EndoPcoSOS @ENDOPCOSOS

Connecting with women with diagnosed or suspected endometriosis and/or PCOS for support, sharing and collective action #deedsnotwords United Kingdom Joined November 2021

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117
Following

114
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529

EndoPcoSOS @ENDOPCOSOS

11 months ago

It's hard to listen to people tell you not to get angry about an issue that doesn't affect them.If the healthcare system actually worked for those with conditions like PCOS or Endo, I'm sure I'd be able to 'chill out' too... this is why community & allyship is so important!

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𝐁𝐨𝐧𝐭𝐥𝐞 | Endometriosis South Africa🎗 @EndometriosisSA

11 months ago

Endometriosis Reminders ✨ - Not everyone can afford surgery - Not everyone has supportive partners/family - Not every medication works for everyone - Self-care is essential, not selfish - Your pain is valid, even if others can’t see it - You’re not alone 💛 #endometriosis

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Evelyn Scott @evelyn_scott_

11 months ago

#Endometriosis also causes hideous hormonal migraines, and I am experiencing a fierce one today. I gave myself permission to rest, and spent the day on the sofa. Listen to your body. It's taken a long time for me to learn this, but your body will always tell you when it needs to…

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EndoPcoSOS @ENDOPCOSOS

12 months ago

Finally, some sense! And on this subject...Shout-out to the PE teacher who ripped up a note my mum wrote when I was in agonising pain & said loudly so others could hear: 'Periods AREN'T a reason not to do P.E.' 🤯 theguardian.com/education/2024…

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EndoPcoSOS @ENDOPCOSOS

12 months ago

💯

Dimitrios Tsatiris MD @DrDimitrios

12 months ago

💯

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BBC News (UK) @BBCNews

12 months ago

Period pain policy reversed as school apologises bbc.in/3zXk7dd

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EndoPcoSOS @ENDOPCOSOS

12 months ago

What a compassionate message ❤️

Miranda Hart @mermhart

12 months ago

What a compassionate message ❤️

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GC @ThePOTSPostman

12 months ago

“Maybe if you didn’t think about your illness, it wouldn’t effect you so much” I wish it worked that way! Unfortunately, chronic illness doesn’t take a break when I’m not thinking about it.

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Verity (PCOS UK) @veritypcos

12 months ago

Get your #PCOSMerch & help raise awareness whilst supporting Verity’s work in fighting for better outcomes for all 💜💜 pcosmerch.com

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EndoPcoSOS @ENDOPCOSOS

12 months ago

That moment when someone close to you, who never quite seemed to fully believe your symptoms actually sees you during a flare up... #Endo #PCOS #WomensHealth #Endometriosis #Heavyperiods

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Anna 🎗 @BattleWithEndo

12 months ago

The fact we still 16 years on from when I was dismissed & ridiculed at times in school for my painful periods (which was later diagnosed in stage 4 severe endometriosis), & we are still no further forward is beyond me

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EndoPcoSOS @ENDOPCOSOS

12 months ago

Ah, TENS machine...we meet again!

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EndoPcoSOS @ENDOPCOSOS

12 months ago

People + healthcare + profit = a broken system where vulnerable people get taken advantage of #healthinequity #womenshealth #healthcare #healthempowerment #PCOS #Endo #peopleoverprofit

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EndoPcoSOS @ENDOPCOSOS

12 months ago

The healthcare system does a great job of keeping women feeling small...because there's not enough money invested into women's health conditions, we're still mostly using models based on the male body etc. It's 2024. It's about time things changed. Women are being failed.

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EndoPcoSOS @ENDOPCOSOS

12 months ago

The Healthcare System Doesn't Work For Women And This Needs To Change Now #womenshealth #healthinequity #PCOS #endo #endometriosis

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EndoPcoSOS @ENDOPCOSOS

12 months ago

Women Deserve To Be Treated With Respect Especially When It Comes To Healthcare #Womenshealth #healthinequity #PCOS #Endo #Endometriosis And that's the tweet!

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EndoPcoSOS @ENDOPCOSOS

12 months ago

Waited months for private gynae referral. Ask to be referred to a nutritionist to support natural management of symptoms.Get told they don't know any specialists and that 'there's loads of nutrition advice for PCOS on social media.' People pay up to £220 for these consultations!

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Endometriosis UK @EndometriosisUK

a year ago

Recording available: PCOS at Work, a webinar in our Menstrual Health at Work series about PCOS at work. In this webinar, with @veritypcos, we explain what PCOS is and how employers can support staff with the condition. Available at: endometriosis-uk.org/webinar/pcos-w… #PCOSAwarenessMonth

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Verity (PCOS UK) @veritypcos

a year ago

📢 A N N O U N C E M E N T 📢 @veritypcos & @cardiffuni are so excited to announce the official launch of our @LindAlliance Priority Setting Partnership for #PCOS. The #JLAPCOS PSP will create the Top 10 research priorities for PCOS in the UK. 📷 Some of our steering group

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EndoPcoSOS @ENDOPCOSOS

a year ago

YES Demi! So inspired by you opening up about your endometriosis on #loveisblinduk. Great interview too! Now where do we get more amazing and empowering specialists like Dr Nitu? ❤️ #endometriosis #endo #womenshealth youtu.be/E7o-9PWMBqw?si…