes comes out April 2 😊 Hope it’s a reminder that your body is your own & your voice is powerful 🤍 Of course, I had to include my dog Mylo in it :) Thank you, Bea Jackson! So many people helped make this book happen, so appreciative of…
It's our final #FactFriday of the month. This month, we featured Alport syndrome with the help of @AlportSyndFndn, the most incredible resource for people impacted by Alport syndrome!
We are grateful for the opportunity to interview Rachel, a female living with Alport syndrome & a future genetic counselor! Listen to her full interview including how her diagnosis led her to a career in health care and what she hopes for her future: open.spotify.com/episode/06xTK6…
Over the moon that this is finally out!💫 Fortunate to have assembled the absolute dream team to help answer some really important questions about pregnancy/Alport Syndrome! Can't wait to get started!!
New grant success 🎉 Dr @KentonArkill, and team awarded at the £170,000 grant @UoN_BDI to investigate how pregnancy impacts kidney health in people with Alport syndrome. @lornakmilne @EVILScienceUoN @drmatthall @MerryLabNotts Full article below 👇 bit.ly/43CSmRx
Many congratulations!!🎉 #WeAreBDI #AlportSyndrome
New grant success 🎉 Dr @KentonArkill, and team awarded at the £170,000 grant @UoN_BDI to investigate how pregnancy impacts kidney health in people with Alport syndrome. @lornakmilne @EVILScienceUoN @drmatthall @MerryLabNotts Full article below 👇 bit.ly/43CSmRx
New grant success 🎉 Dr @KentonArkill, and team awarded at the £170,000 grant @UoN_BDI to investigate how pregnancy impacts kidney health in people with Alport syndrome. @lornakmilne @EVILScienceUoN @drmatthall @MerryLabNotts Full article below 👇 bit.ly/43CSmRx
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