ITP Support Assoc @ITPSupportAssoc
UK charity supporting sufferers of the auto immune bleeding disorder Immune Thrombocytopenia. Views expressed are those of individuals & not the ITP Supp Assoc itpsupport.org.uk The Platelet Mission, MK44 2EL Joined August 2011-
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A Quick Summary of ITP from the Experts We are pleased to share a new resource: a quick summary of Immune Thrombocytopenia by our very own Chair, Professor Adrian Newland CBE. As a leading expert in Haematology, Professor Newland offers a clear and concise overview of the…
We're wearing purple today to stand with the global ITP community 💜 Purple is the official colour of ITP awareness—representing strength, resilience, and support for those living with Immune Thrombocytopenia. Whether it’s a scarf, a t-shirt, or a pair of socks, every shade…
The strength of our community extends far beyond our local borders. We're proud to be part of the International ITP Alliance, a global network of ITP patient organisations working together across 31 countries. This alliance ensures that no matter where you are in the world, the…
Beyond the numbers on a blood test, ITP is a lived experience. It's the unexpected fatigue, the anxiety, and the quiet resilience needed for daily life. This Global ITP Awareness Week, we want to shine a light on the human side of this condition. For many, living with ITP means…
Thank you to the Team at Imperial College Healthcare NHS Trust, they did a tour of the Hammersmith Haematology Department raising awareness for ITP. Well done to Prof Nichola Cooper and her wonderful team for making this happen. The chocolates were very popular! #itpsupport…
A Global Community, United for ITP 💜 Behind every resource, every support group, and every piece of information we share, there is a person—a volunteer, a caregiver, a patient, a medical professional, or a supporter. The ITP Support Association isn't just an organisation; it's…
It's here! 💜 Welcome to the start of Global ITP Awareness Week! This week, the spotlight on Immune Thrombocytopenia shines brighter than ever, reaching across borders and continents. From the UK and all corners of the globe, we stand united with everyone affected by ITP.…
👋 Meet Professor Adrian Newland CBE - Our Chair We are honoured to introduce Professor Adrian Newland, the Chair of the ITP Support Association. He is a Professor of Haematology and a leading expert in immune thrombocytopenia, hosting the only tertiary referral centre for ITP…
A life-saving story for Global ITP Awareness Week. 💜 Meet Danielle, a mum who wouldn't have her children without the life-saving generosity of plasma donors. Diagnosed with ITP during her first pregnancy, Danielle received more than 50 infusions of immunoglobulin - a medicine…
This is the recording of the Scotland ITP Support Group Meeting that took place on Tuesday 16th September 2025 with Dr. Catherine Bagot, plus Mervyn Morgan ITPSA CEO and ITPSA Board Member Rhonda Anderson. #ITPAwareness youtu.be/M1WaXfYRgP8?si…
Its ITP Awareness Week in just a few more days, why not watch the recordings from our May National ITP patient convention? 2025 ITP Patient Convention Recordings Now Available The recordings from our recent ITP Patient Conference, held at Bridgewater Hall in Manchester this past…
When it comes to your health, your voice matters. Shared decision-making is a powerful approach to ITP treatment, where you and your doctor work together as a team. This collaborative process ensures that your treatment plan is not just medically effective, but also aligned with…
Your haematology appointment is your time to be heard and to get the answers you need. Preparing beforehand can make all the difference. Writing down your symptoms, questions, and goals can help you make the most of every visit. 💬 What's your number one tip for a successful…
Your Donation, Your Impact. 💜 Every donation, big or small, helps us make a huge difference in the lives of those affected by ITP. Your generosity allows us to provide essential information, deliver support to patients and their families, and fund vital research. Donating is…
Fatigue is one of ITP’s most challenging and often invisible symptoms. It's more than just being tired - it's a deep exhaustion that can impact your daily life. Today, we're talking about coping strategies. What is one way you manage ITP fatigue on a tough day? #ITPFatigue…
💬 Curious about ITP? Here's our rapid-fire overview of ITP. It's just the basics, but there's much more to learn. Head to itpsupport.org.uk for detailed info, resources, and real patient stories. If you're ready to connect and advocate, join the ITP Support Association…
What's one thing you wish you knew when you were first diagnosed with ITP? 💜 A new diagnosis can be overwhelming and full of uncertainty. The ITP community is full of people who have been there. Today, we want to hear from you. What's one piece of advice or one thing you wish…
It's September 1st, and that means it's ITP Awareness Month! 💜 Throughout September, we'll be sharing stories, facts, and resources to shine a light on ITP - a rare autoimmune bleeding disorder. Our goal? To increase understanding, provide support, and empower those living…
📘 Support for Young Patients with ITP - Free Book Available ITP & Me is a free book written by teenagers, for teenagers navigating life with Immune Thrombocytopenia. It offers real stories, peer-led advice, and emotional support that helps young patients feel understood and…
This is a recording of Dr Andrew Morgan’s Session Two Virtual Patient Meeting covering ITP and Stress, this is the second of a series of three virtual meetings. #ITPAwareness youtu.be/ugkFNd8kJ-w?si…
Dr Kate Khair PhD @katekhair
1K Followers 865 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
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Haemophilia Nurses' A... @NursesHna
501 Followers 191 Following The HNA is a professional group that represents specialist nurses caring for people with bleeding disorders in the UK.
Cathy Harrison 💙 @CathyAH1980
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haemnet @haemnet
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552 Followers 740 Following Lover of sport, WFC, SACY, Edgware & Kingsbury FC, fun & family. UEFA coach. FA referee. Be positive; minds like parachutes only function when they're open!
Cambridge Rare Diseas... @camraredisease
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Karen Bradley 💙 @karhod21
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Kinesiotherapy.gr @GelsisJohn
20 Followers 50 Following Ένα διαφορετικό φυσικοθεραπευτήριο Διαχείριση Χρόνιου Πόνου, Στοματοπροσωπικού Πόνου, Σκολίωσης, Αθλητικών κακώσεων, Βιοϊατρικός Βελονισμός, Group Therapy.
EnfermedadesRaras.es @eerr_es
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Mathilde Coulbault @MthCbt
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Luis Betting games @LuisBettin72353
183 Followers 7K Following Who else is joining the VIP tips 100% win guarantee 100 💯 manipulated https://t.co/SkEg39UGWf
Dr. Aljawharah Alabba... @Aljawharah_F
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Apple byte @stejtl
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Kelsey Redmore @kelseyredmore
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Deena @deena_paul21
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Jackie Rowe (Johnston... @jackiepaige14
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Saj @sajhussain
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Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
EHC_Haemophilia @EHC_Haemophilia
3K Followers 409 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
Dr Kate Khair PhD @katekhair
1K Followers 865 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Clive Smith @Clive_Smith_
2K Followers 998 Following President of The Haemophilia Society, World Federation of Hemophilia Youth Chair, Criminal Barrister & Lecturer
Haemophilia Society @HaemoSocUK
5K Followers 703 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
Rare Disease Day @rarediseaseday
42K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
ASH @ASH_hematology
72K Followers 2K Following The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee Chair. Wife & mum, artist, forever learning. Winner of Nursing Times Nurse of the Year Award 2024. Opinions are mine.
haemnet @haemnet
1K Followers 370 Following Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
European Hematology A... @EHA_Hematology
31K Followers 414 Following Europe's largest hematology community | Connection • Education • Research • Advocacy • Patient Care | Join EHA today | #YoungEHA #HemaSphere #EHA2025
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552 Followers 740 Following Lover of sport, WFC, SACY, Edgware & Kingsbury FC, fun & family. UEFA coach. FA referee. Be positive; minds like parachutes only function when they're open!
Zack Pemberton-Whitel... @ZPWHITELEY
2K Followers 1K Following #PatientEngagement, #PatientAdvocacy, evidence, questions, perspective, gifs, collaboration & @PGtips. Views my own, repost ≠ endorsement
Cambridge Rare Diseas... @camraredisease
8K Followers 6K Following making #rarediseases an everyday conversation https://t.co/kZWskP9Ojj
David Ross @mensraredisease
726 Followers 840 Following MRDMH supports men’s mental health for those suffering with a rare disease. #raredisease #malementalhealth #mentalhealth #rarementalk #mrdcharity
Yoni - יוני (and ... @Primary_Immune
46K Followers 23K Following Proud Jew. Proud Israeli. הודו לה' כי טוב כי לעולם חסדו offline every Shabbat
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684 Followers 518 Following Lead Nurse for Haematology @ImperialNHS Loves: lemon drizzle cake, hugs from my daughter, Cornish rolling waves and summer time in London. Views my own.
Anthony Heard @AnthonyH7
2K Followers 2K Following Londoner exiled in Berkshire, lover of books, music, history & quality threads. A Spur since 1967
EAHAD @EAHADnews
3K Followers 468 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
Rpg @robingkpol
314 Followers 2K Following PA and digital agency owner. Have built and run the best PA agency in the world. Wedding celebrant in my spare time...
Anita Brikman @AnitaBrikman
2K Followers 1K Following President & CEO, Plasma Protein Therapeutics Association (PPTA Global) @plasmaproteins @pptaeurope
PPTA @PlasmaProteins
1K Followers 336 Following Advocating, educating, & collaborating to bring lifesaving #plasma protein therapies to patients around the 🌎. @PPTAEurope #PlasmaDonorsSaveLives
PPTAEurope @PPTAEurope
494 Followers 230 Following The European division of @plasmaproteins, where we engage with policymakers & patients in 🇪🇺, to advocate for patient access to #plasma-derived therapies.
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292K Followers 518 Following An innovative medicines company working to reimagine medicine. See our community guidelines: https://t.co/wolzG1zLye
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ITP Cooper Mind Lab @itpcooperuk
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Warwickshire Masonic ... @WarksCharity
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Simon @Natureboy3
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124 Followers 101 Following Content Creator || Commissioned SO || Chaplain-in-Training || Follower of Jesus, the living Son of God Business Email: [email protected]
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119 Followers 472 Following #seniormanager, #lifesciences, #pharmaceutical #solutions, #recruiter #volumerecruitment #capex
🌈Michael Kennedy�... @MichaelK7X3
216 Followers 975 Following 📽 📺 📷 🎶 🥃🏳️🌈 ❤️🧡💛💚💙💜 #ITP #ITPWarrior #ITPAwareness #AutoimmuneDisorder #BloodDisorder #PurpleForPlatelets #Stroke #Gay #Queer #GayPride ♂️♠️Trends for United States
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