Keep Sam Smiling @KeepSamSmiling
I’m Katy, mum to Sam aged 14 who has Morquio Syndrome, we’ve successfully campaigned to ensure the first ever treatment called Vimizim is funded by the NHS. Otley, West Yorkshire, UK Joined November 2014-
Tweets4K
-
Followers504
-
Following221
-
Likes3K
Sponsorship opportunity ❤️. Charity Ball for @MPSSocietyUK in Harrogate on 7th Oct. Do you run a small business or know someone who does, who might sponsor a table for £20? We’ll thank & acknowledge you & share leaflets / business cards on the night. Thank you x x
0
1
1
200
0
Download Image
Last 4 weeks of ticket sales! Please help us with a final push! We’ve an incredible evening planned. From walk around magician to surprise entertainment, from Photo Booth to 1980s style video games, disco, dancing, 3 course meal and fizz, as well as raffle and silent auction 🙏
💙💙💙💙💙. Come and support us and the wonderful @MPSSocietyUK x x
💙💙💙💙💙. Come and support us and the wonderful @MPSSocietyUK x x
Pls retweet & help us to publicise our family organised event to raise money for a wonderful small charity. You may not have heard of @MPSSocietyUK, unless you’re affected by MPS & related diseases. But they’re a lifeline if you are. Tickets available at [email protected]
4 months tomorrow it will be party time! Don’t miss out, get your tickets now by emailing us at [email protected] 💙. Really appreciate everyone’s support xx
Keep Sam Smiling retweeted
MPS diagnoses are often delayed as symptoms & severity vary, & many specialists either aren’t aware of MPS or aren’t able to piece symptoms together. The @Impsn’s mission is to speed up identification of key MPS symptoms & raise awareness of the urgency of reaching a diagnosis.
MPS Awareness Day 2023 . Super proud of Sam & the amazing young man he is becoming ❤️. I’m emotionally all over the place with MPS at the moment as things are not easy so I’m going to go less for words & more for this👇. Doing all we can to increase MPS Awareness. Pls support x
Come and join us 🙏❤️
Come and join us 🙏❤️
Our family is working so hard to make this ball a huge success but to create real impact, we need the kindness and generosity of others. Can you or someone you know help us with raffle prizes, sponsorship or even a celeb connection? 🙏❤️🙏 Always grateful and always hopeful x
Organising a ball as a family is really hard work but lots of fun too! Can you help us spread the word? The more tickets we sell, the more successful it is & the more we raise for @MPSSocietyUK Pls retweet & email [email protected] for tickets x x youtu.be/zb3sFMsgAOk
Keep Sam Smiling retweeted
It’s Deaf Awareness Week, focussing on inclusion of 12m UK adults who are deaf or have hearing loss. In partnership with our @CoopRepresent network, our deaf colleagues hosted a Q&A and an intro to BSL. We are proud to support our deaf colleagues in their careers @coopuk 💙
Please watch and share our video 😊 and come and join us for a brilliant night to raise money for a wonderful charity @MPSSocietyUK x x youtu.be/zb3sFMsgAOk
Please watch and share our video and come and join us to raise money for @MPSSocietyUK x x youtu.be/zb3sFMsgAOk
Just finishing off Sam’s infusion tonight feeling grateful for Vimizim. Without @MPSSocietyUK we wouldn’t have this drug, this is why we’re having a ball in Oct to raise money for this fab organisation. Email [email protected] for tickets come join us for a fab night x
Keep Sam Smiling retweeted
Great win for @Wrexham_AFC today. Here we are featuring 'On the Ropes' in their documentary Welcome to Wrexham. It's a special place for us as we did our first live radio show with Janice Long on BBC Radio Wales, next door to the racecourse ground. Can we come play…
The impact the MPS Society makes is huge. Proud of and thankful for this incredible organisation x
The impact the MPS Society makes is huge. Proud of and thankful for this incredible organisation x
MPS Society UK, here ... @MPSSocietyUK
2K Followers 1K Following MPS Society UK is the only registered charity providing professional support to those affected by MPS, Fabry and related diseases.
Aisha Seedat @aishseedat
452 Followers 749 Following 27| Patient Ambassador for @m4RareDiseases | Rare disease advocate |
Alex Sobel MP for Lee... @alexsobel
27K Followers 5K Following Lab & Coop MP for Leeds Central and Headingley | [email protected] | @[email protected]
Hannah Scott @HannahM_Scott20
1K Followers 3K Following Research assistant @QMUL | PhD candidate @CSI_KCL
Melia @cobos_melia1
1K Followers 3K Following
Apollo Junction @ApolloJunction
16K Followers 10K Following OUR NEW ALBUM WHAT IN THE WORLD IS OUT NOW! 🌖 https://t.co/mu8VQwLQvu
Amy Garcia @AmyGarciauk
22K Followers 454 Following Presenter of BBC Look North- Proud wife & mummy of 2... Yorkshire born & bred.. These views are my own.
Mark Haggan @markhaggan
3K Followers 3K Following Random travels, a few motorsport photos, odd stories and a few jokes.
Fiona Stewart @fstewart229
15 Followers 18 Following Retired doctor. MPS Society trustee and big fan of the MacMillan move more programme for cancer patients.
Wharfedale Observer @wharfeobserver
2K Followers 427 Following Newspaper for the Wharfe Valley, Otley, Burley-in-Wharfedale, Menston, Guiseley, Yeadon, Rawdon, Horsforth. Got a story? Email [email protected]
Nick Speight @NickSpeight
287 Followers 452 Following
ClaireO @clairelouiseom
31 Followers 221 Following Certified Health & Nutrition Coach 🥑👩🏽💻🥦Lifestyle Medicine | Bio Hacking 🧬🏋🏻♀️. 🦠 Personal Journey Fighting Fabry Disease #raredisease #fabry
Melissa Singh @Melissa50319158
301 Followers 177 Following Inclusion Lead for Co-op. Trustee for BLG Mind. Proud mumma to Ayush and complete bookworm. All views are my own
Steven Gill @454Steven
244 Followers 436 Following Dad of 4. Husband. English teacher. Head of Department. Reader. Cyclist. Former fundraiser for the MPS Society UK.
Joce @Jocesky
5 Followers 35 Following
Child of Britain Awar... @ChildofBritain
465 Followers 879 Following The national awards that celebrate the inspirational achievements of remarkable young people across Britain whilst raising funds for children’s charities.
Chris Quin @CQuin
498 Followers 584 Following Leading Architecture for the Co-op. Bike racer for Bioracer UK. Father to two little nutters.
Rachael Shah @rachaelashah
2K Followers 4K Following Digital & Sustainability leader 💚| prev @coopdigital |NED @PHMMcr | MMU MBA & Mrs Vikas to @MrVikas Views my own.
betsy jones @BetsyBellassai
5 Followers 147 Following
Kirsty Storey @KirstyStorey14
25 Followers 39 Following
Beacon for Rare Disea... @RareBeacon
12K Followers 10K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Rhian McKnight @Rhian176
46 Followers 672 Following Love my girls. Time is precious so spend it wisely xx
Rosie Davies @RosieDa87941290
58 Followers 1K Following Welcome to my💖 world. My WhatsApp +1(901)591-0449
Lindsey Rayner @LindseyRayner6
363 Followers 739 Following School Office Admin .Vice Chair of Governors Infant School. Ex Retail Buyer. Mum of two girls. All views my own
Wear Blue for Ethan @WearBlue4Ethan
212 Followers 589 Following Ethan is incredibly brave and resilient and is raising awareness of MPS with a smile and his can do mindset
Andrew Lang @andrewlang68
232 Followers 100 Following Happily follicly-challenged Dad / Finance Director / CRO who used to be able to play a bit of basketball
Danielle H-Wilson �... @MrsDHW
2K Followers 513 Following Head of Engineering/OCTO @coopuk #womenintech #girlsintech #diversityintech Wife/Mum AVMO
Sync Living @SyncLiving
2K Followers 2K Following Changing Places Advocate. Mobility & Living Equipment, Bathroom Adaptations. 📍 Northern Ireland & Republic of Ireland
Vicki taylor @vickihazels
39 Followers 338 Following
Maria Edmondson @MariaEdmondson3
52 Followers 54 Following
Natalie @natalieclegg
120 Followers 585 Following Northern. EDS zebra & chronically ill. Agile delivery manager, mother to bunnies.
Sarah Cullen @sazcullen
433 Followers 484 Following Comms person. LFC & YCCC fan, proud cricket mum and average golfer. All thoughts blah, blah, blah… (she/her)
Making People Smile @Making_PplSmile
13 Followers 34 Following A girl with a big dream. That dream is to save kids lives one fundraiser at a time 💜
Aaron Crockett @Aaron_Thomas98
390 Followers 812 Following 22 | MPS2 “Hunter Syndrome”. Rare Disorder ! | ⚽️ OUFC Season Ticket Holder 💙💛 LFC ❤️⚽️
My Fabry Disease @MyFabryDisease
127 Followers 52 Following Having Fabry Disease has a huge impact. It's amazing how few people, including medics, know about it, or understand how it affects people. Let’s change that.
John O'Driscoll @johnodriscoll84
432 Followers 853 Following I make the odd PowerPoint. Everton supporter, novice golfer, and plodding runner (all painful!).
Mblue @MblueMusic
3K Followers 4K Following songwriter, dark pop & electronica producer, releasing music with NCS Arcade, MrSuicideSheep, Magic Records, Ninety9Lives and High Five Music
Victoria Mitchell @viclmitchell
522 Followers 815 Following Freelance Digital transformation, delivery and coaching. Currently working with @PublicDigitalHQ, previously @cdps @cinchuk and @CoopDigital.
karen @KMS40139
509 Followers 618 Following HR person at the Canal and River Trust Views all my own - books and dogs too lol
CouncillorCroft - The... @CouncillorCroft
118 Followers 329 Following Councillor in St Mary's Ward since 2015. Elected for a third term from May 4th, 2023. Deputy Mayor 2022, Mayor 2023/24. Co is not an Option....
Longmynd Travel Ltd @longmyndtravel
733 Followers 655 Following We provide professional coach travel for business and private clients. Please call the team on 44 1743 861999 or visit our website.
Hannah Bewley @HannahBewley
2K Followers 4K Following Senior producer at Business Daily for BBC World Service
Anne Brown @Amb9781
10 Followers 293 Following
kevin prosser @k999kev
31 Followers 163 Following
Linda Voller @Rosaxanthina
48 Followers 211 Following
Diane @dimary53
103 Followers 786 Following if you want to cheer yourself up! Cheer somebody else up. works every time .
linda roper @evasdippy
6 Followers 77 Following
MPS Society UK, here ... @MPSSocietyUK
2K Followers 1K Following MPS Society UK is the only registered charity providing professional support to those affected by MPS, Fabry and related diseases.
Prince Henry's Otley @PrinceHenrysGS
3K Followers 110 Following Prince Henry's Grammar School in Otley, a thriving and successful secondary school with over 1650 students. This is the official school twitter feed.
Steph McGovern @StephLunch
411K Followers 1K Following Journo + presenter. 🎧 pod: @therestismoney 📺 show: BAFTA nominated ‘Steph’s Packed Lunch’ (625eps)+ 📖 crime novel ‘Deadline’ [email protected]
David_Suchet @David_Suchet
70K Followers 142 Following British character actor, best known for the little Belgian, Poirot, but many other characters too.
sara cox💙 @sarajcox
801K Followers 3K Following TEATIMES BBCRadio2 4-7pm mon-fri 🧡 podcast THE TEEN COMMANDMENTS
Alex Sobel MP for Lee... @alexsobel
27K Followers 5K Following Lab & Coop MP for Leeds Central and Headingley | [email protected] | @[email protected]
Rare Disease UK @rarediseaseuk
21K Followers 2K Following National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them. #RareDisease.
Russ Brady @russ_brady
581 Followers 817 Following Love sport and following my beloved Preston North End. views are my own
Rose Marley @RoseMarley1
5K Followers 3K Following Chief Exec @cooperativesuk /@SharpFutures founder/ #socialenterprise @gobeyondmcr /@ourpass @togethermcr FRSA / Mancunian / views own
Gareth Southgate @GarethSouthgate
197K Followers 116 Following Played, managed, coached. Lived in South, Midlands + North. Currently awaiting Yorkshire citizenship. Often found at the side of a pitch or netball court
Sara Pascoe @sarapascoe
326K Followers 910 Following I am going on tour 25/26 See https://t.co/gBt2oixmqa for venues and tickets 🤠
Billy Moore @billymooreAPBD
64K Followers 375 Following Author of a prayer before dawn. New book coming soon pre order here https://t.co/ngYWcTHkiW
Wrexham AFC @Wrexham_AFC
597K Followers 124 Following The world’s third oldest professional football club. Clwb pêl-droed proffesiynol trydydd hynaf y byd. 🏴
Melanie Janine Brown ... @OfficialMelB
904K Followers 529 Following MEL B aka”scary spice”contact [email protected] Order my book #BrutallyHonest https://t.co/TFH1wm3duE
Olly Murs @ollymurs
6.4M Followers 3K Following Bonkers 😜 out now. Knees Up out 21st November, pre-order now! https://t.co/YIigoSQNgK
Apollo Junction @ApolloJunction
16K Followers 10K Following OUR NEW ALBUM WHAT IN THE WORLD IS OUT NOW! 🌖 https://t.co/mu8VQwLQvu
Rebecca Birkbeck @RebeccaBirkbeck
1K Followers 297 Following Collaborator, Co-operator, Innovator, Mother & Leader. Enjoys getting active & getting involved.
Ed Sheeran HQ @edsheeran
16.4M Followers 1 Following Official Ed Sheeran HQ account. Play out now ▶️ https://t.co/yldbbiVMOn
Ryan Reynolds @VancityReynolds
21.3M Followers 2K Following owner: @aviationgin - @MintMobile - @maximumeffort - @Wrexham_AFC
Kate McCrae Graham @KateGraham03
3K Followers 405 Following Proud mummy to Rhys & Freya, Operations Director at the Co-op❤️ #dreambig #ownyourtruth All views are my own ☺️
Nick Hancock @NickHancock
7K Followers 2K Following
Andy Phelps @AndyPhelps3
505 Followers 666 Following
Fascinating @fasc1nate
3.4M Followers 2K Following Posting interesting science, gadgets, history, art, and more. Subscribe for in-depth posts. As an Amazon Associate I earn from qualifying purchases.
Claire Coutinho @ClaireCoutinho
29K Followers 999 Following Shadow Energy Secretary & Shadow Minister for Equalities. Conservative Member of Parliament for East Surrey elected in 2019.
Castle Howard @CastleHowardEst
15K Followers 893 Following Historic house and garden open to the public, including Farm Shop, Gift Shops, Garden Centre, Cafés and Adventure Playground in a 9,000 acre estate.
Mark Haggan @markhaggan
3K Followers 3K Following Random travels, a few motorsport photos, odd stories and a few jokes.
Fiona Stewart @fstewart229
15 Followers 18 Following Retired doctor. MPS Society trustee and big fan of the MacMillan move more programme for cancer patients.
Yorkshire Evening Pos... @LeedsNews
242K Followers 417 Following Subscribe to the YEP for unlimited access to all our Leeds news and sports coverage 👉 https://t.co/AphAux3zA7
Adam Roche 🏴�... @AdamRoche
855 Followers 470 Following Managing Director CPD Y Rhyl 1879 (Rhyl FC 1879) @rhylfc, leader @coopuk, family bloke & rescue dog lover
Russel T Davies @TDaviesOfficial
2K Followers 2 Following
Nick Speight @NickSpeight
287 Followers 452 Following
Melissa Singh @Melissa50319158
301 Followers 177 Following Inclusion Lead for Co-op. Trustee for BLG Mind. Proud mumma to Ayush and complete bookworm. All views are my own
Peter Batt @PeterBatt3
3K Followers 1K Following Nisa Managing Director, Board Trustee for Saint Francis Hospice, Enterprise Cooperative Trust and The Coop Foundation.
NICE @NICEComms
241K Followers 1K Following Official feed of NICE - National Institute for Health and Care Excellence. We produce evidence-based health and social care guidance. Tweets by the comms team.
Child of Britain Awar... @ChildofBritain
465 Followers 879 Following The national awards that celebrate the inspirational achievements of remarkable young people across Britain whilst raising funds for children’s charities.
Grace Spence Green @gspencegreen
4K Followers 1K Following Doctor with a passion for paediatrics, public health and disability. she/her. media: [email protected] You can preorder my book below :)
craftginclub @craftginclub
51K Followers 1K Following The UK's #1 subscription club for gin lovers. Every month, we send our members the world’s finest craft gins, along with mixers, foodie treats and our club mag.
Andrew Hepworth @Hheppy
197 Followers 1K Following Trying to invent the 8th day so we can fit everything in or slow life down to enjoy the best bits!! but when you're born to run....................
Sarah Birtwistle @SarahMac2011
185 Followers 283 Following Mrs B since August 2019 and mum to Alfie. All views my own.
Carly Tait PLY @CarlyT_WcRacer
3K Followers 736 Following Mum. Paralympian. Diversity & Inclusion Lead. Speaker. Writer. Unable to give up skinny jeans.
Samantha Renke @SamanthaRenke
18K Followers 2K Following My book is out now! athttp://smarturl.it/SlicedBreadBook Broadcaster / Actress / Columnist / Author / Podcast Host / Speaker / Consultant
Ali Jones @alijones1719
937 Followers 251 Following Wife, Mother of a son who has just gone to Uni 😢 And Proud champion of all things Customer and Omni-channel at Matalan. All views are my own.
Wear Blue for Ethan @WearBlue4Ethan
212 Followers 589 Following Ethan is incredibly brave and resilient and is raising awareness of MPS with a smile and his can do mindset
Joe Biden @JoeBiden
38.1M Followers 46 Following Husband to @DrBiden, proud father, grandfather, and great grandfather.
Ken Towle @kentowle
3K Followers 121 Following Retail and Wholesale CEO, Executive, Advisor and Trustee
Danielle H-Wilson �... @MrsDHW
2K Followers 513 Following Head of Engineering/OCTO @coopuk #womenintech #girlsintech #diversityintech Wife/Mum AVMO
Robin Hutson @RobinHutson
7K Followers 2K Following Chairman @the_pig_hotel @limewoodhotel @dermotsugrue simple food, great wine, fly fishing, old cars. @ACF_UK @acadcularts @HospAction
charlie mackesy @charliemackesy
161K Followers 267 Following Love tea, letters,kind eyes, birdsong, my dogs, salty air,well written books and not being shouted at.
Rachael Shah @rachaelashah
2K Followers 4K Following Digital & Sustainability leader 💚| prev @coopdigital |NED @PHMMcr | MMU MBA & Mrs Vikas to @MrVikas Views my own.
YorkshireShepherdess @AmandaOwen8
190K Followers 859 Following Shepherdess/hill farmer/mother/teamaker/writer/speaker. Always thrang.Trends for United States
1.633 posts
52,7 B posts
28,8 B posts
256 B posts
106 B posts
13,9 B posts
50,7 B posts
13 B posts
47 B posts
389 B posts
6.663 posts
22,8 B posts
12,1 B posts
23,1 B posts
9.656 posts
28,8 B posts
You might like
𝙆𝙚𝙫𝙞𝙣
@depthkev
1K Followers
Frequency Media MX
@frequencymx
2K Followers
⭐Sherri⭐
@Mab_n
992 Followers
Óscar 🦉🎃
@oscarbtome
488 Followers
Dede Dankelson
@ddankelson
574 Followers