PCD Foundation @PCDFoundation
Working together to find a cure and improve care for those with ciliary disorders and their families by increasing awareness, research and support. pcdfoundation.org HQ in MN, USA Joined March 2009-
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October is PCD Awareness Month! - mailchi.mp/pcdfoundation.…
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Announcing Our New Website for PCD Awareness Month! - mailchi.mp/pcdfoundation.…
7/01 Deadline: OTM Abstracts & Reports - eepurl.com/jihKjA
7/01 Deadline: OTM Abstracts & Reports - mailchi.mp/pcdfoundation/…
Deadline Today 6/26: PCD OTM Early Bird Registration - eepurl.com/jh3ARA
Deadline Today 6/26: PCD OTM Early Bird Registration - mailchi.mp/pcdfoundation.…
PCD OTM Abstracts & Case Reports: Deadline Approaching - mailchi.mp/pcdfoundation/…
PCD families in the Minneapolis area! We would like to invite you and your family (attendees aged 16+) to an educational half-day to learn more about PCD diagnosis and treatments from an expert panel . For details, click the link below! pcdfoundation.org/wp-content/upl…
Counting Down - PCD OTM 2025! Don’t miss your chance to register by June 26 to take advantage of early bird pricing! - mailchi.mp/pcdfoundation.…
Deadline Clarification: LOIs for PCDF Network for Clinical Trials Regional Hubs Due Friday, June 13 - mailchi.mp/pcdfoundation.…
PCDF NCT Regional Hub Proposal: Zoom Recording and Upcoming Deadline - mailchi.mp/pcdfoundation.…
PCDF NCT Regional Hub Proposal: Join Our Informative Q&A - mailchi.mp/pcdfoundation/…
PCDF NCT Regional Hub Proposal: Join Our Informative Q&A - mailchi.mp/pcdfoundation/…
PCDF NCT: Proposal for Founding Regional Hub Centers - mailchi.mp/pcdfoundation/…
Join Us: ATS PAR 'Patients and Experts Forum' May 16, San Francisco, CA - eepurl.com/jdCbUI
Join Us: ATS PAR 'Patients and Experts Forum' May 16, San Francisco, CA - mailchi.mp/pcdfoundation.…
PCD OTM Scientific Conference 2025, Minneapolis: Call for Abstracts & Case Reports - mailchi.mp/pcdfoundation/…
PCD OTM Scientific Conference: Registration is Open! - mailchi.mp/pcdfoundation.…
Sending Warm Holiday Wishes & Thanks to Our PCD Community - mailchi.mp/pcdfoundation.…
Prof Jane Lucas 💙 @JaneSLucas1
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Lucy Dixon @LucyD28
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James D Chalmers @ProfJDChalmers
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Katie Horton @BiofilmHorton
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Yin Ting Lam @YinTing_Lam
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International PCD Phy... @PcdPhysio
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Myrona Goutaki @mgoutaki
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Running On Air @RunningOnO2
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Moe Mahjoub 🇨🇦�... @MahjoubLab
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Amelia Shoemark @Shoemelia
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Amanda Harris @mandalea98
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heidi bjornson @heidibp
722 Followers 1K Following Rare Disease Advocate, #PCD, #RareAsOne Program Manager, @CZIScience, Attorney, Mom
BIU Southampton @BIUSoton
539 Followers 517 Following Microscopy unit doing NHS and University diagnostic, research and outreach work.
Dr Claire Jackson �... @_Claire_Jackson
343 Followers 522 Following Mum, Mrs Myers, PhD, Primary Ciliary Dyskinesia (PCD) Scientist, Swimmer, Cyclist https://t.co/mmEiTtHlJm
Andreia Pinto @Cellfie3
432 Followers 327 Following Advanced workflow application specialist at Leica Microsystems 🇵🇹👩🏼⚕️🔬🔮 #cell #nerd #electronmicroscopy #workflow #protocol
DCPES. Discinesia Cil... @dcpes_org
159 Followers 86 Following Asociación Española de Discinesia Ciliar Primaria / Síndrome de Kartagener Primary Ciliary Dyskinesia La visibilidad nos ayuda al diagnóstico y al tratamiento.
Amjad Horani @horaniLab
304 Followers 59 Following Associate Professor at Washington University. Physician and scientist, interested in PCD, cilia, lung disease, and cool science.
Vasiliki Gkatzou @VGkatzou
7 Followers 32 Following PhD Candidate in Epidemiology @ISPMBern | Medical doctor| MSc in Biomedical engineering| Member @beatpcd
Andrea Fernandez-Rodr... @andrea_fernro
9 Followers 53 Following PhD Candidate in Epidemiology @ISPMBern |Public Health researcher |Clinical Psychology specialist | Member @beatpcd
JillLytton @cu2jlXEC089Qs6X
28 Followers 1K Following
Nena Karavasiloglou, ... @Nena_epi
287 Followers 484 Following Postdoctoral research fellow @ISPMBern Epidemiologist | Researcher | Registered dietitian | Member @beatpcd | she/her Views my own.
Nitin Dhochak @NitinDhochak
1 Followers 25 Following
K R A Reddy @krareddy979
263 Followers 478 Following
Whiseym @whiseym12823
27 Followers 2K Following Love should make people gentle and brave, not make people feel aggrieved or compromised from time to time
Ghaida @GhaidaAbdullaah
220 Followers 2K Following A mom of TWO beautiful girls | faculty @umajmaah | MS in Information Systems @CUDenver l interested in Digitalization, Fintech, and Startups.
Dianova International @Dianova_org
3K Followers 3K Following Swiss NGO empowering lives in 17 countries, advocating for health, equality & social integration. Driving change through global action & local impact.
Kelly @Kelly1298015777
28 Followers 3K Following
Alwatheq Al-Itelat @WatheqAlitelat
122 Followers 265 Following Internal medicine PGY-1 | Research collaborator @MayoPCCM| @UJ_MED 23’
Mike @Mpezz17
1 Followers 198 Following
valentina papa @valentinapapa82
175 Followers 855 Following Electron microscopist, Clinical Pathology Specialist, scientist. 🌊Sea lover, sushi addicted 🍣
Tesyso @TesysoWozLP_0
25 Followers 491 Following
Cris @cipristas
6 Followers 289 Following
Naif @NHazmil
49 Followers 1K Following Life beneath & beyond the surface 🤿🌍 | Human Resources Operations Manager
HealthRanger @HealthRanger11
744 Followers 7K Following Founder of Brighteon and Natural News, mass spec food lab director, #1 bestselling author of "Food Forensics," patent holder and decentralized tech maverick
EB @lizbruce24
114 Followers 927 Following
Caroline Dodds 💙 @cazwroe
716 Followers 2K Following Military wife // Mum to two boys //Principal physiotherapist with special interest in ICU, pre-hab and ERAS// ex CSP union representative// views my own!!
Gen James C.McConvill... @Genjames167
96 Followers 2K Following
Fatihin Fedaisi @Fa57516Fedaisi
246 Followers 6K Following
Ernst Junior Roger @ernst8976
244 Followers 6K Following
PRODEF asbl @Prodefasbl
65 Followers 1K Following Une association sans but lucratif engagée pour la paix, l'égalité et le développement des femmes et enfants vulnérables au Sud-Kivu en RDC #Paix #Développement
Myra Tipping @MyraTipping
6 Followers 31 Following
Giulia Spoletini @SpoletiniGiulia
24 Followers 103 Following
Barnabas Roland @TrainingCPers
189 Followers 492 Following recruiting prayer for training church planters: discipling. mentoring. orality strategies. heart language media&arts. contextualized theological training.
Marta Almagro @martaalmagro
371 Followers 645 Following Paciente crónica. Bronchiectasis Patient Advisor. Activista propaciente, salud y humanidad. https://t.co/IAiK6ThZvt
Clare Delaney @MsClareDelaney
473 Followers 881 Following Regional Fundraiser at Fire Fighters Charity for Essex, Hertfordshire and Suffolk
John Paul Klebs @Klebsjo
106 Followers 220 Following
May Al @Al9008449452Al
0 Followers 32 Following
Annabelle Panteney @anniepanteney
34 Followers 72 Following Clinical Specialist Physiotherapist 👐🏻 CSP registered. Coventry University 🎓
noorulafidza @afidzanoorul
73 Followers 327 Following Consultant in Respiratory Medicine at HSDG #ILD #PulmonaryFibrosis Opinions are my own
Markell @M____Smith
0 Followers 40 Following Paralegal, mba, 5 kids, blended family, mom to PCD warrior
Lydia Newman @LydiaNewman24
1 Followers 21 Following NIHR Doctoral Fellow Obstetrics and Gynaecology doctor Researching fertility and pregnancy in primary ciliary dyskinesia (PCD) @NHS and UoS (views my own)
ECO PHYSICS, INC. @ECOPHYSICS_US
85 Followers 175 Following ECO PHYSICS is the world's foremost manufacturer of chemiluminescence NOx & Ammonia Analyzers, and pulmonary research scientific instruments.
Anand NATANAM @Nattubhai2012
2 Followers 85 Following
Against__Copd @Against___Copd_
17 Followers 427 Following Denounce me as much as you want but I always end up reappearing and denouncing the truth about this disease that has been pushed aside for 3centuries(300 years)
Against_Copd @__Against_Copd_
5 Followers 370 Following report me as much as you want but I always end up reappearing and denouncing the strict truth about this disease forgotten for more than half a century
Necia Sabin @NeciaSabin
2 Followers 8 Following
Dr Shafa Waters @ShafaWaters
1K Followers 2K Following Group Leader @miCFResearchLab | Scientia Senior Lecturer @UNSWMedicine @sydney_kids. We create #organoids to study #rare lung disorders #PersonalisedMedicine.
Amber Jans @amberjans
724 Followers 4K Following Hi I'm v tired! • Disabled, impoverished, mad abt the plague, tired, tired, there are good things too, profound inability to summarize, love Jesus & also people
Global Allergy & Airw... @gaapporg
2K Followers 414 Following GAAPP represents more than 150 organizations working to improve the quality of life of people who have #allergies, #airways, or #atopic diseases world-wide.
Trini López Fernánd... @TriniLpezFernn1
30 Followers 50 Following
1st North American Br... @NABronchNTM
8 Followers 44 Following December 9-10, 2024 | New York, NY In-Person and Livestreaming
Prof Jane Lucas 💙 @JaneSLucas1
920 Followers 454 Following Paediatric Pulmonologist and Professor at University of Southampton; Primary ciliary dyskinesia & all things motile cilia. And some other thoughts, all my own.
PCD Support UK @PCD_UK
1K Followers 696 Following We talk about Primary Ciliary Dyskinesia (PCD) as widely as possible, and champion research to improve its diagnosis, management and treatment.
Mathieu Bottier, PhD @mathieu_bottier
763 Followers 643 Following PhD in Engineering Sciences | Biomedical engineer in translational research | Ciliary function & AI diagnostics | @RBandH @ImperialNHLI | Member @BeatPCD
BEAT-PCD (ERS CRC) @beatpcd
785 Followers 197 Following @EuroRespSoc Clinical Research Collaboration - Multidisciplinary network coordinating research & improving clinical care of Primary Ciliary Dyskinesia (PCD)
Lucy Dixon @LucyD28
346 Followers 809 Following Chair of @PCD_UK. Day job = NHS researcher. Unhealthy attachment to Gilmore Girls, Wales & coffee. Love mountains, lungs permitting. Views my own.🏴
James D Chalmers @ProfJDChalmers
9K Followers 2K Following Asthma and Lung UK Chair of Respiratory Research, University of Dundee. Chief Editor of the European Respiratory Journal. Tweets in a personal capacity
Yin Ting Lam @YinTing_Lam
303 Followers 340 Following Paediatrician, paediatric pulmonology fellow, epidemiologist. Primary ciliary dyskinesia
Myrona Goutaki @mgoutaki
526 Followers 378 Following Paediatric respiratory epidemiology,Primary Ciliary Dyskinesia Also tweet as @beatpcd and as @PCD_ispm All tweets reflect my personal opinions only
Running On Air @RunningOnO2
386 Followers 177 Following Running On Air, Inc. is a 501(c)(3) working to improve the lives of those on supplemental oxygen and those with lung diseases and rare diseases
Amelia Shoemark @Shoemelia
641 Followers 712 Following
Susan Dutcher @DutcherLab
669 Followers 104 Following We love genetics, structure, mechanics, and DNA sequencing for studying cilia. We are very fond of Chlamydomonas for sharing its secrets with us.
Amjad Horani @horaniLab
304 Followers 59 Following Associate Professor at Washington University. Physician and scientist, interested in PCD, cilia, lung disease, and cool science.
Søren T. Christensen @t_soren
925 Followers 365 Following The Cilia Group Copenhagen, primary cilia, cellular signaling, development
CZI Science @cziscience
27K Followers 550 Following Science news and updates from the @ChanZuckerberg
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
ATS_Assemblies @ATS_Assemblies
5K Followers 1K Following Follow @ATS_Assemblies for news and updates on the American Thoracic Society’s 14 Assemblies and Sections! 🫁
ADCP Sabine @Peuchamiel1
70 Followers 125 Following Atteinte d'une maladie rare, la DCP, j'oeuvre pour la reconnaissance de cette maladie et du handicap. @ASSODCP
UCSF Pediatric Pulmon... @UCSFpedsPulm
545 Followers 643 Following Pediatric Pulmonary- Your pediatric lung experts at @UCSFChildrens and @UCSFBenioffOAK
Ciliopathy Alliance @CiliaAlliance
910 Followers 581 Following
Dr. W. Wee @drwwee
10 Followers 8 Following Engineer turned Pediatric Respirologist! Merging medicine, tech and AI to improve patient care in PCD, rare lung diseases and beyond!
Leah Remini @LeahRemini
814K Followers 906 Following Mom | Amazing Ex-Wife to Angelo | Actress & Producer Author | Advocate | Intolerant of Bullies, Bull**** & Injustice
Maureen Barr @Barr_lab
4K Followers 1K Following Genetics professor #RutgersU; my lab studies tiny things #cilia #extracellularvesicles; three boy mom; retired marathoner; she/her
Bülent Karadag @karadag68
5K Followers 2K Following Marmara Universitesi, Profesör, Paediatric pulmonologist. Hayatta herkesten öğrenecek birşeyim var, her anın değerlendirilmesi ve zevk alınması=Mutluluk.
Venkatramanan @ventigers
369 Followers 862 Following Post doc @UVA ...love exploring cells with cilia...now working on 🐸
Marrah Lachowicz-Scro... @LachowiczMarrah
1K Followers 3K Following Branch Chief, Lung Development and Pediatric Diseases Branch, Division of Lung Diseases, NHLBI. Any opinions expressed are my own not the views of my employer.
Terri Laguna MD MSCS ... @terrilaguna
1K Followers 1K Following Latina pediatric lung doc, fierce advocate for equity, diversity and inclusion. Strong and powerful women rock. Science saves lives. My opinions are my own. 🌈
Chan Zuckerberg Initi... @ChanZuckerberg
27K Followers 451 Following We are working at the intersection of AI and biology to advance science, build powerful technologies and transform health.
PCD/Kartagener Syndro... @pcdcyprus
142 Followers 325 Following Cyprus-based NGO, aiming to provide support and guidance to patients with PCD and Kartagener Syndrome #PrimaryCiliaryDyskinesia #Kartagenersyndrome #PCD
PCD Scotland @PCD_Scotland
193 Followers 122 Following The Twitter page for PCD Scotland! Follow us for all things PCD. https://t.co/G9xS5KkXOa
Zoho Social @ZohoSocial
111K Followers 184 Following #SocialMediaManagement software for businesses and agencies. Part of the @Zoho suite.
ERS @EuroRespSoc
32K Followers 465 Following The European Respiratory Society is dedicated to sharing scientific knowledge, fighting lung disease and promoting lung health.
ATS Blue Journal @ATSBlueEditor
20K Followers 403 Following Posting content from the American Journal of Respiratory and Critical Care Medicine; follows do not indicate endorsement. #pulmCC #sleepmed #AJRCCM #RespEd #ATS
AARP Advocates @AARPadvocates
44K Followers 3K Following Nonprofit. Nonpartisan. We work with our members and advocates to fight to lower Rx prices, strengthen Social Security and Medicare, and more.
RDLA @RareAdvocates
6K Followers 2K Following A program of the EveryLife Foundation committed to growing the patient advocacy community and working collaboratively, thereby amplifying the patient voice!
Elleryslife @elleryslife
61 Followers 42 Following Singer|Songwriter|Guitar|Classical Pianist and Flutist|PCD Advocate|Model|Actress|Dancer| taking my own path with lots of [email protected] for bookings
Lynn Ehrne @PCDsiGirl88
123 Followers 543 Following
Ambry Genetics @AmbryGenetics
8K Followers 2K Following As a company built by scientists, genetic counselors and physicians, Ambry, a Tempus company, is your partner in #genetics and #genomics.
Invitae @Invitae
13K Followers 2K Following Bringing comprehensive genetic information into mainstream medicine to improve healthcare. To read our community guidelines, visit https://t.co/EhmweQKgU7
Erika Clark @ErikaHClark
710 Followers 905 Following Marketing Manager focused on customer experience in digital spaces. Or as my dad says, I work on the computer with the Google.
Maya's March @mayasmarch
201 Followers 305 Following Maya's March - Ongoing events aimed at Raising funds for PCD Research at Hospital for Sick Children.
PCD Australia @PCDAustralia
244 Followers 58 Following Primary ciliary dyskinesia (PCD), also known as immotile ciliary syndrome or Kartagener Syndrome , is a rare, ciliopathic, autosomal recessive genetic disease.
HeterotaxyConnection @HeterotaxyOrg
206 Followers 214 Following A nonprofit organization dedicated to the support, education, and empowerment of the heterotaxy community. Connecting families with resources and each other.
Chuck Mohan @ChuckUMDF
838 Followers 206 Following Founder and Chair Emeritus of the United Mitochondrial Disease Foundation(https://t.co/ZLfvTiDdHD)
Fiona Copeland BEM @pcdmum
641 Followers 964 Following Mum to adult sons with rare genetic lung condition, Primary Ciliary Dyskinesia. Also interested in running, watching Rugby and F1.Trends for United States
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