DiAMoND Study @DiAMoNDstudy_
Developing a decision aid to support individuals with MND to decide whether to have a gastrostomy feeding tube|@mariecurieuk & @mndassoc funded|@unisouthampton Southampton, England Joined January 2019-
Tweets71
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Followers266
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Following230
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Likes112
Here's the link to the decision aid for professionals mndassociation.org/professionals/… And this is the one to share with patients mndassociation.org/support-and-in… Or just google 'gastrostomy tube is it for me'
We are currently making a short film to promote 'Gastrostomy tube - Is it for me?' If you have MND, have used the decision aid and might be interested in taking part, please get in touch asap. We would come to you to film @mndassoc
We are currently making a short film to promote 'Gastrostomy tube - Is it for me?' If you have MND, have used the decision aid and might be interested in taking part, please get in touch asap. We would come to you to film @mndassoc
Excited to announce the launch of the 'Gastrostomy tube - Is it for me?' decision aid on the MND Association website. This decision aid was developed as part of the DiAMoND study. mndassociation.org/diamond-patien….
A new tool has been launched to support people with #MND to make decisions about tube feeding. ‘Gastrostomy tube – is it for me?’ helps people explore whether they want the intervention now, and allows them to revisit their decision at a later time. gastrostomychoice.co.uk
Please RT We are looking for #HCPs to share your thoughts on how the #MND decision aid (gastrostomychoice.co.uk) can be integrated into clinical practice. Online focus groups will be held on 18th, 19th and 20th May. Please get in touch: [email protected] if interested.
We are looking for #HCPs to share your thoughts on how the #MND decision aid (gastrostomychoice.co.uk) can be integrated into clinical practice. Online focus groups will be taking place towards the end of May. Please get in touch: [email protected] if interested.
If you have #MND and are considering a feeding tube, please take a look at our decision aid at gastrostomychoice.co.uk & let us know what you think of it. Carers' and health professionals' views also wanted @mndassoc @mariecurieuk
We’re looking for HCPs working with people with #MND (plwMND) to help evaluate a decision aid designed to support plwMND making the decision on whether to have a gastrostomy tube. View the decision aid & find out about the @unisouthampton study here: gastrostomychoice.co.uk
We’re looking for people caring for someone with #MND to provide feedback on a decision aid designed to support people with MND. View the decision aid & find out more about the @unisouthampton study here: gastrostomychoice.co.uk
We’re looking for people with #MND (plwMND) to take part in our @unisouthampton study to evaluate a decision aid designed to support plwMND making the decision on whether to have a gastrostomy tube. View the decision aid & find out more here: gastrostomychoice.co.uk
Phase 3 of the @DiAMoNDstudy_ is ready to go! Look out for further tweets to find out more #MND #MNDresearch #decisionmaking
Can you help with the important research below?

Chris McDermott @profcjmcdermott
1K Followers 454 Following Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
Jayne Halhead @Jaynes__World
6K Followers 5K Following In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease.... #MND #MoreNeedsDoing! Championing the North West!
Nick Goldup @NickGoldup1
1K Followers 1K Following Chair and Chief Operating Officer of the Wheelchair Alliance CIC
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London Co-Director UK MND Research Institute MND ALS Specialist. @ammaralchalabi.bsky.social
CN Magazine @CNmagazines
7K Followers 6K Following The UK's No.1 clinical, medical and health nutrition publication. Information for healthcare professionals (HCPs) ONLY. All tweets are aimed at qualified HCPs.
UHLDIETITIANS 🌈�... @UHL_DIETITIANS
6K Followers 3K Following We are a large team of acute dietitians and nutrition nurses working across many specialist areas within the University Hospitals of Leicester.
MND Campaigns @mndcampaigns
8K Followers 2K Following Campaigning with people with motor neurone disease #MND @mndassoc https://t.co/rIuOUImfka
Danielle Boyce @DataSciDanielle
562 Followers 994 Following Data scientist/Drug Repurposing, Neurodegen + Epilepsy + ID + Oncology//art lover//patient advocate//mom of 4 / Views strictly my own.
BDA Parenteral and En... @BDA_PENG
7K Followers 270 Following The Parenteral and Enteral Nutrition Group (PENG) is a specialist group of the @BDA_Dietitians and a founder group of @BAPENUK Instagram @bda_peng
Francesca L 💙 @PPI_poppet
3K Followers 5K Following Research Co/ord & Public Involvement Lead Health Workforce &Frailty, UoS;Occasional guest lecturer. Mum of 4 incl adult twins with Down’s.Views my own,she/her
Kerry Smith RD @DietitiansKerry
450 Followers 478 Following Head of Service - Integrated Musculoskeletal Services at Kent Community Health NHS Foundation Trust. All opinions are my own. 🏴🏴
Rochdale Care Organis... @RCODietitians
10 Followers 81 Following Adult & Children Nutrition and Dietetic Services: Heywood,Middleton,Rochdale (HMR) Community
Lucy Musson @lucysmusson
40 Followers 169 Following PhD student exploring the use of technology to improve outcomes for people living with motor neuron disease. Public Involvement Lead on the CONTACT-GAD trial.
Pauline Boyle @Pauline29412213
211 Followers 422 Following CORU Registered Clinical Specialist Dietitian TUH / Mother of 2 ❤💙 / All views are my own
Sancha Brody-Stalker @SBrodyStalker
17 Followers 488 Following
SLT SWB @swb_slt
1K Followers 2K Following Speech & Language Therapy at Sandwell and West Birmingham NHS Trust.
Clare Corish RD @CACorish
4K Followers 2K Following RD, Fellow INDI, Professor of Clinical Nutrition & Dietetics, UCD
Craig Trotter @craigtrotter20
371 Followers 3K Following ND. Mental health SALTA 🧠. Fan of SSFC & SAFC⚽️, Yoga🧘🏻♂️, Researching 💻 & Green spaces🌿.
Wilbo's Blends @wilbo_s
108 Followers 364 Following Committed to creating 100% real food meals for the blended diet community. providing natural goodness, variety and convenience. https://t.co/O0c7JdFe71
Optical Jukebox @OpticalJukebox
129 Followers 260 Following Bringing real people's stories to light... documentary film and photography that changes lives. Working with health, research, communities and charities.
Emma Vickers @emvickers
188 Followers 301 Following Independent documentary filmmaker and co-founder of Optical Jukebox with @cathy_soreny
Grace Hallinan @hallinan_grace
3 Followers 89 Following
NHS Whipps Cross Hosp... @WhippsDietitian
1K Followers 2K Following We are the Whipps Cross, Barts Healthcare NHS Trust Dietetic team in NE London. Patient centred, clinical nutrition to support treatment & recovery 💪
Georgie Adams @georgieadams47
280 Followers 2K Following Lead CNS: Patient Safety, Quality & Experience Clinical Nutrition. Views & Opinions are my own
SimplyK @SimplifyKB
22 Followers 216 Following
Catherine McKenna @cat_mckennaRD
357 Followers 596 Following Dietetics Professional Lead and Registered Dietitian @YSTeachingNHS. All views are my own. RT not endorsements.
Sharon McEwen @smcewenuk
65 Followers 265 Following Nutrition Support Dietitian @NCAlliance_NHS. Wife & mum. Kiwi at heart. Views are my own
Dr Emma McLaughlin @EmmaMcSLP
1K Followers 523 Following Living on Taungurung Land. She/her. Speech-Language Pathologist. I have seronegative spondyloarthritis.
JulieCarson @Julie_Carson229
165 Followers 202 Following
@DrJackieMcRae 🎗 @drjackiem
4K Followers 2K Following PhD Dysphagia FHEA FRCSLT• Associate Professor•Rehab Researcher• Speech & Language Therapist•Associate Editor•Mentor/Supervisor•Mum👫👫🐾
themnddiaryproject @mnddiaryproject
136 Followers 314 Following Listening to stories of people living with Motor Neurone Disease to help improve future healthcare. Monitored 8-4 weekdays.
Susan Stewart @MNDSusan
257 Followers 368 Following Clinical Nurse Specialist for Motor Neurone Disease. NHSG. Passionate about compassion. Lover of music, reading, ice cream and my adorable Labrador 🐶
Siwan Haf Seaman @siwan_haf
190 Followers 300 Following Gwraig i Paul, mam i Ela Grug a Greta Fflur. Meddyg diwedd oes. Palliative Care Consultant @mariecuriecymru Safbwyntiau personol. Views are my own
MND Peer Support @MND_PeerSupport
205 Followers 1K Following A virtual peer-to-peer support programme for informal caregivers of individuals with Motor Neurone Disease at risk of becoming or currently technology-dependent
Claire Lang @ClaireLang1
227 Followers 398 Following Mum of boys. MND Specialist Nurse & Care Centre Coordinator - Leeds MND Care Centre. Proud to be NHS. All views are my own.
Lil Diamond @lilysharratt
506 Followers 304 Following Mum to two energetic small people Oncology Dietitian working in East Kent Run Leader with Faversham Running Club Lover of good food and wine
Jo Hulks @johulks
23 Followers 150 Following
Nicholas Cole @nickjamescole
484 Followers 176 Following Head of Research for The MND Association. MND ALS Research Scientist, Research Group Leader, Adjunct Research Fellow, Kitesurfer, Husband, Dad.
Angelica Skår @AngelicaSkaar
107 Followers 402 Following RD🍏 Reseach enthusiast👋🏻 All views are my own
Emma Wilkinson @DonDotta1
52 Followers 263 Following Specialist Dietitian @nhslothian. 👨👩👧🐶 All tweets are my own opinion.
Artika Datta @ArtikaDatta
152 Followers 258 Following Home Enteral Feeding and Motor Neurone Disease Dietitian(CUH NHS Foundation Trust) l Trustee @ramafoundation
Izzie Baverstock-Popp... @izzie_bp
238 Followers 410 Following Research Manager at @mariecurieuk passionate about people and positive change. All views my own. Music enthusiast 🎶 , cheese lover 🫕 and plant killer 🌱🥲
Anas Hassan @Opainlexz
53 Followers 529 Following Rehab Gaza 🇵🇸 ! Physical Medicine & Rehabilitation Physician ¦ Aim to change ¦ Brain Decoding is Amazing ¦ SCI & MSK ¦ Pain management ¦ Stateless
Jo Campbell MNDAssoc @jo_mndassoc
348 Followers 230 Following Area Support Co-ordinator for @mndassoc covering Devon & Cornwall Views are my own #worldfreefromMND #MND
S @stephshayler
23 Followers 192 Following
APM @APMPostTweets
6K Followers 6K Following The Association for Palliative Medicine - for all #hapc doctors and professionals in the UK & Ireland & beyond #palliativecare
Marie Curie EOLC @MarieCurieEOLC
7K Followers 4K Following News from @mariecurieuk for health professionals, researchers and those working in end of life care. Together we’ll ensure a better end of life for all.
Rhian Wyn @rhiandolellog
73 Followers 250 Following Cymraes, Therapydd Iaith a Lleferydd wedi ymddeol
Kate Spencer @KateBrandrick
119 Followers 982 Following
Olivia Farmer @OliviaJFarmer
289 Followers 325 Following London based Speech and Language Therapist. Interests include FEES, VFS and dysphagia rehabilitation. Currently setting up Community FEES.
NHS Tayside Nutrition... @taysidedietetic
713 Followers 632 Following 📕Working in partnership to provide an excellent service to improve the nutrition, health and wellbeing of the Tayside population.
Emma @EmmaTrippRD
240 Followers 374 Following NHS Home Enteral Feeding Dietitian 🏥 Apprenticeship MSc Advanced Clinical Practice pending… 👩🏻🎓 All views my own #RD
MND West Dorset @MNDWestDorset
448 Followers 403 Following The West Dorset Branch of the Motor Neurone Disease Association supporting local people living with MND, their carers & families. #WestDorset #MND @MNDassoc
MNDA East Surrey @mndaeastsurrey
2K Followers 2K Following Supporting people living with Motor Neurone Disease #MND throughout the East Surrey area. Tweets by @dsetters and @SimonEdmands
Kerry Speech & Langua... @kerrysltclinic
211 Followers 351 Following Kerry Speech & Language Therapy Clinic-the longest established private SLT clinic in Kerry. We work across Tralee, Killarney, Cahirciveen, Listowel & Dingle.
MC @durthwhippy
30 Followers 545 Following
MND Association @mndassoc
47K Followers 12K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Dr Alison Culkin @AlisonCulkin
7K Followers 177 Following Consultant Dietitian, @StMarkshospital. 1st UK Dietitian prescriber, chair @BDA_prescribers. Tweets own views.
MND Education @mndeducation
3K Followers 942 Following The Education and Information team at @mndassoc for England, Wales and Northern Ireland. Account monitored 9-5.30 Monday to Friday.
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
Nutrition Doc @Leicnut
20K Followers 69 Following Nutrition tweets and humour from Jim Stewart, Clinical Lead of Leicester Intestinal Failure Team. Tweeting in a personal capacity. Anonymous profiles=no reply.
Chris McDermott @profcjmcdermott
1K Followers 454 Following Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
Jayne Halhead @Jaynes__World
6K Followers 5K Following In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease.... #MND #MoreNeedsDoing! Championing the North West!
Nick Goldup @NickGoldup1
1K Followers 1K Following Chair and Chief Operating Officer of the Wheelchair Alliance CIC
British Dietetic Asso... @BDA_Dietitians
40K Followers 2K Following The professional association & trade union for UK dietitians. The UK's largest organisation of food & nutrition professionals. Press enquiries: 0121 200 8018
Dr Ahmad Al-Khleifat @AhmadAlKhleifat
2K Followers 334 Following Clinician and Scientist interested in ALS genetics. King’s College London @kingsmnd
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London Co-Director UK MND Research Institute MND ALS Specialist. @ammaralchalabi.bsky.social
BAPEN UK @BAPENUK
10K Followers 904 Following Charity working to advance the nutritional care of patients and those at risk from malnutrition in all care settings and the community https://t.co/vayEsKQDkr
CN Magazine @CNmagazines
7K Followers 6K Following The UK's No.1 clinical, medical and health nutrition publication. Information for healthcare professionals (HCPs) ONLY. All tweets are aimed at qualified HCPs.
UHLDIETITIANS 🌈�... @UHL_DIETITIANS
6K Followers 3K Following We are a large team of acute dietitians and nutrition nurses working across many specialist areas within the University Hospitals of Leicester.
BDA Parenteral and En... @BDA_PENG
7K Followers 270 Following The Parenteral and Enteral Nutrition Group (PENG) is a specialist group of the @BDA_Dietitians and a founder group of @BAPENUK Instagram @bda_peng
Kerry Smith RD @DietitiansKerry
450 Followers 478 Following Head of Service - Integrated Musculoskeletal Services at Kent Community Health NHS Foundation Trust. All opinions are my own. 🏴🏴
Catherine Collins �... @RD_Catherine
8K Followers 662 Following UK #NHS ICU Registered Dietitian. Loves food, diet, nutrition research and media. Intolerant of dodgy health/ nutrition/ medical claims and those promoting them
Izzie Baverstock-Popp... @izzie_bp
238 Followers 410 Following Research Manager at @mariecurieuk passionate about people and positive change. All views my own. Music enthusiast 🎶 , cheese lover 🫕 and plant killer 🌱🥲
Marie Curie EOLC @MarieCurieEOLC
7K Followers 4K Following News from @mariecurieuk for health professionals, researchers and those working in end of life care. Together we’ll ensure a better end of life for all.
PCRS @PCRScommittee
3K Followers 473 Following The Palliative Care Research Society is dedicated to promoting palliative care research through information sharing, networking and training
Emma @EmmaTrippRD
240 Followers 374 Following NHS Home Enteral Feeding Dietitian 🏥 Apprenticeship MSc Advanced Clinical Practice pending… 👩🏻🎓 All views my own #RD
MNDA Leics & Rutland @MNDA_Leics
1K Followers 688 Following Leicestershire & Rutland branch of the Motor Neurone Disease Association.
MND West Dorset @MNDWestDorset
448 Followers 403 Following The West Dorset Branch of the Motor Neurone Disease Association supporting local people living with MND, their carers & families. #WestDorset #MND @MNDassoc
MNDA East Surrey @mndaeastsurrey
2K Followers 2K Following Supporting people living with Motor Neurone Disease #MND throughout the East Surrey area. Tweets by @dsetters and @SimonEdmands
West Surrey MNDA @westsurreymnda
145 Followers 136 Following West Surrey Branch MNDA supports people living with #MND and their families. We aim to provide practical and emotional support. New Page for @MNDA_SWSURREY
Lucie Spurway @SLT_LuciSpurway
95 Followers 247 Following Speech and Language Therapist supporting people with neurodegenerative disorders.
Kerry Speech & Langua... @kerrysltclinic
211 Followers 351 Following Kerry Speech & Language Therapy Clinic-the longest established private SLT clinic in Kerry. We work across Tralee, Killarney, Cahirciveen, Listowel & Dingle.
Chris Wade @ChrisWade_TFI
3K Followers 4K Following Charity Leadership Professional. Passionate about the power of people and community. Managing Director of Time for Impact https://t.co/slrd9FOG9F
DALLI Study @DalliStudy
26 Followers 34 Following DALLI study: Domestic abuse and life-limiting illness - identifying and supporting adults at risk @arc_wessex @MMyall
Carmel Grant @CarmelG47274000
98 Followers 102 Following Retired - proud mum of two wonderful sons and a gorgeous granddaughter. Volunteer -#MNDA and @Hospicstfrancis Views all my own!
Ross Little @RossLittle20
71 Followers 158 Following Public Health for work and study 📖 Irons ⚒️ Bunny enthusiast 🐰 Learning to run 🏃♂️
UoW Nutrition and Die... @UoWDietetics
584 Followers 945 Following Nutrition & Dietetics staff and students @_UoW An innovative undergraduate programme with a range of practice education settings within and beyond the NHS
MND Volunteering @mndvolunteering
697 Followers 260 Following We're the volunteering team for @mndassoc. We work closely with our volunteers and together we are #StrongAgainstMND Email: [email protected]
MNDa Bristol & Bath G... @mndaBristolBath
545 Followers 268 Following We provide information, advice and support to local people affected by Motor Neurone Disease @mndassoc #MND #MNDa #als #DrivingMNDResearch
British Society of Ph... @BSPRM_UK
2K Followers 347 Following The BSPRM represents doctors who practise in Rehabilitation Medicine in the UK. We support education and research in disabling conditions.
Nick Dando @NickDando3
72 Followers 86 Following Chief of Clinical Services and Consultant in Palliative Medicine. Thames Hospice. All opinions are my own.
Kate Hampshire-Jones @dietitiankhj
184 Followers 561 Following Registered dietitian and service lead for First Dietitians. Passionate about food, enteral nutrition, healthcare and leadership. All views my own.
Joanne Wakeling @joanne_wakeling
80 Followers 105 Following Lead Nurse for nutrition at Royal Berkshire (for parenteral nutrition). NNNG committee member. Previous nutrition commercial experience within home care (HPN)
@UoS_Nutrition @Uos_Nutrition
501 Followers 748 Following Latest Nutrition News, Research and Events from Staff and Students @unisouthampton
Cassandra Bendall @_cassbendall
183 Followers 439 Following Dietitian | Passionate about ice cream and dogs.
Kate Standeven (RD) @KJStandeven
42 Followers 145 Following Registered dietitian (member of BDA & HCPC) passionate about diet, health and wellbeing.
The Doctoral College @UoSDocCollege
3K Followers 718 Following We're the Doctoral College at @unisouthampton, here to support #postgraduate researchers, supervisors & staff. Follow for the latest PGR news, events & updates.
PabloGarciaReitboeck @pablogarciareit
312 Followers 493 Following 👨👩👧👦👨⚕️🏥🇦🇹🇪🇦🇪🇺🇬🇧 Neurologist @stgeorgestrust. #mnd #myasthenia gravis #clinical trials
kim willoughby @kimwilloughby20
96 Followers 157 Following Critical Care Sister. Qualified Professional Nurse Advocate,passionate about nursing wellbeing! Mum to 2 little ladies. My opinions are very much my own 😊
Journal of Human Nutr... @JHND_Official
7K Followers 145 Following The Journal of Human Nutrition and Dietetics is an international journal and the official journal of @BDA_Dietitians. Editor in Chief is @ProfLaurenBall.
Paula Leslie @profpleslie
2K Followers 429 Following Thinks: ethics, food, decision making, food, clinical education, food, swallowology. & right now 💜💉 VACCINATIONS 💉💜 . All views my own.
Esther Hobson @DrEstherHobson
685 Followers 245 Following Consultant Neurologist/senior lecturer working at SITraN on ways to improve care for Motor Neurone Disease using telehealth and NIV (bikes and views are my own)
Dr Aida Suarez-Gonzal... @Aida_Suarez_
2K Followers 137 Following Clinical Neuropsychologist • Principal Research Fellow at @UCLIoN • Dementia • #PCA #PPA #FTD #Rehab • Funded by @NIHRresearch @aidasuarez.bsky.social
Cure MND @CureMND
1K Followers 3K Following Six people a day die with Motor Neurone Disease (#MND) / UK. @MHRAgovuk & @NICEcomms should conduct an Accelerated Review for existing treatments.
nicky pateman 💙 @nickyp_physio
123 Followers 278 Following Macmillan Unit Therapy Team Lead, Specialist physiotherapist palliative care, @macmillanlocal #physio #palliativecare #whatmatters All views my own
Palliative Care CEN f... @PalCareCEN
2K Followers 359 Following Clinical Excellence Network for SLTs with an interest in End of Life & Palliative Care. Organising study days, webinars & sharing best practice ✨
Jodi Allen @JodiAllenSLT
4K Followers 2K Following Clinical Specialist Speech & Language Therapist in Progressive Neurological & Neuromuscular Disease @NHNN_therapies | #NIHR #CDRF Award Holder @CMI_UCL
Tom Burke @tommjburke
2K Followers 3K Following Principal Specialist Clinical Neuropsychologist | Associate Professor | Interested in social cog, mental health, neurodegeneration & stroke @GalwayNeuro 🧠
Southampton Research ... @RSGsoton
504 Followers 722 Following Developing and improving Software, training and bringing together researchers at the University of Southampton
Debbie McAlees @McaleesDebbie
317 Followers 2K Following
Ally Lycett @allylyce_physio
286 Followers 883 Following #Physio #Palliative #NHS #hospice #mnd @macmillanlocal @UHDTherapies @UHD_NHS. Mum of 3 boys.
ann mcsorley @annimac57
159 Followers 277 Following
Lucy Brading @Brading_Lucy
492 Followers 891 Following Research Fellow working on developing a digital health intervention for musculoskeletal conditions. Patient & public involvement advocate! She/ her
Natalia Himowicz @nataliahimowicz
49 Followers 321 Following Marketing professional with a passion for innovation and creative ideas that flourish. Views my own.
Laura Shanahan @lshanahan03
327 Followers 2K Following Medical student | She/her | All views are my own