Appendix Cancer/PMP @AppendixPMP

Joined August 2017

Tweets

43
Followers

182
Following

74
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130

Pseudomyxoma Survivor @PMPSurvivor

3 years ago

If you love our work then tell the world! Won’t you help us raise visibility for our work by posting a brief story of your experience with us? It’s easy and only takes a few minutes. Go here to get started: greatnonprofits.org/reviews/write/…

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Appendix Cancer/PMP @AppendixPMP

4 years ago

By being bold, wise, hard and tough, we will be stronger. #withyoueverystepoftheway #appendixcancer #pmpsurvivor #pseudomyxomaperitonei

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Appendix Cancer/PMP @AppendixPMP

4 years ago

"...you gotta be tough..." No one said this was going to be easy, you need to be tough to dealwith it but our community is here to help and support you. #appendixcancer #pmpsurvivor #pseudomyxomaperitonei

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Appendix Cancer/PMP @AppendixPMP

4 years ago

"...You gotta be hard..." You have to be hard on those around you and times and learn when to just say no. We can't do everything and it isn't a failing to admit that. #appendixcancer #pmpsurvivor #pseudomyxomaperitonei

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Appendix Cancer/PMP @AppendixPMP

4 years ago

..."you gotta be bold You gotta be wiser..." as patients, we have to be bold and ask those questions and be wiser and learn about our disease so that we can be better advoctes for our own health care. #appendixcancer #pmpsurvivor #pseudomyxomasurvivor

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Appendix Cancer/PMP @AppendixPMP

4 years ago

"You gotta be bad you gotta be bold You gotta be wiser you gotta be hard You gotta be tough you gotta be stronger" Whilst we don't hold with being bad, these lyrics from Des'ree sum up for us how we have to be as patients... How have you become stronger since your diagnosis?

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Pseudomyxoma Survivor @PMPSurvivor

4 years ago

It is with a heavy heart that we share that our friend and colleague, Dr Georgina Morgan has died. We have been honoured to have Georgina as a Trustee here at Pseudomyxoma Survivor for over two years. - Susan, Chair @PMPSurvivor pseudomyxomasurvivor.org/georgina/

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Appendix Cancer/PMP @AppendixPMP

4 years ago

These lyrics from a song by Sara Bareilles remind us that sometimes we bottle up our feelings and it can be better to find someone to share just how brave you are by discussing them instead. Do you have someone to be brave with? #appendixcancer #pmpsurvivor #peudomyxomaperitonei

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Appendix Cancer/PMP @AppendixPMP

5 years ago

Happiness is a choice ~ Valerie Bertinelli

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Omer Aziz @azizosurgeon

5 years ago

Pilot RCT shows prehab with wearables improves functional capacity before CRS/HIPEC & major cancer surgery. Thanks ⁦@PMPSurvivor⁩. Planning a multicentre RCT. Please get in touch if interested. ⁦@prehab4cancer⁩ ⁦⁦⁦⁦@SPeritoneum⁩ link.springer.com/article/10.100…

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Anne Marie Davy 🏴󠁧󠁢󠁳󠁣󠁴󠁿🇮🇪🇪🇺💛💙🌊 @AnneMarie_Davy

5 years ago

Organisations can't prevent use of accessible bathrooms as not all disabilities are visible. @invisibledisab2 @sunflwrlanyards @bowelbabe @so_bad_ass @IrishCancerSoc @PMPSurvivor @acpmpresearch @AppendixPMP @CrohnsColitisUK @bowelcanceruk @BowelDiseaseUK irishtimes.com/news/ireland/i…

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Pseudomyxoma Survivor @PMPSurvivor

5 years ago

Why Me? We all ask ourselves this when we receive a diagnosis of #pseudomyxomaperitonei or #appendixcancer. If you've looked after yourself, eaten well and are a non-smoking, teetotaller marathon runner, you must feel particularly perplexed. #pmpsurvivor #pmpcancer #pmpawareness

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Pseudomyxoma Survivor @PMPSurvivor

5 years ago

Are you excited by the work @PMPSurvivor does? Do you share our values? Think you can take active part in the work of our Board? We want to hear from you! pseudomyxomasurvivor.org/were-looking-f… #giveyourtime #dosomegood #pseudomyxomaperitonei #appendixcancer #trustees

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Pseudomyxoma Survivor @PMPSurvivor

5 years ago

So excited to share our upcoming workshops for those being affected by #pseudomyxomaperitonei and #appendixcancer. Online and facilitated by Dr Jason Spendelow and @PMPSurvivor. Follow the link to find out more, including how to book your reservation - mailchi.mp/pseudomyxomasu…

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Pseudomyxoma Survivor @PMPSurvivor

5 years ago

"Men can be stubborn when it comes to admitting they need to see a doctor." ~ Richard bit.ly/richardpmp

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Pseudomyxoma Survivor @PMPSurvivor

5 years ago

"I’m getting stronger every day physically. I put on a few pounds and the feeling of tightness in my abdomen has subsided." ~ Marty bit.ly/2JNBZLl

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Pseudomyxoma Survivor @PMPSurvivor

5 years ago

"Stop stressing. Stress can kill you. Don’t let others stress you out. I have become very protective of my emotions." ~ Becky bit.ly/31jEB8U

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Appendix Cancer/PMP @AppendixPMP

5 years ago

How many twenty year olds can expect to be a cancer patient? Then you find out it's a rare cancer. That's how SLee13 felt. pseudomyxomasurvivor.org/too-young-for-… #appendixcancer #pseudomyxomaperitonei j.mp/3kjgq43

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Pseudomyxoma Survivor @PMPSurvivor

5 years ago

So pleased to share that we're supporting exciting new research into the biology of #pseudomyxomaperitonei (PMP). The study is collaboration between @BasingstokePmi and Cancer Sciences Unit, @unisouthampton More @ link ow.ly/huA050Bpgjz #appendixcancer #pmpsurvivor