PACT @PACThealth

PACT provides a cohesive front including industry, academia and patient groups to improve biomedical research and patient outcomes together pact.ibio.org Illinois, USA Joined April 2016

Tweets

270
Followers

97
Following

165
Likes

49

Regina Greer-Smith @rgreersmith

9 years ago

We are having authentic, honest conversations that will drive #Diversity @chisite #DILSS @PCORI @PACThealth

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Regina Greer-Smith @rgreersmith

9 years ago

@MarksBigMouth @chisite Mark is bringing #disabilities into focus @wheelieboy @PCORI @OpenDoors 👍🏽@PACThealth

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Regina Greer-Smith @rgreersmith

9 years ago

#important @chisite #clinicalresearch #clinicaltrials #Dilss @PACThealth @PCORI @PCORnetwork @CAPriCORN_CDRN

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Regina Greer-Smith @rgreersmith

9 years ago

@chisite Diversity Symposium is starting #DILSS @PCORI @CAPriCORN_CDRN @PACThealth

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Regina Greer-Smith @rgreersmith

9 years ago

"The Benefits of Mindfulness Through the Healthy Mind Healthy You Initiative” on #Vimeo vimeo.com/216689671?ref=… @PCORnetwork @PACThealth

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PACT @PACThealth

10 years ago

Happy to participate in @WISEChiVA research week pitch event today.

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PROPEL @iBIOPROPEL

10 years ago

thanks for joining us today #OnTheTable2017 @IntuiTapMedical @innoblative #PreoraDx #ThirdCoastRx @PACThealth @IllinoisBiotech @ChiTrust

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PROPEL @iBIOPROPEL

10 years ago

great connections made today at #onthetable2017 breakfast at @StephAndTheGoat for #entrepreneurs and patient groups x.com/pacthealth/sta…

PACT @PACThealth

10 years ago

iBIO Institute's On the Table kicking off. @ChiTrust @iBIOPROPEL @IllinoisBiotech #onthetable2017

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PACT @PACThealth

10 years ago

@ChiTrust: What can we do to create a stronger community? Work to change the 'normal' in clinical research! @UChicagoITM #onthetable2017

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PACT @PACThealth

10 years ago

iBIO Institute's On the Table kicking off. @ChiTrust @iBIOPROPEL @IllinoisBiotech #onthetable2017

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PACT @PACThealth

10 years ago

This Chicago Startup Aims to Bring Deep Learning to the Pharma Industry - Nice write up in ChicagoInno. PACT member @rMarkBio.

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Regina Greer-Smith @rgreersmith

10 years ago

#iBIOIndEx17 @PACThealth @P4PCOR @PCORI @PCORnetwork #diversityinclinicaltrials #engagement @CAPriCORN_CDRN #partnerships

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Regina Greer-Smith @rgreersmith

10 years ago

#iBIOIndEx17 many thnx 4 the #diversityinclinicaltrials session @P4PCOR @CAPriCORN_CDRN @PCORI #@STARInitiative

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PACT @PACThealth

10 years ago

The power of #partnerships can improve the issue of diversity in clinical trials on a global level @IllinoisBiotech @TakedaPharma

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PACT @PACThealth

10 years ago

Need to design clinical trials not only 'for' patients, but WITH patients... @IllinoisBiotech @wribley @TakedaPharma @jmcollins8888

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PACT @PACThealth

10 years ago

Most Clinical Trials Have A Glaring Flaw Before They Even Begin: buff.ly/2oZTFH5. Check out the #PACT panel at today #iBIOIndEx17!

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John Conrad @iBIO_John

10 years ago

Don’t miss the #iBIOIndex17 Breakout Sessions discussing the crucial issues across our diverse spectrum. ow.ly/EgLm30b14ob

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PACT @PACThealth

10 years ago

Why We Need More Minorities Involved in Clinical Trials: antidote.me/blog/2017/04/0… @rgreersmith @jmcollins8888 @wribley #PACT

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Sinai Chicago @SinaiChicago

10 years ago

Sinai Urban Health Institute conducted a survey funded by @ChiTrust in #Chicago that found wide health disparities. buff.ly/2nd765u

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PACT @PACThealth

10 years ago

@PatGrangeMF annual golf outing... us15.campaign-archive1.com/?u=2b51321eea5…

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Lesleigh @Lesleigh144332

10 Followers 2K Following #35

ICON Plc @ICONplc

16K Followers 10K Following Global provider of Outsourced Clinical Research

We are a Clinical Research Organization specializing in Database Builds and Data Management Services. #DFSPharma #datamanagement #databasebuilds #pharma #CRO

DFS Pharma @DFSPharma

443 Followers 2K Following We are a Clinical Research Organization specializing in Database Builds and Data Management Services. #DFSPharma #datamanagement #databasebuilds #pharma #CRO

Zyla Life Sciences is a business committed to bringing important products to patients and healthcare providers. Our current focus is pain and inflammation.

Zyla Life Sciences @ZylaLifeSci

493 Followers 847 Following Zyla Life Sciences is a business committed to bringing important products to patients and healthcare providers. Our current focus is pain and inflammation.

Miiri Kotche @mkotche

133 Followers 201 Following

Always moving, thinking, reading, laughing. Mom, wife, friend, innovative worker. Views expressed on social media are mine alone and not my employer.

Jenny carrell @Jvcarrell

114 Followers 878 Following Always moving, thinking, reading, laughing. Mom, wife, friend, innovative worker. Views expressed on social media are mine alone and not my employer.

Jen VanHoutan @FarnieVanHoutan

568 Followers 810 Following Mom of 4. Batten disease & rare disease advocate 💙💜 Loyola Chicago & John Felice Rome Center alum

SweetSpot Custom @sweetspotCu

77 Followers 2K Following

I have ALS but I started on an alternative treatment and its helping me greatly as I can now use my voice and the excess saliva has stopped! karencoee@gmail.com

Karenbcoe @Karenbcoe1

2K Followers 1K Following I have ALS but I started on an alternative treatment and its helping me greatly as I can now use my voice and the excess saliva has stopped! [email protected]

Matches humans with health conditions in person in 2020! Internally funded through the BE KIND Project, empowering littles + their communities. L3C

Some 1 Like You @Some1LikeYouCO

444 Followers 3K Following Matches humans with health conditions in person in 2020! Internally funded through the BE KIND Project, empowering littles + their communities. L3C

Vivid Biology @vividbiology

2K Followers 3K Following Science illustration studio. We make technical figures and concept artwork for biomedical sciences.

Simergent @simergent

30 Followers 59 Following Making home dialysis devices easier to use, safe, and more affordable for kidney failure patients

PF Warriors is a global support network that provides education, inspiration, and hope to individuals and families affected by pulmonary fibrosis.

Pulmonary Fibrosis Wa... @PFWarrior

3K Followers 3K Following PF Warriors is a global support network that provides education, inspiration, and hope to individuals and families affected by pulmonary fibrosis.

Andrew Warner & Team @Mixergy

35K Followers 21K Following Where entrepreneurs & authors teach ambitious upstarts, run by @AndrewWarner

ALF Great Lakes @ALFGreatLakes

460 Followers 432 Following American Liver Foundation Great Lakes Division for both Illinois and Michigan

Our mission is to optimize the health of the people of central and southern Illinois through education, patient care, research and service to the community.

SIU Medicine @siusom

2K Followers 2K Following Our mission is to optimize the health of the people of central and southern Illinois through education, patient care, research and service to the community.

Zoe Hoeppner, PhD @zoehoeppner

439 Followers 966 Following Promoting biotech based talent & economic development in the Chicagoland region. Also wife, mother, superwoman.

My mom was bullied for bringing a water bottle everywhere she went. They don't know Sjogrens. And now I'm doing something about it!

Katelyn 💜 @SjogrensSucks

137 Followers 546 Following My mom was bullied for bringing a water bottle everywhere she went. They don't know Sjogrens. And now I'm doing something about it!

Ethical Legal and Social Implications of Learning Health Systems 2019 Symposium focuses on precision health, Nov. 6-7, 2019.

ELSI-LHS SYMPOSIUM @ELSILHSUMICH

79 Followers 266 Following Ethical Legal and Social Implications of Learning Health Systems 2019 Symposium focuses on precision health, Nov. 6-7, 2019.

A community foundation uniting donors, nonprofits and residents to support people, organizations and partnerships that strengthen the #Chicago region.

The Chicago Community... @ChiTrust

14K Followers 4K Following A community foundation uniting donors, nonprofits and residents to support people, organizations and partnerships that strengthen the #Chicago region.

Sinai Chicago is dedicated to improving the health of the 1.5 million people who live in Chicago’s West and Southwest Side. #SinaiChicago

Sinai Chicago @SinaiChicago

3K Followers 2K Following Sinai Chicago is dedicated to improving the health of the 1.5 million people who live in Chicago’s West and Southwest Side. #SinaiChicago

EDS & Co, Rare Diseases, Patient & Disability Advocate, Wifey & Current Ms. Wheelchair Washington USA 2022 #PracticeSelfCareForYourHealthcare

Sarah Tompkins 🦽�... @SarestBearest

2K Followers 4K Following EDS & Co, Rare Diseases, Patient & Disability Advocate, Wifey & Current Ms. Wheelchair Washington USA 2022 #PracticeSelfCareForYourHealthcare

#Aggrecan #Gene: #EarlyOnset #Osteoarthritis #OA #Hip #FAI #HalluxRigidus #Familial #OsteoChondritisDissecans & #HLAB27 #USpA FHx= #Dementia & #Parkinsonism

#Aggrecan / #ACAN Gen... @ACANGeneVariant

564 Followers 4K Following #Aggrecan #Gene: #EarlyOnset #Osteoarthritis #OA #Hip #FAI #HalluxRigidus #Familial #OsteoChondritisDissecans & #HLAB27 #USpA FHx= #Dementia & #Parkinsonism

Scientists committed to helping scientists. We host and promote events to uplift the science community & the people who make it go ⋆Collaborate⋆Network⋆Grow⋆

CHIentist @CHIentist

477 Followers 333 Following Scientists committed to helping scientists. We host and promote events to uplift the science community & the people who make it go ⋆Collaborate⋆Network⋆Grow⋆

@Stanford➡️SciTeach
@TeachForAmerica➡️MD/PhD @RushUniversity➡️@mcwpediatrics➡️@UICOMPeoriaPeds➡️@nationwidekids➡️@ChildrensMercy PedsEM

Robert Trevino, MD, P... @trevy13

2K Followers 5K Following @Stanford➡️SciTeach @TeachForAmerica➡️MD/PhD @RushUniversity➡️@mcwpediatrics➡️@UICOMPeoriaPeds➡️@nationwidekids➡️@ChildrensMercy PedsEM

Katie Rose Norman @katierosenorman

98 Followers 368 Following

Women In Bio is an organization of professionals committed to promoting careers, leadership, and entrepreneurship of women in the life sciences.

Women In Bio Chicago @CHIWomenInBio

1K Followers 719 Following Women In Bio is an organization of professionals committed to promoting careers, leadership, and entrepreneurship of women in the life sciences.

Recognizing the value of young, caring, ambitious nurses by supporting them to achieve the change they wish to see in their communities & around the world

Nurses4Nurses @Nurses_4_Nurses

315 Followers 493 Following Recognizing the value of young, caring, ambitious nurses by supporting them to achieve the change they wish to see in their communities & around the world

ALS United Illinois @ALSUnitedIL

2K Followers 1K Following Fighting for a cure and helping individuals living with ALS in Illinois live their lives to the fullest.

Faith-Based Research Ministry Ambassadors committed to increasing minority participation & underserved communities in research for shared decision-making

PASTORS4PCOR @P4PCOR

50 Followers 74 Following Faith-Based Research Ministry Ambassadors committed to increasing minority participation & underserved communities in research for shared decision-making

Nonprofit creating hands-on #STEM programs #ACTWCHI, #CHICKTECHCHI for #Chicago girls + women to increase No. of #WomenInTech.
ACT-W👉https://t.co/i2EzNb5cEV

ChickTech Chicago @ChickTechChi

1K Followers 2K Following Nonprofit creating hands-on #STEM programs #ACTWCHI, #CHICKTECHCHI for #Chicago girls + women to increase No. of #WomenInTech. ACT-W👉https://t.co/i2EzNb5cEV

Darina Arena @Darina_CTA

931 Followers 4K Following Interested in global trends and changes of #clinicaltrials industry, including #clinicaloutsourcing, #CTS, and #CDM

Fierce #CRAACO advocate proud #pinksocks #WalkingGallery member, #ClinicalResearch #Innovation fanatic, #domesticviolence #endpoverty #mentalhealth #nomoreshame

Angela Radcliffe @theaimomma

653 Followers 1K Following Fierce #CRAACO advocate proud #pinksocks #WalkingGallery member, #ClinicalResearch #Innovation fanatic, #domesticviolence #endpoverty #mentalhealth #nomoreshame

Clinical trial enrollment nerd. SVP, Analytics, Insights, & Media at @Continuumclinic. Slowing rolling off to @Ivsin@med-mastodon.com

Paul Ivsin @ivsin

1K Followers 2K Following Clinical trial enrollment nerd. SVP, Analytics, Insights, & Media at @Continuumclinic. Slowing rolling off to @[email protected]

Jan Oldenburg ☮️ @janoldenburg

21K Followers 17K Following Focused on digital & participatory health. Editor of Participatory Healthcare & Engage! https://t.co/YqEXFwJXmH

The official account of National Quality Forum (NQF), the nation’s resource for healthcare quality measurement and improvement. Follow to keep up with quality.

National Quality Foru... @NatQualityForum

9K Followers 3K Following The official account of National Quality Forum (NQF), the nation’s resource for healthcare quality measurement and improvement. Follow to keep up with quality.

Informa Connect #clinical trials event series & community. Discover the latest on clinical #innovation, #mhealth & partnerships. Join us at CTE in Barcelona.

Clinical Trials - Inf... @ClinTrialsIC

8K Followers 6K Following Informa Connect #clinical trials event series & community. Discover the latest on clinical #innovation, #mhealth & partnerships. Join us at CTE in Barcelona.

Craig Lincoln Tucker @craig_ctucker

356 Followers 628 Following Life Sciences PA- representing PA's life sciences community in the halls of Harrisburg & Washington D.C.

Helping people coping with serious or chronic medical conditions make well informed decisions about their health by providing personalized info

Medivizor @medivizor

75K Followers 65K Following Helping people coping with serious or chronic medical conditions make well informed decisions about their health by providing personalized info

Matthew Garms @mgarms2

307 Followers 2K Following Head of Growth @aleysianllc, father of 2 and still bad at golf

Rabecca @rkb1212

7 Followers 98 Following

Treatment Score = the net treatment benefit for the patient using shared decision-making between the patient and physician. https://t.co/LsU0EGJvog
#health

Treatment Scores @TreatmentScores

8K Followers 9K Following Treatment Score = the net treatment benefit for the patient using shared decision-making between the patient and physician. https://t.co/LsU0EGJvog #health

nicoleboice @nicoleboice

1K Followers 2K Following Founder RARE-X and Founder/Former CEO of Global Genes #CareAboutRARE #raredisease. Opinions are my own.

rMark Bio @rMarkBio

103 Followers 174 Following

CareBand @Care_Band

2K Followers 2K Following Enabling people to live safely with #Dementia & #Alzheimers | #Safety #Independence #Wearable | Powered by @ThirdWave_IoT

Delivering the tools and support necessary to heal wounds and trauma caused by past failures in order to create future opportunities for abundance and success.

Stir the Sage | Learn... @stirthesage

2K Followers 3K Following Delivering the tools and support necessary to heal wounds and trauma caused by past failures in order to create future opportunities for abundance and success.

ChicagoNDfan @mhanley1202

77 Followers 2K Following Views are my own and don’t represent those of my employer.

Global Genes @GlobalGenes

28K Followers 6K Following Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare

Jumpin' for Jazz is a non-profit organization dedicated to improving the lives of children suffering from Friedreich's ataxia & empowering research for a cure

Jumpin' for Jazz @JumpinforJazz

220 Followers 330 Following Jumpin' for Jazz is a non-profit organization dedicated to improving the lives of children suffering from Friedreich's ataxia & empowering research for a cure

Horizon Therapeutics is now part of Amgen. We encourage you to follow @Amgen. The Horizon X page is no longer active or monitored.

Horizon @HorizonNews

5K Followers 2K Following Horizon Therapeutics is now part of Amgen. We encourage you to follow @Amgen. The Horizon X page is no longer active or monitored.

Andrew Warner & Team @Mixergy

35K Followers 21K Following Where entrepreneurs & authors teach ambitious upstarts, run by @AndrewWarner

SIU Medicine @siusom

2K Followers 2K Following Our mission is to optimize the health of the people of central and southern Illinois through education, patient care, research and service to the community.

Former Exec Director @PCORI (2011-19). Believes that research can/should address important questions of patients, families, clinicians, payers, policymakers.

Joe Selby MD, MPH @joevselby

2K Followers 156 Following Former Exec Director @PCORI (2011-19). Believes that research can/should address important questions of patients, families, clinicians, payers, policymakers.

UIC Retzky College of... @UICPharm

2K Followers 1K Following One College, Two Campuses, Unlimited Opportunities.

appreciate each day. actions not just words. travel the world but chicago is home. i focus on making an impact in healthcare. @CuresWReach

Barbara Goodman @goodmanbarb13

96 Followers 89 Following appreciate each day. actions not just words. travel the world but chicago is home. i focus on making an impact in healthcare. @CuresWReach

Robert Trevino, MD, P... @trevy13

2K Followers 5K Following @Stanford➡️SciTeach @TeachForAmerica➡️MD/PhD @RushUniversity➡️@mcwpediatrics➡️@UICOMPeoriaPeds➡️@nationwidekids➡️@ChildrensMercy PedsEM

Here for the 1 in 4 with #arthritis. | Fighting to cure the #1 cause of disability. | #KidsGetArthritisToo #ArthritisScience #AdvocateforArthritis💚💪

Arthritis Foundation @ArthritisFdn

38K Followers 6K Following Here for the 1 in 4 with #arthritis. | Fighting to cure the #1 cause of disability. | #KidsGetArthritisToo #ArthritisScience #AdvocateforArthritis💚💪

Katie Rose Norman @katierosenorman

98 Followers 368 Following

ALS United Illinois @ALSUnitedIL

2K Followers 1K Following Fighting for a cure and helping individuals living with ALS in Illinois live their lives to the fullest.

Fighting ALS on every front through research, care services, and advocacy. Community guidelines: https://t.co/Af1fOXXTLG

The ALS Association @alsassociation

32K Followers 872 Following Fighting ALS on every front through research, care services, and advocacy. Community guidelines: https://t.co/Af1fOXXTLG

ChickTech Chicago @ChickTechChi

1K Followers 2K Following Nonprofit creating hands-on #STEM programs #ACTWCHI, #CHICKTECHCHI for #Chicago girls + women to increase No. of #WomenInTech. ACT-W👉https://t.co/i2EzNb5cEV

Amplify your Intuition with a state-of-the-art cardiology stethoscope.
Parent company of Apex Stethoscopes.
https://t.co/VJDaWDfy3s

Apex Bioacoustics @ApexStethoscope

4K Followers 63 Following Amplify your Intuition with a state-of-the-art cardiology stethoscope. Parent company of Apex Stethoscopes. https://t.co/VJDaWDfy3s

ResQ Pharma was created to ensure reliable, global use of LipidRescue Therapy, an off-label antidote for various non-opiate drug overdoses & poisonings.

ResQ Pharma, Inc. @LipidResQ

82 Followers 177 Following ResQ Pharma was created to ensure reliable, global use of LipidRescue Therapy, an off-label antidote for various non-opiate drug overdoses & poisonings.

Angela Radcliffe @theaimomma

653 Followers 1K Following Fierce #CRAACO advocate proud #pinksocks #WalkingGallery member, #ClinicalResearch #Innovation fanatic, #domesticviolence #endpoverty #mentalhealth #nomoreshame

Editor/Cofounder PharmaVOICE, a leading source of information and dialog for the life-sciences industry-molecule to market. Also HBA board member(hbanet.org)

Taren Grom @tgrom

2K Followers 942 Following Editor/Cofounder PharmaVOICE, a leading source of information and dialog for the life-sciences industry-molecule to market. Also HBA board member(hbanet.org)

Lana Moriarty @LMoriarty1

310 Followers 318 Following

global health • human rights • behavioral science • english bulldogs • #generositywins • @globalgoodpod • @forbes • @superbowl disruptor

Nicole (Fisher) Rober... @nic_f_roberts

8K Followers 985 Following global health • human rights • behavioral science • english bulldogs • #generositywins • @globalgoodpod • @forbes • @superbowl disruptor

Regina Holliday @ReginaHolliday

18K Followers 10K Following Regina Holliday, founder of #TheWalkingGallery, artist, speaker & Pastor in ELCA

Child of God, husband/dad, health IT pharmacist, leader of innovation with purpose. Board member. Strategic Advisor. ED of Friends of Tenwek

Tom Krohn @takmad

732 Followers 642 Following Child of God, husband/dad, health IT pharmacist, leader of innovation with purpose. Board member. Strategic Advisor. ED of Friends of Tenwek

Jan Oldenburg ☮️ @janoldenburg

21K Followers 17K Following Focused on digital & participatory health. Editor of Participatory Healthcare & Engage! https://t.co/YqEXFwJXmH

National Quality Foru... @NatQualityForum

9K Followers 3K Following The official account of National Quality Forum (NQF), the nation’s resource for healthcare quality measurement and improvement. Follow to keep up with quality.

A nonprofit organization educating the public and patients about the role that clinical research plays in advancing public health.

CISCRP @CISCRP

3K Followers 659 Following A nonprofit organization educating the public and patients about the role that clinical research plays in advancing public health.

Loyal music junkie, foodie, science freak, film fan & chronic sun whore. Analyst by day info sponge by night. Nothing better than friends & live music. He/Him

wheelieboy @wheelieboy

743 Followers 589 Following Loyal music junkie, foodie, science freak, film fan & chronic sun whore. Analyst by day info sponge by night. Nothing better than friends & live music. He/Him

The official account of the Chicago Department of Public Health. Find our nondiscrimination statement on our website. #PublicHealth

CDPH | Chicago Depart... @ChiPublicHealth

31K Followers 648 Following The official account of the Chicago Department of Public Health. Find our nondiscrimination statement on our website. #PublicHealth

Intermountain Health @Intermountain

30K Followers 9K Following Helping people live the healthiest lives possible.

Clinical Trials - Inf... @ClinTrialsIC

8K Followers 6K Following Informa Connect #clinical trials event series & community. Discover the latest on clinical #innovation, #mhealth & partnerships. Join us at CTE in Barcelona.

#Healthtech innovation community | Our weekly mailer lists the best local events org'd by us, @MATTERChicago & others - link below | Tweets by @zboswell @subbu4

Health 2.0 Chicago @ChiHealthTech

2K Followers 323 Following #Healthtech innovation community | Our weekly mailer lists the best local events org'd by us, @MATTERChicago & others - link below | Tweets by @zboswell @subbu4

Northwestern University Clinical and Translational Sciences (NUCATS) Institute: Speeding transformative research discoveries to patients and the community

NUCATS Institute @NUCATSInstitute

4K Followers 2K Following Northwestern University Clinical and Translational Sciences (NUCATS) Institute: Speeding transformative research discoveries to patients and the community

We help you live your best life by working with you to make research breakthroughs & getting those discoveries into the real world to improve your health ASAP.

Institute for Transla... @ChicagoITM

1K Followers 494 Following We help you live your best life by working with you to make research breakthroughs & getting those discoveries into the real world to improve your health ASAP.

Myrna Farmer @MyrnaFarmer

61 Followers 61 Following Myrna Farmer serves as the Executive Director for Board Relations at World Business Chicago.

Medivizor @medivizor

75K Followers 65K Following Helping people coping with serious or chronic medical conditions make well informed decisions about their health by providing personalized info

Life is about how we react. iTunes (https://t.co/RjZ7lxSLo0), Amazon (https://t.co/0tzGw3Plaq), Google Play (https://t.co/bwypDQ9pNU), Xbox, Playstation Network.

The Ataxian Movie @TheAtaxian

405 Followers 122 Following Life is about how we react. iTunes (https://t.co/RjZ7lxSLo0), Amazon (https://t.co/0tzGw3Plaq), Google Play (https://t.co/bwypDQ9pNU), Xbox, Playstation Network.

Matthew Garms @mgarms2

307 Followers 2K Following Head of Growth @aleysianllc, father of 2 and still bad at golf

Smart Policy Works @SmartPolicyWrks

3K Followers 2K Following Providing organizations with strategies, policies, and training that leads to success.

501(c)3 nonprofit helping teens/YA with chronic illnesses and disabilities globally gain lifestyle programs and digital resources keep living empowered lives.

InvisiYouth Charity @InvisiYouth

1K Followers 916 Following 501(c)3 nonprofit helping teens/YA with chronic illnesses and disabilities globally gain lifestyle programs and digital resources keep living empowered lives.

Treatment Scores @TreatmentScores

8K Followers 9K Following Treatment Score = the net treatment benefit for the patient using shared decision-making between the patient and physician. https://t.co/LsU0EGJvog #health

Jim Greenwood @JimGreenwood

2K Followers 867 Following President & CEO @IAmBiotech, Former Representative from Pennsylvania’s 8th District

NIH-funded network fostering collaborative research among 21 teams of researchers, patients, and clinicians, each focused on a group of rare diseases.

Rare Diseases Clinica... @rarediseasesnet

9K Followers 487 Following NIH-funded network fostering collaborative research among 21 teams of researchers, patients, and clinicians, each focused on a group of rare diseases.

Co-Founder of @rmarkbio. Technologist. Angel Investor. Entrepreneur. Wine enthusiast. Chef. X-fit junkie. Steelers fan for life.

Jason Smith @jasonmcsmith

63 Followers 72 Following Co-Founder of @rmarkbio. Technologist. Angel Investor. Entrepreneur. Wine enthusiast. Chef. X-fit junkie. Steelers fan for life.

rMark Bio @rMarkBio

103 Followers 174 Following

CareBand @Care_Band

2K Followers 2K Following Enabling people to live safely with #Dementia & #Alzheimers | #Safety #Independence #Wearable | Powered by @ThirdWave_IoT

Stir the Sage | Learn... @stirthesage

2K Followers 3K Following Delivering the tools and support necessary to heal wounds and trauma caused by past failures in order to create future opportunities for abundance and success.

nicoleboice @nicoleboice

1K Followers 2K Following Founder RARE-X and Founder/Former CEO of Global Genes #CareAboutRARE #raredisease. Opinions are my own.

Digital community for millions of arthritis patients and caregivers worldwide. Part of @GHLForg | support@ghlf.org

CreakyJoints.org @CreakyJoints

18K Followers 2K Following Digital community for millions of arthritis patients and caregivers worldwide. Part of @GHLForg | [email protected]

Founder of @Ataxia_and_Me to support #Ataxia (Rare Neuro. condition) from the #patient view. PASSIONATE about Inclusion for #disabled citizens - views are mine

Alan Thomas @alanROYGBIV

3K Followers 2K Following Founder of @Ataxia_and_Me to support #Ataxia (Rare Neuro. condition) from the #patient view. PASSIONATE about Inclusion for #disabled citizens - views are mine

Jen VanHoutan @FarnieVanHoutan

568 Followers 810 Following Mom of 4. Batten disease & rare disease advocate 💙💜 Loyola Chicago & John Felice Rome Center alum

Annette Maughan @NettMon

189 Followers 269 Following

Conquer a rare skeletal disease. Congenital fusion of cervical spine. Organs, nerves, muscles. 🗝 Research | Educate | Empower | Advocate
#Genetic #Neuro #Pain

Klippel-Feil Syndrome... @KFS_Freedom

2K Followers 3K Following Conquer a rare skeletal disease. Congenital fusion of cervical spine. Organs, nerves, muscles. 🗝 Research | Educate | Empower | Advocate #Genetic #Neuro #Pain