DEBRA Canada @DEBRACanada
Creating awareness about EB & support for families and people suffering from EB. debracanada.org Canada Joined August 2010-
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Looking forward to being Pro to the Pros at this incredible event May 1-4 in Las Vegas. @bernienicholls9 Celebrity Charity Golf & Poker Event. @DEBRACanada @betregal
📣 The Consensus guidelines for diagnosis & management of anemia in EB have been published! 🎊 Congratulations to the development team on their sterling work. Thanks to DEBRA Canada for funding their production & to everyone who completed the surveys. debra-international.org/anaemia-diagno…
Order your #Nike #Butterfly #Cap 🦋🧢 today and GET A FREE Butterfly Pin🦋🧷!! #freeshipping on all #canadawide #orders. #clickhere —debracanada.org/products/debra…
Get DEBRA Canada’s NEW Nike Butterfly Ball Caps!🦋🧢🦋🧢 Order yours now at our #OnlineStore! Our #Nike #Butterfly #BallCaps are a great way to show your #support and help us raise #awareness for #eb. debracanada.org/products/debra…
#EBAwarenessWeek - Let's continue to advocate for #EB patients & caregivers, help to foster research & development of treatments & eventually a cure. Raise awareness, donate, host an event, fundraise, advocate. More: @debraOfAmerica @DEBRACanada @EBResearch @EpiBullosaNews
🦋Wings for EB🦋Take on the @DEBRACanada challenge this #EBAwarenessWeek by wearing a #ButterflyPin or #ButterflyTattoo & posting a photo on social media using hashtags #WingsForEB, #EB, #EBawareness. Don’t forget to tag @DEBRACanada for a chance to be on their website!
🦋Wings for EB🦋Take on the @DEBRACanada challenge this #EBAwarenessWeek by wearing a #ButterflyPin or #ButterflyTattoo & posting a photo on social media using hashtags #WingsForEB, #EB, #EBawareness. Don’t forget to tag @DEBRACanada for a chance to be on their website!
EB Awareness Week Oct 25-31, 2022. We challenge YOU to wear a DEBRA butterfly pin or tattoo. Share to social media with #wingsforEB, #EpidermolysisBullosa, #EB, #EBAwarenessWeek, and tag us @DEBRACanada. @InterDEBRA. Request a FREE pin or tattoo at buff.ly/2SoRegk
@THEVIVIENNEUK please share.
I Challenge You My Friends! To partake in this #WingsForEB Awareness Campaign with with me in lou of #EBawarenessweek And guess what?! It’s absolutely #Free!!
I Challenge You My Friends! To partake in this #WingsForEB Awareness Campaign with with me in lou of #EBawarenessweek And guess what?! It’s absolutely #Free!!
A BIG thank you to @MarilynDenisCTV and the @TheMarilynShow crew for featuring DEBRA Canada Patient Ambassador Deanna Molinaro on today's show- we can't wait to see the transformation and makeover of Deanna's art studio. #EBawareness #makeover #debracanada #EBAmbassador
Calling all Sponsors! Our 23rd Annual DEBRA Golf Classic Fundraising event is around the corner. Join us in making a difference in the lives of Canadian families affected by Epidermolysis Bullosa. To become a Golf Classic Sponsor, click here: buff.ly/3NgIF2m
debra of America @debraOfAmerica
2K Followers 192 Following Leading national nonprofit improving the lives of those impacted by Epidermolysis Bullosa (EB) —"The Worst Disease You've Never Heard Of."James Duthie @tsnjamesduthie
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17 Followers 71 Following Join us for the next International Congress on Epidermolysis Bullosa in April 2024 in Egyptmalik ehsaan🇵🇰�.. @malikehsaan40
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215 Followers 294 Following #稀少難病#表皮水疱症#EB#遺伝疾患#単純型#接合部型#栄養障害型#10万人に一人#国内推定1,000人#瘢痕合併症#食道狭窄#有棘細胞癌#NPO法人表皮水疱症友の会DebRA Japan #ハッピーパッケージ#間葉系幹細胞治療薬早期承認へ#BVECSamwel @Samwelalam
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107 Followers 89 Following Cinematographer | Photographer | occasional Directordebra of America @debraOfAmerica
2K Followers 192 Following Leading national nonprofit improving the lives of those impacted by Epidermolysis Bullosa (EB) —"The Worst Disease You've Never Heard Of."James Duthie @tsnjamesduthie
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77 Followers 238 Following Advocating for EB orphans around the globe, promising the world that no child will fight EB aloneSickKids Foundation @sickkids
55K Followers 7K Following We support The Hospital for Sick Children @sickkidsnews in Toronto, Canada. #PrecisionChildHealth is here. 🔮 #SKHealTheFuture #SickKidsVSStichtingvlinderkind @StichtingVK
111 Followers 296 Following Stichting Vlinderkind zet zich in voor genezing van de ernstige huidaandoening Epidermolysis Bullosa. Strijd met ons mee en doneer nu! 🦋LifeMadeDelish @LifeMadeDelish
21K Followers 7K Following Life Made Delicious’ official Twitter page! Let's chat about tips, recipes & more! From your friends at General Mills Canada. Customer support 1(800) 516-7780Lena Almeida @Listen2Lena
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24 Followers 40 Following for bookings reach me 7809757664 Colormehennabysukhi on fb/InstagramLooking forward to being Pro to the Pros at this incredible event May 1-4 in Las Vegas. @bernienicholls9 Celebrity Charity Golf & Poker Event. @DEBRACanada @betregal
📣 The Consensus guidelines for diagnosis & management of anemia in EB have been published! 🎊 Congratulations to the development team on their sterling work. Thanks to DEBRA Canada for funding their production & to everyone who completed the surveys. debra-international.org/anaemia-diagno…
#EBAwarenessWeek - Let's continue to advocate for #EB patients & caregivers, help to foster research & development of treatments & eventually a cure. Raise awareness, donate, host an event, fundraise, advocate. More: @debraOfAmerica @DEBRACanada @EBResearch @EpiBullosaNews
🦋Wings for EB🦋Take on the @DEBRACanada challenge this #EBAwarenessWeek by wearing a #ButterflyPin or #ButterflyTattoo & posting a photo on social media using hashtags #WingsForEB, #EB, #EBawareness. Don’t forget to tag @DEBRACanada for a chance to be on their website!
EB Awareness Week Oct 25-31, 2022. We challenge YOU to wear a DEBRA butterfly pin or tattoo. Share to social media with #wingsforEB, #EpidermolysisBullosa, #EB, #EBAwarenessWeek, and tag us @DEBRACanada. @InterDEBRA. Request a FREE pin or tattoo at buff.ly/2SoRegk
I Challenge You My Friends! To partake in this #WingsForEB Awareness Campaign with with me in lou of #EBawarenessweek And guess what?! It’s absolutely #Free!!
For #EBAwarenessWeek Oct 25 - 31. We Challenge you to Post A Photo wearing one of our Butterfly Tattoo’s & share using the hashtags #WingsForEB, #EpidermolysisBullosa, #EB, & #debracanada. Tag us @DEBRACanada Get your #Free #Tattoo now! debracanada.org/products/eb-aw…
A BIG thank you to @MarilynDenisCTV and the @TheMarilynShow crew for featuring DEBRA Canada Patient Ambassador Deanna Molinaro on today's show- we can't wait to see the transformation and makeover of Deanna's art studio. #EBawareness #makeover #debracanada #EBAmbassador
Get involved to help those living with #EB - raise awareness, donate, host an event, fundraise, advocate. #EBAwarenessWeek @debraOfAmerica - debra.org @DEBRACanada - debracanada.org @InterDEBRA - debra-international.org @EBResearch - ow.ly/k3l850GuODb
ICYMI - Contemporary artist Deanna Molinaro (Visual and Creative Arts ‘18) went live with Canadian Actor/Producer Jake Manley to talk all things #EB, life and @DEBRACanada. Watch 📺 bit.ly/3EszqHA
🦋 Don't miss your chance to join @DEBRACanada today at 2pm EST on Instagram where friend and long time supporter/actor Jake Manley and Deanna Molinaro will be talking all things #EB life, living, education, and awareness! #EBAwarenessWeek
Join us for a special Instagram LIVE Event this Thursday, October 28, 2021 at 2 pm EST. Join DEBRA Director/Patient Advocate/Artist Deanna Molinaro and Canadian Actor/Producer @jakemanley_ as they discuss all things #EBAwarenessWeek. buff.ly/3mfK4uQ
@MattDuniganTSN @CFLonTSN Right back at ya Matty! @Ticats @DEBRACanada We, the DEBRA Family are forever grateful for all you do for our cause and helping to bring awareness.. luv ya bro 👍#EBAwareness
The butterflies in our #EBAWarenessWeek ribbon represent the different DEBRA organisations around the world, which signifies our unity with @InterDEBRA to #FightEB. 🌍 #EBAWarenessWeek2021 #EBAW #EBAW2021 #FightEB #EpidermolysisBullosa #EB
Now available! - Our beautiful butterfly scares come in 4 different colour options. Only $20.99 each and receive a free Butterfly EB Awareness Pin when purchased before November 1, 2021. To purchase, visit: buff.ly/3m0vHKE
Thank you @DEBRACanada for allowing us to be Title Sponsor to this year's Charity Golf Classic Fundraising Event. EB affects many Canadian families and we hope today's event provides help to those who need it. ⛳ Golfing w/ @MattDuniganTSN & @bernienicholls9 wasn't bad either!
3 years ago today we lost this warrior. Unfathomable pain every day of his life, and still the most positive person you’ll ever meet. We could all use Jonny’s attitude in these times. @DEBRACanada
TODAY IS #RareDiseaseDay2021 Please take a moment to read & share this thread to help me spread #EBawareness💛 Stay positive and keep healthy.xx @LanaParrilla @bexmader @frandrescher @sean_m_maguire @jakemanley_ @jocelynhudonx @thelaurengraham @lunamferguson @DEBRACanada
IT’S MORE THAN SKIN, no matter how unique our appearance may be, it is our inner most self that shines brightest and defines our legacy... Completely humbled to share my #EB journey with all of you in honour of #RareDiseaseDay Stay positive & be healthy.rarediseaseday.org/stories/7258
#BellasBallofFriction Activity Challenge starts next week! Learn more about how you can get active in a friction-oriented sport/activity to support @DEBRACanada families affected by epidermolysis bullosa (EB), a painful rare genetic skin disease. ow.ly/Kdxb50DEVK5
DEBRA Canada wants to wish you all the best this holiday season. Please click this link to read the full message from our President. conta.cc/3aBfnej #debracanada #wefighteb