Javad.the.Giraffe @JavadtheGiraffe

Javad the Giraffe tells the story of a special boy who has Myotubular Myopathy, a rare muscle disease. #raredisease #mtmcnmfamily #giraffestrong Happy Valley, OR Joined September 2016

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Javad.the.Giraffe @JavadtheGiraffe

9 years ago

"We're flying up, up outta here. Here we go, come with me. There's a world out there that we… instagram.com/p/BLZ8orJB8rQ/

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Javad.the.Giraffe @JavadtheGiraffe

9 years ago

Look who showed up today in time to go to Australia and New Zealand with Cheryl. #giraffestrong… instagram.com/p/BLKdADqhydl/

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Javad.the.Giraffe @JavadtheGiraffe

9 years ago

Javad the Giraffe is heading home with #rarebear from @rarescience. Another great addition from… instagram.com/p/BKy-yLxhRoO/

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Javad.the.Giraffe @JavadtheGiraffe

9 years ago

Leaving a great weekend of #raredisease with @GlobalGenes @ Hyatt Regency Huntington Beach instagram.com/p/BKykO8LBwBd/

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Javad.the.Giraffe @JavadtheGiraffe

9 years ago

Javad the Giraffe loved attending the @GlobalGenes Champions of Hope Gala. A reminder that if we… instagram.com/p/BKxC8pwhd7d/

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ICON Plc @ICONplc

16K Followers 11K Following Global provider of Outsourced Clinical Research

tb @tburt2016

21 Followers 215 Following teacher, human, happy to be me

Parallel 6 Inc. is an innovative SaaS provider of mobile enrollment & engagement solutions for clinical research, health, & public sector organizations.

Parallel 6 Inc. @Parallel6

2K Followers 3K Following Parallel 6 Inc. is an innovative SaaS provider of mobile enrollment & engagement solutions for clinical research, health, & public sector organizations.

Maia Fastabend @Maia_tf

3 Followers 73 Following I teach, I run, I spend time on the river; I am living life to it's fullest while still trying to find a place I want to call home.

Robin McDermott @rmcdermott76

23 Followers 95 Following

Best Science & Medicine #Podcast Award Winner 🧬
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#GeneticCounselor @KiraDineen Interviews #Genetic Experts
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#DNA #Scicomm #GeneChat

DNA Today: A Genetics... @DNATodayPodcast

4K Followers 5K Following Best Science & Medicine #Podcast Award Winner 🧬 • #GeneticCounselor @KiraDineen Interviews #Genetic Experts • #DNA #Scicomm #GeneChat

connieheavener @connieintheoc

848 Followers 604 Following “Connie In The OC” Orange County Hair Stylist and Educator

Travion Gaines @Gaines_Travion

9 Followers 69 Following

Changing the way society views young adults living with illness and disability. Contact: WeAreMore@GlobalGenes.Org

We Are More @waminitiative

196 Followers 145 Following Changing the way society views young adults living with illness and disability. Contact: [email protected]

Amber Ensign @AEBeautySociety

73 Followers 563 Following Hip-Hop/Rap Dance/Electronic Metal Food & Drink Travel Fashion & Beauty Photography

Nancy A Anderson @sciencebabe63

14 Followers 55 Following

Niki Vance @vance_niki

8 Followers 92 Following

Host/writer: @afterbuzztv @bhlonline | Actor: @SAGAFTRA @RPM_TheAgency | Author: 6 minute 6 pack | lawyer ⚖️ | fit model | #vegan 🌿| #OWNAmbassador 🇯🇲🇹🇹

ShakaStrong.bsky.soci... @ShakaStrong

“5yrs to live” 33 yrs ago💪#DonateLife💙🫁💚#CysticFibrosis Speaker | Writer | Producer (He/Him) @NYUniversity: MS #YellowHeartSquad💛#lovewins🏳️‍🌈

Travis Flores @travisflores

10K Followers 6K Following “5yrs to live” 33 yrs ago💪#DonateLife💙🫁💚#CysticFibrosis Speaker | Writer | Producer (He/Him) @NYUniversity: MS #YellowHeartSquad💛#lovewins🏳️‍🌈

Sick Chicks is an international community empowering and uniting disabled and chronically ill women // Founder - @shirastrongin contact.sickchick@gmail.com

Sick Chicks @thesickchicks

934 Followers 385 Following Sick Chicks is an international community empowering and uniting disabled and chronically ill women // Founder - @shirastrongin [email protected]

Multimedia journalist, overuser of the exclamation point, and frequent opponent of inaccessible buildings. @UnivofStAndrews + @Columbia alum.

Emily Muller @emilygmuller

1K Followers 448 Following Multimedia journalist, overuser of the exclamation point, and frequent opponent of inaccessible buildings. @UnivofStAndrews + @Columbia alum.

she/her. i’m like a disco queen, i just keep staying alive. founder of @thesickchicks. ORISE fellow @ FDA, CDER. all opinions my own.

Shira Strongin @shirastrongin

1K Followers 803 Following she/her. i’m like a disco queen, i just keep staying alive. founder of @thesickchicks. ORISE fellow @ FDA, CDER. all opinions my own.

We Are More @waminitiative

196 Followers 145 Following Changing the way society views young adults living with illness and disability. Contact: [email protected]

Madison McLaughlin (t... @MadisonMcLaugh

41K Followers 624 Following just a little human trying to figure it all out

Ryan Whyte Maloney @RyanMaloney1981

9K Followers 7K Following Country Artist/producer/songwriter/Dad

Jake Worthington @jakeworthington

57K Followers 2K Following Country Music Singer/Songwriter My second record, When I Write The Song, is out now

Cali Tucker @CaliTucker

1K Followers 278 Following Country/Pop Recording Artist 🎙NEW Single “Urban Cowboy” available everywhere.

Biff Gore @BiffGore

5K Followers 953 Following Season 6 The Voice. Follower of Christ, Husband to my wife. Father, and lover of liberty. Follow me on Instagram biff_gore #biffgoretheambassadorofsoul

Jake Barker @IamJakeBarker

18K Followers 1K Following I dabble..

Taylor Hicks @TaylorHicks

50K Followers 2K Following New song "Teach Me To Dance" is out now!

501c3 funding first gene therapy clinical trial for Hunter Syndrome with your help. Save kids from a rare, terminal disease that steals them by their teens.

Project Alive @Projectalive

1K Followers 360 Following 501c3 funding first gene therapy clinical trial for Hunter Syndrome with your help. Save kids from a rare, terminal disease that steals them by their teens.