IAmCharlene @IAmCharlene_Me
💜Inspirational Mother of the Year Award Winner 2023 💜Nominated Advocate 2021 @bonecancerresearch💜Advisory Board Member https://t.co/XsbUgBYypb iamcharlene.com London, England Joined May 2012-
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Thank you @BCRT 🧡
Thank you @DerekCStewart 🤎
On my journey through life I have met some truely beautiful souls. One of them is @ele_quinn. I'm so grateful to know you and thank you for all your support...😘🤎 #LifeOfARareGem
We got out there late today to cheer on #TeamBones and the only picture I managed to take was of a 'Charlene' wearing Pooh Bear! ... 💛 #TCSLondonMarathon #TCSLondonMarathon2024
Earlier this week I was invited to attend Parliament for the launch of #C52Manifesto to raise awareness for rare cancers to improve treatments and outcomes. 🧡 #RareCancerAwareness #bonecancerresearchtrust
Today, we met with @coyleneil at the launch of the @Cancer52org manifesto🤝 Mr Coyle has pledged his support to improving the early diagnosis of rare cancers and is pictured with Charlene Young, trustee of the Bone Cancer Research Trust and former patient. #Cancer52Manifesto
This April, we’re proud to be part of Teenage and Young Adult Cancer Awareness Month representing primary bone cancer patients 🧡💛 Keep your eyes peeled across our socials for inspirational stories and news throughout the month 👀 #TYCAM #TYACancer #UntilTheresACure
Would you like to join the EEC as a patient advocate member? Complete this form forms.office.com/e/gVgWd9wzRv by Tuesday 5 May 2024 and the EEC will review your application and get in touch shortly afterwards. More info bit.ly/3vkiJzf.
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Today is the 3rd #NationalCancerCNSDay! Cancer Clinical Nurse Specialists are experts in their field, offering a unique blend of skills to provide quality care to patients throughout the cancer pathway 👉tinyurl.com/2twkaesf @UKONSmember @macmillancancer @NHSEngland @theRCN
Good morning 😍 & to all the Black African Caribbean women expecially those in the public eye & those fighting in every single workplace. Thank you for your resilience & resistance as I say in my book. It's time to complete the power of 3... revolution where fairness rules! ❤️
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Sometimes rare is more common than we think #RareDiseaseDay
HAPPENING NOW: We are honored to be speaking at this evening’s @WhiteHouse #RareDisease Forum, where NORD Chief Scientific & Medical Officer, Ed Neilan, will join other world-class experts to discuss current research progress and priorities. Tune in: youtube.com/live/uG43oLZze…
🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours
#RareDiseaseDay falls during #BlackHistoryMonth, so let's talk about how rare diseases can impact Black patients differently. Read Tanita's story of living with #HuntingtonsDisease and the memoir she wrote about facing racism within the medical community: bit.ly/3Td4ogZ
We’re thrilled to be hosting our Scotland #RareDiseaseDay event at the Institute of Genetics and Cancer in Edinburgh! Today’s activities are already underway and we’re proud to be raising awareness ahead of #RareDiseaseDay2024 geneticalliance.org.uk/campaigns-and-…
Bone Cancer Research .. @BCRT
9K Followers 3K Following The leading charity dedicated to saving lives and fighting primary bone cancer through #Research, #Information, #Awareness and #Support. We are #TeamBones.Dr Liz O'Riordan @Liz_ORiordan
67K Followers 9K Following Writer - 'Under The Knife' 'The Complete Guide to Breast Cancer' | Motivational Speaker | Podcast - So Now I've Got Breast Cancer | Trusted Information CreatorMat Cottle-Shaw @MLJCS_
583 Followers 1K Following Proud CEO @RotherHosp | 🌈 | Passionate leader | Northerner 🧭 | Views my own 👍Sarcoma UK @Sarcoma_UK
11K Followers 3K Following We fund vital research, offer support for anyone affected by sarcoma cancer and campaign for better treatments.SPAGN @sarcomapatients
2K Followers 557 Following Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of Sarcoma, GIST and Desmoid Patient Advocacy GroupsAdam Lever @_adamlever
192 Followers 351 Following All round sport nut (cricket, ice hockey and sitting volleyball)! Well-being warrior. Proud supporter of @BCRT. Work for @UoNSport. All views are my own.Monopod @DpoidMonopod
1K Followers 1K Following Monopedic Ambulator. Campaigner for amputees, long term cancer survivors and people of 'difference' #itcouldhappentoyouPeter Lloyd @Hopalonglloydy
1K Followers 3K Following ex Osteosarcoma patient , Wheelchair Racer #PushingForACure and Amputee. Chilli head @chillidadd Text BCRT PETE to 70800 to donate £5 to @BCRTMIB Agents Osteosarco.. @AgentsMIB
646 Followers 473 Following MIB 'Making It Better' for Kids With Osteosarcoma through research, education, programs, & legislative action.Derek Stewart @DerekCStewart
6K Followers 7K Following Patient advocate after throat cancer in 1995: From Ayr to Blogger, Facilitator, Speaker with an OBE and a Professorship (Hon) for University of GalwayMaureen Smith @Maureenchats
520 Followers 207 Following Passionate patient partner, rare disease advocate, Adjunct Professor @UofT_dlsph, Teacher at ❤️@INFORMRARE @CochraneConsumr @EvidenceComm @SPORAllianceRichard Davidson @RichardDavidson
2K Followers 1K Following Chief Executive of Sarcoma UK. Chair of SameYou. Devon, via North London and County Durham. All views my own.Shaun Treweek @shauntreweek
4K Followers 2K Following Professor of Health Services Research, Health Services Research Unit, University of Aberdeen; trying to make trials more efficient https://t.co/xKksiiVZ1IOsteosarcoma Now @OsteosarcomaNow
303 Followers 207 Following Information and resources for people affected by osteosarcoma. Managed by @Myrovlytis #RareCancer #OsteosarcomaThe Baton Awards @BatonAwards
658 Followers 397 Following The Baton Awards: celebrating women from diverse racial groups of Past, Present and Future.Bobbi Ober @bobbi_ob
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177 Followers 1K Following Best Sub-Scription For (Smart TV, Android Devices,STB, Fire stick,Mag Box) Available in Low Prices: For more detail https://t.co/jMUZuNrYlZAlara Schnyer @SchnyAl
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210 Followers 524 Following The Giving Lab brings people together to share ideas and identify changes that could improve Walworth's community. Recruitment link below:Harriette Brazington @BrazingHarrie
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32 Followers 5K FollowingSusanne Gamotan @gamotan96950
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31 Followers 5K FollowingTawanda Lois @LoisTawand62584
86 Followers 5K FollowingMarianna Morales @MariannaMo20033
96 Followers 3K FollowingTheKidsTrial @TheKidsTrial
294 Followers 729 Following An online randomised trial co-created with kids!Kiera Pindell @pinde_kie
33 Followers 5K FollowingLuna @Augenstern14074
7 Followers 759 FollowingWilson Cook @cook_wilso74176
113 Followers 3K FollowingLuna @JourneyJul72196
4 Followers 767 FollowingPaul Powell @pogF1
119 Followers 832 FollowingGerard MSc SCP (Tr & .. @Oxford_RN
2K Followers 2K Following Consultant Nurse - Spinal /Sarcoma Surgery, 🎓DPhil Student @NDCNOxford @PembrokeOxford #personalisedoncologycare #consent MFPCEd @RCSEd. Opinions are my own ☘️Pip Page-Davies 💙 @pip_page
283 Followers 338 Following Macmillan Clinical Nurse Specialist in Bone and Soft tissue oncology. Passionate about delivering outstanding care. Views are my ownPeter Young @PeterYoung55290
78 Followers 2K FollowingGiovanna Dixon @giovanna36814
138 Followers 3K FollowingRunilon @runilon
63 Followers 144 Following Massive sports fan, in particular tennis & Arsenal FC 🎾 🎾 ⚽️⚽️ 🤩🤩 ❤🤍 | Brentford Empress Penguins FC🐧🐧 | Bone cancer warrior | Love an under dog story...The Brixton Project @BrixtonProject
3K Followers 2K Following The Brixton Project brings the positive power of creativity to the heart of local communities. We make places people love!Lambeth Together @LambethTogether
4K Followers 10K Following We are a partnership of NHS, council and community organisations working to improve health in Lambeth. Part of south east London's Integrated Care System (ICS).Bone Cancer Research .. @BCRT
9K Followers 3K Following The leading charity dedicated to saving lives and fighting primary bone cancer through #Research, #Information, #Awareness and #Support. We are #TeamBones.Dr Liz O'Riordan @Liz_ORiordan
67K Followers 9K Following Writer - 'Under The Knife' 'The Complete Guide to Breast Cancer' | Motivational Speaker | Podcast - So Now I've Got Breast Cancer | Trusted Information CreatorMat Cottle-Shaw @MLJCS_
583 Followers 1K Following Proud CEO @RotherHosp | 🌈 | Passionate leader | Northerner 🧭 | Views my own 👍Sarcoma UK @Sarcoma_UK
11K Followers 3K Following We fund vital research, offer support for anyone affected by sarcoma cancer and campaign for better treatments.SPAGN @sarcomapatients
2K Followers 557 Following Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of Sarcoma, GIST and Desmoid Patient Advocacy GroupsPPI Ignite Network @ .. @PPI_Galway
2K Followers 296 Following Public and patient involvement in healthcare research. Patients' lived experience influencing research planning and conduct. @UniOfGalwayPPI Ignite Network Ir.. @PPI_Ignite_Net
2K Followers 130 Following A shared voice for Public and Patient Involvement in health and social care research in Ireland. Every voice matters.Adam Lever @_adamlever
192 Followers 351 Following All round sport nut (cricket, ice hockey and sitting volleyball)! Well-being warrior. Proud supporter of @BCRT. Work for @UoNSport. All views are my own.Monopod @DpoidMonopod
1K Followers 1K Following Monopedic Ambulator. Campaigner for amputees, long term cancer survivors and people of 'difference' #itcouldhappentoyouPeter Lloyd @Hopalonglloydy
1K Followers 3K Following ex Osteosarcoma patient , Wheelchair Racer #PushingForACure and Amputee. Chilli head @chillidadd Text BCRT PETE to 70800 to donate £5 to @BCRTThe Osteosarcoma Inst.. @OSInstitute
1K Followers 849 Following Our goal is to develop and execute a comprehensive, rational strategy to improve dramatically the life expectancy of relapsed and metastatic patients.Lorraine King @lorrainemking
28K Followers 5K Following Proud mum, ex-journalist and record collector on @colourfulradio every Saturday at 10am playing soul on vinyl-only 🎶 Unafraid of most things except spidersSonia Meggie ✨ @SoniaMeggie
14K Followers 14K Following Founder @Inspirational_U™ @FunkyNChunky_ 📍Mum | Outdoors 🥾 | Traveller | Inclusion | Progression | Legacy 📢 @iy_youth ⚽️AFC ℹ️Own views | Info👇🏾MIB Agents Osteosarco.. @AgentsMIB
646 Followers 473 Following MIB 'Making It Better' for Kids With Osteosarcoma through research, education, programs, & legislative action.Derek Stewart @DerekCStewart
6K Followers 7K Following Patient advocate after throat cancer in 1995: From Ayr to Blogger, Facilitator, Speaker with an OBE and a Professorship (Hon) for University of GalwayMaureen Smith @Maureenchats
520 Followers 207 Following Passionate patient partner, rare disease advocate, Adjunct Professor @UofT_dlsph, Teacher at ❤️@INFORMRARE @CochraneConsumr @EvidenceComm @SPORAllianceEvidence Synthesis Ir.. @EvidSynIRL
4K Followers 741 Following Building #EvidenceSynthesis capacity | @UniOfGalway | Host @CochraneIreland | Funded by @HRBIreland & #HSCRandD Newsletter https://t.co/phDPiHx2gxRichard Davidson @RichardDavidson
2K Followers 1K Following Chief Executive of Sarcoma UK. Chair of SameYou. Devon, via North London and County Durham. All views my own.Shaun Treweek @shauntreweek
4K Followers 2K Following Professor of Health Services Research, Health Services Research Unit, University of Aberdeen; trying to make trials more efficient https://t.co/xKksiiVZ1ISistah Space @Sistah_Space
30K Followers 1K Following https://t.co/kf7L91yaHG Specialist support for African & Caribbean heritage women https://t.co/4VVHMou7DgBrixton Soup Kitchen @BrixSoupKitchen
16K Followers 8K Following Brixton Soup Kitchen (Charity Number 1159976) is a service for the homeless. We rely on donations to continue our work email us: [email protected]Sasha Daly @SashaDaly1
551 Followers 2K Following Advocacy & Policy geek 🤓 Passionate about People PowerNeil Coyle @coyleneil
28K Followers 4K Following Bermondsey & Old Southwark Labour MP. For help please email [email protected] or call 020 7219 7650.NHS Research Scotland @NHSResearchScot
9K Followers 2K Following Ensuring NHS Scotland provides the best environment to support clinical research so patients can benefit from new and better treatments.Magdalena Skrybant @MSkrybant
412 Followers 504 Following Public Involvement Lead for @ARC_WM Passionate about all things to do with public involvement and engagement in health and social care. All views own.Nelufar Hedayat @nelufar
17K Followers 500 Following Afghan-British🌱. Host and Director of Emmy winning documentary Plastic Time Bomb https://t.co/NTZv3cnWBw Rep: [email protected]Jenifer Lewis @JeniferLewis
158K Followers 528 Following A triple threat: actress, singer, dancer...what's your triple? Instagram: @jeniferlewisforrealTheKidsTrial @TheKidsTrial
294 Followers 729 Following An online randomised trial co-created with kids!Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRareBTOG @BTOGORG
4K Followers 428 Following British Thoracic Oncology Group (BTOG) - multi-disciplinary group for professionals involved with thoracic malignancies.Gerard MSc SCP (Tr & .. @Oxford_RN
2K Followers 2K Following Consultant Nurse - Spinal /Sarcoma Surgery, 🎓DPhil Student @NDCNOxford @PembrokeOxford #personalisedoncologycare #consent MFPCEd @RCSEd. Opinions are my own ☘️Lucia Cottone @CottoneLucia
242 Followers 223 FollowingClaire Taylor @claire_taylor22
2K Followers 445 Following Chief Nursing Officer, Macmillan & Macmillan Nurse Consultant, Colorectal Cancer @LNWH. PhD, RN, MBESarah Kaye @SarahKaye14
506 Followers 2K Following Nursing ward Manager in Orthopaedic Oncology @ RJAH. Proud mum of three. Views are my own!Pip Page-Davies 💙 @pip_page
283 Followers 338 Following Macmillan Clinical Nurse Specialist in Bone and Soft tissue oncology. Passionate about delivering outstanding care. Views are my ownRJAH Orthopaedic Hosp.. @RJAH_NHS
5K Followers 634 Following World renowned specialist hospital delivering high quality, sustainable orthopaedic and related care, achieving excellence in patient experience and outcomes.Ellie Coulbeck @CoulbeckEllie
258 Followers 134 Following Experience of Care Support Manager @ NHSE. Passionate about working together with service users to drive real change in healthcare. All views my own.Rachel Françoise �.. @NHSRachListens
1K Followers 2K Following Prev Lovesy 💕 Patient & Public Engagement Manager for the Cancer Prog' at NHSE* MRes Applied Health Research * Mum to 2 girls. Terrible laugh! Views my own 💙Anna Rarity 💙 @AnnaRarity3
1K Followers 673 Following Cancer Experience of Care Programme Manager National Cancer Programme @NHSEngland #ExpOfCare #cancercollab #QI #coproduction Pronouns she/her |All views my own|Susanna Young @susiejoyoung
125 Followers 142 Following Programme Support Manager for Cancer Experience of Care Team, NHS England Cancer ProgrammeJanet Clarke @HarrietVane50
70 Followers 241 Following I work for Macmillan Cancer Support as an Engagement Lead. The primary purpose of my role is to work with diverse and marginalised communities.Paul Campbell @Mrpcampbell
599 Followers 550 Following Prostate Cancer Survivor. CEO at Cancer Black Care. ALL CANCER LIVES MATTERPavitter Kaur @Pavmainn
342 Followers 575 Following Supporting friends and family, travelling before starting work. 🙏Cancer Don’t Let It.. @CDLIW1
116 Followers 97 Following CDLIW CIC is a non-profit organization established to provide physical and mental assistance to men recovering from prostate cancer.HEPA Europe @hepaeurope
4K Followers 439 Following European network over 200 institutions from 40 countries, working for better health & wellbeing through physical activity @WHO_Europe.RCSI @RCSI_Irl
36K Followers 5K Following RCSI University of Medicine and Health Sciences. Ranked #1 in the world for SDG3 'Good Health and Well-being' in the THE Impact Rankings 2023.The Brixton Project @BrixtonProject
3K Followers 2K Following The Brixton Project brings the positive power of creativity to the heart of local communities. We make places people love!FutureNeuro Centre @Futureneuro_ie
3K Followers 845 Following FutureNeuro is the @scienceirel Research Centre for Chronic and Rare Neurological Diseases, hosted by @RCSI_IrlRein in Sarcoma @reininsarcoma
2K Followers 5K Following Rein in Sarcoma is a Minnesota based non-profit organization dedicated to sarcoma patient support, research, and educationCoin Street @CoinStreet
5K Followers 2K Following A social enterprise working in Waterloo and Southwark. Home to @OxoTowerWharf, Gabriel's Wharf, a Conference Centre, Nursery, and Family and Children's Centre.Michelle @clearmind67
3K Followers 5K Following Former Chair of #SBHA. Campaigner of #Windrush. #🇧🇧 #BLM # 🇮🇪JusticeForNoahDonohoe #justice #equality #dignity #inclusionHajia Saidat @princess_okes
70 Followers 36 Following Owner and founder of Faiths Women Community UKFWC UK @fwc_women
27 Followers 24 Following Faiths Women Community UK Empowering and identifying the collective needs and voices of all Women Faith organisations in UK.Locality @localitynews
23K Followers 7K Following We support local community organisations to be strong and successful. #PowerOfCommunityAYMARA Social Enterpr.. @AymaraSocial
414 Followers 1K Following Health and wellbeing for ethnic minority groups. We invest in communities, drive change, create opportunities and empower people to transform their livesEva McGrowder @Eva_M83
114 Followers 293 Following PhD in cancer. Currently a Research Study Coordinator at The Institute of Cancer Research, managing prostate cancer clinical trials. Posts I make are my opinionBiomedical Engineerin.. @KingsImaging
7K Followers 1K Following We are the School of Biomedical Engineering & Imaging Sciences at King's College London. Recipients of the 2019 Queen's Anniversary Prize.Sinéad Hynes @sineadnieidhin
611 Followers 544 Following Lecturer Occupational Therapy, University of Galway #andacyclist Views my own. (she/her) Also @[email protected]littleBIGman @Wretch32
773K Followers 2K Following Creative director @0207defjam | https://t.co/cYK7QjeDJj |Mgt: [email protected] | Shows: [email protected] | IG: officialwretch32Samantha Tross @samanthatross
1K Followers 507 Following Hip and knee surgeon/ Diversity and Inclusion Advocate/ Mentor/ University Examiner/ Devoted Aunt and god-mother/ Lover of dance, travel and fine dining/ 🇬🇾BOA @BritOrthopaedic
22K Followers 868 Following The British Orthopaedic Association (BOA) is the professional association for #trauma and #orthopaedic #surgeons in the United Kingdom.Sinai Fleary 🇬🇩.. @S_Fleary1
4K Followers 2K Following Founder @JusJahMagazine Broadcaster @colourfulradio News & Features Journalist @TheVoiceNews Creator #WindrushExperience 📧[email protected]Black Women in Health.. @BWIHUK
1K Followers 818 Following Award-Winning Non Profit Organisation for Black female healthcare professionals in UK. Pride in Diversity, Promoting Inclusion & EqualityEthnicity Awards / In.. @EthnicityInvest
4K Followers 1K Following Celebrating diversity and inclusion! 🏆 See the 2023 Winners below 🏆The Royal Orthopaedic.. @ROHNHSFT
4K Followers 1K Following Leading orthopaedic hospital in the centre of the UK, providing outstanding, compassionate care. #loveROH 💙Multicultural Marketi.. @MulticulturalMC
678 Followers 831 Following Award winning communications agency; helping organisations connect effectively with multicultural communities, to improve lives and reduce inequalities.Craig Pinkney @RealActionUK
9K Followers 5K Following I hold many titles but, other than being called Dad, I am a Criminologist, Urban Youth Specialist, Consultant, PhD Researcher, CEO of @CYVCSOLVE @SOLVE_OLCWhat an amazing day at Lakeside shopping mall! Barbers @hairforce1 @barbersagainstprostatecancer are actively raising awareness about prostate cancer by offering free haircuts. It’s another fantastic way to make a difference and save lives. Supported by @macmillancancer
Looking to do a #PhD? Want to learn about osteosarcoma chemoresistance, transcriptomics and proteomics? Come join @mariasecrier and myself at @ucl! Very grateful to @SarcomaUk for funding this position - exciting as my first studentship as a PI! Apply by 15th May. Details:
The best students - i really am very sad i am not there for this one - i hope you have all learnt loads and had fun! Next, the Burn!
Fantastic few days in Ireland taking part in great training and enjoying spending time together in Kilkenny! @CdtStudents
I am so proud of my children @walkgoodetienne and @Coco_Maurice , who in partnership with @onrunning launched a new cloud running sneaker🇯🇲 that has #soldout its first day at the Penn Relays aka The Jamaican Relays in Philadelphia!! #dreamon
@IAmCharlene_Me Thanks so much for your support, Charlene! It truly means the world. You are such a credit to our community 🧡
One of our @LondonMarathon runners, Jason Dawes, received an incredible phone call yesterday from JustGiving - they've donated £10,000 towards his London Marathon page 🧡 Jason was running in memory of his son, Ellison, who passed away from Ewing sarcoma in 2021.
📞🥺 watch til the end… Jason’s son, Ellison died in 2021, aged 11. Jason ran the #LondonMarathon on Sunday for @BCRT in his memory. @LondonMarathon
We are delighted to be joining researchers, clinicians and patient advocates to represent the primary bone cancer community at the @CCLG_UK Annual Conference 2024! #CCLG2024
We’re here - it’s almost time! Get ready for our biggest & best #CCLG2024 Annual Conference yet!🚀With over 600 delegates attending, it's shaping up to be an unforgettable event. Join us as we delve into the latest treatments and #research. Together, we're stronger!🙌 #CTYACancer
Congratulations to Tom, we are so proud to see you honoured with this award! A true inspiration to follow ahead of the London Marathon 2024 🧡 Read more about his incredible story: ow.ly/I7SL50RjNsR
Our Spirit of the London Marathon award winners are @AdeleRoberts and Tom Durnin. In 2023, Adele became the fastest woman to run the London Marathon with a stoma bag, achieving a @GWR! Tom was the final official finisher, crossing the line in a time of 8:10:58. Learn more 👇
We’re excited to join patient advocates, researchers & clinicians from across the world here at the Sarcoma Patient Advocacy Global Network (SPAGN) Annual Conference 2024. Over the next 3 days, we’ll be representing the voices of primary bone cancer patients & families #SPAGN2024
Bethany was 22 years old when she was diagnosed with osteosarcoma. She bravely shares her story this April to help other young patients feel empowered around healthcare decisions 🧡 Find out more: ow.ly/uceb50RjL82 #TYACAM #UntilTheresACure
I'm a breast cancer surgeon and survivor - and this is what I want women to know about the risk factors for breast cancer @Telegraph telegraph.co.uk/health-fitness…
“Ian is 15 years old. In 2019, Ian was diagnosed with osteosarcoma. After surgery and months of chemotherapy, Ian was declared cancer free; however, in November 2021, his cancer would return and spread throughout his body. This past week, he and his family would learn that…
@2StefanMoore I lost my son to osteosarcoma in 2019. There has been little to no new treatments in the last 50to60 years that's why I fund raise for BCRT in the hope of saving the next Ian and Zack,may Ian rest in peace 🙏