EndoEdition @EndoEdition
🔅 Reliable endometriosis facts, research, and awareness 🔅 Advocating the largest women's health crisis of our time, also affecting trans & non-binary. instagram.com/endoedition West Midlands, England Joined April 2018-
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We call on the UK Government to introduce statutory paid menstrual leave of up to 3 days per month for people with conditions such as endometriosis and adenomyosis, following the model introduced in Portugal in 2025. Help us get to 100,000 signatures 📝 petition.parliament.uk/petitions/7323…
This is our pain. Powerful speech, thank you @PearseDoherty. Post via @Kathleen_M_King. #endometriosis #adenomyosis
This is our pain. Powerful speech, thank you @PearseDoherty. Post via @Kathleen_M_King. #endometriosis #adenomyosis
Working women are too often left to deal with endometriosis alone. But big changes could be coming... Via @Kathleen_M_King theconversation.com/working-women-…
Endometriosis: 'I'm disgusted with the NHS after our daughter took her own life' news.stv.tv/east-central/f…
I spoke with the amazing @AnitaNnekaJones about her long journey with endometriosis as says she was ‘gaslit by doctors for 14 years’ independent.co.uk/life-style/hea…
waited 18+ months for a referral, diagnosed with a serious mental illness, had to move in with my parents because I wasn’t able to work enough to pay rent, move meant I was dropped from local services & am back at square one & can work less than ever. what a worm this man is
waited 18+ months for a referral, diagnosed with a serious mental illness, had to move in with my parents because I wasn’t able to work enough to pay rent, move meant I was dropped from local services & am back at square one & can work less than ever. what a worm this man is
Any journalist or commentator talking about PIP being easy to get should see for themselves how hard it is. Far too many people talking about things they know nothing (and don’t care) about.
Any journalist or commentator talking about PIP being easy to get should see for themselves how hard it is. Far too many people talking about things they know nothing (and don’t care) about.
So excited to be starting the next stage of my PhD which will involve interviewing those with a lived experience of #endometriosis about their interactions with primary health care physicians. If you are interested please drop a message to email on poster or scan the QR code 🎗️
Annalise Weckesser "UK folks - if know a young person (10-18 years) who experiences *period pain* - there is this amazing study being conducted by my friend and colleague @UniofOxford....." @EndoSRN @VQ_Birmingham phc.ox.ac.uk/research/group…
"Studies of how quickly doctors interrupt patients find that the median time is 11 seconds. Nobody feels listened to in 11 seconds." @Richard56 discusses the healing power of being listened to bmj.com/content/385/bm…
A life well lived. Rest Jahmby🕊️
Our hearts are shattered by the loss of @JahmbyKoikai, an extraordinary endometriosis advocate for all. She was a warrior in every sense of the word. Her passion, strength, & relentless dedication inspired us all and touched the lives of so many in our community and beyond.
BREAKING NEWS Njambi (Jahmby) Koikai alias Faya Mama has passed away😢💔 Mary Jahmby Koikai passed away following a long fight with endometriosis. Her friends and family have confirmed that she died in hospital on Tuesday morning. Rest In Peace🕊️
Research Opportunity👇👇 This study asks questions on your expectations and experiences of treatments for endometriosis and adenomyosis. Those living with either or both conditions are invited to take part at: forms.office.com/pages/response… #UniversityOfLiverpool #TEPEAstudy
Research Opportunity👇👇 This study asks questions on your expectations and experiences of treatments for endometriosis and adenomyosis. Those living with either or both conditions are invited to take part at: forms.office.com/pages/response… #UniversityOfLiverpool #TEPEAstudy
We're tackling healthcare disparities for people of color % the delayed diagnosis of endometriosis Despite widely cited statistics, they don't accurately represent communities of color. Rejected for funding, we're pursuing this research voluntarily, committed to inclusion 👇🏾

Project Endo @projectendo
6K Followers 957 Following 1st came Endo What?...then premiered Below The Belt, now we continue to mobilize for change as PROJECT ENDO.
Nancy Petersen RN ret... @nancynursez637
3K Followers 1K Following Started first LAPEX program with David Redwine for total excision of endometriosis 1986. Pt advocate, educator, retired RN, Volunteer for education
Kathleen M King @Kathleen_M_King
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Aimee Brown @AimeeLouB
624 Followers 441 Following Endometriosis and Mental Health Advocate Medical Cannabis Activist and Patient Social Care Student Believer in Spirituality, Karma & Consciousness
Michele Jansz @Michele68836887
333 Followers 259 Following Supports Excision lending to pathology for Endometriosis patients. #sideeffcts #chartnotedisastergirl #endometriosis *opinions expressed are my own*
TheHysteriaProject @HysteriaProjec1
519 Followers 780 Following A one-on-one storytelling project for and by people everywhere with menstrual and pelvic disorders. (Funded by @BundesKultur)
Macarena. @poderosautera
506 Followers 2K Following Amo bordar y leer. Soy artista textil y Arteterapeuta. Diplomada en Tanatología asistencial y educativa. Me condiciona vivir con Endometriosis IV. 🎗️
EXPPECT Edinburgh @exppect
2K Followers 2K Following News, comments and advice from Edinburgh’s EXPPECT Centre for Pelvic Pain and Endometriosis @MRC_CRH @horne_research @p_saunder🎗💛
Lynsey Redwood @Endit_Mendit
1K Followers 1K Following Endometriosis awareness advocate | Non-affiliated | Women's health | Nature loving whippet owner | Artist | Lateral thinker
Kirsteen Campbell @KirsteenCampbel
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Dr. Marina Kvaskoff @MKvaskoff
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EndoStats @endostats
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Meg @pinkink623
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PatLynk @PatLynk_
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Lital @LitalVoice
11 Followers 86 Following Content nerd | ASMR enjoyer | Low-key singer | #EndoWarrior🎗️💛 | 𝒩𝑜𝓉 𝒶𝓁𝓁 𝓌𝒽𝑜 𝓌𝒶𝓃𝒹𝑒𝓇 𝒶𝓇𝑒 𝓁𝑜𝓈𝓉…
April Kavendo @truly_kenyan1
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Stinkin' Weasel @beautifulweasel
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Charlize @CharlizeSinger
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Kimbugwe Rogers @ellie851032
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PR8z11 @PR8z11
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EUmetriosis @EUmetriosis
9 Followers 50 Following Using a multipronged approach, the EUmetriosis project aims to address critical unmet clinical needs around endometriosis.
Martha Isabel Cante @MarthaI45413308
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Hayley @Hayleymoimoi
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manjari @manjari26886512
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Brooklynn Rosentreter @MyInfo05447709
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Endo Advocacy @EndoAdvocacy
0 Followers 10 Following Un espace bienveillant dédié aux filles et femmes Noires atteintes d’endométriose. Parce que tu n’es pas seule, et ta douleur mérite d’être entendue.💛
Aimée @Hairsprayqueen
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Ghost of endo past @Ghostofendopast
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Karan Vadher @KaranVadher15
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Endometriosis Canada @endocansupport
350 Followers 243 Following Fighting for awareness, better care, and real change for everyone living with endo. Advocacy | Education | Support
Heidi Meehan🩷 @HeidiMeeha75221
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Royal Cap @royalcap04
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Chippenham Gifts & Cr... @chipgiftcrafts
75 Followers 430 Following We sell handmade cards for all occasions, card making products for card makers and knitted or cross stitch completed works
Shursaur @Shursaur5FNC
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Nadine Roux @NadineRoux5
2 Followers 229 Following
Paola Vigano' @PaolaVigano3
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Britney @Britney0526
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byeeeeee @Deveney50547660
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hate zine @hatezine
2K Followers 970 Following Independent arts zine focused on social justice. Sign up to our newsletter 👇
MARSHAL JAMES @vlapduck23
690 Followers 3K Following green blogger ,author and Fine artist https://t.co/8lVVw3JoMk
Louisa @louisambradshaw
1K Followers 3K Following RN, NIHR MRes trainee. Bi. Fire spinner and flow artist 🔥 berks/sydney/soton | #disabilityrebellion #audhd #endowarrior
Danika Ashworth @havnalurk
2 Followers 69 Following
em🎗jane 💜 @emilyendojane
609 Followers 1K Following Girl mama 🎀, astrogirl♈️, & #reprojustice 📣 writer, researcher, & organizer #endometriosis🎗is a repro justice issue‼️
Nwa’Scotch @Nwa_Scotch
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EndoAngels @Endo_Angels
12 Followers 21 Following A safe space for endowarriors. Giving hope and reviving dreams that were lost to endometriosis. Providing funding for access to high quality medical support.
Charmaine @Charm_WT
49 Followers 942 Following Aint lucky I'm blessed,God's favorite daughter,faithful believer, love life
asedatena @Tena_Aseda
79 Followers 452 Following Research Fellow at Program in Cellular and Molecular Medicine @BCH | Ph.D. in Biological and Biomedical Sciences @BBS_Harvard at Harvard University @DMSHarvard
Monty25 @CathMonty25
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Dra Luisa Marcella Ma... @draluisammart
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Jessica Preshaw @jesspreshaw
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Project Endo @projectendo
6K Followers 957 Following 1st came Endo What?...then premiered Below The Belt, now we continue to mobilize for change as PROJECT ENDO.
Nancy Petersen RN ret... @nancynursez637
3K Followers 1K Following Started first LAPEX program with David Redwine for total excision of endometriosis 1986. Pt advocate, educator, retired RN, Volunteer for education
Kathleen M King @Kathleen_M_King
2K Followers 2K Following Independent #endometriosis #adenomyosis advocate DEARG Podcast MISE Founder Medical Scientist/LIS Manager Societal Champion/Patient Advocate @CailinAI
Endometriosis Surgeon... @VimeeBindra
2K Followers 435 Following Endometriosis Excisional Surgeon based in Hyderabad, India. Surgeon, Wife, Mom and endo slayer. Opinions are my own
Abhishek Mangeshikar @mangeshikar
735 Followers 144 Following Endometriosis Surgeon heading a multidisciplinary team for advanced endometriosis.
Jocelyn J. Fitzgerald... @jjfitzgeraldMD
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Endo Warriors WL @endowestlothian
3K Followers 5K Following Independent Scottish Awareness & Action Support Group. We Raise Awareness Globally For Endometriosis, This Extremely Ugly Disease Affects 1in10 💛🎗
Mathew Leonardi MD Ph... @MathewLeonardi
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Michaela @MichaelaAbens0n
951 Followers 320 Following
Jenn Schropp @Endo_Jenn
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EndoGirlsBlog @blog_endo
570 Followers 262 Following Board Certified Patient Advocate Educating & Empowering Endometriosis patients
Endometriosis UK @EndometriosisUK
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EndometriosisNigeria @EndoSurvivors
751 Followers 128 Following Non-profit organization raising awareness about endometriosis and promoting menstrual health in Nigeria
Diane @Semiotics_Omnia
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Wendy Bingham, DPT @XtraNotRare
844 Followers 872 Following Mission: leave the world a better place than before I arrived; bring inclusion of extrapelvic endometriosis into the conversation. Instagram-extrapelvicnotrare
Keisha Meek 💙 @keisha_meek
1K Followers 2K Following Founder of National Endometriosis Survivors Support https://t.co/DYxPf9YSGt All views are my own.
Aimee Brown @AimeeLouB
624 Followers 441 Following Endometriosis and Mental Health Advocate Medical Cannabis Activist and Patient Social Care Student Believer in Spirituality, Karma & Consciousness
Michele Jansz @Michele68836887
333 Followers 259 Following Supports Excision lending to pathology for Endometriosis patients. #sideeffcts #chartnotedisastergirl #endometriosis *opinions expressed are my own*
Professor George Cond... @GeorgeCondous
2K Followers 503 Following Professor of Gynaecology Endometriosis Imaging Laparoscopist #sydneyendometriosis Views expressed personal https://t.co/fraHpC0U4p
Emad Mikhail @Mikhail_MIGS
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Barry Malone @malonebarry
80K Followers 4K Following Independent journalist. Previously: Al Jazeera editor and executive producer / Reuters correspondent in Africa and Middle East. Newsletter: https://t.co/JxY0xuhH69
Pearse Doherty @PearseDoherty
69K Followers 1K Following Sinn Fein TD for Donegal. Instagram: https://t.co/zhed8rPA8p Email: [email protected]
Anita Nneka Jones @AnitaNnekaJones
17K Followers 2K Following 📺 TV Presenter | Reporter fluent in Spanish 🇪🇸 @premierleague @skysports @CBSSportsGolazo 💛 Endometriosis UK ambassador 💼 [email protected]
hate zine @hatezine
2K Followers 970 Following Independent arts zine focused on social justice. Sign up to our newsletter 👇
Steven Phillips, MD @StevePhillipsMD
83K Followers 1K Following Wharton│Yale-trained MD, researcher & bestselling author Tweets aren't medical advice https://t.co/GixP6s0iL5 Health, Freedom, Truth
Jessica Preshaw @jesspreshaw
299 Followers 135 Following Gynaecologist with interest in endometriosis and minimal access surgery; striving for excellence and to promote women’s health.
Sarah Harris @sarahhasendo
2K Followers 1K Following NIHR PhD Candidate at UoN | Endometriosis Researcher | Freelance Health Journalist | Trustee at https://t.co/z4JMMPD8dY | Views my own | [email protected]
Novara Media @novaramedia
216K Followers 1K Following 📺 📰🎙🚩 People-powered media. https://t.co/i6f8cZyfGr We're now on Bluesky: https://t.co/HL7cb2wOSV
Amy Mair @amymair
122 Followers 320 Following Doctoral Academic Teacher | PhD student at UoL researching endometriosis | Interested in women’s reproductive health, chronic illness & health education🌻
Worry Head @Lucjan44030893
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Laura @MsChinSee
150 Followers 523 Following Fibroids, Endometriosis & Adenomyosis fighter. Childless (not by choice 😢) https://t.co/5FQ6MZclC0 Supporting my mum with dementia.
Simone Biles @Simone_Biles
2.0M Followers 309 Following Wife. Olympic Champion. IG & snapchat: simonebiles
Ashutosh Singh (he/hi... @ashutosh_talks
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417K Followers 952 Following Re-elected as Labour MP for Hackney North & Stoke Newington. https://t.co/B33IyD9QZA
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We Own It @We_OwnIt
60K Followers 6K Following After 40 years, privatisation of our public services has failed. It's time for public ownership. We use it, we pay for it, We Own It.
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NewsGuard @NewsGuardRating
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Accountability Archiv... @archivegenocide
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Olga Muldoon MD ‖ O... @OlgaTheOBGYN
8K Followers 6K Following Denver Minimally Invasive GYN Surgeon @fmigs1 fellowrep |🏳️🌈ally | #Endometriosis | Surgeon/Mom/Wife |https://t.co/J6mrqyn5GH
Payam Katebi Kashi, M... @PayamKashiMD
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Conor Kerley PhD, RD @ConorKerley
5K Followers 6K Following 🎓Doctor of nutrition, award winning researcher, dietitian 🧠Multiple sclerosis since 2003 🤧Allergic asthma 🔬Founder of @phytaphix
The Blindboy Podcast @bbboatclub
262K Followers 5K Following Run by admin, while Blindboyboatclub is writing his next book and creates his weekly podcast. Tweets by BB #ActuallyAutistic
Ashmika Motee @ashmika_motee
64 Followers 246 Following PhD student at Heriot Watt. Researching on women’s reproductive health and its impact in the workplace
Kristina Lake Karlson... @KKarlsonMD
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We Can't Consent To T... @Wecantconsentto
10K Followers 3K Following We aim to end the use of 'rough sex' claims to evade justice, & the normalisation of violence against women https://t.co/KXApMIfRtx #WeCantConsentToThis
Endometriosis fife @2013Clairew
2K Followers 2K Following Your not alone 🎗 we fight endo together I am here to support everyone who fights. You have endo but it doesn't have you 💛 [email protected]
Olivia Hicks @OliviaGHicks
1K Followers 1K Following Mum🤱🏼Chronic illness advocate 💫 Radio newsreader & journalist 🎙️ Ambassador @EndometriosisAu 🌟
richard @auspices
705 Followers 4K Following collapses in a prophetic swoon as the audience erupts in thunderous applause. runs @nogopress
Dr Niamh Kavanagh @NiamhTalking90
3K Followers 2K Following PhD Physics/#Photonics | Award-winning Science Communicator | #OSAambassador @OpticalSociety | AVP of Equity & Inclusion @IEEEPhotonics | Consultant Scientist
endo_a_ni @endo_a_fi
16 Followers 39 Following
Maria Rovito ♀️�... @maria_rovito
1K Followers 687 Following PhD candidate in critical menstruation studies and feminist disability studies. Living with endometriosis. Dissertating on endo in medical humanities.
Antoinette, DPT @antoinettePFPT
366 Followers 605 Following Pelvic Floor Physical Therapist in Las Vegas. My goal is to help empower men & women to gain control over their health and continue doing activities they love.
Barbados Association ... @Endoandpcosbb
585 Followers 669 Following Increasing Endometriosis & polycystic ovarian syndrome awareness and providing support in Barbados. Email: [email protected]
Juani @juaniforwomen
154 Followers 682 Following Improving the lives of women & girls in rural Kenya thru healthcare, education, and empowerment. A project of Empowerment WORKS, a 501(c)(3) nonprofit org. 🇰🇪
SMCR: Society for Men... @MenstruationOrg
3K Followers 275 Following Founded in 1977 by a multidisciplinary group. We are researchers in the social sciences, the natural sciences and the humanities, health care, policy and more.
Ellie Flynn @ellieflynn
12K Followers 1K Following 🕵🏼♀️ Investigative Journalist 📺 Documentary Maker
Rosy Milner @RosyMilner
111 Followers 290 Following • Documentary Producer • Endo/Adeno Awareness🎗 • All Views My Own • RT ≠ Endorsement •
Grace Tyrrell @gracescicomm
34 Followers 74 Following Press Office Assistant at @uk_biobank | Science Communications MSc Graduate