MainEvent @MainEvent24
MAIN is a research and knowledge exchange network focused on mental health and wellbeing for people impacted by serious life-limiting illness. University of Edinburgh Joined December 2023-
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Our next @MainEvent24 webinar is on Family centred approaches to supporting wellbeing in advanced illness. With @LizForbat and Louise Allen, chaired by @LissetteAvilesR 14.05.24 at 12pm. Register here for free: events.teams.microsoft.com/event/0f2e9154… Pls RT!
This is such a great idea & central to whole person care for people with serious life-limiting illnesses @LeonieHerx @palliativeire @_IPMCA @annedohertypsy @IrishPsychiatry @HMChochinov @IraByock @mcgillwpc @kelleher_eric @stabrennan @Stanford_PC @CarolUHS @IASW_IRL 1/
This is such a great idea & central to whole person care for people with serious life-limiting illnesses @LeonieHerx @palliativeire @_IPMCA @annedohertypsy @IrishPsychiatry @HMChochinov @IraByock @mcgillwpc @kelleher_eric @stabrennan @Stanford_PC @CarolUHS @IASW_IRL 1/ https://t.co/h4fQE7nEkI
Join us for our next MAIN event "Family centered approaches to improving wellbeing in advanced illness and at end of life". With @LizForbat @LissetteAvilesR & Louise Allen. Tues 14th May at 12 noon (BST). All welcome! Hosted by @EdinUniHealth. Funded by @mariecurieuk.
Our next webinar:Family centred approaches to improving wellbeing in advanced illness and end of life will take place on 14 May. Register here for this free event: events.teams.microsoft.com/event/0f2e9154…
Do you use the term "loved ones" as a general term? Ever wondered what it means or how it might be understood? @KateWoodyBath and I did: endoflifestudies.academicblogs.co.uk/is-everyone-a-… Tl:dr Emphasising "love" misses the diversity of reasons people care for each other @EndofLifeStudy
Self-administered Meditation Application Intervention for Cancer Patients With Psychosocial Distress: A Pilot Study. pubmed.ncbi.nlm.nih.gov/36680352/
As oncologists we struggle with how we can have realistic conversations about the future while preserving hope. Dr @SchenkerYael and her colleagues show that having end of life conversations with patients did not compromise hope via the CONNECT study #pallonc #supponc
@MainEvent24 webinar, 12.03.24, 12 noon GMT: "Mental health, the social determinants of dying and trauma-informed palliative care." With @DrNaomiRichards @DrEmmaCarduff @_RiniJones_ All welcome. Register for free here: events.teams.microsoft.com/event/7339c142… Funded by @MarieCurieEOLC
New paper on practitioners views of Acceptance & Commitment Therapy (ACT) for bereavement support. Led by @NikolausWilli & our excellent MSc students @EdinUniHealth. With funding from @MarieCurieEOLC
New paper on practitioners views of Acceptance & Commitment Therapy (ACT) for bereavement support. Led by @NikolausWilli & our excellent MSc students @EdinUniHealth. With funding from @MarieCurieEOLC
MAIN Webinar: Mental health, the social determinants of dying and trauma-informed palliative care. All welcome to our next free webinar (presentation, case studies & discussion). Tuesday 12th March @ 12 noon With @DrNaomiRichards. Register here: events.teams.microsoft.com/event/7339c142…
By reminding health care providers who their patient is as a person, families ensure their loved ones are truly seen, hence safeguarding and preserving their innate dignity. liebertpub.com/doi/epdf/10.10… @CicelySaunders1 @CAPCpalliative @AAHPM @EAPCvzw @IAHPC @CanadianHPCAssn @whpca
Hope can be sustained while holding both realistic and unrealistic illness expectations. Communication about serious news should focus on clarifying the expectations as well as supporting people’s hope. #hpm #hapc buff.ly/3SL1YWK
Excellent talk by @gary_rodin on psychological interventions for advanced #cancer So many overlapping themes with my PhD work developing psychological interventions for #MND Looking forward to more research and collaborations in this area @MarieCurieEOLC @MainEvent24
Participants articulate gratitude in five ways: (1) appreciating others; (2) love; (3) need to reciprocate; (4) appreciating the little things; (5) solace amid serious illness #hpm #hapc buff.ly/42xRCfZ
Join us for our spotlight on mental health and wellbeing at 1:30 today where we will hear from @gary_rodin and Prof Julia Verne. It will be a great session! You can still register for free via link below. @EdinUniMentalH @MainEvent24
Join us for our spotlight on mental health and wellbeing at 1:30 today where we will hear from @gary_rodin and Prof Julia Verne. It will be a great session! You can still register for free via link below. @EdinUniMentalH @MainEvent24
The strongest evidence yet that Dignity Therapy works! liebertpub.com/doi/full/10.10… @VirtualHospice @UM_RadyFHS @CCMB_Research @CancerCareMB @umanitoba @CanadianHPCAssn @whpca @IPOSPsychoOncol @IAHPC @CSI_KCL @CicelySaunders1 @EAPCvzw @AAHPM @CAPO_ACOP @drkathrynmannix @WHO #DIGNITY
If you would like to be involved in future events, you can find us as @MainEvent24 or sign up here: app.onlinesurveys.jisc.ac.uk/s/edinburgh/me… 2/2
Anne Finucane @A_Finucane
2K Followers 1K Following Marie Curie Senior Research Fellow in Clinical Psychology at the University of Edinburgh. Palliative care, psychological interventions, knowledge exchange.
Kevin F McCarthy @kfinmccarthy
2K Followers 2K Following Paediatric Anaesthesiologist & Pain Specialist. Polymath in training. Inventor of the West-facing RAE for dental anaesthesia. Opinions own, etc 🏳️🌈🇮🇪 🇳🇿
Celine O Connor @CelineOConnor12
1K Followers 2K Following Social worker. Views my own. Retweets not endorsements #NMMO
Louise @LouShep
184 Followers 692 Following Clinical Psychologist supporting stroke survivors (@LivHospitals). I re-tweet things of interest. Views expressed are my own.
Leonie Herx @LeonieHerx
2K Followers 1K Following Palliative Medicine MD | Clinical Professor, University of Calgary | Director, Rotary Flames House, Children’s Hospice & Palliative Care Services | views my own
Sarah Brennan 🤱�.. @stabrennan
1K Followers 3K Following GP, NUI Galway lecturer, breastfeeding advocate and researcher. Mindfulness teacher. Mother to 5 boys. Personal opinions.
Pola Grzybowska @PolaGrzybowska
860 Followers 2K Following Polish and northern. Palliative medicine consultant Bridgend 🏴. Thinking lots about health sustainability. Forever bereaved due to GBM4.
Dr Suja Somanadhan @sujas15
3K Followers 4K Following Associate Professor I Researcher| #FulbrightScholar |Children's Nurse I PhD I #RareDiseases #Child-health #RAIN #RAINDROP #COViSION #SAMPI Views are my own
Clinical & Pastoral S.. @ClinicalPastor1
37 Followers 46 Following Professional supervision for safe and effective practice and wellbeing in healthcare and ministry.
Daniel Nuzum @danielnuzum
5K Followers 5K Following Husband,father, PhD-impact of stillbirth,lecturer UCC, Director Clinical Pastoral Education Cork University Hospital. Spiritual care. Palliative care Own views
Gemma Allen (she/her) @gemma_allen1
6K Followers 4K Following Palliative Care Inclusion & Community Partnership Lead @MSHospice. Co- Founder @NoBarriersHere. Director GA Consultancy. Equity. Research. Education.
Hannah Linane @HannahLinane
372 Followers 312 Following Palliative Medicine Doctor. Fellowship in Adolescent and Young Adult Palliative Med, Children’s Health Ireland. Value compassion and kindness Views are my own
Miriam Ní Challarái.. @Miriamcolleran2
2K Followers 3K Following Mom, Gaeilgeoir, palliative med. Pulmonary capillaritis. Narrative medicine. Tuairmí pearsanta, personal views, Ravenclaw, harper
Nat @nat_camp96
77 Followers 193 Following chronically over caffeinated. she/her 🏳️🌈 editor: @hysteriaABDN
Assisted Lab @AssistedLab
298 Followers 1K Following ERC project on #aesthetics #law & #ethics of assisted dying in Europe & beyond. Tweets @J_O_McCullough @marcakeller @kulturosteuropa @a_m_elsner Vanessa Rampton
XinyiYang @XinyiYangPsy
11 Followers 48 Following the University of Edinburgh🏴PhD Candidate of Health in Social Science (mental health and public health)🖋️Original novels writer
Shivangi Talwar @talwar_shivangi
304 Followers 2K Following #PhD Candidate @uclpsychiatry @UCLMentalHealth @UCLBrainScience studying #childsexualabuse survivors from #SouthAsia | #ClinicalPsychologist in India | she/her
Yuze Shi @shiyz_ClinPsy
28 Followers 112 Following Life ← data.frame (undefined experiences) · MScR Clinical Psychology candidate @EdinUniHealth · Resilience · Social Support · Mental Health · My Own Views
Claire Arthur @ClaireArthur17
114 Followers 304 Following Senior Research Nurse, Supportive & Palliative Care. Passionate about ensuring access to research for all and that patients receive dignified palliative care.
Sue Mitchell @SueRFDMHaSS
31 Followers 19 Following
John MacArtney @johnmacartney
746 Followers 574 Following Marie Curie Associate Professor Sociologist of dying, palliative and end-of-life care, and bereavement. https://t.co/6HVncqIsc4
Devi S 💙 @DeviRSagar
790 Followers 1K Following She/her. Chats about research, caring, grief. Talks in GIFs. Research manager for evidence synthesis and engagement @mariecurieUK. Opinions are my own😀
mhairi-jane ramage�.. @mjosiris
193 Followers 186 Following specialist practitioner district nurse team leader - my views represent my own opinions and experiences.
Jakki Birtwistle @BirtwistleJakki
71 Followers 214 Following Research Fellow in Palliative Care || Psychologist ||
End of Life Studies @EndofLifeStudy
5K Followers 2K Following We are an interdisciplinary @UofGlasgow led network of academics, policy makers and practitioners researching end of life issues in Scotland & around the world
Anne Cullen @ladylovestorun
427 Followers 948 Following Registered Social Worker, PhD. Schwartz Round Mentor, Point of Care Foundation; Research Lead, APCSW; Co-Chair Labour Social Work Group. Opinions my own.
Lucy Selman @Lucy_Selman
6K Followers 5K Following Associate Prof. Palliative & End-of-Life Care. Communication, ACP, bereavement, community. Founding Director @GoodGriefFest. she/her
Alex Fisher @alex_fisher1969
841 Followers 2K Following Tall, multi hair coloured Occupational Therapist in #Neuropsychiatry. Loves Abba, chocolate, cinema, Guinness, dancing. #Huntingtons Disease Module Lead @UOB
Marci Kay Livingston .. @MarciKayRN
187 Followers 552 Following She/Her Certified Hospice and Palliative Nurse. HRB-TMRN PhD Scholar at the University of Limerick. All opinions are my own.
Daisy McInnerney @daisymcinnerney
459 Followers 1K Following Research Psychologist / Public Health 📚Visiting Research Fellow at QMUL Wolfson Institute of Population Health ✊ Health equity (cancer + EOL focus @ work)
Dylan Harris @drdylanharris
88 Followers 229 Following
Philosophy of Grief a.. @GriefYork
2K Followers 1K Following Investigating experiences of Grief and Loss at @UoYPhilosophy. Previously (2020 to 2023) an AHRC-funded project.
Gemma Clarke @Dr_GClarke
490 Followers 1K Following Marie Curie Senior Research Fellow in Palliative Care, Academy of Medical Sciences Springboard Fellow. Views my own.
Compassionate Communi.. @CompassionComUK
1K Followers 2K Following A global movement transforming relationships, health, and well-being in the UK & beyond based in public health palliative care philosophy. #Compassion
Dr Lissette Aviles�.. @LissetteAvilesR
594 Followers 482 Following Nurse RN, MN, AFHEA, PhD, Lecturer @nursing_studies Critical care, OrganDonation, Emotions, Qualitative Research and Nursing Theory and Education
Dr Marie Allitt @MarieAllitt
2K Followers 2K Following Early Career Teaching & Research Fellow C20th Lit @LLCatEdinburgh MedHums| Life-writing| Chronic illness| Disability| Pain| Care spaces| she/her. Views own
Dave Pascoe Bradley @thebothylife
37 Followers 59 Following
Lydia Mckeown @LydiaMckeown7
122 Followers 305 Following NINE DTP Psychology PhD student, Queen’s University Belfast ☘ Researching loneliness and parental cancer. All opinions are my own.
School of Health in S.. @EdinUniHealth
3K Followers 623 Following Official account of the School of Health in Social Science at @EdinburghUni. Discover the latest news and events from our staff, students, and community.
Darren Reynolds @DarrenReynoIds
609 Followers 758 Following Clinical Psychologist working in the South East London Community Head & Neck Team (CHANT). #PsychOnc #Cancer. Views are my own! He/Him.
Dr Zoey Malpus @ZMalpus
556 Followers 617 Following Consultant Clinical Psychologist in Heart/Lung Transplant, Compassion Focused Therapy, views all my own
Stephanie Crawford @StephCrawfordNI
0 Followers 13 Following PhD researcher | MSc Applied Psychology (mental health & psychological therapies) | BSc Psychology (Hons) | Death literacy | Palliative Care | End-of-life Care
Danique @Danique__C
0 Followers 34 Following
V Oliver Jenkins @VOliverJenkins
460 Followers 762 Following Head of Psychological Medicine/Trust Lead for Psychology @YSTeachingNHS Consultant Clinical Psychologist Schwartz Facilitator PSR Volunteer @BritishRedCross
The ACORN Study @AcornStudy
148 Followers 378 Following @mairecurieuk funded research project exploring caregivers experiences of conservatively managed end-stage kidney disease. Based at @QUBSONM
Dr Claire Carswell @ClaireCarswellx
1K Followers 2K Following RMN | NIHR Advanced Fellow @MHARG_york looking at kidney disease & severe mental illness | Medical art enthusiast @RenalArtsGroup |
Kevin F McCarthy @kfinmccarthy
2K Followers 2K Following Paediatric Anaesthesiologist & Pain Specialist. Polymath in training. Inventor of the West-facing RAE for dental anaesthesia. Opinions own, etc 🏳️🌈🇮🇪 🇳🇿
Leonie Herx @LeonieHerx
2K Followers 1K Following Palliative Medicine MD | Clinical Professor, University of Calgary | Director, Rotary Flames House, Children’s Hospice & Palliative Care Services | views my own
Pola Grzybowska @PolaGrzybowska
860 Followers 2K Following Polish and northern. Palliative medicine consultant Bridgend 🏴. Thinking lots about health sustainability. Forever bereaved due to GBM4.
Dr Suja Somanadhan @sujas15
3K Followers 4K Following Associate Professor I Researcher| #FulbrightScholar |Children's Nurse I PhD I #RareDiseases #Child-health #RAIN #RAINDROP #COViSION #SAMPI Views are my own
Daniel Nuzum @danielnuzum
5K Followers 5K Following Husband,father, PhD-impact of stillbirth,lecturer UCC, Director Clinical Pastoral Education Cork University Hospital. Spiritual care. Palliative care Own views
Gemma Allen (she/her) @gemma_allen1
6K Followers 4K Following Palliative Care Inclusion & Community Partnership Lead @MSHospice. Co- Founder @NoBarriersHere. Director GA Consultancy. Equity. Research. Education.
Miriam Ní Challarái.. @Miriamcolleran2
2K Followers 3K Following Mom, Gaeilgeoir, palliative med. Pulmonary capillaritis. Narrative medicine. Tuairmí pearsanta, personal views, Ravenclaw, harper
Nat @nat_camp96
77 Followers 193 Following chronically over caffeinated. she/her 🏳️🌈 editor: @hysteriaABDN
Yuze Shi @shiyz_ClinPsy
28 Followers 112 Following Life ← data.frame (undefined experiences) · MScR Clinical Psychology candidate @EdinUniHealth · Resilience · Social Support · Mental Health · My Own Views
Sue Mitchell @SueRFDMHaSS
31 Followers 19 Following
Anne Cullen @ladylovestorun
427 Followers 948 Following Registered Social Worker, PhD. Schwartz Round Mentor, Point of Care Foundation; Research Lead, APCSW; Co-Chair Labour Social Work Group. Opinions my own.
Alex Fisher @alex_fisher1969
841 Followers 2K Following Tall, multi hair coloured Occupational Therapist in #Neuropsychiatry. Loves Abba, chocolate, cinema, Guinness, dancing. #Huntingtons Disease Module Lead @UOB
Marci Kay Livingston .. @MarciKayRN
187 Followers 552 Following She/Her Certified Hospice and Palliative Nurse. HRB-TMRN PhD Scholar at the University of Limerick. All opinions are my own.
Dylan Harris @drdylanharris
88 Followers 229 Following
Philosophy of Grief a.. @GriefYork
2K Followers 1K Following Investigating experiences of Grief and Loss at @UoYPhilosophy. Previously (2020 to 2023) an AHRC-funded project.
Daisy McInnerney @daisymcinnerney
459 Followers 1K Following Research Psychologist / Public Health 📚Visiting Research Fellow at QMUL Wolfson Institute of Population Health ✊ Health equity (cancer + EOL focus @ work)
Clare Gardiner @claregardiner8
808 Followers 356 Following Professor of Palliative Care at The University of Sheffield. Co-director of Mesothelioma UK Research Centre. Mum & wife. Climber & runner.
Kathryn Mannix @drkathrynmannix
41K Followers 1K Following Retired palliative care doctor. Writer: 'With the End in Mind', 'Listen.' Wants us to understanding dying more, fear it less, listen better. Rep: @DHAbooks
Gemma Clarke @Dr_GClarke
490 Followers 1K Following Marie Curie Senior Research Fellow in Palliative Care, Academy of Medical Sciences Springboard Fellow. Views my own.
Dr Lissette Aviles�.. @LissetteAvilesR
594 Followers 482 Following Nurse RN, MN, AFHEA, PhD, Lecturer @nursing_studies Critical care, OrganDonation, Emotions, Qualitative Research and Nursing Theory and Education
Cathryn Pinto 💙 @CathrynPinto
952 Followers 1K Following Researcher in emotional wellbeing for people with neurological diseases Mental health | Digital health| Health Psychology trainee | Views are my own.
kirsten morris @KirstenMorris2
173 Followers 598 Following lead clinical nurse educator for palliative care at LUFHT. All views are my own
Prof Mari Lloyd-Willi.. @LloydwilliamsM
1K Followers 1K Following Professor & Hospice consultant Liverpool & Marie Curie Hospice / Live in N Wales ; Co-chair NCRI LWBC; Winston Churchill Fellow; Champion of the voiceless
Harvey Max Chochinov @HMChochinov
4K Followers 3K Following Over thirty years of research in palliative care. Developed Dignity Therapy, the Patient Dignity Inventory; Co-Ed. Handbook of Psychiatry in Palliative Medicine
Eduardo Bruera @BrueraEduardo
1K Followers 1K Following Chair, Department of Palliative, Rehabilitation and Integrative Medicine The University of Texas MD Anderson Cancer Center
Dr. Lisa Graham-Wisen.. @lgrahamwisener
1K Followers 2K Following Lecturer in Health Psychology @QUBPsych @QUB_CIHRQoL | Psycho-oncology | Palliative & End of Life Care | Own views
Marianne Tinkler RGN... @mariannetinkler
843 Followers 1K Following PhD Fellow-Access to Palliative Care for People Living with a SMI. Macmillan Palliative Care Nurse♥️ @QUBSONM @publichealthni I’m #MadeByDyslexia
Marie Curie EOLC @MarieCurieEOLC
7K Followers 4K Following News from @mariecurieuk for health professionals and those caring for people with terminal illness. Together we’ll ensure a better end of life for all.
Emma Chapman @DrEmmaChapman1
229 Followers 341 Following Senior Research Fellow in Palliative Care. University of Leeds. RESOLVE programme. Symptom management and patients with advanced disease. All views are my own.
Mental Health at the .. @EdinUniMentalH
3K Followers 1K Following #MentalHealth research @EdinburghUni & beyond. YouTube: https://t.co/epaQ4LnBXt Website: https://www,https://t.co/A3EHv7EnjF Email: [email protected]
Claire Niedzwiedz @DrCeNz
1K Followers 2K Following Lord Kelvin/Adam Smith Research Fellow at the University of Glasgow. #PublicHealth #MentalHealth #Wellbeing #Inequalities
Amy Dalrymple @amy_dalrymple
2K Followers 4K Following Associate Director Policy & Public Affairs @MarieCurieSco | Board @JRRT1904; @DSScotland & @CSPPScotland| my views not theirs! |(re)tweet ≠ like| Red: go @LFC
Tracey McConnell @DrTMcConnell
241 Followers 328 Following Senior Research Fellow @mariecurieuk @QUBelfast palliative care and heart failure
Kate M @katemaitland
731 Followers 3K Following Southerner in the NW & happily assimilating. Lover of Scandi crime dramas. Senior Nurse. Evidence-informed practice. Palliative Care #PEoLC. Smoking cessation.
Jessica Bush @JessicaMBush
149 Followers 129 Following Public Involvement and Engagement Manager at Marie Curie. All views my own.
Amara Nwosu - Palliat.. @amaranwosu
2K Followers 430 Following Senior Clinical Lecturer #PalliativeCare @LancasterMedSch @IOELC Research lead @LiverpoolHosp. @PalliativeMedJ Churchill Fellow @ChurchillFship #hapc
Widow in Waiting @widow_waiting
30K Followers 820 Following Adjusting to life with my husband’s #TerminalCancer… Grappling with #AnticipatoryGrief, parenting 3 kids (12/4/baby), & preparing for loss
John MacArtney @johnmacartney
746 Followers 574 Following Marie Curie Associate Professor Sociologist of dying, palliative and end-of-life care, and bereavement. https://t.co/6HVncqIsc4
Mark Hazelwood @Palliative_Scot
4K Followers 1K Following CEO of Scottish Partnership for Palliative Care (SPPC). Mostly about palliative care (but not SPPC official). RT ≠ endorsement
Erica Borgstrom @EricaBorgstrom
3K Followers 2K Following Prof of Medical Anthropology: end of life care & death studies. Ed @Mortality_TandF @deathinageofco1 @formsofcare @openthanatology she/her
Amy Gadoud @agadoud
1K Followers 545 Following Senior Lecturer in Palliative Medicine @ioelc @LancasterUni and Community Consultant @BlackpoolHosp @trinity_hospice Views my own
Lisa Jane Brighton @Lisa_Brighton
1K Followers 1K Following Lecturer in Applied Health Research @CSI_KCL | psychology | respiratory | loneliness | palliative care | rehabilitation | complex interventions | She,Her
Lucy Coombes @LucyCoombes7
376 Followers 323 Following PhD in palliative care (interest in PROM development in CYP palliative care) Clinical Nurse Specialist in Paed Pall Care @royalmarsdenNHS
@WolfsonPallCare @wolfsonpallcare
1K Followers 560 Following Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull
JoElversonSOH @ElversonJo
1K Followers 1K Following Palliative Medicine Consultant @stoswaldsuk Passionate about palliative care for young adults and people with learning disabilities. Views are my own.
The Queen's Nursing I.. @TheQNI
30K Followers 6K Following A national charity that promotes high-quality nursing care for people in need. Our Queen's Nurses deliver outstanding care in homes and communities everywhere.
Simon Noble @SimonNoble
4K Followers 1K Following Marie Curie Professor in Supportive and Palliative Medicine. Director Division of Population Medicine, Cardiff University.
EAPC VZW @EAPCvzw
10K Followers 1K Following The European Association for Palliative Care (EAPC) aims to promote palliative care and to act as a focus for all those involved in the field.This is such a great idea & central to whole person care for people with serious life-limiting illnesses @LeonieHerx @palliativeire @_IPMCA @annedohertypsy @IrishPsychiatry @HMChochinov @IraByock @mcgillwpc @kelleher_eric @stabrennan @Stanford_PC @CarolUHS @IASW_IRL 1/
We are delighted to launch MAIN today! Check out our network position paper to find out more about the Mental health and wellbeing in Advanced Illness Network (MAIN) and how you can be involved. @EdinUniHealth Funded by @MarieCurieEOLC mariecurie.org.uk/globalassets/m…
Our next @MainEvent24 webinar is on Family centred approaches to supporting wellbeing in advanced illness. With @LizForbat and Louise Allen, chaired by @LissetteAvilesR 14.05.24 at 12pm. Register here for free: events.teams.microsoft.com/event/0f2e9154… Pls RT!
🌟 Fantastic day at @RIPEN_NorthEast celebration event 👏- showcasing how our NIHR PEoLC partnership bid (2021), has supported collaboration & growth of #PalliativeCare #research in NorthEast Even at an early stage, delighted to present my @NIHRresearch Fellowship journey 💫
Our next webinar:Family centred approaches to improving wellbeing in advanced illness and end of life will take place on 14 May. Register here for this free event: events.teams.microsoft.com/event/0f2e9154…
Do you use the term "loved ones" as a general term? Ever wondered what it means or how it might be understood? @KateWoodyBath and I did: endoflifestudies.academicblogs.co.uk/is-everyone-a-… Tl:dr Emphasising "love" misses the diversity of reasons people care for each other @EndofLifeStudy
So pleased to be able to share the findings and recommendations from our @ESRC study. So many people to thank - too many for one Tweet! But I have to start with *a really big thank you* to @abiccles @DrJFlem @cathgrimley2 for all their hard work throughout the study!
📣 Today we’re launching brand new research with @warwickuni@johnmacartney, exploring the impact of Covid-19 on hospices and what this means for the future of hospice care. (1/7) 🧵
Coming up on 24th April: We are delighted to collaborate with @hospiceuk and @LOROSHospice on this important one-day conference on equity in palliative care - register (free) at eventbrite.co.uk/e/sawubona-we-… @GoodGriefFest @PEoLCSW
PARTNER EVENT - THE SAWUBONA CONFERENCE: PROMOTING EQUITY THROUGH RESEARCH IN PALLIATIVE CARE 24 April 2024 // 09:30 - 16:00 BST This online conference is for academics, clinicians, early career researchers, & post-grad students. Register: eventbrite.co.uk/e/sawubona-we-…
Hi @dignityindying thanks for sharing the link to your poll data opinium.com/polling-tables… Im concerned that the data in the “Do you want your MP to vote for legalising Assisted Dying?” map in yr press release dignityindying.org.uk/news/every-par… doesn’t match the raw data (just 43% said yes).
Self-administered Meditation Application Intervention for Cancer Patients With Psychosocial Distress: A Pilot Study. pubmed.ncbi.nlm.nih.gov/36680352/
As oncologists we struggle with how we can have realistic conversations about the future while preserving hope. Dr @SchenkerYael and her colleagues show that having end of life conversations with patients did not compromise hope via the CONNECT study #pallonc #supponc
939 people have signed up for our in conversation event @GoodGriefFest with @doctor_oxford on Thursday🤯 - Just a few spaces left if you would like to join us. #Breathtaking goodgrieffest.com/events/breatht…
Allan will be remembering his wife, Teresa, on the #DayOfReflection. Read his story 🔗 bit.ly/3Tf0TGP Who will you remember? 💛
Check out our new paper on Acceptance and Commitment Therapy (ACT) for bereavement support. @NikolausWilli @davidgillander @MarieCurieEOLC bmcpalliatcare.biomedcentral.com/articles/10.11…
Minister @jenni_minto closes the #GreatDaffodilAppeal debate. Thanking @MarieCurieSCO groups in her constituency and across Scotland. We welcome the Ministers commitment to work with us and the wider palliative care sector to address funding challenges
I’m looking forward to working with @BobDorisSNP & his colleagues across parties in the @ScotParl towards a right to palliative care for everyone in Scotland who needs it.
Convener of the Scottish Parliament's Cross Party Group on Palliative Care @BobDorisSNP calls for a Right to Palliative Care to be enshrined in the new National Care Service and for a sustainable funding settlement for palliative care @MarieCurieSCO #GreatDaffodilAppeal
New paper on practitioners views of Acceptance & Commitment Therapy (ACT) for bereavement support. Led by @NikolausWilli & our excellent MSc students @EdinUniHealth. With funding from @MarieCurieEOLC
Check out our new paper on Acceptance and Commitment Therapy (ACT) for bereavement support. @NikolausWilli @davidgillander @MarieCurieEOLC bmcpalliatcare.biomedcentral.com/articles/10.11…
All welcome to the second webinar hosted by the Mental health and wellbeing in Advanced Illness Network (MAIN). With @DrNaomiRichards @DrEmmaCarduff @_RiniJones_ Funding: @MarieCurieEOLC Topic: Mental health, the social determinants of dying & trauma-informed palliative care.
MAIN Webinar: Mental health, the social determinants of dying and trauma-informed palliative care. All welcome to our next free webinar (presentation, case studies & discussion). Tuesday 12th March @ 12 noon With @DrNaomiRichards. Register here: events.teams.microsoft.com/event/7339c142…
I find it very difficult to remember work-life balance I have to plan activities I love in advance so that I do them Today drypoint etching 🎨 In Japanese 🇯🇵 symbolism: The koi represents perseverance & courage 💪🏻 The seigaiha waves represent surges of good luck 🌊🍀 #Art
By reminding health care providers who their patient is as a person, families ensure their loved ones are truly seen, hence safeguarding and preserving their innate dignity. liebertpub.com/doi/epdf/10.10… @CicelySaunders1 @CAPCpalliative @AAHPM @EAPCvzw @IAHPC @CanadianHPCAssn @whpca
If you or someone you care about might need to decide where to live while dying, please join @AnnalisaB and me to mull over some of the important things to think about. Info ⬇️
Series 7 of #Conversationswithannalisa goes on general release this Thursday 15th Feb. We start with Where to Die with the wonderful @drkathrynmannix This is a subject which troubled me greatly me last year and in my research I found out..
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