COPD Exacerbation PSP @CopdPsp
Twitter account of the BLF-funded JLA Priority Setting Partnership to address Exacerbations of COPD #AECOPD Joined February 2019-
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Mortified that a patient with severe asthma was called and told her inhaler carbon footprint was the equivalent of driving to Scotland and back - and therefore she should switch to DPIs, without any attempt of trying to improve asthma control! 😩
Pleased to see that one of our @CopdPsp patient-clinician research priorities to better understand ‘rescue packs’ in #COPD has been commissioned by the @NIHRresearch HTA panel. Thanks to @asthmalunguk for the original funding. From small acorns… 🌳 nihr.ac.uk/documents/2291…
Are you a 🇬🇧 clinician looking after people admitted to hospital with exacerbation of #COPD? This new @NIHRresearch funded study is seeking your views on how you select inhaled drugs and devices at discharge. Please take part and share. Only 10 mins. ➡️ surveymonkey.co.uk/r/optihale1
Our results! Top three priorities are better prevention of exacerbations, and better ways to distinguish exacerbations from day to day symptom variation, and other causes of changes in symptoms. Read more🔽 Research priorities for exacerbations of #COPD thelancet.com/journals/lanre…
Excited to announce our final top-ten will soon be available! Watch this space! Meanwhile, thanks to everyone who took part, and to our steering committee @JaberSQ @MonaBafadhel @bolton_char @golfingal15 @DrSteveHolmes @joanne_king1 @HeidiRidsdale @e_sapey @ProfWilko @ProfHurst
It’s been a long time in the planning, so we are REALLY EXCITED to be hosting the final worship of our @lunguk funded @LindAlliance research prioritisation in #COPD exacerbations tomorrow. We will be sharing the results soon! Stay tuned...
Particularly LOVE to talk to #OccupationalTherapists, #Nurses, & #Physicians who support people with #COPD! Have your patients used #apps or #wearables to keep track or monitor daily activity or exercise? Go to: coventry.onlinesurveys.ac.uk/hcp-copd-study or get in touch! #NHS #phdchat #research
🇬🇧 multi-professional COPD clinicians: our research prioritisation is nearly complete and the final stage is an on line workshop on Thurs 1st April. We’re looking for volunteers to take part - please contact us via DM if you would like to know more and be considered! #BTSWinter
Hi, can you help me with my #COPD research? Please can you share/retweet to your contacts/networks 🙏 Thank you!! @COPD2021conf @myCOPDteam @ProfHurst @PROactiveCOPD @AJ_COPD @spaceforcopd @Greening_COPD @CopdNotts @CopdPsp @tandemcopd
Hi, can you help me with my #COPD research? Please can you share/retweet to your contacts/networks 🙏 Thank you!! @COPD2021conf @myCOPDteam @ProfHurst @PROactiveCOPD @AJ_COPD @spaceforcopd @Greening_COPD @CopdNotts @CopdPsp @tandemcopd
Our @lunguk funded research prioritisation for exacerbations of #COPD is pleased to be working with @NIHRresearch to launch their call for RfPB applications with NE early career researchers: nihr.ac.uk/documents/chro… - note these are *INTERIM* results, still to be prioritised:
Our survey has now closed and results are being analysed... thanks 👏🏻 👏🏻 👏🏻 to all who took part. Stay tuned for more!
Scotland is very much included - we want to hear voices from across the UK.
Scotland is very much included - we want to hear voices from across the UK.
Our #COPD research prioritisation closes on Monday. Last chance to take part! 142 people have had their say so far. We are @lunguk funded and working with @LindAlliance. 🇬🇧 COPD patients and clinicians, please share and take part. Details 👀👇🏻.
Our #COPD research prioritisation closes on Monday. Last chance to take part! 142 people have had their say so far. We are @lunguk funded and working with @LindAlliance. 🇬🇧 COPD patients and clinicians, please share and take part. Details 👀👇🏻.
Last chance on this- have you had your say yet!?
Last chance on this- have you had your say yet!?
The team are keeping this survey open for another week so if you’re a 🇬🇧 #COPD clinician or patient please help select research priorities. All welcome, but particularly looking for doctors! Instructions in the link below. A @lunguk funded @LindAlliance project. Please share.
The team are keeping this survey open for another week so if you’re a 🇬🇧 #COPD clinician or patient please help select research priorities. All welcome, but particularly looking for doctors! Instructions in the link below. A @lunguk funded @LindAlliance project. Please share.
#COPD needs you! Please help shape 🇬🇧 research priorities in COPD. Instructions in the link below - select your own top ten! Open to clinicians and those affected by COPD. We are @lunguk funded. @ARNS_UK #ARNS2020 @PCRSUK @BTSrespiratory
ARNS 💙 @ARNS_UK
7K Followers 3K Following Association of Respiratory Nurses (ARNS) | Inspiring | Leading | Empowering | not-for-profit-organisation-UK [email protected] retweet ≠ endorsement
PCRS @PCRSUK
8K Followers 2K Following Primary Care Respiratory Society (PCRS) is the UK-wide professional society supporting primary care to deliver high value patient centred respiratory care.
Dr Nick Hopkinson @COPDdoc
9K Followers 4K Following Professor of Respiratory Medicine #COPD Tobacco control, social justice, lung health 🫁 🚭 #NHS #Blacklivesmatter He/him cis Born at 323ppm.
Nicola Roberts 💙 @DrNRoberts
2K Followers 3K Following Associate Professor, research interests: improving #respiratorycare, #ehealth, #integratedcare and #pulmonaryrehabilitation. Views are my own
Dr Phyllis Murphie @murphieRNC
3K Followers 5K Following RN, PhD, Clinical Affairs and Business Development Manager Sefam -Medical UK
Ciara Gleeson @ccass2000
687 Followers 2K Following CORU Registered Clinical specialist physiotherapist medical respiratory @stjamesdublin
Paul McCallion (He/Hi.. @paul_mccallion
2K Followers 1K Following Respiratory Physiotherapist @NewcastleHosps || @NIHRresearch Doctoral Clinical Academic Fellow || @TheACPRC LTC Champion || Bronchiectasis || Coffee is life.
Enya Daynes @EnyaDaynesPT
2K Followers 3K Following Clinical Academic Physiotherapist at Leicester NIHR BRC Respiratory. Interest in dyspnoea management & PR. Chair of the BTS PR specialist advisory group.
Rachael Evans @REvans_Breathe
4K Followers 2K Following Consultant Respiratory Physician and Associate Professor. Interest in Breathlessness, COPD, Pulmonary Rehabilitation, PHOSP-COVID / Long Covid
Asthma + Lung UK @asthmalunguk
56K Followers 8K Following We fight for everyone’s right to breathe. From research + campaigning to advice + support, we're the UK’s leading lung charity. Monitored Mon-Fri, 9am-5pm.
Asthma + Lung UK Rese.. @aluk_research
5K Followers 958 Following Dedicated to furthering our understanding of lung health. We fund research to prevent, treat and cure lung conditions. Part of @asthmalunguk.
DrLJ 💙 @drlaurajane
6K Followers 3K Following Consultant 🫁 doctor. Interested in Life, Death & some stuff in between. @[email protected]🌱she/her
Action for Pulmonary .. @ActionPFcharity
5K Followers 4K Following 💜UK charity supporting people affected by pulmonary fibrosis 🧬funding research towards a better future for people living with PF 🤝together we are stronger
COPD ATHLETE @russwinn66
3K Followers 3K Following Living Well with COPD 🫁 Ironman, Marathoner. Guinea Pig. Patient advocate. Food is medicine for COPD! My Case Study- https://t.co/h66AYYWQ5C
Rachael (she/her) @BreathePhysio
3K Followers 878 Following Clinical Specialist Physiotherapist, long term respiratory disease @uhbtrust. Chair @TheACPRC. PR Lead West Midlands. #DyslexicThinking. #NMP Views my own
Fiona Mosgrove @FionaMosgrove
2K Followers 2K Following Mum, FRCGP, MSc resp.medicine, Grampian respiratory MCN, PCRS education committee, IPCRG answer group, team bronchiectasis, parkrun. Do what you love.
Sanjay Ramakrishnan @SanjayResp
981 Followers 2K Following Academic Respiratory Physician @Charlies_Resp & @Resp_Health | Senior Lecturer @uwanews | #NewPI #COPD #Asthma 🇦🇺 🇲🇾
bullringbash @bullringbash1
1K Followers 2K Following George Orwell updated....Living the homeless Experience.. with Cauda Equina under Palliative care was in a Hospice.. Power wheelchair ♿ driver
Andy Deans @AndyDeans6
377 Followers 365 Following Lead Research Nurse @NRS_PCN Interests in #RareDisease Alpha-1 Antitrypsin Deficiency, COPD,Digital Health & Primary Care. #whywedoresearch #BePartofResearch
Breathing News @breathingnews2u
63 Followers 1K Following Your one-stop shop for breathing pulmonary & breathwork news. 🫁 HAVE A READ: https://t.co/PNo5skjxyP
Joanna Lee @JoannaL81306531
5 Followers 252 Following
Anuj Kumar Pandey @pandeyanuj020
48 Followers 262 Following COPD Researcher, Science Communicator KGMU, Lucknow
Doug @funnypop66
3K Followers 3K Following cancer advocate trying to make a difference I am a non physician Tweets and retweets are not medical #advice#pinksocks#Copd
Chronically Employed @ChronicallyEmp
334 Followers 3K Following Bridging the gap between employers and employees who have chronic illnesses.
سيلا ميديا S.. @sila_media1
469 Followers 1K Following تصميم شعارات , سوشيال ميديا ,موشن جرافيك ,ادارة صفحات , متاجر الكترونية ,انشاء الحملات الاعلانية , اعلانات سناب ' برمجة تواصل واتس :https://t.co/sGvS9HIdGR
OPACE @OPACECOPD
12 Followers 148 Following OPACE COPD study. OPtimising Azithromycin prevention treatment in COPD to reduce Exacerbations. NIHR HTA study
Muhanad Salah Eldin @Dr_MUHANAD_
579 Followers 5K Following يارب حُسن الحياة وحُسن الرحيل وطِيب الأثر 🍂
Jane E Scullion @JaneScullion
2K Followers 2K Following Nurse first and foremost. Cat woman. Hoping my views are my own otherwise someone is controlling my thoughts. Scary
Respira @Respira_Tech
195 Followers 1K Following We #fight for everyone’s right to #breathe against #asthma and #copd. Save your #lungs and save your life with #respiratech
Journal of Respiratio.. @JoR_Mdpi
300 Followers 922 Following JoR (ISSN 2673-527X) is an #OpenAccess journal that covers the topics on all aspects of #respiratoryscience in #humans, published quarterly by @MDPIOpenAccess.
Randall Debattista @RandallDebattis
139 Followers 748 Following Randall Debattista 28 Malta 🇲🇹 Critical Care Physiotherapist @MaterDeiHospital https://t.co/4HT9M4nukd (By Research) student @UniversityofMalta🎓🏨📚
TheDancingPhysio @PhysioRayna
105 Followers 122 Following Senior Acute Physiotherapist @ PHU NHS Trust. Ambassador for dyslexia awareness, helping empower, educate & bring awareness to the AHP world.
SallyBustin @SallyBustin
71 Followers 163 Following Advanced Clinical Practitioner, MSc. COPD Lead AIR Team. FHFT. NHS. All views are my own
writeoncb @writeoncb
195 Followers 1K Following Digital Practitioner, Journalist, UHGrad, Calif. Native I'd appreciate a follow! #ProtectJournalists #LaceUpforLungs and support #COPD Awareness.
Munan Al-jobarah @menanaljobarah
12 Followers 206 Following
Birmingham Clinical T.. @Predict_Prevent
317 Followers 1K Following Clinical Investigation into the use of a personalised early warning decision support system to predict and prevent acute flare ups of COPD.
عبدالله الب.. @Albrahimaa
2K Followers 3K Following مواطن عربي يحاول جاهدا أن يكون مواطنا صالحا و مهتما بقضايا وطنه ومجتمعه و الإنسان أينما كان.
AHCEquip @AhcEquip
49 Followers 341 Following American Home Care Equipment USA-VENEZUELA 🌐https://t.co/UlM6bFndOp
Beehivelisa @beehivelisa
100 Followers 320 Following All opinions my own, but I like to share. Mum, Grandma, Nurse, Public Health Principal and Respiratory enthusiast
ARRAnetwork @ARRA16380471
331 Followers 1K Following We are a group of respiratory researchers interested in bringing together researchers improving the way respiratory care is delivered.
Georgios Papanikolaou @gpmedtech
261 Followers 390 Following Healthcare technologist and respiratory health advocate. 💻⚕️ Promoting self-management education @ COPD Management UK. Medium: @gpmedtech
Adam Rashed @AdamRas13359392
2 Followers 47 Following
ScriptHero @ScriptHero
858 Followers 501 Following Discover your prescription affordability options, no matter your coverage. Likes & RTs do not equal endorsements.
NinaM @NinaM79793172
103 Followers 1K Following Business Development Manager with an interest in clinical diagnostics, POCT and cross stitching. Enjoys a cocktail at the Tiki bar. Views my own
Sameera Ansari @SameeraAnsari_2
505 Followers 750 Following #MRFF @NHMRC Research Fellow @UNSWMedicine School of Population Health. Coordinating CI of @APCOMTrial and Lead CI of @PRISIMATrial. #COPD #Multimorbidity #SDGs
APCOM Trial @APCOMTrial
49 Followers 168 Following Activating #PrimaryCare #COPD Patients with #Multimorbidity (APCOM) Trial - a #MRFF @NHMRC randomised controlled clinical trial in Australian general practice.
Kristen Halstead @KristenHalstead
7 Followers 34 Following
. @SonaliFan
27K Followers 7K Following Bigg Boss , Indias Next Superstars , Khatron Ke Khiladi and Ace Of Space fan 💕
lisa ward 🇺🇦�.. @mummacat10
642 Followers 340 Following Lead Respiratory nurse- Mother to a kind man. Socrates-‘each brave step taken-every failure acknowledged leads us on in our development’
Alice Turner @AlphaCopdDoc
1K Followers 800 Following Professor & Consultant Respiratory Med, director of Midlands patient safety research centre. Clinical & research #AATD #COPD. Tweets mostly academic musings
christine gethings @christineGthngs
83 Followers 176 Following Respiratory Clinical Nurse Specialist @AIRTeamFHFT Education Lead
Akhilesh Jha @Akhilesh_Jha
701 Followers 1K Following Clinician Scientist @The_MRC @HLRI_Cambridge #InnateImmunity #Lungs | Respiratory Consultant #Asthma @CUH_NHS | Chair of @INSPIREresp_UK Average Squash Player
Prabhu Prasad N.C @docprasadprabhu
1K Followers 5K Following Head,Interventional Pulmonology,@ManipalHealth,Goa Founder @interpneuma Intervene-Transplant-Palliate
Stefano Aliberti @AlibertiStefano
2K Followers 1K Following Pulmonologist & Professor of Respiratory Medicine. Milan, Italy. All views are my own.
PamM @PamMarriner83
112 Followers 124 Following Respiratory Specialist Physiotherapist, Member of ACPRC and Physiotherapy for BPD's, passionate about Pulmonary Rehabilitation, Oxygen & all things Respiratory
Charlotte Ellison @Charlot60900694
17 Followers 135 Following
LopezCalaviaAna @CalaviaLopez
14 Followers 95 Following Innteresada en la humanización de la salud y en escuchar la voz de los pacientes. Opiniones personales.
Karenmariefrew @karenmariefrew
12 Followers 118 Following my only followers are my two beautiful doggies Oscar and Raffi that suits me just fine I'm not going to whine lol .I should set my sights higher tho lol .
Jennifer Gorrie @jennifer_gorrie
26 Followers 365 Following
johanna o callaghan @johannaocallag1
363 Followers 667 Following Registered Advanced Nurse Practitioner- Respiratory Integrated Care- Health Service Executive. CHO 9. My views are my own.Mortified that a patient with severe asthma was called and told her inhaler carbon footprint was the equivalent of driving to Scotland and back - and therefore she should switch to DPIs, without any attempt of trying to improve asthma control! 😩
Pleased to see that one of our @CopdPsp patient-clinician research priorities to better understand ‘rescue packs’ in #COPD has been commissioned by the @NIHRresearch HTA panel. Thanks to @asthmalunguk for the original funding. From small acorns… 🌳 nihr.ac.uk/documents/2291…
@CopdPsp Exciting times. Looking forward to seeing the progress. My PhD relates to Hospital at Home for patients with AECOPD. #respisbest
@golfingal15 @ProfWilko @chitraacharya @CopdPsp @kmistryuk @Alipicsie @exerciseCOPD @COPDdoc @Zoe_Styles1 @NicoleA59808566 @DrTimHeywood @SM_COPD Absolutely love this Teresa, well done!! Such a good and important read!! 👍🏼👏🏼
@golfingal15 @ProfWilko @chitraacharya @CopdPsp @kmistryuk @Alipicsie @exerciseCOPD @COPDdoc @Zoe_Styles1 @NicoleA59808566 @DrTimHeywood @SM_COPD We need to catch up.. I have something for us to talk about 👍🏼
@DrMark_Faghy @ProfWilko @chitraacharya @CopdPsp @kmistryuk @Alipicsie @exerciseCOPD @COPDdoc @Zoe_Styles1 @NicoleA59808566 @DrTimHeywood @SM_COPD Thx Hard work starts now getting the funding and research done to make that difference to patients with #COPD reducing #exacerbations
Great to see this out! #COPD #EXACERBATIONS #RESEARCH @LindAlliance Great team work. Huge thanks to all with COPD, HCPs, all who contributed w/ questions, ranking & at final meeting. @lunguk @CopdPsp thelancet.com/journals/lanre… @ProfHurst @golfingal15 @e_sapey @DrSteveHolmes and all
@AHutchinsonHull @JacquiPolington @wolfsonpallcare @ERS_Assembly9 @docmagsy @theartofgp @CopdPsp @MoragCFarquhar @mcgillu @cookiecl14 @DrSteveHolmes @NIHR_ARC_YH @CHCPHull Completed.
@gburgeILDNN @AHutchinsonHull @wolfsonpallcare @ERS_Assembly9 @docmagsy @theartofgp @CopdPsp @MoragCFarquhar @mcgillu @cookiecl14 @DrSteveHolmes @NIHR_ARC_YH @CHCPHull Yes, completed
@AHutchinsonHull @drlaurajane @wolfsonpallcare @ERS_Assembly9 @docmagsy @theartofgp @CopdPsp @MoragCFarquhar @mcgillu @cookiecl14 @DrSteveHolmes @NIHR_ARC_YH @CHCPHull Done, happy to help this fab team
@AHutchinsonHull @wolfsonpallcare @ERS_Assembly9 @docmagsy @theartofgp @CopdPsp @MoragCFarquhar @mcgillu @cookiecl14 @DrSteveHolmes @NIHR_ARC_YH @CHCPHull Completed 👍 I would be interested in your results 🙂
Last few days to help change COPD exacerbation research priorities #copd @lunguk
PCRS members are encouraged to participate in this important survey funded by @lunguk
It’s time for you to have your say in setting future research priorities for exacerbations of #COPD. This is a @LindAlliance project funded by @lunguk. The 1912 questions you submitted have been whittled down to 51 topics. They are listed here: bit.ly/2P79IR2 ... 1/2
We are in the final stages now of this important survey please give us your #topten and RT @NicoleA59808566 @NHSNottsCCG @mrsswinners @helenturn86 @pics_primary @RSCH_RespNurses @NHSDDCCG @NUH_Respiratory @COPDPsp @COPDdoc @LanieBruce @exerciseCOPD @COPD
If you are UK-based and living with COPD, carer for a person with COPD or a health-care professional we want to hear your views! This survey is helping to identify the most important unanswered questions that relate to flare-ups in COPD. blf.org.uk/support-for-yo… @CopdPsp
If you are UK-based and living with COPD, carer for a person with COPD or a health-care professional we want to hear your views! This survey is helping to identify the most important unanswered questions that relate to flare-ups in COPD. blf.org.uk/support-for-yo… @CopdPsp
We need your input. #COPD #EXACERBATION #AECOPD #COPDflareup. Whether you are a healthcare professional, person with COPD or carer of ... help us narrow down further the key research priority questions @LindAlliance @CopdPsp @lunguk
It’s time for you to have your say in setting future research priorities for exacerbations of #COPD. This is a @LindAlliance project funded by @lunguk. The 1912 questions you submitted have been whittled down to 51 topics. They are listed here: bit.ly/2P79IR2 ... 1/2
I'm sure you are already aware of this @theotherdodd @HigbeeDaniel. The Mesothelioma one was very helpful in planning future funding bids. Useful process to be involved in too - PPI on a national level.
Coming soon... our @lunguk @LindAlliance interim priority setting for research on the diagnosis, prevention and management of #COPD exacerbations #AECOPD. Follow us for more details! Are YOU ready to have your say?
COVID-19 means that COPD care is increasingly delivered remotely. @THIS_Institute is researching how to make this work better. If you’re a patient or clinician with experience of remote specialty care for COPD, please register on Thiscovery to take part: ths.im/2ZNY44k
@CopdPsp @COPDNurses_UHL @lunguk Thank you for replying - sorry to have tagged you!
Fantastic source of information in an important, often overlooked area of care @AIRTeamFHFT @NHSEastBerksCCG @CopdPsp @FHMedicalMatron @NeilDardisFHFT
@ARNS_UK Board member & COPD Lead @joanne_king1 "We are delighted to have been involved in the development of the updated guideline Managing Malnutrition in COPD" Download the guideline here: bit.ly/2NNtXTT
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