-
Tweets73
-
Followers51
-
Following21
-
Likes87
@anne_bruns @GlobalGenes Hello Anne, Could you send information on this event to me please? [email protected] Thanks!
1
0
0
0
0
View Details
NLMSF retweeted
mobile.nytimes.com/2015/09/18/opi… #leiomyosarcoma #sarcoma #scmsm Different context, but may be relevant message for sarcoma research as well.
NLMSF retweeted
The #RARE Patient Advocacy Summit is less than a week away, are you going? Attend in person or via Livestream: globalgenes.org/2015summit/
NLMSF retweeted
What are the different types of drugs used to treat #cancer? bit.ly/1UWS0Ph via @OncoLogNews #endcancer
NLMSF retweeted
NIH launches Undiagnosed Diseases Network (UDN) to study new & rare disorders: ow.ly/SpcJ2 #raredisease
NLMSF retweeted
From @Hope_for_KB "A RESPONSE TO OUR NAYSAYERS: RARE DISEASE STATISTICS ARE ABSURD BECAUSE THEY ARE ACCURATE" bit.ly/1LlCbd9 #RARE
NLMSF retweeted
How can you be #healthy AND #productive while at work? Click here to find out! bit.ly/1MP4ySm
NLMSF retweeted
VIDEO: How to Choose a Wig - youtube.com/watch?v=mR17Hy…
NLMSF retweeted
NCI-Designated Cancer Centers Expand, Four Awarded Comprehensive Designation: 1.usa.gov/1T61qHd cc @TischCancer
Awesome LMS Connect Conference!! Thank you to everyone!
NLMSF retweeted
Learn all about the #15ForRARE campaign and be entered in to win a prize valued at $1100! globalgenes.org/15forRare x.com/SavingEliza/st…
I Care about RARE because.... #15ForRare #GlobalGenes @GlobalGenes youtube.com/watch?v=sjrFYo… #CureSanfilippoFoundation #SavingEliza
NLMSF retweeted
Dan Marino helping to kick off DCCVI for cancer research. MT @finsweekend Signup for DCCVI now open! #dolphinscancerchallenge @TackleCancer
NLMSF retweeted
Our visual timeline features milestones in cancer research over the last 250 years: 1.usa.gov/1IaIsbP
LMS CONNECT CONFERENCE August 6-8th. Hotel Rooms available until Monday. Join us for fantastic keynotes and fun!
NLMSF retweeted
I need help desperately. Anything helps, esp a RT. Thanks. 🙏 gofundme.com/zheatherchamp #BrainTumor #RareDisease #gofundme #crowdfunding
NLMSF retweeted
NLMSF retweeted
Join us for a ZUMBAthon on 5/30 in Chicago, IL: curesarcoma.org/events/1st-ann… #sarcoma #CureSarcoma @Sfa_Illinois
LMS CONNECT CONFERENCE August 6-8th. [email protected] Dr. Raphael Pollock, Dr. Matt van de Tijn, Dr. Vinod Ravi keynotes!
NLMSF retweeted
@corrie_painter Dr. Doreen Kossove was a physician and patient with #leiomyosarcoma: lmsdr.org/dkossove.php Doctor Dee built LMS Pt Hub
NLMSF retweeted
#pathologists f/67 lung metastasis. Uterine Leiomyosarcoma
vanessa eulo @veulomd
87 Followers 267 Following
Anna M. Czarnecka @AMCzarnecka
242 Followers 590 Following Professor in medical oncology and molecular biologist. Interested in melanoma, sarcoma & RCC molecular genetics and treatment.
Maurício Ribeiro, MD @mauriciofribei1
1K Followers 1K Following Sarcoma Medical Oncologist. Assistant Member at @moffittnews. Assistant Professor at @usfhealthmed. 🎗️#GIST #desmoid #sarcoma #phase1 - my tweets = my views
Herbert Loong, MBBS, ... @herbloong
5K Followers 3K Following Academic medical oncologist @ Hong Kong w/ interests in sarcoma medical oncology, thoracic oncology & phase 1 trials | Disclosures: https://t.co/sb5XXrvDp5
Jeffrey Farma @JeffreyFarma
5K Followers 5K Following Father of 3, Husband, Surgical Oncologist, Chair of Surgery, Professor @Foxchasecancer-Skier and Traveller
Heidi Bright @BrightHeidi
1K Followers 1K Following Author, "Thriver Soup" (Sunstone Press), National Speaker for #cancer, #sarcoma. Author, Hidden Voices (Smyth&Helwys), Keeping Sabbath: Daily Life (CircleBks).
Bill Harris @FacilitatedSys
324 Followers 433 Following Bill Harris: system dynamicist, analyst, R user, facilitator, action learner
Monopar Therapeutics @MonoparTx
154 Followers 223 Following Next generation targeted therapies for Wilson disease and cancer
Living LFS @LivingLFS
545 Followers 1K Following Supporting patients with Li-Fraumeni syndrome, an inherited #cancer predisposition. #LFS #LiFraumeni #LiFraumeniSyndrome #TP53 #P53 #GeneticCancer #genetics
Liz Warhurst-Jones @realizjones
39 Followers 81 Following never pretend I am more than I am ..limited abilities, but don't judge, try to be kind.. laugh at my mishaps. determined to be myself.
LFS Association @LFSAssociation
699 Followers 436 Following We are families, like you, who have been devastated by the effects of Li-Fraumeni syndrome, a hereditary cancer predisposition syndrome.
Liz Washington @Lms_survivor
0 Followers 68 Following
Adeel Dayo @AdeelDayo
135 Followers 702 Following Consultant | Business Technology | IT Strategy | Tech: Assessment | Digital Payments | Cyber Security | Project Management | Car Lover |
Leiomyosarcoma Suppor... @2LMSdr
241 Followers 120 Following Leiomyosarcoma Support & Direct Research (LMSDR) raises awareness and funds for leiomyosarcoma research. We offer PATIENT EDUCATION, ADVOCACY & SUPPORT.
Ashley Gay @AshleyMerkleRMG
2K Followers 4K Following Quality Liaison, Client Services @MerkleRMG, Passionate about #Nonprofits, #DonationProcessing Expert and #DonorCare Advocate
Jonah's Just Begun @JJB4CURE
813 Followers 671 Following Going forward please make your donations to the Cure Sanfilippo Foundation (CSF). CSF will be continuing JJB's mission. Thank you! #CUREmpsIIIc
David Shen @avidweis
260 Followers 1K Following
The Block Center for ... @TheBlockCenter
2K Followers 2K Following The Block Center for Integrative Cancer Treatment is an out-patient clinic that combines conventional treatment with individualized complementary therapies.
Jason L. Parrott @JaysonParrott
41 Followers 219 Following
Kelley Hoellrich @kjhoellrich
23 Followers 436 Following
Chloes Fight @Chloes_Fight
307 Followers 404 Following Chloe's Fight is a growing nonprofit with an objective of raising funds to support rare disease research.
Kraftlove @Kraftlove
470 Followers 1K Following Kraftlove is a non-profit organization helping hospitalized children cope with illness through the joy of creativity by delivering quality craft kits.
LiposarcomaGenomePrj @LiposarcomaProj
374 Followers 532 Following Support the Liposarcoma Genome Project at @MGHCancerCenter. The first comprehensive research targeting liposarcoma. A cure for one can be a cure for all #LGP
Krish Dhokia @krishdhokia
2K Followers 1K Following Host of “This with Krish Show” Christ follower. Husband to @shannondhokia and father of two amazing kiddos.
Cancer Dynamics @CancerDynamics
21 Followers 67 Following
Sonya Nolen @TXGirlntherocks
102 Followers 353 Following
Shelly Johnson @shellyusher
52 Followers 78 Following living with Leiomyosarcoma, fan of music and movies, mom and fiance
Kristina Martinelli @GetEnergized11
633 Followers 3K Following Founder @coaigence | AI Strategist & Startup Advisor | Building AI solutions w Freedom Forge AI & @LifeHouseOS | Turning ideas into reality. Educator.
Rare Point of View @RarelyYours
595 Followers 400 Following Tweets by Stephanie Fischer, rare disease advocate & stroke survivor sharing info & resources to engage #raredisease community. Opinions my own.
Survivor Network CA @survivornetca
8K Followers 5K Following Canadian Cancer Survivor Network | Promoting the very best standard of care, support, follow up and quality of life for cancer patients and survivors.
Stephanie Patterson (... @Duke_BlueSteph
119 Followers 1K Following SU2C!...I am a Fighter against cancer. I am winning! I am an Artist, Writer, Tutor, Traveler....I love my little Pekingese Buddy my sidekick in crime.
Mrs. Bryant-Bey @MrsThickBaddOne
140 Followers 1K Following I am a cancer survior!!!! #Leiomyosarcoma 👻abryantbey
Horizon @HorizonNews
5K Followers 2K Following Horizon Therapeutics is now part of Amgen. We encourage you to follow @Amgen. The Horizon X page is no longer active or monitored.
Eddy @GaNole05
3K Followers 4K Following Follower of Jesus Christ..... LeioMyoSarcoma (LMS) IVC cancer survivor. Dad of former College Softball Player! Papa to Holden and Emerson. #Patriot 🇺🇸No DM’s
L M Sarcoma @ULMSAdviser
49 Followers 38 Following
TeamGChildhoodCancer @TGfightcancer
699 Followers 1K Following Team G Childhood Cancer Foundation is a 501(c)3 nonprofit organization for our mission to fund our Hope Tote program and fund childhood cancer research.
SWIMCancerFoundation @SWIMCANCER
21 Followers 42 Following This foundation provides support services to single mothers diagnosed with cancer and undergoing treatment.
Doug Joseph @Doppler_Doug
257 Followers 759 Following Computer Scientist, NWS Storm Spotter, Father, Widower, Race Car driver, owner of a cat with no tail. I don't get to pick how life happens, I just live it.
Brian A. Billeck @happy2badad
733 Followers 1K Following Strength isn't how much you lift... Strength is how much you lift others! Devoted father! Captain for #TEAMDAMON
Sarcoma Foundation of... @CureSarcoma
8K Followers 2K Following SFA’s mission is to improve outcomes for people diagnosed with sarcoma to increase the number of survivors.
Candace @RareCandace
2K Followers 2K Following “Weaponized Patient Advocacy” 😎 Platelet assassin. On a soapbox for Specialty Pharmacy and drug development. @ITPresearch 🇺🇸🇮🇱 #RareNOTless #FIXIT
ICONIX MUSIC GROUP @ICONIXMUSICGRP
224 Followers 2K Following
Nat'l LMS Foundation @NationalLMSF
405 Followers 175 Following The National Leiomyosarcoma Foundation (NLMSF)- dedicated to patient support /advocacy/education/LMS research support - The LMS Intern'l Research Roundtable
Survivor Network CA @survivornetca
8K Followers 5K Following Canadian Cancer Survivor Network | Promoting the very best standard of care, support, follow up and quality of life for cancer patients and survivors.
L M Sarcoma @ULMSAdviser
49 Followers 38 Following
RARE Foundation @RareAdvocates
6K Followers 2K Following We are a community of relentless advocates who drive public policy to improve the quality of life for all people living with rare diseases.
National Cancer Insti... @theNCI
226K Followers 4K Following The U.S. government’s agency for cancer research. Part of @NIH. Engagement ≠ endorsement. Questions about cancer? Reach us here: https://t.co/yQAi9x4Obg
Global Genes @GlobalGenes
28K Followers 6K Following Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
Wendy Walk @TheWendyWalk
539 Followers 789 Following Wendy Walk raises funds and awareness for rare sarcoma cancers.
Together for Derek @together4derek
27 Followers 1 Following In April of 2006, Derek Kehoe was diagnosed with LMS and lost his battle at the young age of 19. Join us in the fight against this rare form of cancer.
Amanda K. Ruisi ® @AmandaRuisi
46 Followers 2 Following Founder & President @AKRPR AKR Public Relations ® & AKR Ventures
Doug Joseph @Doppler_Doug
257 Followers 759 Following Computer Scientist, NWS Storm Spotter, Father, Widower, Race Car driver, owner of a cat with no tail. I don't get to pick how life happens, I just live it.
UT MD Anderson @UTMDAnderson
142K Followers 4K Following Official account of The University of Texas MD Anderson Cancer Center. Our mission is to #EndCancer through patient care, research, education & prevention.
Candace @RareCandace
2K Followers 2K Following “Weaponized Patient Advocacy” 😎 Platelet assassin. On a soapbox for Specialty Pharmacy and drug development. @ITPresearch 🇺🇸🇮🇱 #RareNOTless #FIXIT
Sarcoma Foundation of... @CureSarcoma
8K Followers 2K Following SFA’s mission is to improve outcomes for people diagnosed with sarcoma to increase the number of survivors.
Bruce Shriver @Bruce_S
412 Followers 27 Following Helping raise public awareness of sarcoma, funds for sarcoma research & provide timely information to sarcoma patients, caregivers & medical professionals
Sarcoma Alliance @SarcomaAlliance
3K Followers 166 Following Providing guidance, education, and support for everyone facing sarcoma since 1999. Check out our website for more information.
Leiomyosarcoma @Leiomyosarcoma1
50 Followers 4 Following Please raise awareness & spread the word for leiomyosarcoma!
Leiomyosarcoma LMS @LMSarcoma
1K Followers 959 Following Peer support~Info share of Leiomyosarcoma ~Sarcoma~Rare Cancer~Not a doctor~Just patients & caregivers trying to helpYou might like
nwsarcoma
@nwsarcoma
458 Followers
Melissa Becorest
@mbecorest
96 Followers