CdLS Foundation @CdLSFoundation
Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.676.8166 #raredisease #cdlsawareness cdlsusa.org Avon, CT Joined November 2011-
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🌍🎙️ Happy International Podcast Day! 🎉 Let’s celebrate the power of voices that connect, inspire, and entertain by listening to CdLS Connections, a podcast by the Canadian CdLS Foundation! Click here to listen in - canadiancdlsfoundation.com/podcast-series #PodcastDay #CelebrateVoices
Not a golfer but still want to be involved? 💜 Be a volunteer at the 37th Amber Gaines Memorial Golf Classic on Monday October 13th at the beautiful Tapawingo Golf Club! Email Lisa Schroeder at [email protected] for more information.
🍂🎉 Happy First Day of Fall, everyone! 🍁🌰 It’s time to sip on pumpkin spice lattes, cozy up in flannel, and embrace the beauty of changing leaves! Send in your seasonal photos by clicking here - CdLSFoundation.memfox.io/submityourphot… 🧡🍂 #FallVibes #AutumnMagic
Have you checked out the latest issue of The Path Forward yet? 💜 We’d love to hear what inspired you, what stood out, or what you’d like to see more of. Your feedback helps shape future issues! Tell us your thoughts here: onh4pxyk703.typeform.com/to/kE38CP8k
This year, we’ve dedicated ourselves to creating resources and improving services that truly make a difference. Every contribution matters. Help us build a brighter future. 💜 givebutter.com/cdlsdonation
This month marks the beginning of Hispanic Heritage Month - Sept. 15 to Oct. 15. Join us in observing by celebrating the histories, cultures and contributions of American citizens whose ancestors came from Spain, Mexico, the Caribbean and Central and South America.
Today, we remember and honor all of the lives taken on September 11, 2001 - a day that has forever left its mark on our history. We invite you to pause for a moment of silence.
🎉 Happy National Grandparents Day! 🌟 Share a story about your grandchild with CdLS by clicking this link. ⬇️ CdLSFoundation.memfox.io/cdlsgrandparen…
📚✨ Happy Read a Book Day! 🎉 Share a pic of your loved one with CdLS reading their favorite book! Click the link and upload a photo under the prompt "Reading a Book Photo." ⬇️ CdLSFoundation.memfox.io/submityourphot…
What better day than International Day of Charity to donate to the CdLS Foundation! 💜 We depend on your monetary donations to keep up our nationwide advocacy - and most importantly our research to better serve the CdLS community. Donate today! givebutter.com/cdlsdonation
Not every day is easy, but we do it because of the love and light our loved ones with CdLS have given us. 💜 Share this post with someone that needs to hear this today, or tag a friend in the comments.
Happy Labor Day from the CdLS Foundation Board Members and staff! The Foundation will be closed today, September 1. It will reopen tomorrow at 8:30 AM EST.
It’s only in recent years that a future including fulfilling work in an integrated setting has been the expectation large numbers of parents have for their children with disabilities. Read more tips for preparing for your child's future on our website. cdlsusa.org/finding-a-fulf…
🌊🏖️ Happy National Beach Day! 🎉🌞 Let’s soak up the sun, feel the sand between our toes, and create unforgettable memories! Want to see your photos featured? Submit them here! ⬇️ CdLSFoundation.memfox.io/jqyojh
Don't miss these virtual and in-person events! 💜 Get to know our community! Register and find out more info on our website. cdlsusa.org/calendar/
Not a golfer but still want to be involved? 💜 Be a volunteer at the 37th Amber Gaines Memorial Golf Classic on Monday October 13th at the beautiful Tapawingo Golf Club! Email Lisa Schroeder at [email protected] for more information.
💜 You asked - What is your best advice around genetic testing for older individuals with CdLS? We answered! Watch this video on Youtube from our experts! youtu.be/UER0vQWG6Rg?si… Have a question? Submit to Ask the Experts on our website. cdlsusa.org/ask-the-expert/
Congratulations to our Family Service Coordinator, Ashley Fernandez! 💜 Read here about her Shoreline Chamber Women of Excellence Award. ⬇️ patch.com/connecticut/no…
Does digital media help or hinder language development in young children? 🤔 What does the research say about how parents and caregivers can foster an optimal environment for language learning? Read more about this on our website. cdlsusa.org/early-childhoo…
Meet a Team CdLS Chicago Marathon ambassador! 💜 Oliver is 9-years-old and loves to have fun with his family. They will be cheering on a runner this fall during the Chicago Marathon. Learn more about Oliver and how you can support Team CdLS on our website. cdlsusa.org/oliver-teamcdl…
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