ME&Me @CFSME_Me
ME is mystery to medical science yet.Living life full is an unachievable dream. I tweet to share my exp. & to urge for honest research to find cure for ME. cfsme-me.blogspot.com The Universe Joined June 2014-
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ME&Me retweeted
So doctors refusing to learn/research #mecfs should no longer be called Doctors? #MillionsMissing #pacetrial #nhs
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ME&Me retweeted
#ME #CFS #FM Dealing with Unhelpful Health Professionals: 5 tips for responding bit.ly/1OQWrUM
ME&Me retweeted
Karina Hansen's condition deteriorating. She no longer recognizes her father & can't speak. Are they drugging her? valerieeliotsmith.com/2016/03/07/kar…
ME&Me retweeted
#me #cfs Dealing with the unhelpful things people say "It's all in your mind." bit.ly/1fhriN6
ME&Me retweeted
The Last Great Medical Cover Up. Patients pushed to "breaking point" by physicians. youtube.com/watch?v=z7CE3K… #mecfs
Ampligen in Chronic Fatigue Syndrome - Full Text View - ClinicalTrials.gov clinicaltrials.gov/ct2/show/study…
ME&Me retweeted
#ME #CFS #FM Dealing with Unhelpful Health Professionals: 5 tips for responding bit.ly/1OQWrUM
ME&Me retweeted
#me #cfs Why embracing the holistic model of health may be good for you bit.ly/1frTB5L
ME&Me retweeted
Collins Calls ME/CFS a "Program Priority" - Suggests Rituximab / Ampligen Trials Possible #ME/CFS cortjohnson.org/forums/threads…
ME&Me retweeted
ME&Me retweeted
I would never have cited the PACE study if I'd known about its serious flaws.
I would never have cited the PACE study if I'd known about its serious flaws.
ME&Me retweeted
#ME #CFS #FM Dealing with Unhelpful Health Professionals: You have a right to be treated with respect bit.ly/1PxWBQP
ME&Me retweeted
Improve Your Flirting Abilities - epphany.com/site/post/294?…
#EllenDeGeneres pls do awareness on #MECFS & urge #CDC #NIH for fruitful research & cure.
Is there any resource to get/find online work from home jobs reliable pay..wud b helpful to many #mecfs patients
ME-CFS Diary of Truth @MECFSdiarytruth
14 Followers 67 Following How it really feels to have moderately severe CFS/ME, without the filter I usually use to protect loved ones.
Phoenix Rising @aboutmecfs
6K Followers 4K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
CFS Unite @CFSUnite
959 Followers 627 Following I have ME and Fibro since 2003. I run a support group for us with chronic fatigue conditions. We are based in |pswich, Suffolk. Follow us on our journey!
Susan - M.E/Fibromyal... @mefibromyalgia1
2K Followers 5K Following ME/FM patient since 2006, I hope some info helpful to those unaware of them you can also gain an insight. Advocate & sufferer invisible illnesses/chronic pain
The Illness Chronicle... @TheIllnessChro1
114 Followers 76 Following 30, she/her, white, queer, Ashkie-Jewess, life with chronic illness and chronic pain, also now an occasional podcast!
MarinaCostaMcK @Costamari33
3K Followers 5K Following Marina Costa McKenzie. Born in the US, living in Italy. Lover of Justice and crazy for Democracy. Lawyer. Person with #MECFS #MyalgicEncephalomyelitis
Salus Fatigue Foundat... @Salus101
469 Followers 2K Following Salus Fatigue Foundation is a not for profit organisation that provides support, education and help to inspire people living with fatigue related conditions.
KatlaT.CarersForCovid... @KatlaToans
238 Followers 732 Following Leftie ex-academic with a hearty lust for life & enquiring mind.Typical Brit, does anything for animals & a cuppa tea. Carer. Living with #MECFS since 2010 💙
KerryFieldCraftaholic @KFCraftaholic
1K Followers 884 Following Wife & mum learning to live with #MECFS #cfsme #pwME . Using my skills to create beautiful #gifts & starting a new venture with my daughter @LittleGiftHive
The best videos @elyouns123
641 Followers 3K Following
ME CFS FOUNDATION SOU... @mecfs_sa
2K Followers 3K Following We aim to raise awareness, dispel the myths and misconceptions surrounding #MECFS. Comprehensively support affected #pwme and form alliances with 3rd parties.
RogueWolf @RogueWolf2001
4K Followers 5K Following Southern woman whose not Red or Blue living in a deep Red VERY conservative state. Living w/EDS, dysautonomia, Chronic migraines, chronic pain, etc 1 day@time.
Suzan Jackson @livewithmecfs
4K Followers 3K Following Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.
Kandi Camaorwski @cmk84711
1K Followers 4K Following Chronic pain warrior/ advocate Fibromyglia Dysautonomia Spinal Injuries
rachel ward @rachelw97021200
59 Followers 282 Following
Lucy | Home, Parentin... @homeparentingme
145 Followers 193 Following Disabled/chronically ill, mum of 2 👨👩👧👦 ig: homeparentingm.e 📷
SpAnna @discospAnna
213 Followers 2K Following It is better to live one day as a tiger than a thousand years as a sheep! #BeHappy #livelifetothefull #Disco #glastonbury #positive
Faith Blenkin @FaithBlenkin
259 Followers 883 Following I am a #writer and #Christian with #ChronicFatigueSyndrome/#MyalgicEncephalomyelitis. My dream is to write books and rehabilitate emotionally damaged #unicorns.
CFS4ME Iain @CFS4ME
443 Followers 1K Following 19 years with severe CFS/Me still counting, Slipped disc and a trapped nerve and over weight
Bateman Horne Center @BatemanHorne
7K Followers 1K Following Bateman Horne Center is a non-profit medical, research, and education center devoted to eradicating ME/CFS, FM, Long COVID, and related conditions.
Lisa @lisaalioto
3K Followers 4K Following Attorney, career coach, blogger & #MECFS advocate. Focused on finding, sharing and supporting happiness and joy within life with a chronic illness.
matthew webb @mafyus1
220 Followers 425 Following 30yrs battling ME and its deniers.ful of rage for the estsblishment and love 4 the people prolific player and maker of music.
Melissa Nock @MelissaNock1
75 Followers 397 Following suffering from chronic pain and chronic fatigue and other illnesses. Lover of all animals.
17 Cytokines @ProfoundFatigue
888 Followers 1K Following Interested in peer-reviewed medical research on #MECFS. Follow the data. Also, I have more questions than answers. I want justice for Gulf War Syndrome victims.
Pinky sue Peacenik @hoppysue
422 Followers 845 Following dancer, political agitator, truth seeker who lives in Ilhan’s district & official John Fugelsang hugger at SM Sexy Liberal (he is signing my Etch-A-Stetch).
Jess Goyder @JessGoyder
4K Followers 2K Following Water lover. Grief Recovery Specialist. Your life is the greatest work of art you'll ever create.
Linda Kraus @winnakraus73
190 Followers 844 Following Wife,Mother,Sister,Friend,Christian.Fundraising 2 save my daughter's life: https://t.co/xZFvh7Hs1A #StayingStong #MECFS #MillionMissing
M.E. Australia @MyalgicE
2K Followers 2K Following Championing change: advocacy, news and collaboration for people with Myalgic Encephalomyelitis and chronic fatigue syndrome #pwME #MyalgicE
Ease - ME/CFS Helper @easecfs
51 Followers 172 Following Ease is your ME/CFS tracker. Coming soon to the App Store. [email protected]
FibroMapp Pain Manage... @FibroMapp
2K Followers 2K Following The most comprehensive 12-in-1 app for chronic pain that tracks pain, meds, sleep and much more. Track, monitor, download reports & gain more control!
Susan Ivany @puppygrlz
1K Followers 3K Following Musician & Lyme Warrior healing thru Nature & Cannabis! Loves God, Dogs & Music! Native New Yorker residing in the West living the Blessed Life..Dancing w/Joy
Vicky Beeching @vickybeeching
56K Followers 34K Following LGBTQ Equality Campaigner. Author of memoir UNDIVIDED. Now, in 2025, battling chronic illness but hoping for recovery. Contact me/support me via the link below.
MEpedia @MEencyclopedia
3K Followers 713 Following The MEAction encyclopedia, crowd-sourcing the history, policy & science of the disease. Edit and improve an article today! @MEActNet
Debbie Smith @Samos2C
248 Followers 881 Following
Geoff 💙 @geoffers1967
2K Followers 3K Following Bit poorly. Campaigning for ME Research/Awareness. Music ⭐️ Films ⭐️ Sport ⭐️ Comedy ❤️ Nieces ❤️ Animals ⭐️ Spurs ⭐️ Thomas Dolby ❤️ Janey ❤️
⚫️Helen C @Lucillecox21
703 Followers 4K Following Strongly believes in social justice and campaigns for a fairer future. All views and opinions expressed are solely my own. #rejoiner
Sophia @RedheadsRRare
80 Followers 123 Following
julie woodhead @JulieWoodhead
319 Followers 115 Following
Clare Harding @Harding1Clare
1K Followers 3K Following Head of Sport and Primary Strategic Lead @NPCAT_Sport, ensuring all schools provide high quality PE, School Sport and Physical Activity for every child.
G @gaz_MEawareness
67 Followers 68 Following Helping to bring greater awareness of the illness M.E,also suffer acute pancreatitis but still smiling #just
David Turner-Smith @davets9465
497 Followers 2K Following Man United & Cricket Fan Army Veteran Accountant Wheelchair Warrior Bedbound with #ME #FM #POTS #Diabetes #NASH #IBS #Depression #Anxiety #PTSD TIRED & DROWSY!!
garet wilkins @wilkiewonka
93 Followers 483 Following
Terri's SisterCaaron @TerrisSister
348 Followers 2K Following Disabled Veteran; 2 PhDs; Independent thinker & voter; ME/CFS since ‘98; Perfectly imperfect :):
supportinginvestinme @arisonned
2K Followers 4K Following SICK WITH M.E SINCE 1996. CAUGHT LYME IN 2014. NO TREATMENT FOR EITHER. EVERYONE DESERVES TREATMENT 💙💚
Bionic Man @fourstriper
246 Followers 3K Following Sufferer of iatrogenic Severe Myalgic Encephalomyelitis.Lover of Aviation/Aerospace.Civilian Pilot.Was chosen to be a 🇨🇦NASA Shuttle Astronaut! In bed 25 yrs!
David Lester - Nisai @Nisai_DavidL
2K Followers 4K Following Group Learning Services Director at Nisai. Supporting learners with barriers to learning and promoting outcomes for those who need a complimentary approach
Monica S @MissStarr81
278 Followers 2K Following Me: Strength.Hope.Believer. Dreamer. Creativity.Visionary. Friend. Sister. Auntie. Sentimental. #MECFS #CFS #MEACTION MECFS Chronic Fatigue Syndrome. Support.
Russell Fleming @Firestormmer
1K Followers 843 Following Former investment manager international private banking. Disabled by M.E. and forced to retire after 15 year career. Tweet latest news relating to #MECFS.
Amber Phelps-Bridges @AmberPhelpsy
120 Followers 289 Following Never doubt the endless possibilites of life. Dreams can come true. My life is about to change forever......
ME/CFSCoach @simonpimenta
2K Followers 2K Following Mind Body & Wellbeing Coach. Recovered from 8 years #me #cfs #fibromalgia and want to share what I learned and help others
Em @emsandz
66 Followers 85 Following Sports enthusiast to the moon and back. Also a part-time student and #MECFS sufferer. #FCBarcelona
Erica Verrillo @EricaVerrillo
5K Followers 2K Following Author of #fantasy & medical books. Certain people should probably avoid meeting me in a dark alley, but otherwise harmless. #MECFS #writer
Sāgaradevī Barratt @C_Barratt_
1K Followers 2K Following Senior Lecturer @Uni_of_Essex @uni_essexhealth. Qualitative methods & contemplative pedagogy enthusiast. Triratna Order Member Mind and Life Europe Associate
Charles Turner @kafkaboots
2K Followers 4K Following Losing my life to a contested illness one day at a time. Deep af
Health Tips @AHealthTipPage
11K Followers 14K Following Helpful tips & motivation on fitness, health, dieting, nutrition, and more.
Janet Winter, PhD @BreathingRemed
3K Followers 3K Following Breathing educator (Buteyko), postural alignment specialist (Egoscue): ME/CFS; asthma/allergies/sinus; anxiety/panic; sleep -get more OXYGEN. I’m
Gem 🐍 @gem_fearless
391 Followers 2K Following ☆ She/her ♋️ 🌈 ☆ Potsie ☆ Designer & business owner 👩🏼💻 ☆ Senior Swiftie since 2009 🫶 ☆ Proud Member of the Tofu Eating Wokerati ✌️
Barry John Evans @bazmufc8491
16K Followers 18K Following
Elizabeth Turp @lizahpool
1K Followers 2K Following Counsellor/psychotherapist, writer, artist, expert patient. Mindful lover of life, food and dancing. Host of @howwecarepod podcast.
George Vithoulkas @Gvithoulkas
7K Followers 497 Following International Academy of Classical Homeopathy (I.A.C.H.)
Whittemore Peterson I... @WPInstitute
1K Followers 1K Following WPI is a medical research institute dedicated to discovery, education, outreach, and advocacy for those suffering from infection-associated chronic illnesses.
CFS Solutions of WM @cfssolutionswm
348 Followers 146 Following CFS Solutions of West Michigan provides help, hope and positive support through education and advocacy for people with chronic fatigue syndrome and other NEIDs.
PANDORA Org. @pandoraorg
803 Followers 637 Following A 501c3 org dedicated to restore quality of life for individuals with Neuro-endocrine-immune diseases (NEIDs) in the U.S. & beyond.
Solve ME/CFS Initiati... @PlzSolveCFS
12K Followers 4K Following Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4
Phoenix Rising @aboutmecfs
6K Followers 4K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
High5ME @High5_ME
963 Followers 523 Following Celebrating, recognising and supporting individuals who have ME.
It's All About M.E. @Myalgic_ME
1K Followers 661 Following Trying to make a difference by sharing my personal experiences of M.E./Fibro ~ A daily battle against my own body & the world!
Helena Ederveen @innovator888
2K Followers 2K Following Helena Ederveen, Clinical Nutritionist,Certified Master Pract NLP & Eriksonian Hypnosis
Myra @Gooische_Vrouw
4K Followers 5K Following Economist, former business woman, life on hold, advocate for #PAIS ❗️#MECFS #LYME #LongCovid. info: https://t.co/7lgJ73O8Ve
Sue Ingebretson @SueInge
37K Followers 35K Following Speaker & Holistic #Health Care #Coach Living Well with #Fibromyalgia. #Author of #1 Amazon #ChronicIllness best-sellers #FibroWHYalgia #GetBackintoWhack
Tom Kindlon @TomKindlon
15K Followers 623 Following With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Paul Winter @kaazoom
1K Followers 498 Following I'm Married. Suffer from the neuro-immune disease #MECFS . Enjoy #writing #songwriting #family #politics #internet I'm a #Christian but won't preach at you!
Leeds ME Network @leedsMEnetwork
1K Followers 338 Following Patient self-help group sharing local and national ME/CFS information. See more our website and frequently updated Facebook page.
Jane Colby FRSA @JaneCColby
3K Followers 497 Following I run @tymestrust. Had severe ME from polio-type virus. Finally back at golf after several yrs unwell all over again!
TBMEDG @TBMEDG
537 Followers 754 Following Welcome to the sparkling new and different page for people with ME living in Bristol.
Jennie Spotila @jspotila
2K Followers 387 Following Writer/ME Activist. We are more than our disease.
may12th @May12th
3K Followers 2K Following
Simmaron Research @RedefiningMECFS
4K Followers 411 Following Official Twitter account for Simmaron Research, a non-profit scientifically redefining ME/CFS. Visit our site to learn more.
Cort Johnson @CortJohnson
11K Followers 1K Following Founder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus years
Rich Carson @RichCarsonsDeal
7K Followers 4K Following Founder of ProHealth, an optimist and leading voice for ME/FM patients everywhere, and a proponent for longevity: Live long enough to heal and fully recover.
MEFMACTION @MEFMACTION
1K Followers 154 Following National ME/FM Action Network - Dedicated to advancing the recognition and understanding of ME and FM through education, advocacy, support, and research
ME for M.E. @ME_forME
2K Followers 1K Following Just a girl raising awareness for the neuro-immune disease Myalgic Encephalomyelitis. ME is not fatigue, it's Post Exertional Malaise!
@invest_in_me (Invest... @Invest_in_ME
7K Followers 717 Following Invest in ME Research is an independent UK charity facilitating & funding a strategy of high-quality biomedical research into Myalgic Encephalomyelitis (ME)
European ME Alliance ... @EUROMEALL
1K Followers 182 Following The European ME Alliance is a grouping of European organisations who are involved in supporting patients suffering from myalgic encephalomyelitis (ME or ME/CFS)
The Optimum Health Cl... @OHCforMECFS
716 Followers 309 Following An award-winning clinic providing an integrative, personalised and evidence-based approach to achieving optimum health. Request your FREE info pack ⬇️
CFS Unite @CFSUnite
959 Followers 627 Following I have ME and Fibro since 2003. I run a support group for us with chronic fatigue conditions. We are based in |pswich, Suffolk. Follow us on our journey!
Dr Speedy @DrSpeedyandME
2K Followers 2K Following #PACEtrial proves that #CBT and GET are useless #MEcfs #psychoblahblah
Let's Do It for ME! @LetsDoIt4ME
5K Followers 3K Following Fundraising for @Invest_in_ME charity Centre of Excellence @CofEforME programme of biomedical research and medical education for M.E. #MyalgicEncephalomyelitis
M.E. Chronic Fatigue ... @ME_CFS
8K Followers 9K Following #MyalgicEncephalomyelitis #MECFS @ME_CFS Many think caused by chemical poisoning/chlorine #ChronicFatigueSyndrome is severe muscle/nerve pain Like #LongCovid
Get Well From ME @GetWellFromME
2K Followers 891 Following Sharing information and raising awareness about ME, as well as treatments (sadly not cures yet) and ideas for managing ME and Chronic Fatigue Syndrome CFS.
ME Association @MEAssociation
19K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.Trends for United States
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