If you live with a rare disease, then you probably ARE more qualified to speak about it than a doctor who maybe spent one afternoon in med school learning about the condition you experience every day and have likely researched far more extensively and diligently than they have.
If you live with a rare disease, then you probably ARE more qualified to speak about it than a doctor who maybe spent one afternoon in med school learning about the condition you experience every day and have likely researched far more extensively and diligently than they have.
More doctors like this, please... x.com/konlontos/stat…
More doctors like this, please... x.com/konlontos/stat…
@NicoReznick Doctors: I’m an expert in my specialty Me: Cool cool, I’m an expert in my body. I’ve lived in it all my life and know it better than anyone else do you might wanna hear me out.
Some salty bitches in these replies. Wonder if they're insecure doctors or incredibly gaslit patients.
@NicoReznick 'No Mr. Enthusiastic Surgeon, you cannot intubate me I'll die...like you put in my notes 4 years ago"
@NicoReznick Thank you for this! My daughter has a really rare disease that only maybe 75 people have been diagnosed with so far. It’s challenging to have to explain it all the time to medical professionals.
@NicoReznick My job is very customer facing and every so often I talk about my condition and people ask me about it because they maybe know someone with it but not a lot of informationand I just info dump about some of the more important peices of info.