The @livestrong fertility assistance program is a blessing for young patients undergoing chemotherapy. It's disappointing they will not extend the program to help preserve fertility in #SickleCell patients receiving gene therapy. @AllianceForFP @oncofertility @VertexPharma
@Jmarksloan @livestrong @AllianceForFP @oncofertility @VertexPharma Thank you for raising this issue. It is a shame that patients undergoing Allogeneic BMT for “benign” conditions like Sickle Cell Disease, Aplastic Anemia, & inherited BM Failure syndromes are excluded from many services despite facing similar problem in the peritransplant period.
@Jmarksloan @AllianceForFP @oncofertility @VertexPharma While we understand the need for fertility assistance is great, at this time our mission remains focused on people with cancer. We are always happy to share information and suggest resources.
@Jmarksloan @livestrong @AllianceForFP @oncofertility @VertexPharma Fully agree, this should have been available to patients undergoing alloBMT in the past. with two @US_FDA approved 🧬 therapy products, we need broad access to fertility preservation for all SCD patients undergoing curative treatments . @SCDAAorg @DalioDotOrg @jkw4444
@Jmarksloan @livestrong @AllianceForFP @oncofertility @VertexPharma Same thing happened to me when I called for assistance before my bone marrow transplant. However, they have been supportive in assisting my organization @SickleRED20 to start a similar program just for individuals with SCD.