HyperIgM @HyperIgM
Joined June 2015-
Tweets353
-
Followers170
-
Following88
-
Likes63
Exciting news! 🎉 The @HyperIgM Foundation proudly presents their latest Podcast series, "Patient Voices," led by their very own 15-year-old #HyperIgM patient, Ezra Fineman. Dive into the inaugural episode on YouTube here: youtu.be/_jmXWluYNos?si…
Did you know April is Primary Immunodeficiency Awareness Month? To help spread the word, we’re giving away two $25 Starbucks gift cards along with a Hyper IgM Foundation mug. #hyperigm #PIAwareness
Don't miss three days of connection, learning, and networking with the primary immunodeficiency (PI) community. Featuring the most up-to-date information from world-renowned healthcare professionals, this will be an experience you won't want to miss! bit.ly/3TU743j
Check out our President and Founder on the podcast of @OsmosisMed.
Check out our President and Founder on the podcast of @OsmosisMed.
ESID is pleased to announce an excellent grant funding opportunity. Researchers with interest in advancing a cure for Hyper IgM Syndrome - the Hyper IgM Foundation is calling you to apply! hyperigm.org/hyper-igm-foun…
Heartwarming story of 11 year old #HyperIgM patient, Adam, from Australia. We are so glad to see how well Adam is doing after his bone marrow transplant. Looking forward to seeing him grow and thrive and maybe one day command a battalion! makeawish.org.au/wishes/wish-st…
Thank you @ESIDsociety for getting the word out! #hyperigm
New blog entry - #HeadOfTheHerd w/ Akiva Zablocki, President, @HyperIgM! "In the end I am an optimist, because there is no other way to approach the #raredisease world we are in besides optimism." Read more: bit.ly/2TXbYN5
Hyper IgM Families already spend their daily lives avoiding germs and illnesses like the common cold or flu. Hyper IgM Foundation President, Akiva Zablocki, shares his secrets to staying safe when germs are all around us. #coronavirus #hyperigm #TheMighty yahoo.com/lifestyle/5-ti…
Akiva Zablocki, President of the Hyper IgM Foundation, shares his family's secrets to avoiding germs in hopes of curtailing the spread of the coronavirus. #coronavirus #hyperigm #RareDiseaseDay
We wanted to share with you some touching words from a partner of one of our rare adult patients. This year the Foundation allocated grant funds to support Dr. Caroline Kuo’s Gene Editing research at UCLA. We were… instagram.com/p/B5yu4H3gF2j/…
Congratulations to Dr. Caroline Kuo from UCLA, and BIG news for Hyper IgM!! Dr. Kuo just received a $4.9 million award from the California Institute for Regenerative Medicine (CIRM) in support of her development of… instagram.com/p/B4U0VlyAOtq/…
The Hyper IgM Foundation is proud to announce that it joins the Primary Immune Deficiency Treatment Consortium (PIDTC) as one of its Patient Advocacy Group (PAG) partners. The PIDTC consists of 42 centers in North… instagram.com/p/B4AmDVAgryn/…
Big thank you to Lisa Boyer and her wonderful team at Wells Fargo!! Through their efforts during the annual Wells Fargo Community Support Campaign, they raised $500 for the Hyper IgM Foundation. We love the size of… instagram.com/p/B2zdgX_gbyS/…
Board member and Co-Founder of the Hyper IgM Foundation, Amanda Zablocki, share insights into how to gain gender parity in the workforce.
Board member and Co-Founder of the Hyper IgM Foundation, Amanda Zablocki, share insights into how to gain gender parity in the workforce.
How Do Titans of Industry Plan To Achieve Gender Parity? Include Men in the Conversation. By Amanda Zablocki at.law.com/ke5bLm?cmp=sha… via @NYLawJournal #genderequality #women #leadership #womenempowerment #law
The Hyper IgM Foundation is honored to be nominated as an organization for the Global Genes 2019 RARE Champion of Hope award. Global Genes recognizes organizations like the Hyper IgM Foundation for groundbreaking… instagram.com/p/BxKtyPDALqS/…
Tiffany and Joshua Hill's 2nd Annual One Shave to Save Fundraiser is not live! If they reach $10,000 these men will shave their beards live on Facebook! Let's help them reach that goal by sharing and donating... facebook.com/HyperIgMFounda…

bestun.mahmoud @BestunMahmoud
56 Followers 91 Following
SCID Foundation @SCIDFoundation
3 Followers 38 Following
Primary Immune Defici... @pidtc52138
4 Followers 44 Following The PIDTC consists of 47 centers in North America with a centralized computerized registry aiming to improve patient outcomes.
Rui Yang 杨睿 @ryangrui
251 Followers 538 Following AI fellow @TexasChildrens, @bcmhouston, Immunologist and Geneticist @casanova_lab and @RockefellerUniv, Peds Trained at @WCMPeds. Opinions are my own.
Dr Arun Danewa @DanewaArun
437 Followers 766 Following Consultant , Pediatric Hematologist Oncologist and Bone Marrow Transplant Specialist , Fortis memorial research ins
Arissa Walsh, MPH, RD... @ArissaWalsh
98 Followers 143 Following Wife, mom, registered dietitian nutritionist with a passion for public health. She/Her
Aida Paniccia @AidaPaniccia
278 Followers 375 Following SR-Tiget Research Strategy & Communication Manager @Telethonitalia - Passionate about #scicomm and early career scientist development. Views are my own
Dr. Karan Sood @QuantumOnc
1K Followers 7K Following Stoic | Molecular Oncology | Medical Oncology | Manchester United | Metallica | CR7 | Schumacher | Federer | Bryant | Views are my own
A. Jane @CrawfordAmi
27 Followers 207 Following Retired Funeral Director and M.S. Counselor, Psychology 🍀Multi-Media Artist 🍀EDS🍀PID
Ember Burke @EmberBurke
21 Followers 78 Following
Probably Genetic @ProbGenetic
602 Followers 758 Following Rare genetic conditions can take years for doctors to diagnose. #ProbablyGenetic is a personalized healthcare company working to help you find answers.
Patients @Patient24353971
20 Followers 706 Following
CJ Peri @CraigPeri
177 Followers 156 Following
Fairouz Karim @OuzaKarim
0 Followers 72 Following
Primary Immunodeficie... @PID_adultMI
137 Followers 61 Following Centre for care of Adults with Primary Immunodeficiency Milan - Italy
Dr Emily Edwards @emmye1984
1K Followers 1K Following English Immunologist, Group Leader - Primary Immunodeficiencies Group at Monash Uni, #PrimaryImmunodeficiencies Views are my own.
Barb Ballard @scidmail
413 Followers 565 Following Raising awareness for SCID newborn screening, SCID mom, Cued Speech Proponent, Photo Hobbyist, Crafter, Computer Geek, Web Designer...
RareRising @RareRising_Org
177 Followers 524 Following RareRising, is a 501c3 that delivers research, incubates emerging rare disease entities, and explores solutions to positively impact rare disease communities.
!!! @_jillrogers
2K Followers 669 Following
Haystack Project @HaystackProject
174 Followers 260 Following We are committed to the Ultra Rare Disease Community. Bringing together all stakeholders to educate & advocate for reimbursement policies.
Aditya Sharma,MD @AdityaSharma_MD
143 Followers 329 Following Pediatric hematologist/oncologist, @ChildrensLA @USC. ❤#bmtsm, #medtwitter.🏃🏽♂️.Amateur photographer. Science and Philosophy buff.
Susan Prockop MD @SusanProckopMD
806 Followers 375 Following Pediatric Stem Cell Transplant and Cellular Therapies Boston Children’s Hospital/DFCI
Affirm Patients @affirmpatients
135 Followers 1K Following
gunglik @gunglik
18 Followers 489 Following
IPOPI @ipopi_info
3K Followers 1K Following IPOPI is the association of Primary Immunodeficiency national patient organisations. Improving awareness, access to early diagnosis and optimal treatments.
MCW_CIRL @CirlMcw
140 Followers 578 Following A Jeffrey Modell Diagnostic Center for Primary Immunodeficiency. We have extensive knowledge in flow and diagnosing PIDs, especially CVID. [email protected]
Ali Sobh @alisobh
385 Followers 2K Following Pediatric Immunology Mansoura University Children’s Hospital Egypt
Living Well With Epil... @jessicaksmith
4K Followers 5K Following Jessica Keenan Smith: Founder, https://t.co/bD8snHHvzl, Exec Dir., https://t.co/J1C7jZJ5P6, #Epilepsy, Host of #epilepsyblogrelay. Rep'd by: @hansenwiter
Riccardo Castagnoli @Castagnoli_R
1K Followers 4K Following MD/PhD #Pediatrician, Assistant Professor, MSc in Pediatric #Immunology @unipv @NIH 🇮🇹🇪🇺🇺🇸
Jessie - PID Care Chi... @Jessiequmeng
257 Followers 260 Following Spreading love and compassion to PID patients and their families across China.
Lia Hamoy @liahamoy
251 Followers 286 Following 🇵🇭🇦🇺 Paediatrics. Clinical and Metabolic Genetics. Social determinants of health. Sports 🏐 🏀 ⚽️
Cecilia Poli @cecipolih
662 Followers 848 Following Happy mom of 4. Pediatric immunologist and rheumatologist. Researcher in inborn errors of immunity/autoinflammatory diseases/Rare Disease. @UDD_FM #PIDD #JMF
DW @theirishego
4K Followers 2K Following 2020 Shaw Trust #Power100 - #30in30 - 30 maras in 30 days - Pride of Britain & 4x NDA nominations - 4x DSotY awards - Service to Sport award - not a salamander
Davide Firinu @davidefiri
351 Followers 1K Following Associate Professor of Internal Medicine, University of Cagliari #autoimmunity #rarediseases @univca
Sarah Elizabeth Richa... @SarahE_Richards
1K Followers 2K Following Health and science journalist. Recent words in @NatGeo @WIRED @NYTScience @MensHealthMag. Thought leadership consultant. Immigration storyteller @immcouncil.
Immunoglitch @immunoglitch
440 Followers 325 Following Explore recent advances in Human Inborn Errors of Immunity. Blog summarising recently published articles on PID
Joanna Tierno @JoannaTierno
622 Followers 2K Following Primary Immune Deficiency & Rare Disease Patient Advocate/IDF Plasma Awareness Coordinator/Animal Rights/Stop Fema Now/ @accesstaskforce Steering Committee
The CGD Association o... @CGDAofAmerica
182 Followers 557 Following The CGDAA is committed to advocating on behalf of patients and X-linked carriers by providing news and information about Chronic Granulomatous Disease.
Glen Newell (He/Him) @theladynewell
392 Followers 2K Following Maritimer, PhD, dog lover, curler, tennis player, theatre fan. Tweets = mine. Retweets not endorsements. 🏳️🌈🇨🇦
hodie @HodieJohnson
273 Followers 592 Following
Sheppard Mullin @SheppardMullin
4K Followers 755 Following Full-service AmLaw 50 firm with more than 1200 attorneys in 16 offices in the United States, Europe & Asia. Tweeting legal updates, firm news & blog posts.
Dr Emily Edwards @emmye1984
1K Followers 1K Following English Immunologist, Group Leader - Primary Immunodeficiencies Group at Monash Uni, #PrimaryImmunodeficiencies Views are my own.
Primary Immunodeficie... @PID_adultMI
137 Followers 61 Following Centre for care of Adults with Primary Immunodeficiency Milan - Italy
Association IRIS @AssociationIris
195 Followers 305 Following IRIS reconnue d’Utilité Publique en 2007 -Soutenir les familles -Favoriser le diagnostic -Représenter les patients -Promouvoir le don -Soutenir la recherche
Leire Solis @LeireSolis
513 Followers 203 Following Patient advocate @ipopi_info, interested in Universal Health Coverage #UHC, primary immunodeficiencies #PIDs, #rarediseases - all views are personal
CDC @CDCgov
5.5M Followers 246 Following CDC's official source for daily credible health & safety updates from Centers for Disease Control & Prevention. Privacy/comment policy: https://t.co/9LbZmE3Wzg
Christine Jeffery @CJeffery161
263 Followers 350 Following Patient advocate for those with immune deficiencies, rare and chronic diseases, Board Member CIRCA, Member IDFA NPAP, Past Vice Chair IPOPI, Past CEO of IDFA.
Isabelle Meyts @IsabelleMeyts
2K Followers 616 Following Pediatric immunologist UZ Leuven. Lead of Laboratory for Inborn Errors of Immunity, KU Leuven. ESID Past President. All views personal.
Johan Prevot @JohanPrevot
679 Followers 220 Following Executive Director @ IPOPI All views strictly personal.
Casanova Lab @casanova_lab
10K Followers 504 Following We're a research lab at Rockefeller University (NY) and Necker Hospital (Paris) studying human genetic and immunological determinants of infectious diseases.
Barb Ballard @scidmail
413 Followers 565 Following Raising awareness for SCID newborn screening, SCID mom, Cued Speech Proponent, Photo Hobbyist, Crafter, Computer Geek, Web Designer...
Nizar Mahlaoui M.D., ... @MahlaouiNizar
981 Followers 3K Following #PrimaryImmunoDeficiencies #PID #ePIDemiology @CEREDIH @SCETIDE #NECKER & #Founder #Coordinator @LaSuiteNecker #Transition #AYA #RareDiseases #PrixGalien2019
Felicia B. Morton @MortonPR
1K Followers 1K Following Prez & CEO of full-service communications firm, specializing in mission-driven initiatives and impactful TV/video production.
The CGD Association o... @CGDAofAmerica
182 Followers 557 Following The CGDAA is committed to advocating on behalf of patients and X-linked carriers by providing news and information about Chronic Granulomatous Disease.
Rocket Pharmaceutical... @RocketPharma
1K Followers 208 Following Seeking #GeneTherapy cures for patients with rare and devastating diseases.
kate sullivan @katesullimmuno
1K Followers 625 Following I am an immunology nerd through and through. I sort of have a thing for chromatin too. Proud to be a geek!
Ayelet Rosenthal @AyeletRosenthal
61 Followers 44 Following Pediatric infectious disease physician at Lurie Children's Hospital of Chicago
Aditya Sharma,MD @AdityaSharma_MD
143 Followers 329 Following Pediatric hematologist/oncologist, @ChildrensLA @USC. ❤#bmtsm, #medtwitter.🏃🏽♂️.Amateur photographer. Science and Philosophy buff.
Susan Prockop MD @SusanProckopMD
806 Followers 375 Following Pediatric Stem Cell Transplant and Cellular Therapies Boston Children’s Hospital/DFCI
Elie Haddad @ElieHaddad55
2K Followers 920 Following Clinician scientist in pediatric immunology. Humour and science all the way! Immediate Past President of the Clinical Immunology Society.
Prof Peter Hotez MD P... @PeterHotez
405K Followers 8K Following Texas Medical Center (TMC) Professor-Vaccine Scientist-Author; Member, Philosophical Society of Texas and TAMEST; Dallas Morning News Texan of the Year 2022
Marieke Emonts 💙 @mariekeemonts
643 Followers 463 Following Prof Paediatric Infectious Diseases Newcastle University, Paediatrician, aim to improve care, mum, wife, dancer, love life views are my own
Remember The Girls @remember_girls
2K Followers 775 Following Nonprofit organization aiming to break the stigma facing females impacted by X-linked conditions. #NotJustCarriers
fitbit @fitbit
337K Followers 10 Following We've hopped over to @MadeByGoogle! Follow us there for all the latest from Fitbit. Need any help? Reach out to @FitbitSupport
EveryLife Foundation @EveryLifeOrg
7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
RARE Northeastern @Rare_Neu
258 Followers 198 Following We are a student organization at Northeastern University that aims to increase awareness for rare diseases and provide support to those in need.
Carrie Ostrea, MBA @RareDiseaseAdv
1K Followers 107 Following Little Miss Hannah's Mom #RareMom. Providing education & mentoring to #raredisease advocates. Comments and opinions are my own.
Prader-Willi Research @fpwr
2K Followers 48 Following Foundation for Prader-Willi Research focused on treatments & cure for PWS
Melanie Notkin @SavvyAuntie
28K Followers 8K Following Developing the Jewish IdeaLab | Founder SAVVY AUNTIE® | OTHERHOOD® | PANK® | AUNTIE'S DAY® | Bestselling author | Media contributor (NYPost, Spectator and more)
Immunoglobulin-Nation... @IgNSorg
996 Followers 1K Following Dedicated to advancing Ig therapy practice through multi-disciplinary education, standards of practice, and certification.
DKMS US @DKMS_us
10K Followers 2K Following An international nonprofit organization dedicated to the fight against blood cancer and blood disorders 💪❤️ Register below to potentially save a life!
Stupid Cancer @StupidCancer
30K Followers 3K Following #StupidCancer empowers everyone affected by #AYA Cancer by ending isolation and building community.
Bone Marrow & Cancer ... @TheBMCF
3K Followers 2K Following Dedicated to improving the quality of life for cancer & transplant patients and their families since 1992.
Gift of Life @GiftofLife
20K Followers 7K Following Curing blood cancer through blood stem cell and marrow donation utilizing our large, diverse donor registry, in-house apheresis center and cellular therapy lab.
Novaland @LilithNova1
4K Followers 4K Following
CHI @congenitalhi
2K Followers 2K Following Improving the lives of babies, children, and adults with hyperinsulinism (HI) by supporting HI families, research, and awareness to prevent brain damage & death
Hannah Ross @hannah_may_ross
9 Followers 18 Following
Pixar @Pixar
11.6M Followers 63 Following #Elio is "Pixar's best original since 'Coco'" & now be the first to watch it at home. 💫🛸 Now available on Digital, Blu-ray™ & DVD, and Disney+!
The Good Dinosaur @TheGoodDinosaur
10K Followers 36 Following Disney•Pixar's The Good Dinosaur is NOW AVAILABLE on Blu-ray, Digital HD & Disney Movies Anywhere! #GoodDino
Andrew Thomas @punkrockfoods
43 Followers 97 Following Punk Rock Foods chilli based products with a punk rock theme. Farmers markets, some local outlets, online orders, tribute jams.
Aki Zab @akizab
1K Followers 2K Following Social Media Consultant, Blogger, Founder of Health2Social Inc, Health 2.0 Advocate, Brain Tumor Survivor, Superhero. Member since March 24th, 2008
Commun.it @commun_it
386K Followers 391K Following https://t.co/9sSrmzs44h - We help you 🚀 Grow on Twitter - It's Magical & Free!
Gabrielle Rosario @gabyrosario
4K Followers 4K Following Head of Product I Neurocast Founder I Made with Care Rare Disease Patient I Hyper IgM
Immunity @ImmunityCP
70K Followers 325 Following Cutting-edge research in immunology from around the world. This account is no longer monitored, and content is automated. Join us on BlueSky!