Biomedical Ethics Research Group @BERG_MCRI
Official account of the Biomedical Ethics Research Group, Murdoch Children's Research Institute. Views expressed are our own and do not represent those of MCRI. mcri.edu.au/biomedicalethi… Melbourne, Australia Joined October 2018-
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Check out our new paper where we analysed submissions sent to the Senate Committee that informed drafting of the Mitochondrial Donation Law Reform (Maeve’s Law) Bill 2021 @JemimaAllen_ @DanyaVears @MCRI_for_kids @UniMelbMDHS link.springer.com/article/10.100…
Check out the new position statement by the Human Genetic Society of Australasia on Genetic Carrier Testing for Recessive Conditions led by @DanyaVears with @biomedethics @Amcinerneyleo @jacobs_chrisj and Jackie Boyle doi.org/10.1017/thg.20…
New research analysing the first porcine cardiac xenotransplantation, with BERG’s Chris Gyngell, @konstantinov_ie, @juliansavulescu, Prof Megan Munsie, Prof Misao Fujita, and Dr. Carrie Thiessen. jme.bmj.com/content/early/…
Looking at some of the issues around overdiagnosis/misdiagnosis of ADHD through the lens of an ethicist. Great to work with @CPAGyngell and Jonathan Payne on this. Hope it stimulates conversation @UniMelbMDHS #ADHD sciencedirect.com/science/articl…
Huge thanks to the #ESHG2023 organisers for letting @CelineLewis23 and I on the decks at the conference party and to the attendees for bringing their best moves to the D-floor! We had the best time 😁
Huge thanks to the #ESHG2023 organisers for letting @CelineLewis23 and I on the decks at the conference party and to the attendees for bringing their best moves to the D-floor! We had the best time 😁
New Position Statement issued by @HGSAAustralasia providing guidance on genetic carrier testing for recessive conditions in adults and children cambridge.org/core/journals/…
New paper out by @KatieArkell10 @DanyaVears @ZornitzaS and Chris Gyngell on ethical issues relating to use of rapid genomic sequencing in critically ill children mdpi.com/2227-9067/10/5… @MCRI_for_kids @UniMelb
Just out! Our postdoc @DanyaVears along with Isabelle Budin Ljosne and Nina Hallowell, led the development of a practical checklist for return of results from genomic research in the European context @UniMelb @MCRI_for_kids @CBMER_KULeuven rdcu.be/c8bY9
Should we offer secondary findings from #genomics in children? What do parents want to know? Read our latest blog post outlining some of our recent research on this!
Should we offer secondary findings from #genomics in children? What do parents want to know? Read our latest blog post outlining some of our recent research on this!
Featuring BERG fellow Chris Gyngell!
Data sharing is so important for #genomics - check out the next blog in our series on this topic! In this piece, we explore the pros and cons of #bigdata sharing, and what the Australian public thinks about it!
Read our latest blog post exploring the #ethics issues of #consent for #genomictesting Courtesy of @AusGenomics by co-authors @genetic_Fi @DanyaVears @ZornitzaS and Chris Gyngell
Read our latest blog post exploring the #ethics issues of #consent for #genomictesting Courtesy of @AusGenomics by co-authors @genetic_Fi @DanyaVears @ZornitzaS and Chris Gyngell
Interested in clinician perspectives on decision-making in paediatric home mechanical ventilation? Check out this paper by Juliette Jeffreys, Mayukh Rahman, @DanyaVears @BigjohnMassie onlinelibrary.wiley.com/doi/10.1111/jp…
Should children with hearing loss undergoing exome sequencing also be offered secondary findings? Lauren Notini @DanyaVears @ClaraGaff and @juliansavulescu asked health professionals offering this testing what they thought @MCRI_for_kids @UniMelb tandfonline.com/doi/full/10.10…
NUS Centre for Biomed.. @NUS_CBmE
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47 Followers 464 Following Loving Husband & Father General Surgery; Educator, Mentor; Medical Ethics & Bioethics ❤️➕@LiebCricket In all fairness, they played both the Ashes and the moral Ashes, this doubling their work load.
@nunobensen Ha! How wonderfully witty and original and interesting.
Ashes history 05; Eng fly in a pro fielding 3rd man & use mints to doctor the ball 19 boo Steve Smith returning from a savage head knock 23 crowds relentless booing, swearing, deliberately dead pitches and a day of half trackers Bairstow out “spirit of cricket yeah” Spare me
Exactly @cric_blog Another thought experiment If the throw had come in from cover and Bairstow had wandered out of his crease with the ball in midair and it hit his stumps, would anyone even be pretending this is about the #SpiritOfCricket ???
Hopefully this little screenshot can put the debate to bed. Alex Carey threw the ball immediately after catching it, and Bairstow was still in his crease. Bairstow then decided to wander out with the ball still in play. #Ashes
With respect @philsenior77 1. Bairstow a keeper should know the rules 2. Bairstow a keeper tried exactly this twice this very test - couldn’t hit the stumps 3. McCullum a keeper once ran Murali when he walked up the pitch to congratulate a century maker The hypocrisy is galling
@adambspencer @cric_blog this argument is absurd. if bairstow was in his crease then why throw? it literally shows that carey was hoping that bairstow would move out of his crease because he assumed things were done. classic aussie cricket bad faith
@adambspencer After the catch…IT’S THE LAWS, IT’S THE LAWS. After the stumping….IT’S THE SPIRIT, IT’S THE SPIRIT
Career flashback #2 Brendan McCullum ran a hapless tailender out who was walking down the wicket to celebrate a mate scoring a century Same guy won’t have a beer with Australia who stumped a knowledgeable keeper - who had tried the same himself 48 hrs earlier #SpiritOfCricket
Brendon McCullum has indicated England might skip the post-series beers with Australia, with his side furious over the Jonny Bairstow stumping at Lord's. abc.net.au/news/2023-07-0…
On 19 June 2023, Amicia Phillips successfully defended her PhD on "Communicating Risk Information in the Family: Ethical and Policy Approaches"! #Congratulations to Dr. Phillips, and we wish her all the best in her future career! 🎓🎉
[Comment] Conceptual clarity needed in ADHD diagnosis and treatment - The Lancet Psychiatry via BrainSights for iOS thelancet.com/journals/lanps…
Looking at some of the issues around overdiagnosis/misdiagnosis of ADHD through the lens of an ethicist. Great to work with @CPAGyngell and Jonathan Payne on this. Hope it stimulates conversation @UniMelbMDHS #ADHD sciencedirect.com/science/articl…
Huge thanks to the #ESHG2023 organisers for letting @CelineLewis23 and I on the decks at the conference party and to the attendees for bringing their best moves to the D-floor! We had the best time 😁
The #chromatones completely rocked the house at #eshg2023 congress party. #einekleinehousemusick #spcmembers @CelineLewis23 @DanyaVears
Dr Leanne Rees, @reNEW_Global #PREPARE & @MCRI_for_kids researcher, was awarded the @QUT #QUTHealth Alan Mackay‐Sim Spinal Cord Injury Travelling Fellowship, which aims to improve #clinical outcomes & #qualityoflife for people with a #spinal #cord #injury. mcri.edu.au/news/awards/dr…
#AQuestionofEthics - new blog explores #ethical issues facing families when considering #genomictesting for their child. 🧬🧬 📚 Part 1/4 – Should parents be allowed to decline genomic testing for their children? Out now! #genomics #blog #ethics #consent australiangenomics.org.au/should-parents…
#scifight just won't die. Back on Feb 16 at @HowlerHQ see Adam Knox, @sciencebelinda @maddyytweets Maria Roitman, @Langaround and Dr Chris Gyngell decide whether we should live forever! Come sup from the fountain of disagreeableness with tix at: bit.ly/3Wj4MJi.
"I never said she stole my money." Amazing. Say this 7 times, stressing a different word each time, and you'll mean 7 different things
Never date a tennis player.. Love means nothing to them.
Thanks to all who responded to my #AHA22 debate tweet. There are no winners of course, but it if there were, the amazing @DanyaVears would have the trophy for most helpful response 🏆 If you don’t follow her, you should! #genechat
Con side from our favorite Aussie @CardioGC Dr. @jodieingles27 . I love Jodie's approach to this question from the clinical and community angle! Here's a great answer from @DanyaVears . #GeneChat #AHA22 @CardioGC @AHAScience