Rachel Wright @LakeVsCGD
Determined mum of Lake who is or was an X-linked CGD sufferer, 2 years post gene therapy. One of the new owners of The Old Lifeboat House Bistro, Penzance. Joined April 2016-
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Rachel Wright retweeted
#CGD Specialist, Dr. Niraj Patel, will answer questions from the CGD Community about X-linked carriers & how CGD is passed down in families on December 8 @ 8 pm EST To join the event, visit Facebook.com/CGDConnections #carrier #RareDisease #PI
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Rachel Wright retweeted
On Oct. 25, Prikeanya E. Joyce of Georgia passed away of complications relating to pneumonia and CGD. She had a full life and will be greatly missed. bit.ly/3naUsBR #CGD #ChronicGranulomatousDisease #CelebrationOfLife
Rachel Wright retweeted
Orchard co-founder and gene therapy pioneer, Prof. Adrian Thrasher, MD, PhD, joined the Orchard team (virtually) today in honor of Orchard’s 5-year anniversary. Thank you for sharing your stories from the early days of gene therapy, including your work with our CEO @bobby_gaspar!
Rachel Wright retweeted
Sending Winter lots of kisses and cuddles on her bone marrow transplant day for CGD. Why not send your best wishes too 🥰@CGDSociety hope you are fighting fit soon #wednesdaythoughts #cgd #RareDisease #bmt #bravesoldier
Sending Winter lots of kisses and cuddles on her bone marrow transplant day for CGD. Why not send your best wishes too 🥰@CGDSociety hope you are fighting fit soon #wednesdaythoughts #cgd #RareDisease #bmt #bravesoldier
Rachel Wright retweeted
There are many ways you can fund raise for the CGD Society. Your fundraising will enable us to continue to offer support for people with CGD. Check out our website to find out more #MondayMotivation cgdsociety.org/getinvolved
Affected children and adults cgdsociety.org/affectedchildr…
Rachel Wright retweeted
Take part in a Big Fun Run near you and run for the CGD Society 🏃♀️🏃♂️We have spaces available. Visit cgdsociety.org/getinvolved#bi… to register. @BigFunRun #fundraising #cgd
Rachel Wright retweeted
The power of gene therapy. Read this wonderful, heart-warming article of Brenden, who in 2015, when desperately ill had gene therapy to treat his CGD and now plans to become a doctor. news.harvard.edu/gazette/story/…
Three years after undergoing gene therapy, his ‘last shot’ hit the target news.harvard.edu/gazette/story/…
Rachel Wright retweeted
Thinking back to seven weeks ago when @CGDSociety held The CGD Society Family Conference @WoodlandsParkUK It was a great weekend and so valuable to the families that attended. Thank you #NationalLottery for awarding us a grant to make this event possible.
I've known for a while this little gem was due to retire so equipped with balloons, tissues, rose bush, a very important letter and Diana Ross on my playlist, I travelled home. Of course, I ran out of tissues... facebook.com/39948634691650…
Rachel Wright retweeted
We @CGDSociety have joined #GivingTuesday by becoming a Giving Tuesday partner. This #GivingTuesday 27th November we will be asking you to raise awareness of Chronic Granulomatous Disorder and the @CGDSociety by retweeting... tweet away 🙂
Rachel Wright retweeted
This piece will be in tomorrow's print edition of The Guardian theguardian.com/society/2018/o…
A well deserved award for a very deserving person 🥂 facebook.com/story.php?stor…
Rachel Wright retweeted
Carriers of x-linked disorders are #NotJustCarriers, and over 88% of us feel that we don’t have sufficient access to medical information/studies about the possible symptoms we can develop.
Rachel Wright retweeted
Thank you @LakeVsCGD for the tweet. If you are affected by CGD or an X_Linked carrier attending @CGDSociety Family Conference is a great way to meet others and to share your stories. #fridaymotivation get booking. #cgd
Thank you @LakeVsCGD for the tweet. If you are affected by CGD or an X_Linked carrier attending @CGDSociety Family Conference is a great way to meet others and to share your stories. #fridaymotivation get booking. #cgd
Family Conference Friday 19th to Sunday 21st October 2018 cgdsociety.org/newsroom/lates…
Rachel Wright retweeted
Dogs always welcome at the old Lifeboat house! 🥂🐶
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