CoalitionHemoB @CoalitionHemoB
Our mission is to make quality of life the focal point of treatment for individuals with hemophilia B. hemob.org New York, NY Joined June 2014-
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Learn how Sanofi is reshaping the future of hemophilia treatment: bit.ly/42BMOrT This ad is sponsored by Sanofi.
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Learn how Sanofi is reshaping the future of hemophilia treatment: bit.ly/42BMOrT This ad is sponsored by Sanofi.
Mental Health Mondays: Live-streamed in the B-Hub Mondays at 1pm ET / 10am PT Join live or watch on replay exclusively in the B Education Hub, and connect with others who truly understand. connect.hemob.org #mentalhealth #wellness #community
Congress says these cuts will save money, but: The bill adds $4.6T in tax breaks for the wealthy and corporations While slashing $1.6T from vital programs like Medicare, Medicaid & SNAP Net result: $3.3T in increase in the federal deficit. Call your Senators today: 202-224-3121
Our three scholarships are now open! All three scholarships have the same due date: July 15, 2025! More info on the website: hemob.org/scholarships #scholarships #musicscholarship #golfscholarship #academicscholarship #hemob
We are proud to host our annual Eternal Spirit Award celebration, an inspiring evening where we honor two extraordinary individuals for their many years of dedication and service to the Hemophilia B community. Stay tuned for more details!
Fraud Is Rare. Care Is Essential. Lawmakers say they want to stop fraud. But: Fraud is already rare and usually committed by providers, not patients. Cutting them hurts real families, not fraudsters. Call your Senators today: 202-224-3121
We have a ton of great virtual programs for you to register for. Have you checked out the events page on our website recently? Check out hemob.org/upcoming-events to learn more and register! #hemob #hemobevents #hemophiliab
Mental Health Mondays: Live-streamed in the B-Hub Mondays at 1pm ET / 10am PT Join live or watch on replay exclusively in the B Education Hub, and connect with others who truly understand. connect.hemob.org #mentalhealth #wellness #community
Who Gets Hurt the Most? Proposed cuts would gut support for: ➡️ Elderly ➡️ Children ➡️ People with disabilities ➡️ Low-wage workers ➡️ Students This isn’t about politics. It’s about people. Call Congress: 866-426-2631
Our three scholarships are now open! All three scholarships have the same due date: July 15, 2025! More info on the website: hemob.org/scholarships #scholarships #musicscholarship #golfscholarship #academicscholarship #hemob
You have until July 3 to write an email or call your senators. 📞 Call the Capitol Switchboard at 202‑224‑3121 (for Senate) Give your ZIP code and ask to be connected to your member’s office. #MedicaidMatters #StopTheCuts
Join us for Family Meetings on the Road taking place all over the country- find one closest to you and join us! Let’s build connections, make friends, learn new things, and have a blast. We can't wait to see you and your family in person! Register today: hemob.org/meetings-on-th…
You have until July 3 to write an email or call your senators. 📞 Call the Capitol Switchboard at 202‑224‑3121 (for Senate) . Give your ZIP code and ask to be connected to your member’s office. #ProtectOurCare #HealthcareIsAHumanRight
Cutting care increases costs for everyone. When people lose health coverage, they don’t stop getting sick, they go to the ER. Taxpayers foot the bill, hospitals struggle, and patients get worse. This isn’t saving, it’s cost-shifting. Call 202‑224‑3121
Patient Coalition Condemns House-Passed H.R. 1 for Stripping Coverage from Millions. Read more here: hemob.org/resource-libra…
We have a ton of great virtual programs for you to register for. Have you checked out the events page on our website recently? Check out hemob.org/upcoming-events to learn more and register! #hemob #hemobevents #hemophiliab
You have until July 3 to call your senators. 64% of adults on Medicaid already work. Most others are caregivers, students, or have health conditions. Work requirements don’t increase jobs, they increase red tape. Call Congress: 866-426-2631 #MedicaidMatters #StopTheCuts
Mental Health Mondays: Live-streamed in the B-Hub Mondays at 1pm ET / 10am PT Join live or watch on replay exclusively in the B Education Hub, and connect with others who truly understand. connect.hemob.org #mentalhealth #wellness #community
Our three scholarships are now open! All three scholarships have the same due date: July 15, 2025! More info on the website: hemob.org/scholarships #scholarships #musicscholarship #golfscholarship #academicscholarship #hemob
Brian O Mahony @Brianhemophilia
3K Followers 513 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
National Bleeding Dis... @nbd_foundation
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Patrick James Lynch @pjlynch
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Laurence Woollard @TheWoollard
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EHC_Haemophilia @EHC_Haemophilia
3K Followers 410 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
ISTH @isth
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Cathy Harrison 💙 @CathyAH1980
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J Roberts @JonRob08
777 Followers 740 Following Classical hematologist; hemostasis/thrombosis, hemophilia, VWD, rare bleeding disorders specialist; severe hemophilia A blood brother🩸, opinions my own
Dr Kate Khair PhD @katekhair
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Peter Kouides MD @PKouides
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Hemophilia Federation... @hemophiliafed
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haemnet @haemnet
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Lynne Kinst @lynnekinst
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Heme PT @lmvolland
356 Followers 550 Following Translational Health Scientist in the making, #bleedingdisorders, #painscience, #WGPPM, #impsci, lover of positivity and kindness, all views are my own
HFA @Haemophilia_Au
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MADTUDE SHOP 💋 @MadTudeShop
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Heghine Khachatryan @HeghinKhach2025
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coagfocus @coagfocus80088
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Janet J Kiss 💋 @JamesB1689341
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ATHN @ATHNnews
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Andrew Marsh @AndrewM66971201
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Keeley Krajcik @KeeleyK91011
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867-5309 @JennyJennyMN
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SCOTT ENNIS - Yes. It... @scottalanennis
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Jess @Roseinthestorms
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Valeska Becker @vale_beckerb
135 Followers 170 Following fan del teatro musical, el chocolate, artista amateur, amante del té y mi CV dice enfermera.
BIOGENIX SYSTEMS PVT ... @BIOGENIXSYSTEMS
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Shadi tabibian @ShTabibian
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WFH @wfhemophilia
8K Followers 170 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
National Bleeding Dis... @nbd_foundation
7K Followers 1K Following Dedicated to finding better treatments/cures for inheritable blood/bleeding disorders & preventing complications via education, advocacy, research. #WeAreNBDF
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Haemophilia Society @HaemoSocUK
5K Followers 703 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
EHC_Haemophilia @EHC_Haemophilia
3K Followers 410 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
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1K Followers 865 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
EAHAD @EAHADnews
3K Followers 468 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
BloodStream Media @BloodStrmMedia
1K Followers 449 Following Bringing education and inspiration to those living with rare and chronic diseases. 🩸
IrishHaemophiliaSoc @HaemophiliaIRL
1K Followers 290 Following The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrand disorder and other inherited bleeding disorders
Hemophilia Federation... @hemophiliafed
6K Followers 1K Following Assisting and advocating for people living with a #bleedingdisorder and their families.🩸#hemophiliafed
ASH @ASH_hematology
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HFA @Haemophilia_Au
848 Followers 233 Following Haemophilia Foundation Australia (HFA) represents the Australian bleeding disorders community.
The Qual Guy @abookclubof1
531 Followers 582 Following Qualitative Research, Gene Therapy, Rare Diseases, Bleeding Disorders, Cardiomyopathy, Nursing, PhD Life and Books...lots of books (He/Him)
uniQure @uniQure_NV
3K Followers 131 Following uniQure is delivering on the promise of gene therapy - single treatments with potentially curative result for patients with severe genetic diseases.
Northern California B... @NorCalBDF
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Arizona Blood Allianc... @ArizonaBleed
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Shawn of the Bled �... @shawndecker
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Pfizer Inc. @pfizer
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bombardierblood @bombardierblood
252 Followers 123 Following AVAILABLE NOW: Follow @adventurehemo’s historic attempt of #Everest! #hemophilia
Daniela's Little Wish @danilittlewish
157 Followers 426 Following I am 13 year old girl| I decorate and deliver FREE birthday cakes for kids with rare diseases since 2011| https://t.co/FRahxFSUwi
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Dakota Rosenfelt, Pha... @DRosenfelt
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BloodFeed @thebloodfeed
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Belén del Río Lanza @abdelriolanza
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Dimitris Skempes, MPH... @dskempes
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ANGEL MORENO @ANGELMORENOH
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Margaret Angel @margitangyal
670 Followers 5K Following From chem-biochem to med to hem-TM 👩⚕️/ ♥️ 📚 ,🐕, 👩🍳,👟,🧘,🤿, ASL, & more. Daughter, sister, cousin, wife, godmother, pugmom, friend, student, Rapsfan.
KsenijaPolla @KsenijaPolla
953 Followers 752 Following Mother of twins, Association Executive, passionate about meetings, food, wine, books and movies. All views and comments expressed are my own.
BSCAH @BSCAH1
2K Followers 4K Following British Society of Clinical & Academic Hypnosis Reg Charity All Members HCP’s We teach colleagues how to use medical hypnosis adjunctively in clinical settings.
Medicare First @MedicareFirst
144 Followers 186 Following We are a leading social work & allied health recruitment agency.
Lokesh Goyal @digmod
297 Followers 436 Following Technology enthusiast and Teacher by Profession.. And a hemophilic.
Carlos Marvez @silverado58
1K Followers 3K Following Democrata 100% . Llanero . Y de los TIBURONES DE LA GUAIRA ..
Hematonews @hematonews
1K Followers 3K Following Hematología, Medicina, Salud, Noticias, arte, cultura, literatura, novela, gadgets,cine, musica, France
Donna @DonnaFromBoston
140 Followers 610 Following comments posted are my own...likes and retweets are not an endorsement.
Daysie White🇪🇺�... @marisma
519 Followers 1K Following Née: mt postigo - I love nature & trees with a passion, gardening, art, architecture, history, music, fauna🐈🐈⬛
Josette-Renée Landry @josetterlandry
379 Followers 531 Following CEO @SavoirMontfort, VP rech & educ @hopitalmontfort, Founder @Streamlinegx, Prof (assoc) @UMontreal. Chercheure-entrepreneure, Franco-Ont. de souche acadienne.Trends for United States
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