Kapil Kumar @Kkumar83
Motivated. Fierce activist for what is right. Amazing family. Embraces failure. Loves finance. linkedin.com/pub/kapil-kuma… Chicago, IL Joined October 2013-
Tweets339
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Followers93
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Following368
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Likes75
Looking for something to eat or drink between #OpeningDay ballgames in Chicago? Stop by @GooseIsland and grab an Off The Mound burger and beer! @Dempster46 personally signed the first 100. All proceeds will benefit the @22qFamily.
November is #22qAwareness month. My son was born with 22q and it’s more common than you think. Throughout the month I’ll be tweeting about 22q and ways you can help. Check out @22qFamily and 22qFamilyFoundation.org to learn more and donate!
Thank you to our friends @getbevi for helping to raise #22qawareness in Boston today! #22q #rockyourq
Just starting the fact check and heard the call with woman w/ the son w/ 22q and it’s nice to hear the awareness brought to this genetic condition since I have a sweet nephew with this syndrome. @ArmchairExpPod @daxshepard @22qFamily
Kicking off the month with the most charming, engaging and introspective sibling pair around. Kate Hudson and @theoliverhudson join us on this extra fun episode. Please enjoy!! ❤️🍒👫
Earlier today, @Dempster46 and I discussed the @JacksonChance11’s annual Ping Pong Ball and our connection with @22qFamily. You can listen to the segment here and find the link to buy tickets to next week’s event! wgnradio.com/2019/11/05/201…
Do you do these seven things? lnkd.in/eiFGEMi
Interested in learning about ABLE accounts? Join us on 2/23! lnkd.in/etcN_BB
Join us tonight at 7 p.m. (CST) for a Facebook Live with Dr. Matt Davis and Dr. John Walkup as they discuss the results of the health survey identifying the top 10 health problems for youth in Chicago. Download the report: bit.ly/2zCdR8b . #chicagohealth #all4your1
Still looking for a Christmas present? Be comfy and help raise awareness for 22q!
Only 6 days left to get your 22q Family Foundation “We Are Family” shirt or hoodie! Help raise awareness for #22q during the holidays and into 2019!! customink.com/fundraising/22…
So cool that @Saquon is wearing these today to help raise #22qAwareness. One clarification: I keep seeing people refer to 22q as “a rare genetic disorder.” It’s not rare. People just don’t know about it and don’t know to look for it. That’s why this is so important!
All about family for @saquon. #MyCauseMyCleats | #CHIvsNYG
Every day is a #22qAwarenessDay Have you randomly shared awareness today? With a stranger, a doctor, a therapist or family? Was it spontaneous or did you plan to do something to raise #22qAwareness? Were you inspired, frustrated or just being responsible? #Be22qAware
This is raising awareness!
@GMA @NFL @Giants @saquon This is awesome @saquon and @22qFoundation!!! #22qawareness
This is Niam and he has 22q. I joined The 22q Family Foundation board to help kids with 22q be their best selves. Please help us continue to support families. To donate, text “22q” to 41444 or at: lnkd.in/emgymWW #22q #22qfamilyfoundation #rockyourq #22qaware
Let's #endgunviolencetogether - go to TOMS.com to send your representative a postcard demanding they take action on what more than 90% of Americans agree on: universal background checks. toms.com via @TOMS
Do you know what you would’ve done differently? Fail. Learn. Move on. lnkd.in/eP5AXhU
The Goad Family went above and beyond to get their community involved this November Awareness Month. Briley suggested to her school to #rockyourq in honor of Briley and all 22q families...and they did in full force! Share how you’re getting the word out and tag us! #22q
Have unused gift cards? Consider donating the leftover money to The 22q Family Foundation. A little bit can go a long way! So grab that old gift card out of the drawer today and text 41444 or click here to donate the remaining balance today: app.mobilecause.com/form/4B0Y7w
Now available: live streaming! Sign up now.
Interested in the neuro-behavioral affects of 22q? Join us for a FREE event! 22q families, friends, medical professionals, teachers, therapists, etc. invited. More info The 22q Family Foundation #22q #rockyourq bit.ly/22qchicago
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M 💙 @22qmum
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VCFSstemcell @VCFSstemcell
52 Followers 216 Following Join our study to help discover novel and effective treatments for #VCFS-related #psychosis. #22q #22q11 #mentalhealth Become a participant: https://t.co/GH2UaPlciL
22Q11 Ireland @22Q11_Ireland
5K Followers 4K Following Parent group raising awareness of #22q Working toward integrated care for 22qDS & individually rare collectively common #RareDiseases. Tweets AnneL CHY 17647
22q MLB Tour @22qMLBTour
83 Followers 436 Following Father and Son Traveling to Every MLB Stadium to Raise Awareness for 22q11.2 Deletion Syndrome
Kyle Burgess @kyletb11
140 Followers 926 Following Tweeting the life and times of a white hispanic man. Golf is my game. Love me some #Cubs #Bears #Bulls and did I mention #ILOVEGOLF #GoIllini
ABLEnow @ABLEnowVA
3K Followers 1K Following National tax-advantaged ABLE savings program for people with disabilities. Save for the future to maintain health, independence and quality of life.
22q Texas, Inc. @22QTX
98 Followers 70 Following 22q Texas, Inc. is a 100% volunteer-run nonprofit created to provide support and resources to families living with 22q11.2 chromosome differences in Texas.
#22qAwarenessDays @22qAwarenessDay
2K Followers 3K Following Raising awareness of 22q11.2 Deletion and Duplication Syndrome Rarely Known, Relatively Common. Tweets by Raj Hemus
🎼🎭 🎵🎤Kati... @KatieJayneM92
415 Followers 879 Following 34 Living with a rare disability called #22q, and #chiarimalformation type 1 ,love to perform
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Peggy Budwig @peggy_budwig
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22q Family @22qFamily
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LGEV @LDG1222
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Kasia @SzalonaKasiunia
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Kristi Lee Reynolds @KristiReynoldsM
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Luis Enrique Yero @EnriqueYero
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22q11Clinic@MGH @22q11Clinic
645 Followers 519 Following The 22q11 Clinic at Mass General Hospital provides expert, evidence-based health care for patients of all ages with the 22q11 syndromes #MGH22qClinic
Keck Medicine of USC @KeckMedicineUSC
175K Followers 131K Following The University of Southern California’s medical enterprise, Keck Medicine of USC is renowned for world-class health care and research. #KeckMedicine
Sarah Zmola @ZmolaSarah
3 Followers 70 Following
Nikolina Maverick @NikeMaverick
6 Followers 88 Following Inbound marketing, SEO, startups & entrepreneurship.
Rachel Ballinger @MissRBaller
419K Followers 5K Following I'm tall! I do YouTube and own two giant dogs. She/her
Emma Watson @EmmaWatson
23.6M Followers 355 Following
Ivaldo Basso @ivaldobasso
340 Followers 759 Following Alternative investments industry CFO; Co-Chair US Soccer Development Council; Owner - #steelcityfc; Chicago Fire; NIU Huskies; Udinese; #USMNT #USWNT
Joseph Nesler @JosephNesler1
2 Followers 2 Following Experienced General Counsel and Chief Compliance Officer for Alternative Investment Management Firms
Mukunda Raghavan @raghman36
5K Followers 3K Following Do some podcast hosting on @brownpundits and @themerumedia, recovering attorney, Fin-tech exec, into philosophy, sanskrit, science, history and generally truth?
Sharyn Murray @SharynMurray18
1 Followers 49 Following
Almost a Hero @almostaherogame
40K Followers 41 Following Almost A Hero is an RPG clicker game where 17 of the most useless idiots embark on a quest to be slightly less useless. #almostahero - A game by DECA Games.
Onetuffmudder @OneTuffMudder
325 Followers 1K Following BPD/CPTSD/DV Survivor and mother w 2 Neurodiverse teens.....taking it as it comes.....#SickNotWeak #ImStillHere #MentalHealth #Akathisia
Christelle & 22q11 @Christelle_1978
16 Followers 31 Following
Stephen Foulger @Foulg75
132 Followers 1K Following Love my beautiful daughter who has 22q Google it!!!!!! Love my family n friends, those that are there for me when I need them.
Darren B @darrenrbee
46 Followers 74 Following Dad to an amazing kid with CHD and 22q11 deletion. #22q, #chd, #sup
Tishla Barnes Calvert @tishcalvert
56 Followers 130 Following traveler, thinker, mom, 22q fighter, margarita lover & one who cares deeply!
22qToronto @22qToronto
28 Followers 29 Following is devoted to helping adults with 22q11.2 Deletion Syndrome and their families from healthcare experts.
Rare Disease Team @RareDxResearch
5K Followers 119 Following A Canadian research team focusing on rare disease policy.
Chromosome Diaries @chromodiaries
60 Followers 152 Following A place where families can share the struggles and joys they encounter living with chromosome disorders.
22Q11 Stichting NL @steun22q11
487 Followers 1K Following Stichting Steun 22Q11 foundation of the Netherland for #22Q11 syndrome Nederlandse Stichting met oudervereniging voor het 22Q11 #syndroom.
2 𝘚𝘪𝘯𝘥�... @T_SDG_22q11dos
244 Followers 507 Following #Orientador 22q11² y TRRAP con Autodidacta 100.000 📚 🙋#Soy Adulto 22q11² y 7q22¹ #FAMILIAS🫂22q11² deleción & duplicación 🫂10p14 DiGeorge2 y 🫂 7q22¹ TRRAP¹
AMP22q @AMP22q
159 Followers 31 Following To provide community support and spread awareness for 22q11.2 Deletion Syndrome through fundraising, support groups, and local events.
M 💙 @22qmum
401 Followers 996 Following Mum to a precious young lady with Digeorge syndrome & congenital heart disease Ready for almost everything life throws at us! Huge Cher & Nashville fans too ❤
22qNI @22Q11_NI
560 Followers 1K Following A registered charity supporting families in Northern Ireland with abnormalities of the 22nd Chromosome. Also aiming to raise awareness of 22q globally!
Raj Hemus @hemusr
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Darren Hughes @hughesy9mm
38 Followers 113 Following I love a crime against humour...I want to Raise awareness of Di Georges Syndrome, deletion of 22q.11 and diseases related to deletions of 10q22.3q 23.2
VCFSstemcell @VCFSstemcell
52 Followers 216 Following Join our study to help discover novel and effective treatments for #VCFS-related #psychosis. #22q #22q11 #mentalhealth Become a participant: https://t.co/GH2UaPlciL
Ania Fiksinski @AFiksinski
104 Followers 162 Following Psychologist & researcher Utrecht & Toronto. Mama, wife, always dancing.
Elaina @TBX1blog
23 Followers 70 Following I like cats, learning, writing music and words, and many more things. I also have a mutation in my TBX1 gene, which is in the 22q deletion area.
Suzi Shaw @suzi22q
11 Followers 9 Following
Susan Ellison Busch @YearningNormal
80 Followers 323 Following Susan Ellison Busch is an award - winning author. Her book Yearning for Normal tells her son Michael's #22qdeletion syndrome story.
Maranda Cobble @CobbleMaranda
6 Followers 65 Following Wife, mom of 2 boys with 22q11.2 deletion, daughter.... I try to teach my kids to love with their whole heart and treat people how they would like to be treated
Someone @castlesandwands
66 Followers 131 Following
《~♡~》House of S... @_HouseOfSavage_
406 Followers 1K Following Always advocate for those who can't 😷🐬💙 Evil will not succeed, love always wins 🙌💙 Day by day you will overcome 💪🙏💙
My 22q Family @my22qfamily
21 Followers 24 Following The most common - rare - genetic disorder you've never heard of. 22q Deletion syndrome, a small missing piece of the 22nd chromosome. #My22qFamily #22q
22qColombia @22q_colombia
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22qFamilyBC @22qFamBC
287 Followers 123 Following We're a 22q family in British Columbia, Canada. Here to share/store information & tips on growing up with 22q11.2 Deletion Syndrome!
Tracey 22q mum @traceyhennighan
132 Followers 137 Following
22Q11 Ireland @22Q11_Ireland
5K Followers 4K Following Parent group raising awareness of #22q Working toward integrated care for 22qDS & individually rare collectively common #RareDiseases. Tweets AnneL CHY 17647
22q11 Europe @22q11Europe
309 Followers 63 Following A European network of 22q11 Deletion Syndrome Support Groups actively promoting the wellbeing of people living with 22q11DS
Toni Preckwinkle @ToniPreckwinkle
22K Followers 1K Following Official Twitter account of Cook County Board President Toni Preckwinkle.
ABLEnow @ABLEnowVA
3K Followers 1K Following National tax-advantaged ABLE savings program for people with disabilities. Save for the future to maintain health, independence and quality of life.
22q MLB Tour @22qMLBTour
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