Help4HD @Help4HDI
Help4HD-International, is a non profit organization serving the #Huntingtonsdisease and #JuvenileHuntingtonsdisease community. linktr.ee/help4hdi California Joined June 2013-
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Help4HD retweeted
Today, Erin Paterson and I share our feelings concerning UniQure's recent update on their gene therapy for #huntingtonsdisease. @Help4HDI You can listen to the show here: spreaker.com/episode/hd-unc… Also check out Erin's post here: facebook.com/share/p/17XCBM…
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Erin Paterson will be this week's #HDUncut episode discussing mixed feelings about the recent uniQure update. Listen tomorrow on #Help4HDLive at 1pm PST! spreaker.com/podcast/help-4… Listen later on your streaming service: Spotify, iTunes, iHeartRadio, etc...
We appreciate these generous sponsors of Help 4 HD's Social Work Program! Thank you so much for supporting this important piece of our organization so that we can better support #HD families! #Help4HD #SocialWork #Sponsors
Come share, listen, connect! We hope you will join us in our #Spanish HD Caregivers' Support Group on messenger. For more information contact [email protected] #Help4HD #HDCaregivers #huntingtonsdisease All Support Groups available: help4hd.org/support-groups
Times for Monday Mixer! Join us tomorrow for the company of HD community members on Zoom! Contact [email protected] for more details. See you there!
#Free #Help4HDSwag! Learn what surprises await in your package as we prepare to look to #theFuture at HIPE! These boxes go quickly so don't wait - #Register for virtual HIPE! *Limited supply* #Help4HDHIPE2025 #Virtual #HD help4hd.org/events-1/virtu…
Interested in learning more about AMT-130 trial results?🤩 Listen as Daniel Leonard from @uniQure_NV shares about this recent breakthrough & next steps as we look to #TheFuture. #Help4HDHIPE2025 #Virtual #HuntingtonsDisease Register: help4hd.org/events-1/virtu…
"A clear comprehensive checklist to consider before genetic testing...guidance on evaluating emotional, social, & medical implications..." ~#GeneticTesting Decision Checklist (@HDReach) 💙💜💙 #Help4HD #Resource Database: digitalgrowthfirm.adalo.com/help4hd-databa…
Listen NOW! You dont want to miss this week's interview on #Help4HDLive regarding uniQure's recent update!
Listen NOW! You dont want to miss this week's interview on #Help4HDLive regarding uniQure's recent update!
Katie Jackson, CEO of Help 4 HD, was asked her initial response to the news today. We wanted to share that response with our community. Full response here: facebook.com/share/p/19tjfm…
Help4HD retweeted
Promising news for our friends in the #HuntingtonsDisease community @Help4HDI
Promising news for our friends in the #HuntingtonsDisease community @Help4HDI
⭐Save the Date⭐Help4HD's Virtual HIPE coming up November 8th! ~ The Future: Planning, Understanding, and Looking at What's Next ~ More details coming soon! #Help4HDHIPE2025 #Virtual #HuntingtonsDisease help4hd.org/events
A messenger group for individuals grieving the loss of a loved one to #HuntingtonsDisease. To get involved in #Help4HD's #Bereavement #SupportGroup please contact [email protected] Support groups: help4hd.org/support-groups
We are so excited to get together with everyone TOMORROW! Join us on Zoom at our #MondayMixer to enjoy the company of other #HD community members. Reach out to [email protected] for more details. See you there!
#HuntingtonsDisease steals so much. Are you prepared for when it is time for this difficult conversation for you or your loved one? #Driving This topic & more discussed on this recent #Help4HDTV episode: facebook.com/help4hd/videos…
"...#FREE ... restored #MedicalEquipment to #Pennsylvania residents with disabilities, seniors, & individuals with mobility challenges.." ~Changing Hands #Help4HD #Resource Database: digitalgrowthfirm.adalo.com/help4hd-databa…
Who do I call during HD patient #MentalHealth Crisis?... What can I do if my insurance not accepted for #HD care?... When is it time to stop driving? What great questions for our HIPE Panel! Listen on #Help4HDTV! facebook.com/help4hd/videos
On #Help4HDTV we want to share stories of public impact & bring to light the many challenges of living with HD, caring for someone with HD, or living at-risk. Your story is unique & may help others as they face a world that does NOT understand #HD.
Listen in or join the discussion at #SupportGroup every 3rd Thursday at 4pm PST! Find resources & ideas to plan for the future while living At-Risk / Gene positive for #HD! #AtRisk #Genepositive #HuntingtonsDisease Contact: [email protected]
It's time for Monday Mixer! Join us this week on Zoom at 4pm PST for fellowship with #HD community members at this weekly social! Reach out to [email protected] for more details. See you soon!
HDSA @HDSA
6K Followers 1K Following The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
HDYO @HDYOFeed
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Lauren Holder @laurencurehd
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Huntington's Disease ... @HDA_tweeting
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HD Reach @HDReach
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HDBuzz @HDBuzzFeed
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EHDN Collaborations @EHDN_GRANTM
927 Followers 832 Following European Huntington's Disease Network https://t.co/SW4uBnzahl -This account is no longer active. EHDN is now on LinkedIn and BlueSky
uniQure @uniQure_NV
3K Followers 131 Following uniQure is delivering on the promise of gene therapy - single treatments with potentially curative result for patients with severe genetic diseases.
EHDN News @EHDN_News
717 Followers 975 Following European Huntington's Disease Network newsletter. Please see our profiles on BlueSky and LinkedIn for the latest updates.
Gene Veritas @geneveritas
729 Followers 483 Following Huntington's disease advocate, blogger, and historian of science, technology, and medicine (aka Kenneth P. Serbin)
HDF @hdfcures
1K Followers 1K Following Official Twitter feed of the Huntington's Disease Foundation. Funding transformative research for treatments & cures for HD. #hdfcures #curehd
Therese Crutcher-Mari... @crutchertherese
609 Followers 399 Following I'm a Huntington's Disease advocate, President for HDSA SF Bay Area Chapter, a blogger & author of Watching Their Dance.
Huntington's Disease ... @HDAI_ie
3K Followers 5K Following HDAI RCN 20025656. Sharing news on Huntingtons Disease /connecting to the international HD community. RTs not endorsements. https://t.co/z0BAD0VUeS https://t.co/pPoXkLELx2
Prilenia @PrileniaTx
2K Followers 261 Following Clinical stage biotech company focused on developing novel treatments for neurodegenerative and neurodevelopmental disorders
Dr. Jan Nolta @jan_nolta
12K Followers 8K Following Director, Univ. California Davis Health Stem Cell Program & Gene Therapy Center. Editor, Stem Cells. #firstgen https://t.co/UYKJpKOqGz
jackie harrison @jaq421
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HDSA San Francisco Ba... @HDSA_SF
273 Followers 537 Following Updates and news from the Huntington's Disease Society of America San Francisco Bay Area Chapter. #LetsTalkAboutHD. Recommendations? email [email protected]
Niall Pender @PenderNiall
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Wave Life Sciences @WaveLifeSci
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Mena Farag @DrMFarag
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Therye Wright @therye_wright
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Dr. Med. Edina Camdzi... @EdinaH92400
63 Followers 497 Following Doctor of Medicine,War kid,War Refugee, Neurology Resident, UCL MSc in Stroke Medicine, Mental Health Advocate, ALS 🚑, #Ultrasonopragher of 🫀,Abdomen & Neck
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raffaele @artedellapasta
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Nabweru community Int... @BENSONBAGUMA1
721 Followers 4K Following As the CEO of NABWERU COMMUNITY INITIATIVE FOR YOUTH EMPOWERMENT LTD, I lead a team of dedicated professionals who are committed to empowering young people
Leslie Mansfield @LeslieM83350569
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LaKMCc @LaurenMcCo79936
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Ourapau @Ourapau941
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Largxaw @Largxaw790
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Center for Health + T... @UofRCHeT
89 Followers 39 Following A University of Rochester research organization that designs and conducts multi-center clinical studies and uses technology to make unprecedented advances.
Dachu @Dachu123
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Denise Thompson @denisemariet413
0 Followers 23 Following
Ken To @ken_to_hongkong
21 Followers 98 Following Caregiver & Advocate | Living at risk of Huntington’s Disease | Passionate about raising awareness and supporting families
Gibby @Gibbaldo
402 Followers 4K Following Passionate and proud Scotsman. We are not here to take part we are here to take over. Golf, gaming, grub, beers and the Hearts.
Teija Bily @teijamackenzie
812 Followers 3K Following MDPhD (M2 G1) student @SchulichMedDent @Western_MDPhD @westernubiochem • rare disease, precision medicine, genetic therapies • she/her 🧬👩🏼🔬🥼🎨⛵️
Shawn Moore @shawn0705
700 Followers 6K Following
Daniel Coleman @djcjr24
0 Followers 14 Following
Belle Engelbrecht @Belle4beastie
722 Followers 844 Following Looking forward to fully living life. My father was recently diagnosed with Huntington's. Learning to live with it and be a caregiver.
Gregory Maxwell @gregorymaxwell
3K Followers 3K Following I am a writer, always three days behind. There is a perpetual WIP, GMax~~Poetry Slam Captain.
JSturg @Relax0324
911 Followers 7K Following Construction Management, Entertainment Music Sports Commentary Sports, Lacrosse, Flyers Hockey, Philadelphia Eagles
BhiRejuve @BhiRejuve
3 Followers 67 Following Advanced regenerative aesthetics. Elevate your beauty with science-driven treatments and natural results
Rare Disease Advisor @RareDisease_Adv
5K Followers 1K Following Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
Neil @Neilchangy
1 Followers 51 Following
AhmadFotoohi @DrAhmadFotoohi
1 Followers 19 Following Co-F at Tebyad General Practitioner عقلانیت یعنی امکان تغییر نظر در مواجهه با داده های جدید
vinaykumarmaturi @vinaykumarmatur
42 Followers 289 Following
Joe @joeybals311
407 Followers 447 Following Current #BizDev. Former molecular biologist and C-130 crew chief extraordinaire
RavenMeadow733 @Mwalbah3993881
1 Followers 170 Following
Testimony Genesis Fou... @genesistestimon
0 Followers 24 Following Testimony Genesis Foundation supports underprivileged communities in Ghana by providing food, education, and essentials to schools and families in need.
Publius @publius20330476
317 Followers 610 Following Build on strong principles. Clear out the wreckage when it stands in our way.
Khan King @KhanKing437608
4 Followers 323 Following
T D @JTDowns01
95 Followers 241 Following
Craig Carrillo @CraigCarrillo7
193 Followers 1K Following
Larry Moran @larryknowsall
16 Followers 67 Following
CLT PathFinder @CLT_PathFinder
996 Followers 813 Following C.J. Collins - Inspiring the next esports generation @globalgamingnw Building cool things, breaking some, laughing at both.
Ana @CecyJug
1 Followers 60 Following
Gatling @apyhunter
83 Followers 2K Following
Jill 🏳️🌈�... @pumpkinspiceisa
504 Followers 3K Following ⭐️ widow, suburban mother of two wonderful kids who happen to have a terminal neurodegenerative disorder called Juvenile Huntingtons disease 💜💙 #CUREHD
𝐚𝐦𝐲 𝐥𝐨... @amyyxlou
9 Followers 121 Following
HDSA @HDSA
6K Followers 1K Following The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
HDYO @HDYOFeed
2K Followers 724 Following An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world.
Lauren Holder @laurencurehd
572 Followers 494 Following HD advocate, #rarediseases advocate, Producer of Help4HD Live, caregiver, mom, and much more!
Huntington's Disease ... @HDA_tweeting
4K Followers 2K Following Huntington's Disease Association is a registered charity that supports people affected by #HuntingtonsDisease (HD) in England and Wales. #MindfulOfHuntingtons
HD Reach @HDReach
1K Followers 79 Following HD Reach is a nonprofit organization dedicated to providing access to healthcare, education, and social assistance for those affected by Huntington’s disease.
HDBuzz @HDBuzzFeed
6K Followers 2K Following Huntington’s disease research news. In plain language. Written by scientists. Editors @labscribbles @rungenado
HD Genetics @HD_Genetics
321 Followers 244 Following Huntington's Disease Genetics (HD Genetics) offers best-in-class genetic counseling & testing directly to at-risk individuals in the USA.
Scottish Huntington's... @ScottishHD
2K Followers 419 Following The only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.
EHDN Collaborations @EHDN_GRANTM
927 Followers 832 Following European Huntington's Disease Network https://t.co/SW4uBnzahl -This account is no longer active. EHDN is now on LinkedIn and BlueSky
uniQure @uniQure_NV
3K Followers 131 Following uniQure is delivering on the promise of gene therapy - single treatments with potentially curative result for patients with severe genetic diseases.
@huntingtonsc @HuntingtonSC
3K Followers 854 Following A national network of volunteers and professionals working together to find a meaningful treatment for Huntington disease.
EHDN News @EHDN_News
717 Followers 975 Following European Huntington's Disease Network newsletter. Please see our profiles on BlueSky and LinkedIn for the latest updates.
Gene Veritas @geneveritas
729 Followers 483 Following Huntington's disease advocate, blogger, and historian of science, technology, and medicine (aka Kenneth P. Serbin)
HDF @hdfcures
1K Followers 1K Following Official Twitter feed of the Huntington's Disease Foundation. Funding transformative research for treatments & cures for HD. #hdfcures #curehd
Therese Crutcher-Mari... @crutchertherese
609 Followers 399 Following I'm a Huntington's Disease advocate, President for HDSA SF Bay Area Chapter, a blogger & author of Watching Their Dance.
Huntington's Disease ... @HDAI_ie
3K Followers 5K Following HDAI RCN 20025656. Sharing news on Huntingtons Disease /connecting to the international HD community. RTs not endorsements. https://t.co/z0BAD0VUeS https://t.co/pPoXkLELx2
Prilenia @PrileniaTx
2K Followers 261 Following Clinical stage biotech company focused on developing novel treatments for neurodegenerative and neurodevelopmental disorders
Dr. Jan Nolta @jan_nolta
12K Followers 8K Following Director, Univ. California Davis Health Stem Cell Program & Gene Therapy Center. Editor, Stem Cells. #firstgen https://t.co/UYKJpKOqGz
jackie harrison @jaq421
3K Followers 5K Following #sybilontour is a project to raise awareness of Huntington's by sending #hounds4huntingtons on adventures follow them here https://t.co/lsNlK4tCHc
HDSA's NYA @HDSANYA
676 Followers 92 Following Supporting young people all over the United States who are impacted by Huntington's disease #HDSANYA
Rare Disease Day @rarediseaseday
42K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
Rare Disease Advisor @RareDisease_Adv
5K Followers 1K Following Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
HDAwareness2024 @HDAwareness2024
370 Followers 3K Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #CureHD #CureJHD too.
Neurocrine Bioscience... @neurocrine
819 Followers 368 Following Official X for Neurocrine Biosciences, a neuroscience-focused, biopharmaceutical company. See our community guidelines here: https://t.co/5Saf80wq5E
Alliance for Regenera... @alliancerm
7K Followers 2K Following ARM champions the benefits of engineered cell therapies and genetic medicines for patients, healthcare systems, and society.
World Orphan Drug Con... @OrphanConf
5K Followers 866 Following Get regular updates on #WorldOrphanUSA! June 9-11, 2026 | Boston Convention & Exhibition Center
Annexon Biosciences @annexonbio
316 Followers 170 Following Unlocking the Next Generation of Complement Therapies
Andrew Barth Feldman @andrewbfeldman
42K Followers 351 Following i love your outfit today!!!! | he/him/his
EndTheLegacy @End_The_Legacy
388 Followers 61 Following Patient led organization providing education and support , and advocating for, those impacted by Genetic ALS and FTD.
Institute for Gene Th... @gene_therapies
2K Followers 439 Following Gene therapy is transforming how we treat diseases. But today’s healthcare system can’t realize its potential. We’re changing that.
Jean C9orf72 @Jeanc9orf72
1K Followers 858 Following C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy @end_the_legacy
Factor-H @FactorH_LatAm
344 Followers 213 Following A humanitarian nonprofit founded to diminish the suffering of families affected by Huntington's disease in Latin America
LundbeckUS @LundbeckUS
13K Followers 658 Following We are dedicated to advancing brain health and transforming lives. All posts are intended for US audiences only.
Marianna Palka @mariannapalka
6K Followers 2K Following BITCHthefilm/Collection with Alex Pettyfer/@goodomensprime @happysyfyEmmys= @glownetflix @eggthefilm @GirlsHBO #scottishmussel @gooddickthefilm #firstkiss #neds
Jason Ritter 🦋 @JasonRitter
214K Followers 4K Following I’m not really here anymore… you can find me here if you like ⬇️
Josh HF @JoshNHF
8 Followers 30 Following PhD student at Dr. Yijuang Chern's lab in Academia Sinica, Taiwan, with keen interest in neuroscience and neurodegenerative diseases.
ChANGE-HD @ChANGEHD_study
29 Followers 16 Following This is a multi-site brain imaging study. Our participants are ages 6-30 and have a parent or grandparent diagnosed with Huntington Disease.
Shuatastic 🌹 @Shuatasticc
134 Followers 485 Following Huntington’s Disease Advocate, Berniecrat, Gamer.
myHDstory® @myHDstory
66 Followers 55 Following myHDstory® is an online research project sponsored by the Huntington Study Group® (HSG).
Jessica Tursi @jessicaturs
427 Followers 1K Following I live in South Philly, home of the Philadelphia Phillies and the best food ever! Love my Phillies, Flyers and Eagles! #curehd #hdsa #jhd #curejhd
Rare Diseases @CheckOrphan
18K Followers 5K Following CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
Anonymous HD Mama @AnonymousHDMama
8 Followers 52 Following Wife, Mama, At Risk for Huntington's Disease
JoHD Brain Study-Univ... @JoHD_Iowa
48 Followers 41 Following Our research is centered around young people who have been diagnosed with Juvenile Onset Huntington Disease (JoHD).
Sasha Duffy @DrSashaDuffy
109 Followers 154 Following #ProudPD of @ucdavisneuro, Educator, Neurologist, Movement Disorder Specialist, mama, wife, and fly fisherwoman. Tweets are my own.
Neuroimaging and Neur... @WSU_NNL
420 Followers 309 Following Directed by Nora Fritz. We study how changes in #cognition impact #mobility to improve #neurorehabilitation for people with neurodegenerative diseases.
Isaac Cox @i_cox22
184 Followers 1K Following
FRAXA Biotech Games�... @BiotechGames
229 Followers 252 Following When biotech companies gather, good things happen | competition+camaraderie+networking | promoting #biotech | benefiting #FragileX #autism @FRAXAresearch
Joe Giuliano @jdgiuliano
252 Followers 286 Following Healthcare professional, treatments for rare diseases, dad, husband, amateur poet, love Italy. Retweets are not endorsements. All views expressed are my own.
Huntington NL @huntingtonNL
1K Followers 660 Following Over de geschiedenis en het leven van mensen in Nederland met de ziekte van Huntington
HDSA Northeast Region @HDSA_NERegion
446 Followers 150 Following The HDSA is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease (HD).
Cure HD Calgary @CureHDCalgary
335 Followers 566 Following We are the Southern Alberta Chapter of the Huntington Society of Canada, working towards a cure for Huntington disease. Contact us for more info!
HDSA GLR @HDSAGLR
992 Followers 100 Following #Huntington's Disease Society of America is a voluntary health organization dedicated to improving the lives of people with Huntington's and their families.
HDSA-CT @HDSACT
375 Followers 20 Following Connecticut Chapter of the national Huntington's Disease Society of America whose mission is to improve the lives of everyone affected by Huntington's disease.
Chronic Disease Coali... @ChronicRights
12K Followers 495 Following Leading non-profit #health #advocacy for funding research and defending #ChronicRights - fighting for all affected by #chronicdisease RTs not endorsements
HDSA-NE @HDSA_NE
245 Followers 4 Following #Huntington's Disease Society of America is a voluntary health organization dedicated to improving the lives of people with Huntington's and their families.
The Barker / Williams... @PDandHDLab
1K Followers 376 Following Actively doing clinical and lab-based research on both Parkinson's and Huntington's disease at the John van Geest Centre for Brain Repair. NIHR Investigator.
Huntington's WA @Huntingtons_WA
220 Followers 212 Following A not-for-profit committed to supporting the Huntington's Disease community in Western Australia.
Vaccinex @Vaccinex
5K Followers 75 Following Vaccinex is pioneering a differentiated approach to treating cancer and progressive neurodegenerative diseases through the inhibition of SEMA4D. $VCNX
HD Care @HDCare3
68 Followers 77 Following Community. Advocacy. Research. Education. A UCI-based support group dedicated to those affected by Huntington's Disease, a neurodegenerative disorder.
Jordan Schultz @Schultz_Lab
131 Followers 160 Following Assistant Professor of Psychiatry, Neurology, and Pharmacy Practice at the University of Iowa Carver College of Medicine
Andrea Horta-Barba @ahortaba
278 Followers 526 Following Neuropsychologist at Hospital de la Santa Creu i Sant Pau | Movement Disorders Researcher | European Huntington’s Disease Network (EHDN)
HDdennomore @HDdennomore
372 Followers 350 Following HDdennomore is a global coalition of Huntington's disease (HD) advocates. Join us on May 18 for Pope Francis' special audience with the HD community.Trends for United States
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