DECISION2 @DECISION_Study
Follow-on study refining a decision aid for family members making decisions about research on behalf of someone lacking capacity to consent (PI @VickyLShepherd) cardiff.ac.uk/centre-for-tri… Cardiff, Wales Joined November 2017-
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The research from @DECISION_Study which explored the acceptability & use of a decision support tool for consultees/legal reps will continue to be developed as part of new CONSULT project to evaluate the effectiveness of the intervention. Follow @consult_consent for more updates
The research from @DECISION_Study which explored the acceptability & use of a decision support tool for consultees/legal reps will continue to be developed as part of new CONSULT project to evaluate the effectiveness of the intervention. Follow @consult_consent for more updates
A summary of @DECISION_Study results have been added to @CTRCardiffUni website cardiff.ac.uk/centre-for-tri… & shared with all those who kindly took part. Next stage is to refine & test the decision support tool as part of CONSULT project funded by @ResearchWales More details to come!
Interviews for @DECISION_Study now completed. Many thanks to those who kindly took part & to @beatdementia for supporting recruitment. Analysis is underway, & exciting news about next steps for this work on research involving adults with impaired capacity to consent to follow ...
Join Dementia Research @beatdementia is a hugely important resource to link researchers & people wanting to help research. Its been invaluable for @DECISION_Study recruitment, & participants have enjoyed taking part from the comfort & safety of their homes. Please sign up!
Join Dementia Research @beatdementia is a hugely important resource to link researchers & people wanting to help research. Its been invaluable for @DECISION_Study recruitment, & participants have enjoyed taking part from the comfort & safety of their homes. Please sign up!
@DECISION_Study explored one of the challenges to including people with impaired capacity to consent in research - how family members make decisions about participation - as part of @NIHRcommunity fellowship funded by @ResearchWales #TrialConductResearch cardiff.ac.uk/centre-for-tri…
We are looking for people to take part in our new @CTRCardiffUni study. Are you a carer for a family member living with dementia? Could you take part in an online interview to test a decision support booklet? If so, please see more info at bit.ly/302afug and get in touch
If you want to make sense of why the UK government are making the decisions they are making with regard to coronavirus: they have prepared over the last decade for a pandemic (focusing on pandemic flu) and the strategy and evidence based is public gov.uk/guidance/pande…
‘He would probably want to help people if he could’: making decisions about research on behalf of people living with #dementia via @VickyLShepherd @DECISION_Study bgs.org.uk/blog/%E2%80%98…
The DECISION study by @VickyLShepherd Family members’ experiences of informed consent & proxy decision making for research involving adults lacking capacity. Results summary video and links to 2 published papers - cardiff.ac.uk/centre-for-tri… @ResearchWales @CR_UK @CUBLSResearch
The DECISION Study - completed as part of my NIHR Fellowship @ResearchWales - has now been updated on @CTRCardiffUni website to include the lay summary, first publication of results & animation of findings cardiff.ac.uk/centre-for-tri… @DECISION_Study
First paper from @DECISION_Study exploring families' experiences acting as consultee/legal representative for research now published in @Age_and_Ageing doi.org/10.1093/ageing… & animation of findings on You Tube bit.ly/2OxzRcX
Essential work and an opportunity to help shape it here 👇🏻
We are looking for families of people living with dementia, & researchers (esp. research nurses) who recruit people with impaired capacity, to join an event on 25th March in Cardiff to help develop a tool to support decision-making about research @PRIMECentre @CTRCardiffUni

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